Experiences with Arteritis

3,809 public posts

Temporal Ultrasound May Be Useful in Giant Cell Arteritis Disease Monitoring (in patients paring corticosteroids with tocilizumab)

https://www.rheumatologyadvisor.com/home/topics/vasculitis/temporal-ultrasound-may-be-useful-in-giant-cell-arteritis-disease-monitoring/https://www.rheumatologyadvisor.com/home/topics/vasculitis/temporal-ultrasound-may-be-useful-in-giant-cell-arteritis-disease-monitoring/

Idyllicin PMRGCAuk

Mother has Giant Cell Arteritis - what does the future hold?

Having just been through a week of hospital after my mother has lost most her sight in one eye and is being treated for Giant Cell Arteritis - can anyone who has been through this tell me how the years play out after diagnosis? At the moment she’s terrified. Thank you zxxxHaving just been through a week of hospital after my mother has lost most her sight in one eye and is being treated for Giant Cell Arteritis - can anyone who has been through this tell me how the years play out after diagnosis? At the moment she’s terrified. Thank you zxxx

TheSmartestGiant70in PMRGCAuk

Temporal arteritis

Could you tell me what signs and symptoms you had with Temporal arteritis? What is all the testing?Could you tell me what signs and symptoms you had with Temporal arteritis? What is all the testing?

Purefaithin PMRGCAuk

Hi,new here introducing myself/decreasing prednisolone

Brief history: hyperparathyroidism operation 2003-rheumatoid arthritis diagnosis 2007-hospitalised with sepsis 2018- diagnosed with temporal arteritis march 2019.Brief history: hyperparathyroidism operation 2003-rheumatoid arthritis diagnosis 2007-hospitalised with sepsis 2018- diagnosed with temporal arteritis march 2019.

Teekay2in PMRGCAuk

GCA mentioned on telly

On Trust me I'm a Doctor https://www.bbc.co.uk/programmes/articles/5qMFMJMZW5cZfRfBfwdcFqP/what-is-giant-cell-arteritis-and-how-can-i-recognise-it?On Trust me I'm a Doctor https://www.bbc.co.uk/programmes/articles/5qMFMJMZW5cZfRfBfwdcFqP/what-is-giant-cell-arteritis-and-how-can-i-recognise-it?

tangocharliein PMRGCAuk

New to temporal arteritis

Looks like Temporal arteritis for me. Does anyone have good recovery stories from this? I need encouragementLooks like Temporal arteritis for me. Does anyone have good recovery stories from this? I need encouragement

Libertylanein PMRGCAuk

Temporal Arteritis/GCA

Hello everyone, I'm 29 years old and have been having a bulging/swollen Temporal Artery for a few months now. It seems to get real bad when I exercise, it's hot or am stressed. It gets really really big and I can see and feel it pulsing really strong under my skin. It's not sore or tender that I canHello everyone, I'm 29 years old and have been having a bulging/swollen Temporal Artery for a few months now. It seems to get real bad when I exercise, it's hot or am stressed. It gets really really big and I can see and feel it pulsing really strong under my skin. It's not sore or tender that I can

Teeravisin PMRGCAuk

Temporal Arteritis

I was diagnosed with Temporal Arteritis on 23rd August 2019 which was a shock as I had never heard of it before, I have been on Prednisolone since being diagnosed, since starting the Steroids I seem to be having trouble sleeping at night and also suffering from a few bruises which don’t hurt but lookI was diagnosed with Temporal Arteritis on 23rd August 2019 which was a shock as I had never heard of it before, I have been on Prednisolone since being diagnosed, since starting the Steroids I seem to be having trouble sleeping at night and also suffering from a few bruises which don’t hurt but look

Phedin PMRGCAuk

Clinical trial to test potential new therapy for giant cell arteritis

Well... at least they're looking for options! https://medicalxpress.com/news/2019-09-clinical-trial-potential-therapy-giant.htmlWell... at least they're looking for options! https://medicalxpress.com/news/2019-09-clinical-trial-potential-therapy-giant.html

Idyllicin PMRGCAuk

Weight gain on actemra

I was diagnosed with giant cell arteritis in March of 2018 and have been on Prednisone medication ever since. I did not have a significant weight gain with the initial prednisone medication but since I started Actemra in November 2019 I've gained over 20 lb.I was diagnosed with giant cell arteritis in March of 2018 and have been on Prednisone medication ever since. I did not have a significant weight gain with the initial prednisone medication but since I started Actemra in November 2019 I've gained over 20 lb.

brenda1207in NRAS

When to stop taking methotrexate

I'm on 17.5mg Pred and weekly methotrexate as I have GCA/ Takayasu Arteritis. I've now picked up a horrendous virus and have been in bed for 2 days. Should I miss taking my mtx this week to give my immune system some help?I'm on 17.5mg Pred and weekly methotrexate as I have GCA/ Takayasu Arteritis. I've now picked up a horrendous virus and have been in bed for 2 days. Should I miss taking my mtx this week to give my immune system some help?

MrsChipsin PMRGCAuk

Gadolinium enhanced MRI improves diagnostic accuracy in PMR!

https://www.healio.com/rheumatology/vasculitis-and-giant-cell-arteritis/news/online/%7B5d80a52a-d116-43ba-abcf-d74f29ae7f0c%7D/gadolinium-enhanced-mri-improves-diagnostic-accuracy-in-polymyalgia-rheumaticahttps://www.healio.com/rheumatology/vasculitis-and-giant-cell-arteritis/news/online/%7B5d80a52a-d116-43ba-abcf-d74f29ae7f0c%7D/gadolinium-enhanced-mri-improves-diagnostic-accuracy-in-polymyalgia-rheumatica

Idyllicin PMRGCAuk

No Blood Pressure

I have Takayasu Arteritis. Whenever I go to the GP or hospital, where they need to take my blood pressure, they can't find one. Can anyone tell me what they do in this situation? Is there somewhere on your body that makes getting blood pressure easier?I have Takayasu Arteritis. Whenever I go to the GP or hospital, where they need to take my blood pressure, they can't find one. Can anyone tell me what they do in this situation? Is there somewhere on your body that makes getting blood pressure easier?

MrsChipsin Vasculitis UK

Giant-cell-arteritis

I suffer with A-S and chronic pain,i've recently been diagnosed with Giant-cell -arteritis,does anyone have any personal knowledge of this disease. Many ThanksI suffer with A-S and chronic pain,i've recently been diagnosed with Giant-cell -arteritis,does anyone have any personal knowledge of this disease. Many Thanks

EPOS07in Pain Concern

new here/temporal arteritis/extreme fatigue

Teekay2in Vasculitis UK

So done with this

I was diagnose with Giant Cell Arteritis in Sep 2018 so I haven't had it for long it feels longer I hate the headaches,tiredness,body akes,and the weight gain from the prednisone ugh! 😢😢I was diagnose with Giant Cell Arteritis in Sep 2018 so I haven't had it for long it feels longer I hate the headaches,tiredness,body akes,and the weight gain from the prednisone ugh! 😢😢

vicky561in PMRGCAuk

GCA treatment

https://www.google.com/amp/s/www.express.co.uk/life-style/health/947595/temporal-arteritis-giant-cell-treatment-breakthrough-drug-symptoms/amp I by accident, came across this article. Yulikhttps://www.google.com/amp/s/www.express.co.uk/life-style/health/947595/temporal-arteritis-giant-cell-treatment-breakthrough-drug-symptoms/amp I by accident, came across this article. Yulik

YuliKin PMRGCAuk