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Constant uti's
I was diognosed with sle lupus and sjogrens in Dec 22 and was put on hydroxychloroquine plus drops /ointments for eyes
artificial
saliva
ect ect. Since then I have had countless uti,s throughout. I'm on my 5th lot of antibiotics from October 23 to now so in space of 3 months.
I was diognosed with sle lupus and sjogrens in Dec 22 and was put on hydroxychloroquine plus drops /ointments for eyes
artificial
saliva
ect ect. Since then I have had countless uti,s throughout. I'm on my 5th lot of antibiotics from October 23 to now so in space of 3 months.
Lucylou72
in
LUPUS UK
7 months ago
Please watch...
For those of you who belong to The PBC Foundation, please go to their Facebook page. Yesterday Robert and Mo did an hour long webinar on the impact and facts surrounding Ocaliva not being available. This was so informative and helped us see the importance of making 'the powers that be' aware of how
For those of you who belong to The PBC Foundation, please go to their Facebook page. Yesterday Robert and Mo did an hour long webinar on the impact and facts surrounding Ocaliva not being available. This was so informative and helped us see the importance of making 'the powers that be' aware of how
DonnaBoll
Administrator
in
PBC Foundation
3 days ago
FET - fluid/cyst in uterine cavity at mid cycle scan
Hi, I went for my mid-cycle scan ahead of FET today and they said my lining is perfect but they could see two small sacs of fluid/potential cysts in the uterine cavity. I have a 3D saline infusion scan in my previous cycle (14/06) as I had a miscarriage following my last transfer and everything was
Hi, I went for my mid-cycle scan ahead of FET today and they said my lining is perfect but they could see two small sacs of fluid/potential cysts in the uterine cavity. I have a 3D saline infusion scan in my previous cycle (14/06) as I had a miscarriage following my last transfer and everything was
Ctk123
in
Fertility Network UK
4 days ago
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saline for nebulising
Morning everyone, I’m a newbie at nebulising having been helped immensely by my friends on this forum. I’ve been prescribed 0.9 isotonic solution. I’ve had some success at improving my chest clearance but those mucus plugs are very stubborn! On researching I’ve read that saline hypertonic 7% is much
Morning everyone, I’m a newbie at nebulising having been helped immensely by my friends on this forum. I’ve been prescribed 0.9 isotonic solution. I’ve had some success at improving my chest clearance but those mucus plugs are very stubborn! On researching I’ve read that saline hypertonic 7% is much
LizPat30
in
Bronchiectasis Support
4 days ago
saline for nebulising
Morning everyone, I’m a newbie at nebulising having been helped immensely by my friends on this forum. I’ve been prescribed 0.9 isotonic solution. I’ve had some success at improving my chest clearance but those mucus plugs are very stubborn! On researching I’ve read that saline hypertonic 7% is much
Morning everyone, I’m a newbie at nebulising having been helped immensely by my friends on this forum. I’ve been prescribed 0.9 isotonic solution. I’ve had some success at improving my chest clearance but those mucus plugs are very stubborn! On researching I’ve read that saline hypertonic 7% is much
LizPat30
in
Bronchiectasis Support
4 days ago
I very had Takasubo for two years hasnt changed it gets bad when I drink protein shakes. Some flavorings spark it off. Also Overheating
I've had Takasubo for two years, was under huge stress. Drank a protein shake and my body went into complete disfunction. Found I had Takasubo, with extreme low blood pressure. Taking blood thinners is the only help I've gotten. It has now happened many times. Every time I drink protein shakes. The
I've had Takasubo for two years, was under huge stress. Drank a protein shake and my body went into complete disfunction. Found I had Takasubo, with extreme low blood pressure. Taking blood thinners is the only help I've gotten. It has now happened many times. Every time I drink protein shakes. The
Lowbloodpressure
in
British Heart Foundation
11 days ago
small bowel operation
Hello, my consultant has suggested doing a re-section of my small bowel to help my IBS C. Has anyone had this operation and if so, did it make a difference? When I have a really bad flare up, after about ten bowel movements, bile in my stomach goes up my oesophagus and I can’t stop vomiting bile until
Hello, my consultant has suggested doing a re-section of my small bowel to help my IBS C. Has anyone had this operation and if so, did it make a difference? When I have a really bad flare up, after about ten bowel movements, bile in my stomach goes up my oesophagus and I can’t stop vomiting bile until
