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A further update on the old taper journey ...
Hello again friends on this long and treacherous journey, I am reporting back with some good news, yay! While I have remained on the three weekly (rather than weekly or fortnightly) tocilizumab routine, my inflammation has remained under control, so far. I have just moved to 1.75mgs pred on my cautious
Hello again friends on this long and treacherous journey, I am reporting back with some good news, yay! While I have remained on the three weekly (rather than weekly or fortnightly) tocilizumab routine, my inflammation has remained under control, so far. I have just moved to 1.75mgs pred on my cautious
LemonZest11
in
PMRGCAuk
3 years ago
New Diagnosis of Temporal Arteritis
After feeling unwell for a week a locum doctor at my practise sent me to hospital on Friday as she was worried I had Temporal
Arteritis
. The Acute Medical Initial Assessment unit were fantastic.
After feeling unwell for a week a locum doctor at my practise sent me to hospital on Friday as she was worried I had Temporal
Arteritis
. The Acute Medical Initial Assessment unit were fantastic.
ange1960
in
PMRGCAuk
3 years ago
Osteoarthritis advice.
I have been taking on prescription a number of Painkillers including Naproxen. For Sciatica and Osteoarthritis. They have helped so much. However, I had a medication review on Monday and told they will not going to supply the anti inflammatory any more. Since stopping them, which I was always told they
I have been taking on prescription a number of Painkillers including Naproxen. For Sciatica and Osteoarthritis. They have helped so much. However, I had a medication review on Monday and told they will not going to supply the anti inflammatory any more. Since stopping them, which I was always told they
SusanS70
in
NRAS
3 years ago
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Nefopam for pred replacement ?
Hello all, After being on pred (7mg) for the past four years, my rhumi insists it can't be pmr as I'd have been cured by now :-( I realise from here that this is not always the case. He has prescribed nefopam to take whilst reducing preds. However, nefo is not agreeing with me at all, I struggle with
Hello all, After being on pred (7mg) for the past four years, my rhumi insists it can't be pmr as I'd have been cured by now :-( I realise from here that this is not always the case. He has prescribed nefopam to take whilst reducing preds. However, nefo is not agreeing with me at all, I struggle with
RevSmallwood
in
PMRGCAuk
3 years ago
Osteoarthritis
I have been diagnosed by MRI scan that I have Osteoarthritis. but no pain. Will any Doctor be able to tell me how long before I get any pain.
I have been diagnosed by MRI scan that I have Osteoarthritis. but no pain. Will any Doctor be able to tell me how long before I get any pain.
grahamwass
in
Arthritis Action
3 years ago
Parmenant arthritis treatment
Hi good folk my 12 years old daughter has arthritis today she is going to steroid injection on her kne and elbow .please if there is way to get rid of this disease whatever it cost we are ready to pay.
Hi good folk my 12 years old daughter has arthritis today she is going to steroid injection on her kne and elbow .please if there is way to get rid of this disease whatever it cost we are ready to pay.
Montaha
in
NRAS
3 years ago
Severe pain on left side
I have bad pain under left breast but under ribcage. When i am stood up it is so severe I feel sick and just need to sit down. When i take a breath it hurts. I have Fybromyalgia and Osteoarthritis in my hands but I feel I have had enough. I had a relapse in January and have been signed off work ever
I have bad pain under left breast but under ribcage. When i am stood up it is so severe I feel sick and just need to sit down. When i take a breath it hurts. I have Fybromyalgia and Osteoarthritis in my hands but I feel I have had enough. I had a relapse in January and have been signed off work ever
deb26bie
in
Fibromyalgia Action UK
3 years ago
After Gardening for 1 hour 45 minutes another mega flare inflammatory arthritis
Well hey there all anyone else experience this I was weeding my garden and by the late evening in a lot of pain and couldn't sleep for a while that night as couldn't get comfortable oh the joy. Have taken Sulfasalazine since February coz have many symptoms of RA.
Well hey there all anyone else experience this I was weeding my garden and by the late evening in a lot of pain and couldn't sleep for a while that night as couldn't get comfortable oh the joy. Have taken Sulfasalazine since February coz have many symptoms of RA.
Lovetodanceto
in
NRAS
3 years ago
Another newbie to the club - medical conditions
Hello everyone - I have just found this platform for the sharing of couch25k experiences which I have to say was a welcome find! I thought I would introduce myself and say hello to all you lovely joggers/runners :) I am on week 5 this week and hope to get out in my lunchbreak to do Run 1. As others
Hello everyone - I have just found this platform for the sharing of couch25k experiences which I have to say was a welcome find! I thought I would introduce myself and say hello to all you lovely joggers/runners :) I am on week 5 this week and hope to get out in my lunchbreak to do Run 1. As others
Scrambled_Legs
Graduate
in
Couch to 5K
3 years ago
The Experimental Arthritis Treatment Centre - Patient Update Event
https://www.vasculitis.org.uk/events/children-with-hsp-patient-update-event The Experimental Arthritis Treatment Centre for Children at Liverpool University if offering an opportunity for young patients with HSP and their parents/carers to catch up on the latest work in their EATC4CHILDREN project.
https://www.vasculitis.org.uk/events/children-with-hsp-patient-update-event The Experimental Arthritis Treatment Centre for Children at Liverpool University if offering an opportunity for young patients with HSP and their parents/carers to catch up on the latest work in their EATC4CHILDREN project.
