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Question on PMR and Temporal Arteritis
Does anyone know: would an MRI show Temporal
Arteritis
or would a person need a biopsy to determine if Temporal
Arteritis
was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal
Arteritis
.
Does anyone know: would an MRI show Temporal
Arteritis
or would a person need a biopsy to determine if Temporal
Arteritis
was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal
Arteritis
.
Musiclady18
in
PMRGCAuk
21 days ago
Patients with higher apolipoprotein A-I levels at greater risk for giant cell arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-
arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-
arteritis
perceptual63
in
PMRGCAuk
1 month ago
Aortitis
I was diagnosed with non cranial Giant Cell
Arteritis
in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare.
I was diagnosed with non cranial Giant Cell
Arteritis
in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare.
Dance62
in
PMRGCAuk
2 months ago
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Vasculitus, a promising road ahead- let’s hope so!
After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell
arteritis
in combination with a glucocorticoid taper.’ (Worth reading the embedded links.) There’s a difference between Tocilizumab being recommended and actually being prescribed.
After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell
arteritis
in combination with a glucocorticoid taper.’ (Worth reading the embedded links.) There’s a difference between Tocilizumab being recommended and actually being prescribed.
Exflex
in
PMRGCAuk
10 days ago
hair loss
loosing hair, read that Giant Cell
arteritis
can cause it, anyone have the same problem? Any recommendations .
loosing hair, read that Giant Cell
arteritis
can cause it, anyone have the same problem? Any recommendations .
Cubanurse49
in
PMRGCAuk
30 days ago
Autoimmune Registry
However polymyalgia rheumatica is not found through their opening page search although it is on the list as a vascular disease, as is giant cell
arteritis
. Maybe their search function is as useful as HU's (used to be)? :D Or maybe they just haven't got any research in their database yet?
However polymyalgia rheumatica is not found through their opening page search although it is on the list as a vascular disease, as is giant cell
arteritis
. Maybe their search function is as useful as HU's (used to be)? :D Or maybe they just haven't got any research in their database yet?
HeronNS
in
PMRGCAuk
8 months ago
Giant Cell Arteritis
I’ve had GCA now for 14 months. Started out with failing vision in my left eye and lost most of my vision. Right eye still 20/20 thank god! Started with 60 mg Prednisone and slowly decreased after 2 months added Actemra injections once a week. Now done with Prednisone and on Actemra only. I’m doing
I’ve had GCA now for 14 months. Started out with failing vision in my left eye and lost most of my vision. Right eye still 20/20 thank god! Started with 60 mg Prednisone and slowly decreased after 2 months added Actemra injections once a week. Now done with Prednisone and on Actemra only. I’m doing
LRevell
in
PMRGCAuk
2 months ago
Benefits of knowing your illness/condition/disease to help others as well as yourself
It’s about time I posted that a couple of months ago my husband was diagnosed with Giant Cell
Arteritis
.
It’s about time I posted that a couple of months ago my husband was diagnosed with Giant Cell
Arteritis
.
123-go
in
PMRGCAuk
6 months ago
New diagnosis
Four years ago, I was diagnosed with Giant Cell
Arteritis
and, about 2 years later, Polymyalgia Rheumatica. My life has drastically changed between the pain and total exhaustion. Any words of advice would be most welcome.
Four years ago, I was diagnosed with Giant Cell
Arteritis
and, about 2 years later, Polymyalgia Rheumatica. My life has drastically changed between the pain and total exhaustion. Any words of advice would be most welcome.
Miacaro45
in
Fibromyalgia Action UK
5 days ago
GCA Temporal/ Arteritis
I’ve had GCA for a little over a year now. I’m on Actemra injection only. It makes me feel a little woozy! Has anyone else had this feeling?
I’ve had GCA for a little over a year now. I’m on Actemra injection only. It makes me feel a little woozy! Has anyone else had this feeling?
LRevell
in
PMRGCAuk
3 months ago
PMR & GCA, 45 Years Ago
It was written in 1979, so I thought it might be interesting to see what the advice on PMR and GCA (aka "temporal
arteritis
") was back then. This first excerpt (see image) is for PMR. More to follow.
It was written in 1979, so I thought it might be interesting to see what the advice on PMR and GCA (aka "temporal
arteritis
") was back then. This first excerpt (see image) is for PMR. More to follow.