Harley1020
in
IBS Network
15 days ago
please read and take action
In a post from the other day, I shared with you a statement from the PBC Foundation about this crisis with the availability of Ocaliva. Robert has asked everyone to write to particular people to express your concern and dissatisfaction with this decision. Those who belong to the PBC Foundation can
In a post from the other day, I shared with you a statement from the PBC Foundation about this crisis with the availability of Ocaliva. Robert has asked everyone to write to particular people to express your concern and dissatisfaction with this decision. Those who belong to the PBC Foundation can
DonnaBoll
Administrator
in
PBC Foundation
17 days ago
PBC Foundation Update regarding Ocaliva
Obeticholic Acid in Europe 29/6/2024 We are issuing this guidance in response to the announcement made by the European Medicines Agency (EMA) on 28th June 2024 about the future of obeticholic acid (OCA or Ocaliva) in Europe. We understand that this announcement may cause concern, especially amongst
Obeticholic Acid in Europe 29/6/2024 We are issuing this guidance in response to the announcement made by the European Medicines Agency (EMA) on 28th June 2024 about the future of obeticholic acid (OCA or Ocaliva) in Europe. We understand that this announcement may cause concern, especially amongst
DonnaBoll
Administrator
in
PBC Foundation
18 days ago
Couldn't agree more..
I can't even begin to imagine how this decision to no longer offer Ocaliva to European patients will impact their lives. Many patients take this because of not being able to tolerate Urso or being a partial responder to it. Dr. Gish is truly a defender of what he knows is best for the PBC community
I can't even begin to imagine how this decision to no longer offer Ocaliva to European patients will impact their lives. Many patients take this because of not being able to tolerate Urso or being a partial responder to it. Dr. Gish is truly a defender of what he knows is best for the PBC community
DonnaBoll
Administrator
in
PBC Foundation
18 days ago
Saline Solution IV
When in Scotland the winter before last I inquired in a post here about a Saline Solution IV. The how not to heal and why crowd went berserk. In the USA we have drip bars where one can purchase a Saline Solution IV. The cost is around $100.00 USD. When I travel, go through the stress of improved
When in Scotland the winter before last I inquired in a post here about a Saline Solution IV. The how not to heal and why crowd went berserk. In the USA we have drip bars where one can purchase a Saline Solution IV. The cost is around $100.00 USD. When I travel, go through the stress of improved
WIZARD6787
in
Pernicious Anaemia Society
25 days ago
Tips on how to recover from an ablation
Just had a RF ablation for PAF yesterday at the Harefield Heart Hospital. I'm glad to say the procedure went well. I have two tips to help. 1) ask for your canula to be inserted in the back of your hand rather than just under the elbow.It'smuch more comfortable and easier to find a vein and to extract
Just had a RF ablation for PAF yesterday at the Harefield Heart Hospital. I'm glad to say the procedure went well. I have two tips to help. 1) ask for your canula to be inserted in the back of your hand rather than just under the elbow.It'smuch more comfortable and easier to find a vein and to extract
manabouttown
in
Atrial Fibrillation Support
26 days ago
Back Again
Hello everyone, sorry in advance for the mammoth post. I was last on this forum about 7-8 years ago in 2015/2016 after my previous symptom free asthma flared up badly and left me very sick (back on inhalers, steroids, and multiple hospital admissions). We managed to get my asthma back under control
Hello everyone, sorry in advance for the mammoth post. I was last on this forum about 7-8 years ago in 2015/2016 after my previous symptom free asthma flared up badly and left me very sick (back on inhalers, steroids, and multiple hospital admissions). We managed to get my asthma back under control
Beth_19
in
Asthma Community Forum
27 days ago
Elafibranor
I’m almost a little reluctant to ask this question, but is anyone taking this new drug? My hepatologist would like me to try it considering Ocaliva isn’t doing what it did in the first few years of taking it. I am in the process of filling out forms for IPSEN. I have no prescription insurance because
I’m almost a little reluctant to ask this question, but is anyone taking this new drug? My hepatologist would like me to try it considering Ocaliva isn’t doing what it did in the first few years of taking it. I am in the process of filling out forms for IPSEN. I have no prescription insurance because
gwillistexas
in
PBC Foundation
30 days ago
Does anyone take this supplement?
