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Sourcing and storage of Saline solutions of Methylcobalamin
I have intermittently come across concerns on this site regarding the supply and thermal/photo stability of saline solutions of methyl cobalamin. Since I wanted to source a saline solution myself I thought the following information would be of general interest. 1. Having been unimpressed by sourcing
I have intermittently come across concerns on this site regarding the supply and thermal/photo stability of saline solutions of methyl cobalamin. Since I wanted to source a saline solution myself I thought the following information would be of general interest. 1. Having been unimpressed by sourcing
Achesandpains75
in
Pernicious Anaemia Society
5 years ago
Anxiety over Neti pot I used
I have anxiety pretty bad during this pregnancy I’m freaking out over me using the Neti pot for my nasal issues I used tap water not knowing because I never used it before so I used the sink tap water but I also used the saline packet it came with an I mixed it in I’m freaked out because I read it causes
I have anxiety pretty bad during this pregnancy I’m freaking out over me using the Neti pot for my nasal issues I used tap water not knowing because I never used it before so I used the sink tap water but I also used the saline packet it came with an I mixed it in I’m freaked out because I read it causes
E2013
in
Anxiety Support
5 years ago
saline solution
I have C.O.P.D and have read that saline solutions help. Does anyone use it and if so how do you go about it. Anything to stop using steroids.
I have C.O.P.D and have read that saline solutions help. Does anyone use it and if so how do you go about it. Anything to stop using steroids.
robotman
in
Lung Conditions Community Forum
5 years ago
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Saline nebs when ill
Anyone else here use saline nebs when they’re ill? They don’t help my bronchi to open up or anything but they make it easier to cough properly. They were recommended to me a few hospital stays back just for when I’ve got a cold or I’m in a flare or something but it occurs to me it’s not a common thing
Anyone else here use saline nebs when they’re ill? They don’t help my bronchi to open up or anything but they make it easier to cough properly. They were recommended to me a few hospital stays back just for when I’ve got a cold or I’m in a flare or something but it occurs to me it’s not a common thing
Hidden
in
Asthma Community Forum
5 years ago
Quick update on me, bloodwork
I went off ocaliva last month, staying on urso, at doctors suggestion. My ALP was essentially unchanged from the last test. I’m starting a fibrate this weekend, hoping I will respond to that. Been sick for a couple weeks with strep and such but now feeling great and very optimistic about everything.
I went off ocaliva last month, staying on urso, at doctors suggestion. My ALP was essentially unchanged from the last test. I’m starting a fibrate this weekend, hoping I will respond to that. Been sick for a couple weeks with strep and such but now feeling great and very optimistic about everything.
Ottley3
in
PBC Foundation
5 years ago
New asthma team
I used to be on this forum under a different pseudonym so hi again! My asthma seemed to be going well; until last week, my last attack was ‘just’ a severe one back in August 2017. Caught it early, out the same night. In March this year, I stepped my Seretide inhaler down from 250/25 (2 puffs twice a
I used to be on this forum under a different pseudonym so hi again! My asthma seemed to be going well; until last week, my last attack was ‘just’ a severe one back in August 2017. Caught it early, out the same night. In March this year, I stepped my Seretide inhaler down from 250/25 (2 puffs twice a
Hidden
in
Lung Conditions Community Forum
5 years ago
MRE (Magnetic Resonance Elastography) "My Results" So much for trusting Biopsy and Ultrasound. Also... High ferritin may skew MRE score.
