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Hello
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
StOsyths1970
in
NRAS
1 month ago
Rib pain after breathing test
On 22nd I took respiratory test. Ribs in area of LUNG SURGERY in 2019 are very painful upon effort; front, side, and back. I'm taking tylenol and rubbing creams with little improvement. Any one experience this after test?
On 22nd I took respiratory test. Ribs in area of LUNG SURGERY in 2019 are very painful upon effort; front, side, and back. I'm taking tylenol and rubbing creams with little improvement. Any one experience this after test?
Lyubov
in
Lung Conditions Community Forum
1 month ago
advice on sulfasalazine and the sun
I have been told by my rheumatologist nurse that I need to start taking sulfasalazine for my reactive arthritis, as I had a steroid injection after taking steroids orally, but it’s still not keeping the joint stiffness at bay completely . I’m not happy as I was under the impression that reactive arthritis
I have been told by my rheumatologist nurse that I need to start taking sulfasalazine for my reactive arthritis, as I had a steroid injection after taking steroids orally, but it’s still not keeping the joint stiffness at bay completely . I’m not happy as I was under the impression that reactive arthritis
Fish1230
in
NRAS
7 months ago
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Anaemia and R.Arthritis
Hi after a recent routine blood test (due to be being on methotrexate) I have recently been told I am anaemic and following more tests, have now been referred to the hospital for a colonoscopy. I am now thinking it might be 'pay back time' for that the cocktail of drugs I have been taking over the
Hi after a recent routine blood test (due to be being on methotrexate) I have recently been told I am anaemic and following more tests, have now been referred to the hospital for a colonoscopy. I am now thinking it might be 'pay back time' for that the cocktail of drugs I have been taking over the
Cutes
in
NRAS
7 months ago
Too much pain
Within under 2 years I've had a broken back, broken sternum, and 3 weeks ago a double mastectomy, and now arthritis of Lower spine, I can't stop and am making everything worse, fibromyalgia, originally diagnosed . So lonely and in pain.
Within under 2 years I've had a broken back, broken sternum, and 3 weeks ago a double mastectomy, and now arthritis of Lower spine, I can't stop and am making everything worse, fibromyalgia, originally diagnosed . So lonely and in pain.
auntysue
in
Fibromyalgia Action UK
7 months ago
Told 2 years ago i think u got fibromyalgia.
Ive been totally fatigued for last 6years pains all over my body. Some days its in my shoulders n neck. Been told it was arthritis in my neck which affects my shoulders and back. Then another day ive pains and weakness in my arms numbness in my fingers been told i got tennis elbow carpal tunnel. Its
Ive been totally fatigued for last 6years pains all over my body. Some days its in my shoulders n neck. Been told it was arthritis in my neck which affects my shoulders and back. Then another day ive pains and weakness in my arms numbness in my fingers been told i got tennis elbow carpal tunnel. Its
Fg08hvt64tg
in
Fibromyalgia Action UK
7 months ago
RA and lymphoedema
Hi, just wondering if anyone has secondary lymphoedema and rheumatoid arthritis and if so what RA medication you are on, I am waiting to find out what medication I can be prescribed as I am currently having a flare up, I have had RA for over 35 years and been on various medications but the last ones
Hi, just wondering if anyone has secondary lymphoedema and rheumatoid arthritis and if so what RA medication you are on, I am waiting to find out what medication I can be prescribed as I am currently having a flare up, I have had RA for over 35 years and been on various medications but the last ones
Keb22
in
NRAS
2 months ago
psoriatic arthritis
Has anyone with psoriatic arthritis had pain in their calves and swelling in both ankles above the heels???
Has anyone with psoriatic arthritis had pain in their calves and swelling in both ankles above the heels???
Beata0102
in
NRAS
2 months ago
PMR & Osteoarthritis in Knees
I have been added to the waiting list for knee replacement. I am trying to loose weight which I feel will help the pain in my knees. They can be very stiff some days and difficult to bend and I do get pain in the back of my thighs and shin splint pain too. I wonder if this is part of PMR ? I would hate
I have been added to the waiting list for knee replacement. I am trying to loose weight which I feel will help the pain in my knees. They can be very stiff some days and difficult to bend and I do get pain in the back of my thighs and shin splint pain too. I wonder if this is part of PMR ? I would hate
jules1955
in
PMRGCAuk
7 months ago
Anti-rheumatic drugs could prevent thyroid disease
Many have asked why autoimmune thyroid disease is not itself treated - just the loss of thyroid production. Well - have a read here! [i]Published: 22-11-2023 10:06 | Updated: 22-11-2023 14:53[/i] [i]Anti-rheumatic drugs could prevent thyroid disease[/i] [i][/i] [i][/i] [i]Anti-rheumatic drugs
Many have asked why autoimmune thyroid disease is not itself treated - just the loss of thyroid production. Well - have a read here! [i]Published: 22-11-2023 10:06 | Updated: 22-11-2023 14:53[/i] [i]Anti-rheumatic drugs could prevent thyroid disease[/i] [i][/i] [i][/i] [i]Anti-rheumatic drugs
helvella
Thyroid UK
in
Thyroid UK
5 months ago
update - diet & tapering
Just finished reading this kindle book and it it genuinely excellent: Polymyalgia Rheumatica and Giant Cell
Arteritis
: a survival guide. 2nd edition author Kate Gilbert
Just finished reading this kindle book and it it genuinely excellent: Polymyalgia Rheumatica and Giant Cell
Arteritis
: a survival guide. 2nd edition author Kate Gilbert
Thiago1396
in
PMRGCAuk
9 months ago
QUICK TAPER; CRP RISING STEADILY; FLARING
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
Missus835
in
PMRGCAuk
2 months ago
hot flushes
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
Freshairfiend
in
PMRGCAuk
4 months ago
Checks after stopping Prednisolone?