AtopicGuy
in
PMRGCAuk
19 days ago
Giant Cell Arteritis
I has a right temporal biopsy and was diagnosed with GCA in November 2023. I had been in handout of the hospital during the month of September and October, prior to the biopsy, with an array of symptoms such as fatigue, major weight loss, low grade fever, Koss of appetite and tremendous pain in jaw
I has a right temporal biopsy and was diagnosed with GCA in November 2023. I had been in handout of the hospital during the month of September and October, prior to the biopsy, with an array of symptoms such as fatigue, major weight loss, low grade fever, Koss of appetite and tremendous pain in jaw
Labbyj
in
PMRGCAuk
4 months ago
Deniese
All great till 10 days into reduction then symptoms of
arteritis
returned and went back to 60mg as directed by rheumatologist a d start process again.
All great till 10 days into reduction then symptoms of
arteritis
returned and went back to 60mg as directed by rheumatologist a d start process again.
Den73
in
PMRGCAuk
7 months ago
Ateritis, arthritis... how to make friends and family recognise the difference!
I have just been trying to explain GCA to some former work colleagues and been stumped trying to convincingly make the distinction between
arteritis
and arthritis (similar pronunciation, even in French 😏) to those not familiar with our condition.
I have just been trying to explain GCA to some former work colleagues and been stumped trying to convincingly make the distinction between
arteritis
and arthritis (similar pronunciation, even in French 😏) to those not familiar with our condition.
Dochaz
in
PMRGCAuk
10 months ago
"Scientists achieve breakthrough in treating 'neglected' polymyalgia rheumatica" - that's the headline but don't get too excited ...
And golly-gosh - how about THIS: "Earlier this year, a review paper published in the journal Nature Reviews by Professor Dasgupta and colleagues highlighted the emerging view that relapsing PMR patients also have underlying Giant Cell
Arteritis
, where the main blood vessel aorta and its branches become
And golly-gosh - how about THIS: "Earlier this year, a review paper published in the journal Nature Reviews by Professor Dasgupta and colleagues highlighted the emerging view that relapsing PMR patients also have underlying Giant Cell
Arteritis
, where the main blood vessel aorta and its branches become
PMRpro
Ambassador
in
PMRGCAuk
6 months ago
Found this on FB....
New insights into mysterious blood vessel disease temporal
arteritis
...https://medicalxpress.com/news/2023-09-insights-mysterious-blood-vessel-disease.html
New insights into mysterious blood vessel disease temporal
arteritis
...https://medicalxpress.com/news/2023-09-insights-mysterious-blood-vessel-disease.html
Joseph14612
in
PMRGCAuk
7 months ago
A tragic but inspiring and heartwarming story about someone running to raise money for PMRGCAuk after a friend lost her sight from GCA
A big thank you to James Robinson who's running the Leeds Marathon in support of Kate, a family friend, who lost her sight due to giant cell
.
Help James raise money to support people with PMR and GCA. Help us to raise awareness so that no-one loses their sight from this disease.
A big thank you to James Robinson who's running the Leeds Marathon in support of Kate, a family friend, who lost her sight due to giant cell
.
Help James raise money to support people with PMR and GCA. Help us to raise awareness so that no-one loses their sight from this disease.
tangocharlie
in
PMRGCAuk
2 months ago
More about the presentation by the Irish doctor posted about this week relating to GCA in PMR
responses=150488304&utm_source=notification&utm_medium=email&utm_campaign=email_individual_response and the abstract is here https://acrabstracts.org/abstract/clinical-phenotype-of-patients-with-subclinical-giant-cell-
arteritis
-in-polymyalgia-rheumatica/#:~:text=This%20suggests%20that%20patients%20with
responses=150488304&utm_source=notification&utm_medium=email&utm_campaign=email_individual_response and the abstract is here https://acrabstracts.org/abstract/clinical-phenotype-of-patients-with-subclinical-giant-cell-
arteritis
-in-polymyalgia-rheumatica/#:~:text=This%20suggests%20that%20patients%20with
PMRpro
Ambassador
in
PMRGCAuk
3 months ago
MGUS and PMR/GCA
In that study, history of giant cell
arteritis
, polymyalgia rheumatica and rheumatoid arthritis was associated with a significantly increased risk of MGUS [91]. " https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4900299/
In that study, history of giant cell
arteritis
, polymyalgia rheumatica and rheumatoid arthritis was associated with a significantly increased risk of MGUS [91]. " https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4900299/
kp60
in
PMRGCAuk
3 months ago
Tired of all of this
Have Giant Cell
Arteritis
, Polymyalgia Rheumatica, MGUS, and possibly MGRS. They just listen to my heartbeat and tell me I am fine. I know my heart is involved in all of this, but no one will listen to me.
Have Giant Cell
Arteritis
, Polymyalgia Rheumatica, MGUS, and possibly MGRS. They just listen to my heartbeat and tell me I am fine. I know my heart is involved in all of this, but no one will listen to me.
phebamom
in
British Heart Foundation
5 months ago
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