Hey friends, My Biopsy 2 years ago said "zero" evidence of PBC. My labs though said I had PBC. I was put on URSO since 2016. Only thing elavated for 2 years has been my Alk-phos. It fluctuated between 157-187 approx. Then Sept./Oct. this year, I felt nauseous and URQP. Labs jumped including AST & ALT
Hey friends, My Biopsy 2 years ago said "zero" evidence of PBC. My labs though said I had PBC. I was put on URSO since 2016. Only thing elavated for 2 years has been my Alk-phos. It fluctuated between 157-187 approx. Then Sept./Oct. this year, I felt nauseous and URQP. Labs jumped including AST & ALT
Ktltel
in
PBC Foundation
5 years ago
Maybe I shouldn’t post OCALIVA side effects. I’m hoping everyone here knows them
MEDICATION GUIDE OCALIVA (o-CAL-eh-vah) (obeticholic acid) tablets What is the most important information I should know about OCALIVA? If you have primary biliary cholangitis (PBC) with advanced cirrhosis, you may need a lower dose of OCALIVA. • Before you start OCALIVA, and during your treatment
MEDICATION GUIDE OCALIVA (o-CAL-eh-vah) (obeticholic acid) tablets What is the most important information I should know about OCALIVA? If you have primary biliary cholangitis (PBC) with advanced cirrhosis, you may need a lower dose of OCALIVA. • Before you start OCALIVA, and during your treatment
SunnyXXOO
in
PBC Foundation
6 years ago
Ocaliva
Hi I have been on Ocaliva for 3 weeks and was wondering if anyone felt that it had caused them any low mood and depression. Really not liking this feeling at all. Thanks
Hi I have been on Ocaliva for 3 weeks and was wondering if anyone felt that it had caused them any low mood and depression. Really not liking this feeling at all. Thanks
Jayne1863
in
PBC Foundation
6 years ago
High ALP and itching
After a year on Urso my ALP is still in the mid-500's (down from mid 700"s). Wondering if the occasional really itchy day is related to the high ALP level? I take 3 prescription meds. for the itch and it is better than a year ago. At my last Dr's appointment he mentioned that we'd discuss adding Ocaliva
After a year on Urso my ALP is still in the mid-500's (down from mid 700"s). Wondering if the occasional really itchy day is related to the high ALP level? I take 3 prescription meds. for the itch and it is better than a year ago. At my last Dr's appointment he mentioned that we'd discuss adding Ocaliva
kp1234
in
PBC Foundation
6 years ago
Non-responders
Hi Just wondered how many of us are considered non-responders and are in the slightly over upper end of normal to around the 200 range of Alkaline Phosphatase who have stayed on Ursodiol only. How long have you been in this range? Have your symptoms advanced? I am also AMA-negative. I was diagnosed
Hi Just wondered how many of us are considered non-responders and are in the slightly over upper end of normal to around the 200 range of Alkaline Phosphatase who have stayed on Ursodiol only. How long have you been in this range? Have your symptoms advanced? I am also AMA-negative. I was diagnosed
Twojer
in
PBC Foundation
6 years ago
I'm venting...... 🙁
Hi everyone, I'm gonna apologize right now cause I'm venting. 😣 You don't have to read it. And thank you to the ones who stick it out. I'm sure my story is a familiar one. Being accurately staged? Is this something that can be done? I read about so many of us who have been told one thing by our doctors
Hi everyone, I'm gonna apologize right now cause I'm venting. 😣 You don't have to read it. And thank you to the ones who stick it out. I'm sure my story is a familiar one. Being accurately staged? Is this something that can be done? I read about so many of us who have been told one thing by our doctors
Ktltel
in
PBC Foundation
6 years ago
Feeling like I want to scream and have a proper tantrum
I rarely post a message but feel part of the community here, I have learnt lots and understand so much more than I did 6 years ago, that is due to all you wonderful people living with this difficult disease sharing yourselves - thank you I am so frustrated right now, I have been seeing a rheumy consult
I rarely post a message but feel part of the community here, I have learnt lots and understand so much more than I did 6 years ago, that is due to all you wonderful people living with this difficult disease sharing yourselves - thank you I am so frustrated right now, I have been seeing a rheumy consult
Anjic
in
LUPUS UK
6 years ago
5 month Cough
Hey guys, I've had this terrible cough for about five months now. It doesn't happen when Im sleeping but during the day I'll often cough up phlegm or dry heave from the cough. I went and saw my GP and they sent me for breathing tests and a chest X-Ray. Nothing showed up and my breathing was normal. I
Hey guys, I've had this terrible cough for about five months now. It doesn't happen when Im sleeping but during the day I'll often cough up phlegm or dry heave from the cough. I went and saw my GP and they sent me for breathing tests and a chest X-Ray. Nothing showed up and my breathing was normal. I
iHateThisCough
in
Lung Conditions Community Forum
6 years ago
Question for Ocaliva patients - 5 mg or 10?
