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Newly diagnosed /First Post
I have been suffering from Rheumatoid arthritis for 15 years and was recently told that I also have Polymalgia overlap. Last week I was told that in addition to that I have Fibromyalgia. In truth I have never felt so unwell. Obviously I have had chronic muscle and joint pain for a long time which I have
I have been suffering from Rheumatoid arthritis for 15 years and was recently told that I also have Polymalgia overlap. Last week I was told that in addition to that I have Fibromyalgia. In truth I have never felt so unwell. Obviously I have had chronic muscle and joint pain for a long time which I have
Painful2021
in
Fibromyalgia Action UK
3 years ago
Information for people in the UK on Tocilizumab (Ro-Actemra) injections
Hello, and apologies for not posting for such a long time. As one of the few (and greatly privileged) LVV-GCA sufferers in the UK lucky enough to have been prescribed subcutaneous Tocilizumab injections, I have a couple of items of news. First of all, along with my husband, I have been a participant
Hello, and apologies for not posting for such a long time. As one of the few (and greatly privileged) LVV-GCA sufferers in the UK lucky enough to have been prescribed subcutaneous Tocilizumab injections, I have a couple of items of news. First of all, along with my husband, I have been a participant
Suzita76
in
PMRGCAuk
3 years ago
What is a “Flare”
Hi everyone. This may appear a very silly or odd question but can anyone explain what a “flare” is? I was diagnosed in August with Rheumatoid Arthritis. I’m on Methotrexate and Folic Acid. They have been working extremely well until about two weeks ago when I had to miss a week of my Methotrexate
Hi everyone. This may appear a very silly or odd question but can anyone explain what a “flare” is? I was diagnosed in August with Rheumatoid Arthritis. I’m on Methotrexate and Folic Acid. They have been working extremely well until about two weeks ago when I had to miss a week of my Methotrexate
Moonjean
in
NRAS
3 years ago
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Does anyone wear a medical alert bracelet?
I am thinking I should have a medical alert bracelet in that I am immunosuppressed now. Does anyone else wear one??? I was diagnosed with some sort of inflammatory arthritis. Sometimes the doctor calls it RA, but then she says that it could be psoriatic without the rash.. I guess it is hard to diagnose
I am thinking I should have a medical alert bracelet in that I am immunosuppressed now. Does anyone else wear one??? I was diagnosed with some sort of inflammatory arthritis. Sometimes the doctor calls it RA, but then she says that it could be psoriatic without the rash.. I guess it is hard to diagnose
smilelines
in
NRAS
3 years ago
Gastric stasis and nausea
Has anyone any advice/experience of nausea and gastric stasis? I have been taking LDN since last May and it has been wonderful for osteoarthritis. Just 2 days on 0.5 gave me pain relief. So happy. I could never get higher than 1.75 without nausea so I stayed there. But noticed after 6 months that my
Has anyone any advice/experience of nausea and gastric stasis? I have been taking LDN since last May and it has been wonderful for osteoarthritis. Just 2 days on 0.5 gave me pain relief. So happy. I could never get higher than 1.75 without nausea so I stayed there. But noticed after 6 months that my
21litha
in
LDN Research Trust
3 years ago
I am positive for about 4 years now. Can this disease suddenly attack your whole body?
I now have arthritis had hip replacement in September. Have hypothyroidism my teeth are rotting have spinal stenosis Barrett’s Esophagus ulcers colon polyps. I feel like my body is breaking down. I am 71 and attribute a lot to age but it seems it’s one thing after the other. All of you in health unlocked
I now have arthritis had hip replacement in September. Have hypothyroidism my teeth are rotting have spinal stenosis Barrett’s Esophagus ulcers colon polyps. I feel like my body is breaking down. I am 71 and attribute a lot to age but it seems it’s one thing after the other. All of you in health unlocked
Nanny23
in
Hughes Syndrome APS Forum
3 years ago
Can any one advise pain killers for rheumatoid arthritis. Most ones I’ve tried don’t touch the pain
I’ve tried ibuprofen, paracetamol, naproxen, gabapentin, co codamol to many to mention
I’ve tried ibuprofen, paracetamol, naproxen, gabapentin, co codamol to many to mention
Catr12
in
Pain Concern
3 years ago
Rheumatology post - updates
Hi everyone - thank you all for your support yesterday. Today I took the drop from 40 to 20 mg and started on Co-codamol - I’m amazed at how much less pain I have, but I guess that’s because I’m addressing the real issue of Osteoarthritis rather than PMR so I’m almost certain the moment Rheumatologist
Hi everyone - thank you all for your support yesterday. Today I took the drop from 40 to 20 mg and started on Co-codamol - I’m amazed at how much less pain I have, but I guess that’s because I’m addressing the real issue of Osteoarthritis rather than PMR so I’m almost certain the moment Rheumatologist
Fiddlersmum
in
PMRGCAuk
3 years ago
Hello
Hello everyone had my Covid jab so it’s been 2 weeks this Friday since I had it so back to taking my arthritis injections now 😊😊
Hello everyone had my Covid jab so it’s been 2 weeks this Friday since I had it so back to taking my arthritis injections now 😊😊
Beth72
in
NRAS
3 years ago
Fought through the pain
Fought through Arthritis pain in my feet to start and finish Week 1 Run 2. I’ll be suffering in the morning but at the moment it feels worth it
Fought through Arthritis pain in my feet to start and finish Week 1 Run 2. I’ll be suffering in the morning but at the moment it feels worth it
BlackMon
in
Couch to 5K
3 years ago
Rheumatology appt
Thought I would update you lovely people . . . I had an urgent referral to rheumatology today after being put on 40 mgs of Pred ... going through my notes, experiences etc the doctor has come to the conclusion that I have Osteoarthritis of the spine rather than PMR - I think he's probably right given
Thought I would update you lovely people . . . I had an urgent referral to rheumatology today after being put on 40 mgs of Pred ... going through my notes, experiences etc the doctor has come to the conclusion that I have Osteoarthritis of the spine rather than PMR - I think he's probably right given
Fiddlersmum
in
PMRGCAuk
3 years ago
I have arthritis pain in my feet and find it difficult to run. Any tips on what can make it easier?