I have been doing a lot of research on how to fix cramping. Let me first say, no pickle juice does not work. I also do not have fluid taken off during dialysis. I add 400ml of saline each treatment. I also have no fluid restrictions and so I do drink a lot of water. And none of my mineral labs indicate
I have been doing a lot of research on how to fix cramping. Let me first say, no pickle juice does not work. I also do not have fluid taken off during dialysis. I add 400ml of saline each treatment. I also have no fluid restrictions and so I do drink a lot of water. And none of my mineral labs indicate
Bassetmommer
in
Kidney Dialysis
1 month ago
Could MCAS a possibility?
Hello everyone, I have been wondering for a while if I could have MACS. Last year I was diagnosed with a Raw Pecan allergy, borderline brazil and salami allergy through raw food skin to skin prick testing and given epi pens. My immunologist at the time did not want to risk it as I have asthma and
Hello everyone, I have been wondering for a while if I could have MACS. Last year I was diagnosed with a Raw Pecan allergy, borderline brazil and salami allergy through raw food skin to skin prick testing and given epi pens. My immunologist at the time did not want to risk it as I have asthma and
Owl84
in
The UK Mastocytosis Support Group
1 month ago
Important from The PBC Foundation....
We are asking for your help. 4/6/2024 Very directly. Very succinctly. We need your help. This is the most important thing the Foundation has ever worked on: more important than the surveys, more important than the helpline, more important than the name change. We are writing a letter which we
We are asking for your help. 4/6/2024 Very directly. Very succinctly. We need your help. This is the most important thing the Foundation has ever worked on: more important than the surveys, more important than the helpline, more important than the name change. We are writing a letter which we
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Peritoneal dialysis catheter block
Hi everyone, for those on PD, have you had any catheter complications or blockages and how were they resolved? My father suddenly started to have his PD fluid drain bloody two weeks ago. We notified the nurse/dr who are both unresponsive and just assumed it’s a burst blood vessel. We requested a sample
Hi everyone, for those on PD, have you had any catheter complications or blockages and how were they resolved? My father suddenly started to have his PD fluid drain bloody two weeks ago. We notified the nurse/dr who are both unresponsive and just assumed it’s a burst blood vessel. We requested a sample
Marbella17
in
Kidney Disease
2 months ago
do I go ahead with a laparoscopy?
please help me - you’re the only community that who actually helps and understands! I have had 3 miscarriages(natural) - all early. Since my first miscarriage 14 months ago I have been in constant pain. 2/10 half the month and maybe 6-7 for maybe 1 week. I have heavy periods and recently clotting, especially
please help me - you’re the only community that who actually helps and understands! I have had 3 miscarriages(natural) - all early. Since my first miscarriage 14 months ago I have been in constant pain. 2/10 half the month and maybe 6-7 for maybe 1 week. I have heavy periods and recently clotting, especially
Maybeendo
in
Endometriosis UK
2 months ago
WHAT IS THE BEST DIET FOR BRONCHIECTASIS
I HAVE TONS of mucas all the time tho use saline neb and oscillating vest twice a day. adjustable bed but mucas still drains what is the best diet for this illness\?
I HAVE TONS of mucas all the time tho use saline neb and oscillating vest twice a day. adjustable bed but mucas still drains what is the best diet for this illness\?
Lapis5
in
Lung Conditions Community Forum
2 months ago
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