Experiences with

Arteritis

A giant cell arteritis suffer on methotrexate and prednisolone. Has anyone been on this combination as well? How long did it take you to get off the steroids as i'm still on 4mg as struggling to get off them as symptoms keep returning once I reduce down any further.

"Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide." 2nd edition by Kate Gilbert

This came to my attention in the Lancet: ‘Better tools required for biopsy negative giant cell Arteritis’ https://click.notification.elsevier.com/CL0/https:%2F%2Fwww.thelancet.com%2Fjournals%2Flanrhe%2Farticle%2FPIIS2665-9913(22)00252-1%2Ffulltext%3Fdgcid=raven_jbs_aip_email/1/01000184993a7770-46052eb1

rheumatoid arthritis (RA) patients who have failed to respond to conventional synthetic disease‐modifying antirheumatic drugs (csDMARDs) and/or tumour necrosis factor antagonists.2 It is also approved for systemic juvenile idiopathic arthritis, polyarticular juvenile idiopathic arthritis and giant cell arteritis

Implicated by Giant Cell ARTERITIS . I am on Hydroxyurea dose of 2.5 mg and stable at the moment with both my monsters. You may please reply privately to me in case reco are not acceptable on this group. Thankyou

I was diagnosed with temporal arteritis in Nov 2021 and put on 40 mg of Prednisoline. This has reduced, though dose had to be raised when I had severe headaches. Now down to 1 mg next week and then supposed to stop. 1. I think I will still have symptoms.

Having been diagnosed with both polymyalgia rheumatica and giant cell arteritis and put on high dose prednisolone I have been suffering from vertigo.

https://ard.bmj.com/content/early/2023/02/23/ard-2022-223429 This is Open Access so everyone can read it. It is something I think we should all have a read of, some will be beyond most of us and some is just plain boring but there are points in it everyone will understand and can bring to the notice

I've been having double vision for at least a year, maybe longer. But it's only when I TILT my head (as opposed to looking side to side). My ophthalmologist said the muscles that control my eye movements are not working right (my words, not his), and that [u]one [/u]of the causes could be GCA (which

She is also on Steroids and Methotrexate (which can cause arrythmias) for Giant Cell Arteritis.

Hi I am on Prednisolone for Temporal Arteritis. Down to 5mg. My problem is I have just had a colostomy because of a perforated bowel.I am coming to terms with it but I have a problem with food.

I’ve newly been diagnosed with GCA, I’m currently on 40mg of prednisone a day and would like to know of any tips for nutrition and health lifestyles to help with my condition. I’m only 20 and I am at a bit of a loss as I there isn’t any studies in people my age having GCA. Thank you x

Diagnosed in August 2022. Started on 50 mg of Prednisolone , down to 35 in September, down to 25 in October & November & next week down to 20mg. As I am 77 years old have been told that I should also be taking Famotidine to prevent The steroids causing bleed in stomach. Do other people take this or

I have GCA with Takayasu Arteritis. I am taking Clopidogrel/ Atorvastatin/ Bisoprolol/ Tocilizumab (3 monthly), yesterday my blood pressure was 92/80. It was taken at the hospital as the doctor’s surgery can’t find it, or my pulse. I emailed my Dr with the result, and she rang me today.

inner thigh, and bursitis in hip, dr prescribed T3,s for pain, and after couple of weeks did settle, So now, about a week ago, noticed scalp, skull, jaw tender to touch, bruised feeling, so contacted rheumy, on thursday past prescribed increase pred to 25 mgs pred, and arranged ultrasound for temporal arteritis

So here's my question: After being on the high levels of PRED that I've been on since AUG, is there any kind of imaging that can be done to help evaluate the current state of my arteritis? If so, what options do I have?

I have posted about these new symptonns, had ultrasound for temporal arteritis done on DEC 19 as ordered by rheumy, he increased my pred on DEC 16 from 4 to 25 mgs that day after contacting him about tegnderness, bruised feeling scalp and right portion of fore head, , blood work showed raised markers

So of course have not had call from rheumatologist as promised since Ultrasound for temporal arteritis week ago today, was suppose to call thursday past, as they did have results, although secretary said showed normal?

Hi, I was diagnosed with Temporal Arteritis in 2019 and have been on a reducing dose of Prednisolone since then. I've been on 2mg per day for the past 6 months.

Have you all read the above book by Kate Gilbert? It’s a must if you are a sufferer of PMR or GCA. So much sound practical information and we all know that knowledge is power. Good luck on your journey fellow sufferers. The light is at the end of the tunnel. XxX