Hi! A question for my fellow Ocaliva people .... is it true that everybody starts at 5 mg and then is moved up to 10 mg? I’ve been on 5 mg for almost a year. AST and ALT are close to normal but ALP is very high and my doctor has suggested going to 10. When last staged ( a year ago) I was at stage 0/1
Hi! A question for my fellow Ocaliva people .... is it true that everybody starts at 5 mg and then is moved up to 10 mg? I’ve been on 5 mg for almost a year. AST and ALT are close to normal but ALP is very high and my doctor has suggested going to 10. When last staged ( a year ago) I was at stage 0/1
Ottley3
in
PBC Foundation
6 years ago
Self injecting, where to buy supplies US? Bad reaction.
Hi everyone! I purchased methyl powder from oxford biosciences and had the most difficult time finding syringes and NaCL in the US. I ended up finding sterile saline in pre-filled tubes from Healthykin.com. The first time I did an injection it was okay, but certainly not energizing like the ones I’ve
Hi everyone! I purchased methyl powder from oxford biosciences and had the most difficult time finding syringes and NaCL in the US. I ended up finding sterile saline in pre-filled tubes from Healthykin.com. The first time I did an injection it was okay, but certainly not energizing like the ones I’ve
S3lf-h3al3r
in
Pernicious Anaemia Society
6 years ago
My First Ocrevus Treatment
It went pretty good today. I got there at 9:30 am and left at about 3 pm. I was hydrated so no problem with the needle. I didn't have any site reaction or any other reactions at all. It was almost as if they only gave me saline only for 4 1/2 hours. The worst part was having to sit in a recliner
It went pretty good today. I got there at 9:30 am and left at about 3 pm. I was hydrated so no problem with the needle. I didn't have any site reaction or any other reactions at all. It was almost as if they only gave me saline only for 4 1/2 hours. The worst part was having to sit in a recliner
hairbrain4
in
My MSAA Community
6 years ago
Lu-177-PSMA First Infusion
My father received his first treatment yesterday September 7th. This is a picture after his 1st infusion. The past 6 weeks waiting has been truly roughest we have experienced. He has had severe abdominal pains, difficulty urinating requiring surgical placement of a suprapubic tube. He has ha bleeding
My father received his first treatment yesterday September 7th. This is a picture after his 1st infusion. The past 6 weeks waiting has been truly roughest we have experienced. He has had severe abdominal pains, difficulty urinating requiring surgical placement of a suprapubic tube. He has ha bleeding
Daddysdaughter
in
Advanced Prostate Cancer
6 years ago
Pots weird blood test ?
Hey i was just wondering if any one could help me i have dysautomia pots plus me/cfs plus histimine intolerance and far few other things that my tierd finger won't let me type (i have normal person cold on top all this swear somone hates me up there!)i get to point does any no anythink about polycythaemic
Hey i was just wondering if any one could help me i have dysautomia pots plus me/cfs plus histimine intolerance and far few other things that my tierd finger won't let me type (i have normal person cold on top all this swear somone hates me up there!)i get to point does any no anythink about polycythaemic
H2090
in
Myalgic Encephalomyelitis Community
6 years ago
Trying to cope with TN
I've had TN for 6 years now. Over this time I've taken Gabapentin, Amytriplin & Carbamenzapine. All have roughly the same side effects which are tiredness, foggy brain, unable to pronounce words, dizziness and a few more. Carbamenzapine is the only one that has helped me until April this year when I
I've had TN for 6 years now. Over this time I've taken Gabapentin, Amytriplin & Carbamenzapine. All have roughly the same side effects which are tiredness, foggy brain, unable to pronounce words, dizziness and a few more. Carbamenzapine is the only one that has helped me until April this year when I
TLCP-girl
in
Foggy's "Invisible Illness" Support
6 years ago
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