John_Mills
Vasculitis UK
in
Vasculitis UK
3 years ago
FED UP
As well as having rheumatoid arthritis and osteoarthritis in my knee and foot i,ve also got carpal tunnel in my right hand.Has anyone else had carpal tunnel and if so how was it treated.
As well as having rheumatoid arthritis and osteoarthritis in my knee and foot i,ve also got carpal tunnel in my right hand.Has anyone else had carpal tunnel and if so how was it treated.
gradyjackjacob
in
NRAS
3 years ago
Updated post
Link - https://healthunlocked.com/pmrgcauk/posts/private/139984459/dl-information-for-new-patients-with-polymyalgia-pmr-and-giant-cell-
arteritis
-gca
Link - https://healthunlocked.com/pmrgcauk/posts/private/139984459/dl-information-for-new-patients-with-polymyalgia-pmr-and-giant-cell-
arteritis
-gca
DorsetLady
PMRGCAuk volunteer
in
PMRGCAuk
3 years ago
PIP
Hi all what is any are your experiences of claiming PIP I have just started a new claim but so t feel hopeful. I am also in the process of giving up work now with fibromyalgia and arthritis xx
Hi all what is any are your experiences of claiming PIP I have just started a new claim but so t feel hopeful. I am also in the process of giving up work now with fibromyalgia and arthritis xx
WWFboys22
in
Fibromyalgia Action UK
3 years ago
Issues
I've got UAT , OSTIO ARTHRITIS AND FIBROMYALGIA does anyone else have these together I find it really difficult to know which problem is causing issues for me as alot of issues overlap I find this incredibly frustrating anyone got any ideas help please
I've got UAT , OSTIO ARTHRITIS AND FIBROMYALGIA does anyone else have these together I find it really difficult to know which problem is causing issues for me as alot of issues overlap I find this incredibly frustrating anyone got any ideas help please
PENNYODELL29
in
Thyroid UK
3 years ago
Is fibromyalgia a disability?
I’m having issues with universal credit are saying I’m not disabled with fibromyalgia and osteoarthritis in my hip and need a replacement. Had a heart attack and several other diagnoses. Causing me so much stress.
I’m having issues with universal credit are saying I’m not disabled with fibromyalgia and osteoarthritis in my hip and need a replacement. Had a heart attack and several other diagnoses. Causing me so much stress.
michl14
in
Fibromyalgia Action UK
3 years ago
Had anyone had the Covid antibody test?
Saw a webinar in which it was suggested that a fairly small study showed people taking tocilizumab, mycophenelate, predisilone or methatrixate might only be covered 35-55% for the Covid vaccine. I am taking three of these. It recommended an antibody test - it was the SARS COVID anti spike test I think
Saw a webinar in which it was suggested that a fairly small study showed people taking tocilizumab, mycophenelate, predisilone or methatrixate might only be covered 35-55% for the Covid vaccine. I am taking three of these. It recommended an antibody test - it was the SARS COVID anti spike test I think
christine2715
in
PMRGCAuk
3 years ago
Autoimmune system and nerve pain
Hi there, I’m new to this forum only due to intense googling the last 13.5 weeks and stumbled across PMR + temporal
arteritis
. Apologies in advance for the long winded post.
Hi there, I’m new to this forum only due to intense googling the last 13.5 weeks and stumbled across PMR + temporal
arteritis
. Apologies in advance for the long winded post.
Mill1234
in
PMRGCAuk
3 years ago
Tendons - calcium
Hi I was wondering if anyone had calcium in their shoulder tendons?? If so what helped it?? An ultrasound found I had this condition plus osteoarthritis. I’m really struggling with this condition it is extremely painful to move arm and can’t sleep on that arm. I’ve had surgery 12 years on that shoulder
Hi I was wondering if anyone had calcium in their shoulder tendons?? If so what helped it?? An ultrasound found I had this condition plus osteoarthritis. I’m really struggling with this condition it is extremely painful to move arm and can’t sleep on that arm. I’ve had surgery 12 years on that shoulder
Maggie153
in
PMRGCAuk
3 years ago
Is there any support I can find in Punjabi?
My mum's main language is Punjabi and I would like to see if there is any support for her with her arthritis. She is in pain daily and has helped in terms of medication and some physiotherapy but her condition seems to be getting worse. I think she could really benefit from knowing there are other people
My mum's main language is Punjabi and I would like to see if there is any support for her with her arthritis. She is in pain daily and has helped in terms of medication and some physiotherapy but her condition seems to be getting worse. I think she could really benefit from knowing there are other people
hira123
in
NRAS
3 years ago
Reminder to new MTX users - your sensitivity to the sun is likely to be increased.
The weather has been so awful that I had forgotten that I had read about this side-effect. Yesterday, I enjoyed a lovely, lazy day watching the bees buzzing around the dandelion flowers in my knee height grass (we're doing No May May) and basking in the weird warmth of the shining orb. I now resemble
The weather has been so awful that I had forgotten that I had read about this side-effect. Yesterday, I enjoyed a lovely, lazy day watching the bees buzzing around the dandelion flowers in my knee height grass (we're doing No May May) and basking in the weird warmth of the shining orb. I now resemble
Hidden
in
PMRGCAuk
3 years ago
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