I was diagnosed with temporal
arteritis
in Nov 2021 and put on 40 mg of Prednisoline. This has reduced, though dose had to be raised when I had severe headaches. Now down to 1 mg next week and then supposed to stop. 1. I think I will still have symptoms.
I was diagnosed with temporal
arteritis
in Nov 2021 and put on 40 mg of Prednisoline. This has reduced, though dose had to be raised when I had severe headaches. Now down to 1 mg next week and then supposed to stop. 1. I think I will still have symptoms.
AlamedaCounty
in
PMRGCAuk
1 year ago
From RA to Lupus. High dose pred questions.
Hello everyone. My partner was diagnosed with inflammatory arthritis in 2015 and has been receiving treatment of various sorts for it ever since. The most long lasting of those treatments being Benapali (Etanercept) which he has been taking for 6 years. After a recent major flare and switching to
Hello everyone. My partner was diagnosed with inflammatory arthritis in 2015 and has been receiving treatment of various sorts for it ever since. The most long lasting of those treatments being Benapali (Etanercept) which he has been taking for 6 years. After a recent major flare and switching to
Chickenkeeper2015
in
LUPUS UK
7 months ago
How can they really know?
I'm a bit perplexed as to how they can really tell the difference between OA and RA.I have heard of so many people that are told they have RA, to later be told it's OA. My arthritis symptoms have changed somewhat and are affecting other areas of my body and I don't know whether to bother mentioning
I'm a bit perplexed as to how they can really tell the difference between OA and RA.I have heard of so many people that are told they have RA, to later be told it's OA. My arthritis symptoms have changed somewhat and are affecting other areas of my body and I don't know whether to bother mentioning
Soreallover
in
Arthritis Action
7 months ago
Doctor thinks not pmr
Hi just short story, I was diagnosed with PMR in March 22 I'm now on10mg of prednisolone, with the recent bloods I had taken the Dr thinks it's not pmr but rheumatoid arthritis, should I still be on steroids or something else?Thanks for reading Peter.
Hi just short story, I was diagnosed with PMR in March 22 I'm now on10mg of prednisolone, with the recent bloods I had taken the Dr thinks it's not pmr but rheumatoid arthritis, should I still be on steroids or something else?Thanks for reading Peter.
Petertaffy
in
PMRGCAuk
7 months ago
New diagnosis
Hi there, I got I'll from glandular fever in my late teens and have been given different diagnosis over the years and now I have been told I have rheumatoid arthritis. I'm hopefully going to start sulfasalazine and just wondered has this been successful for people? I've been so fatigued for so long,
Hi there, I got I'll from glandular fever in my late teens and have been given different diagnosis over the years and now I have been told I have rheumatoid arthritis. I'm hopefully going to start sulfasalazine and just wondered has this been successful for people? I've been so fatigued for so long,
DogsMakeLifeGood
in
NRAS
2 months ago
arthritis
just a quick question please, I have arthritis in my hips and knee, finding really painful to walk, waiting for hip replacement , I am using 2 sticks at the mo, has anyone got any bright ideas how I can stop them falling over please as I won’t be able to bend after op thank you
just a quick question please, I have arthritis in my hips and knee, finding really painful to walk, waiting for hip replacement , I am using 2 sticks at the mo, has anyone got any bright ideas how I can stop them falling over please as I won’t be able to bend after op thank you
daisyd
in
Arthritis Action
7 months ago
Charity request for help: GCA patients in England
Dear members with GCA, as you may be aware, NICE and NHS England don't currently allow repeat treatment with tocilizumab for GCA patients who relapse. This means that if you live in England and you've had a year's treatment with tocilizumab, you won't be prescribed it again. However, a recent study
Dear members with GCA, as you may be aware, NICE and NHS England don't currently allow repeat treatment with tocilizumab for GCA patients who relapse. This means that if you live in England and you've had a year's treatment with tocilizumab, you won't be prescribed it again. However, a recent study
Fran_Benson
Partner
in
PMRGCAuk
5 months ago
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