Experiences with

Arteritis

I have Giant Cell Arteritis/Large Vessel Vasculitis.

Temporal arteritis and polymalasia rheumatica symptoms and flareups

Hi, can someone help with describing what the double vision element is with GCA? Most of the time my eye sight feels ok... except at certain distances say watching a game of football I see two copies of the player.. if I close one eye it’s ok! Also when driving I don’t necessarily see two cars as I wouldn

"Most of these 25 patients (male) met clinical criteria for an inflammatory syndrome (relapsing polychondritis, SWEET'S SYNDROME, polyarteritis nodosa, or giant-cell arteritis) or a hematologic condition (myelodysplastic syndrome or multiple myeloma) or both." https://www.nejm.org/doi/full/10.1056/NEJMoa2026834

After even more tests it was decided I appear to have Temporal arteritis.

Due to my age (24) I've been dismissed really and I've been told I maybe have a virus, a migraine or tension headaches, but I'm really quite concerned about the possibility of temporal arteritis. Thanks for your help.

I have GCA with Takayasu Arteritis and my children have been asking whether it may be hereditary. Does anyone know whether any research has been undertaken to find out if it is and, if so, is it more likely to affect females or males?

https://www.england.nhs.uk/coronavirus/wp-content/uploads/sites/52/2020/07/C0620_Rapid-policy-statement-for-Giant-Cell-Arteritis-during-COVID_30July.pdf Summarising this statement, the NHS has agreed an emergency extension of Tocilizumab treatment during the Covid-19 pandemic, though this does need

Hi i was dignosed with Tempola Arteritis a week ago today after having severe head pain so much so that it hurt to lay my head on the pillow. I was given an emergency hospital appointment at a good hospital on Monday whereby my head was scanned and I was confirmed with this condition.

Is this Temporal Arteritis?? I still feel tingling and some numbness in that area and the swelling hasn’t completely gone away. Am 33. My blood work is normal. I’ll get an MRI done this month. :-( am a bit scared! Head CT scan was normal

MRI okay, but petscan indicates arteritis. I said is this giant cell arteritis , answer yes. Now here s the kicker, Just stay on my 7 mg. Pred and waiting for approval for actemra.

I dont know is its related to my temperal arteritis or not but I wondered is anybody has had similar problems

I found this today which I hope is useful as it is very recent. https://thejournalofheadacheandpain.biomedcentral.com/articles/10.1186/s10194-020-01093-7?fbclid=IwAR1i7sx8Kt7LSlfbwdRfOCRBz9By1CN1ypVSHXPORkD4ownoa_pTCc2xj0M

I just had to write to say how good this book is and I couldn’t recommend it more highly. I know many of you will already know it well but I’ve only just read it and apart from finding it full of useful information I was surprised at how enjoyable it was to read. I hadn’t bothered with it earlier in

Great cell arteritis 3 yrs ago I was diagnosed with GCA and promptly put on 50mg of Steroids daily. My ESR blood test result was 38. Since then I have been gradually reducing the Steroids and now take just 2mg daily.

Doctor sent me for blood tests and it’s not temporal arteritis but he hasn’t signalled what it actually is. I have a slight incline on my skull. It’s not painful just annoying me. My right side is higher than the left side of my head. Hard to explain. Sometimes the headache is burning.

Doctor sent me for blood tests and it’s not temporal arteritis but he hasn’t signalled what it actually is. I have a slight incline on my skull. It’s not painful just annoying me. My right side is higher than the left side of my head. Hard to explain. Sometimes the headache is burning.

Doctor sent me for blood tests and it’s not temporal arteritis but he hasn’t signalled what it actually is. I have a slight incline on my skull. It’s not painful just annoying me. My right side is higher than the left side of my head. Hard to explain. Sometimes the headache is burning.

Doctor sent me for blood tests and it’s not temporal arteritis but he hasn’t signalled what it actually is. I have a slight incline on my skull. It’s not painful just annoying me. My right side is higher than the left side of my head. Hard to explain. Sometimes the headache is burning.

I am loving reading other people's experiences of temporal arteritis as so many correspond to mine. They did not ring bells with my GP practice (5 doctors, kept being telephoned by a different one) so that I had to wait for three months for a diagnosis from them.