Experiences with

Artificial saliva

I was diognosed with sle lupus and sjogrens in Dec 22 and was put on hydroxychloroquine plus drops /ointments for eyes artificial saliva ect ect. Since then I have had countless uti,s throughout. I'm on my 5th lot of antibiotics from October 23 to now so in space of 3 months.

Distorted hearing on anything above soft sounds after ear wax removal using micro suction. Very poor guidance from ENT and several doctors and audiologist. I think I just cured myself. After trying endless saline flushes, steroidal nasal spays, valsalva maneuver and many ear pooping methods, today

Today is the four year anniversary of the start of a 6 day hospitalization. B12 diagnoses was made. At the hospital I was in they only measure to 150 on the low end so I have no idea what my level actually was. One hematologist stated I could have made it 3 weeks but not 4 without dying. Was given

Has anyone taken this new drug? My hepatologist has offered for me to try it since Ocaliva isn’t keeping my ALP down to a desirable level. Your thoughts?

Hi everyone The ENT consultant has put me on gaviscon advance incase of silent reflux and sterimar saline nasal spray for the sinuses This is because of my voice problems as they might be irritating the vocal cords. The problem I have is that I seem to have more loose phlegm that I’m coughing up

I have been ill for a week now with my first exacerbation since my bronchiectasis diagnosis in late Spring. I am on Day 6 of doxycycline and still too ill to do much other than lie in bed. It’s like a really bad bronchitis with fever and horrendous coughing. I worry about the further damage this is doing

In many cases, the cause of RLS remains unknown. I conducted a long study and found the cause of RLS in my case. It's unlikely that my case is unique—though it's hard for me to judge how common it is, as one case can hardly be considered representative :). So, I’m sharing my findings here, hoping they

I recently switched to this formulation and had a couple of questions? One is about contamination - I have seen this come up a lot but the company did not give any advice about this in the instructions. Is contamination a real risk if I am only opening the vial to draw up, using a single use needle

hi. Firstly, whenever bloods taken in Australia, it’s every test, from T3/4/TSH and all vitamins etc. With that said, and I had total thyroidectomy plus RAI after papillary cancer. Endo has me on 125 Eltroxin, keeping me low TSH. He says this is best after thyroid cancer. Feeling no energy and 2

I have been diagnosed with EDAC within the last year but I believe I’ve had it all my life because for as long as I can remember I have always had difficulty breathing out. I’m 73 years old 74 in December and was diagnosed with asthma in the 60’s On my EDAC diagnosis I was give a APAP machine (and automatic

With a week to go before the end of my 3 month blanking period without any sign of AF, I was feeling pretty good about it. Then a day ago I submitted to having a bronchoscopy at the local hospital, investigating source of occasional blood in sputum (convinced it's anticoagulant related). Procedure all

Does anyone wake up in the middle of the night as if they cant breath. Last night I woke up as if i could not take a breath. Took my reliever and came down stairs and went on my mini nebulizer with just saline. This helped but it scared me. I have been very inactive recently due to other health problems

Hi, I suffer with bronchiectasis and have problems with shifting the thick phlegm in my lungs using the breathing technique the medics suggested. So I’ve just bought an Omcrom nebuliser and saline solution to see if it helps. I have tried in just once; it took some time to use up the 2ml of saline and

Okay... how do you get rid of a sinus infection🤧 when your immunocompromised? I'm on my... I think 3rd round of antibiotics, plus I got an injection of antibiotics in-between the last two. I was also on steroids.. did a pack and then an injection and then 3 more days. I am doing a Flonase type rx nasal

Hello everyone, I have been diagnosed with PBC over 7 years ago. I just joined and read a few comments about feeling, looking bloated and weight gain. I went a year without taking Urso, due to no medical coverage. I lost 30lbs but have been back on Urso now a year and gained some back. I am understanding

7 is causing me to gag and choke w so much mucas.. stringy too. any one else take this or the 3.5? Which is better and how long do you nebulize w the 7?

The day finally arrived. “Thursday 15th August 2024” After breakfast and my bed changed, I was hooked up to my lovely pink trollied pump. Pre-meds of saline and other good stuff is pumped into my Hickman line. At 11.30 nurses arrived with a bag of cells with my name on it! Within 7 minutes the bag

Hi Everyone So third cycle could be cancelled due to thin lining again. I had a natural cycle last time with added vagifem days 9-11 and my lining got to 6.9 mm. This time I have been on a medicated cycle . 75iu menopur, letrozole for 5 days and baby aspirin, vitamin E all the beetroot juice, raspberry

Thank you for your advice last week when I was terrified I might be experiencing TN from my GCA. I did visit the ED on the advice of my rheumatologist since my temp spiked, but thankfully the temp dropped down to normal. I had previously slowly dropped my dosage to 25 mg, but flared after two weeks

Hi All, Just wanted to share what I have done to try to stay healthy with reasonable success during my 12 yrs. journey confronting CLL. *Brief History: 84 year old male diagnosed in 2012 with 11q, trisomy 12, unmutated. Normal blood picture except for low platelets, IGG. IGA, and I GM. Currently