Experiences with

Arteritis

instructions from jinasc to post the information in the statement by the NHS about the NHS recipients of Honours in the New Year Honours List: "Professor Bhaskar Dasgupta, Consultant Rheumatologist, Mid and South Essex NHS Foundation Trust, was awarded an MBE for services to people with giant cell arteritis

Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis.

Images and findings: Stenosis of both subclavian arteries with arms lifted (i didn’t have imaging of my arms when they were down), calcified and swollen lymph nodes, slightly elevated esr and normal crp, pulmonary embolism (they think at least) i guess what i’m asking is if anyone with takayasu arteritis

Does anybody else suffer from headaches with no Giant Cell arteritis diagnosis? I wonder if it triggers migraines!

Hi, I believe I may have Temporal Arteritis and am looking for the right Rheumatology consultant to confirm the diagnosis in the UK. Does anyone have any recommendations please?

Does anybody else suffer from headaches with Polymyalgia Rheumatica without Giant Cell Arteritis diagnosis? I don’t know if my morning headaches are PR symptoms or triggering migraines!

what symptoms do others have with this condition mine is severe headaches

https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis

After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination with a glucocorticoid taper.’ (Worth reading the embedded links.) There’s a difference between Tocilizumab being recommended and actually being prescribed.

Ordered an amazing book by Kate Gilbert - Polymalgia Rheumatica and Giant Cell Arteritis a survival guide - definitely worth a read

Some said FMD and other said a burned out Takayusus arteritis. It doesn't help when you can't get a definite diagnosis because the protocol is different for each type.

I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare.

Doc first thought was TAK Arteritis but wants me checked for Giant Cell Arteritis. Additional bloodwork in the ER showed extremely low potassium and they gave me a dissolvable potassium tablet to drink and it came back up. My most recent bloodwork shows very low sodium at 134 mmol/L.

I had a heart attack in April 2024 straight after a Infliximab infusion as part of treatment for Takyasu arteritis (rare form of vasculitis) and went on to have three stents fitted. I was advised that the heart attack was caused by the vasculitis as my arteries were inflamed.

😀 https://www.healio.com/news/rheumatology/20240429/nearly-half-of-patients-with-giant-cell-arteritis-achieve-remission-with-upadacitinib

We repeated her CRP which has come back as normal, I don't think this pain represents a flare of giant cell arteritis, it is most likely irritation of the trigeminal nerve.

loosing hair, read that Giant Cell arteritis can cause it, anyone have the same problem? Any recommendations .

[/i] [i]TYENNE is used:[/i] [i]To treat adults with moderately to severely active rheumatoid arthritis (RA) after at least one other medicine called a disease modifying antirheumatic drug (DMARD) has been used and did not work well[/i] [i]To treat adults with giant cell

May - Day 27 Vasculitis Awareness Month Takayasu Arteritis (TAK) is a rare type of vasculitis affecting mostly young females, even children. It can be very complex and it is essential to be under specialist care. Take a moment to read Kelsey - Leigh's story!

Four years ago, I was diagnosed with Giant Cell Arteritis and, about 2 years later, Polymyalgia Rheumatica. My life has drastically changed between the pain and total exhaustion. Any words of advice would be most welcome.