Experiences with

Arteritis

Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis.

https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis

Does anybody else suffer from headaches with no Giant Cell arteritis diagnosis? I wonder if it triggers migraines!

what symptoms do others have with this condition mine is severe headaches

After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination with a glucocorticoid taper.’ (Worth reading the embedded links.) There’s a difference between Tocilizumab being recommended and actually being prescribed.

Does anybody else suffer from headaches with Polymyalgia Rheumatica without Giant Cell Arteritis diagnosis? I don’t know if my morning headaches are PR symptoms or triggering migraines!

I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare.

Some said FMD and other said a burned out Takayusus arteritis. It doesn't help when you can't get a definite diagnosis because the protocol is different for each type.

😀 https://www.healio.com/news/rheumatology/20240429/nearly-half-of-patients-with-giant-cell-arteritis-achieve-remission-with-upadacitinib

I had a heart attack in April 2024 straight after a Infliximab infusion as part of treatment for Takyasu arteritis (rare form of vasculitis) and went on to have three stents fitted. I was advised that the heart attack was caused by the vasculitis as my arteries were inflamed.

Ordered an amazing book by Kate Gilbert - Polymalgia Rheumatica and Giant Cell Arteritis a survival guide - definitely worth a read

loosing hair, read that Giant Cell arteritis can cause it, anyone have the same problem? Any recommendations .

[/i] [i]TYENNE is used:[/i] [i]To treat adults with moderately to severely active rheumatoid arthritis (RA) after at least one other medicine called a disease modifying antirheumatic drug (DMARD) has been used and did not work well[/i] [i]To treat adults with giant cell

May - Day 27 Vasculitis Awareness Month Takayasu Arteritis (TAK) is a rare type of vasculitis affecting mostly young females, even children. It can be very complex and it is essential to be under specialist care. Take a moment to read Kelsey - Leigh's story!

Four years ago, I was diagnosed with Giant Cell Arteritis and, about 2 years later, Polymyalgia Rheumatica. My life has drastically changed between the pain and total exhaustion. Any words of advice would be most welcome.

Takayasu Arteritis is a rare type of Vasculitis with the initial symptoms arising in those between 5 and 40 years of age. It affects mostly females. Take a moment to read Sarah's story!

It was written in 1979, so I thought it might be interesting to see what the advice on PMR and GCA (aka "temporal arteritis") was back then. This first excerpt (see image) is for PMR. More to follow.

I’ve had GCA now for 14 months. Started out with failing vision in my left eye and lost most of my vision. Right eye still 20/20 thank god! Started with 60 mg Prednisone and slowly decreased after 2 months added Actemra injections once a week. Now done with Prednisone and on Actemra only. I’m doing

Hi I am down to 3.5mg Pred from 100mg for Temporal Arteritis.

‘Polymyalgia rhumatica and giant cell arteritis’ is a mouthful and PMR/GCA is alphabet soup! Both phrases are met with blank looks. I want people to know what I’m dealing with but medication, tapering, flare ups, or years to remission is a lot to share without feeling dramatic.