Experiences with

Artificial saliva

I was diognosed with sle lupus and sjogrens in Dec 22 and was put on hydroxychloroquine plus drops /ointments for eyes artificial saliva ect ect. Since then I have had countless uti,s throughout. I'm on my 5th lot of antibiotics from October 23 to now so in space of 3 months.

https://perniciousanemia.org/b12/injections/buy/#order Whilst scrolling around I came across the above site. Probably known about by members - but not me ! Whilst many struggle to obtain adequate B12 treatment schedules it seems a UK lab is supplying the US ! Can this be right ? Surely not....it seems

hi all-haven’t been on here for a while dealing with things. Update on hubby: He is currently on 7.5 mg of methadone and .5 Xanax for sleep. He can’t sleep in bed or lying down because he can’t breathe well….mostly due to severe nasal congestion. He is only using saline nose drops now because the

Hello and first of all Merry Christmas/Happy Holidays 🎄🎉 Chronic daytime sleepiness has been an issue for me since developing PBC. Fatigue and cognitive issues have also been significant at times too. I’ve found the cognitive issues improved significantly after starting Ocaliva in June last year.

https://www-fiercepharma-com.webpkgcache.com/doc/-/s/www.fiercepharma.com/pharma/fda-declines-grant-intercepts-ocaliva-full-approval-rare-liver-disease

https://www.fda.gov/safety/medical-product-safety-information/ocaliva-obeticholic-acid-intercept-pharmaceuticals-drug-safety-communication-serious-liver-injury Thanks for someone bringing this to my attention in her recent post. I think this really enforces the need for close monitoring of our liver

I saw where the FDA issued a warning on ocaliva 12/12, because of serious liver injuries in patients who do not have cirrhosis. This is scary considering that’s the only drug I’ve been able to take and been on it since 2017. Do I wait for my dr to reach out to me or do I go ahead and send a msg?

Hello All, I haven’t posted for a while thankfully…. I have treated narrow angle glaucoma, have had 2 rounds of laser iridotomy, and I am using Cosopt Preservative Free eye drops twice a day since 28.11.2023 to control my eye pressures. I can always taste the eye drops after I have put them in and

Hi, I was thinking of asking for an Aerobika device as a Xmas present to assist with clearing my lungs. But I’m not sure how effective they really are. I have bronchiectasis. I read you shouldn’t use them if you have blood in your phlegm. I don’t really have this currently but sometimes have streaks

[i]“This eliminates the need for skilled personnel such as nurses and technicians to administer injections, while also reducing risks of contamination and sharp waste."[/i] Effective, inexpensive, and simple formulation can be stored at room temperature November 21st, 2024 Professor Ronit

Distorted hearing on anything above soft sounds after ear wax removal using micro suction. Very poor guidance from ENT and several doctors and audiologist. I think I just cured myself. After trying endless saline flushes, steroidal nasal spays, valsalva maneuver and many ear pooping methods, today

Today is the four year anniversary of the start of a 6 day hospitalization. B12 diagnoses was made. At the hospital I was in they only measure to 150 on the low end so I have no idea what my level actually was. One hematologist stated I could have made it 3 weeks but not 4 without dying. Was given

Has anyone taken this new drug? My hepatologist has offered for me to try it since Ocaliva isn’t keeping my ALP down to a desirable level. Your thoughts?

Hi everyone The ENT consultant has put me on gaviscon advance incase of silent reflux and sterimar saline nasal spray for the sinuses This is because of my voice problems as they might be irritating the vocal cords. The problem I have is that I seem to have more loose phlegm that I’m coughing up

I have been ill for a week now with my first exacerbation since my bronchiectasis diagnosis in late Spring. I am on Day 6 of doxycycline and still too ill to do much other than lie in bed. It’s like a really bad bronchitis with fever and horrendous coughing. I worry about the further damage this is doing

In many cases, the cause of RLS remains unknown. I conducted a long study and found the cause of RLS in my case. It's unlikely that my case is unique—though it's hard for me to judge how common it is, as one case can hardly be considered representative :). So, I’m sharing my findings here, hoping they

I recently switched to this formulation and had a couple of questions? One is about contamination - I have seen this come up a lot but the company did not give any advice about this in the instructions. Is contamination a real risk if I am only opening the vial to draw up, using a single use needle

hi. Firstly, whenever bloods taken in Australia, it’s every test, from T3/4/TSH and all vitamins etc. With that said, and I had total thyroidectomy plus RAI after papillary cancer. Endo has me on 125 Eltroxin, keeping me low TSH. He says this is best after thyroid cancer. Feeling no energy and 2

I have been diagnosed with EDAC within the last year but I believe I’ve had it all my life because for as long as I can remember I have always had difficulty breathing out. I’m 73 years old 74 in December and was diagnosed with asthma in the 60’s On my EDAC diagnosis I was give a APAP machine (and automatic

With a week to go before the end of my 3 month blanking period without any sign of AF, I was feeling pretty good about it. Then a day ago I submitted to having a bronchoscopy at the local hospital, investigating source of occasional blood in sputum (convinced it's anticoagulant related). Procedure all