Arthritis in feet
Arthritis in feet
BlackMon
in
Couch to 5K
3 years ago
Query on shielding
Hi I’m looking for advice on shielding I have lupus arthritis asthma epilepsy tachycardia and osteoporosis in and out hospital with respiratory problems and infections can someone please help me with this thank you
Hi I’m looking for advice on shielding I have lupus arthritis asthma epilepsy tachycardia and osteoporosis in and out hospital with respiratory problems and infections can someone please help me with this thank you
Liz2468
in
LUPUS UK
3 years ago
Query on shielding
Hi Paul I hope you don’t mind me asking but should I be on the shielding list as I have lupus arthritis asthma epilepsy tachycardia and osteoporosis
Hi Paul I hope you don’t mind me asking but should I be on the shielding list as I have lupus arthritis asthma epilepsy tachycardia and osteoporosis
Liz2468
in
LUPUS UK
3 years ago
Where can I buy Tylenol or do I need a prescription?
Do I need a prescription for Tylenol for my arthritis
Do I need a prescription for Tylenol for my arthritis
Gooby1
in
Arthritis Action
3 years ago
Covid injection side effects
Since having my Oxford jab,some 6 weeks ago now my various arthritis's are much worse and just won't settle back to normal, I just wondered if anyone else has experienced the same? My costoscondritis is much worse, dry eyes and rheumatoid arthritis too.
Since having my Oxford jab,some 6 weeks ago now my various arthritis's are much worse and just won't settle back to normal, I just wondered if anyone else has experienced the same? My costoscondritis is much worse, dry eyes and rheumatoid arthritis too.
Jacqui2017
in
NRAS
3 years ago
Is there a better alternative to Methotrexate
Hello, I have been on weekly injections since September for Rheumatoid Arthritis with this drug 10ml and folic acid. Can anyone let me know if they know of a better drug ? Much thanks ,Michelle
Hello, I have been on weekly injections since September for Rheumatoid Arthritis with this drug 10ml and folic acid. Can anyone let me know if they know of a better drug ? Much thanks ,Michelle
MIckeyrow
in
Cure Arthritis Community
3 years ago
Help for a friend
Hi. Does anyone have experience of a bioresonance machine and did you get any benefit from it. This isn't for RA or for me but for someone in constant pain from osteoarthritis and someone has suggested it. Thank you.
Hi. Does anyone have experience of a bioresonance machine and did you get any benefit from it. This isn't for RA or for me but for someone in constant pain from osteoarthritis and someone has suggested it. Thank you.
Sheila_G
in
NRAS
3 years ago
Some good new re methotrexate
https://apple.news/A7r20IlHaTcy9bqQDjSVhMA Thought this was interesting and makes a nice change to have an up side to taking methotrexate. 😀 https://inews.co.uk/news/health/prescription-drug-could-lessen-the-risk-of-dementia-in-rheumatoid-arthritis-patients-report-claims-926550
https://apple.news/A7r20IlHaTcy9bqQDjSVhMA Thought this was interesting and makes a nice change to have an up side to taking methotrexate. 😀 https://inews.co.uk/news/health/prescription-drug-could-lessen-the-risk-of-dementia-in-rheumatoid-arthritis-patients-report-claims-926550
sensibleshoes
in
NRAS
3 years ago
Naproxen
Hi everyon been diagnosed with rheumatoid arthritis the medication I was prescribed naproxen omeprazole and sulfasalazine I feel as if my legs seem to be a bit swollen I don't think it's my imagination anyone any idea if it's any of the medication causing this I dont have any other side effects and
Hi everyon been diagnosed with rheumatoid arthritis the medication I was prescribed naproxen omeprazole and sulfasalazine I feel as if my legs seem to be a bit swollen I don't think it's my imagination anyone any idea if it's any of the medication causing this I dont have any other side effects and
Jennyrenny
in
NRAS
3 years ago
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