Experiences with

Artificial saliva

I was diognosed with sle lupus and sjogrens in Dec 22 and was put on hydroxychloroquine plus drops /ointments for eyes artificial saliva ect ect. Since then I have had countless uti,s throughout. I'm on my 5th lot of antibiotics from October 23 to now so in space of 3 months.

I guess it was bound to happen. Yesterday on a 5km run in s delightful part of the Algarve, I slipped on some loose gravel stepping off a kerb and went sprawling. I badly cut my right arm, sprained my right ankle and grazed my left knee. I was at the furthest point of my run so had a 2.5 km limp back

My mum was diagnosed with liver disease on the 2nd January 2025, she spent 2 weeks in hospital very ill, her improvement over the 2 weeks was incredible, she is severely malnourished but was looking the best I had seen her in a long time. she spent 2 weeks at home before being readmitted through a and

https://academic.oup.com/braincomms/article/6/4/fcae193/7736990?login=false Hey there - came across this one on my usual search and found it quite compelling. 2% Trehalose - nose spray, pretty easy to prepare for oneself. I find different number depending on logic for dose equivalent, roughly x 12

Hi. I suffer from bronchiectasis and have incredible trouble shifting the sputum on my lungs. I take Carbocisteine, Montelukast, Fostair inhaler and nebulise with salbutamol and saline. My breathing exercises give little relief and I have tried a flutter device. I have just read about the “HydroBubble

Hi, I’ve recently reluctantly agreed to try nebulising colomycin. It’s going ok apart from being so time consuming. It takes ages for the saline to completely dissolve the powder, and in spite of gently rolling, not shaking, the bottle, it still gets frothy when nebulising. Any advice please? 😊

Hard to describe but I've had it for a while in my left ear where I make circles on the ear where the jaw is. So the bit of skin that is on the face right next to the ear. I can hear/sense stuff inside, like wax or mucus maybe. The right ear doesn't do it and doesn't ring either, just the left. I did

Ok, this is not complaining but sharing and also an awareness or warning for anyone going into surgery for anything. As some of you know, I had to lose weight in order to get on the transplant list. I did, but then, I was measured for my height and shrank two inches, so I was again over the BMI. I was

I had a saline scan on Friday where I understood they put a balloon in and then some saline. I was on day 7 of my cycle and have been spotting since then ( today is Sunday). Anyone else had a saline scan and did you spot afterwards?

https://perniciousanemia.org/b12/injections/buy/#order Whilst scrolling around I came across the above site. Probably known about by members - but not me ! Whilst many struggle to obtain adequate B12 treatment schedules it seems a UK lab is supplying the US ! Can this be right ? Surely not....it seems

hi all-haven’t been on here for a while dealing with things. Update on hubby: He is currently on 7.5 mg of methadone and .5 Xanax for sleep. He can’t sleep in bed or lying down because he can’t breathe well….mostly due to severe nasal congestion. He is only using saline nose drops now because the

Hello and first of all Merry Christmas/Happy Holidays 🎄🎉 Chronic daytime sleepiness has been an issue for me since developing PBC. Fatigue and cognitive issues have also been significant at times too. I’ve found the cognitive issues improved significantly after starting Ocaliva in June last year.

https://www-fiercepharma-com.webpkgcache.com/doc/-/s/www.fiercepharma.com/pharma/fda-declines-grant-intercepts-ocaliva-full-approval-rare-liver-disease

https://www.fda.gov/safety/medical-product-safety-information/ocaliva-obeticholic-acid-intercept-pharmaceuticals-drug-safety-communication-serious-liver-injury Thanks for someone bringing this to my attention in her recent post. I think this really enforces the need for close monitoring of our liver

I saw where the FDA issued a warning on ocaliva 12/12, because of serious liver injuries in patients who do not have cirrhosis. This is scary considering that’s the only drug I’ve been able to take and been on it since 2017. Do I wait for my dr to reach out to me or do I go ahead and send a msg?

Hello All, I haven’t posted for a while thankfully…. I have treated narrow angle glaucoma, have had 2 rounds of laser iridotomy, and I am using Cosopt Preservative Free eye drops twice a day since 28.11.2023 to control my eye pressures. I can always taste the eye drops after I have put them in and

Hi, I was thinking of asking for an Aerobika device as a Xmas present to assist with clearing my lungs. But I’m not sure how effective they really are. I have bronchiectasis. I read you shouldn’t use them if you have blood in your phlegm. I don’t really have this currently but sometimes have streaks

[i]“This eliminates the need for skilled personnel such as nurses and technicians to administer injections, while also reducing risks of contamination and sharp waste."[/i] Effective, inexpensive, and simple formulation can be stored at room temperature November 21st, 2024 Professor Ronit

Distorted hearing on anything above soft sounds after ear wax removal using micro suction. Very poor guidance from ENT and several doctors and audiologist. I think I just cured myself. After trying endless saline flushes, steroidal nasal spays, valsalva maneuver and many ear pooping methods, today