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Aplastic anaemia
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Why is my B12 and folate always on lower end of normal even with injections/supplements
27m, non-smoker, no drugs etc I had been experiencing extreme tiredness for years and my blood tests were always normal. I asked that they check my vitamins and my B12 was 184 (range starting at 180+) and my folate is always borderline too. This was in 2015. I still felt unwell and eventually had a private
27m, non-smoker, no drugs etc I had been experiencing extreme tiredness for years and my blood tests were always normal. I asked that they check my vitamins and my B12 was 184 (range starting at 180+) and my folate is always borderline too. This was in 2015. I still felt unwell and eventually had a private
thyroidorwhat
in
Pernicious Anaemia Society
3 years ago
Advice please
I History: 50 yr old female on 60 Armour for 2yrs, still feeling poorly with low t4, so DR bumped me up to 90 armour and 8 wks later I feel better, but still not great. these are my current lab results: Any thoughts would be appreciated!!! Low WBC, low Neutrophils TSH 1.500 uIU/mL 0.450-4.500
I History: 50 yr old female on 60 Armour for 2yrs, still feeling poorly with low t4, so DR bumped me up to 90 armour and 8 wks later I feel better, but still not great. these are my current lab results: Any thoughts would be appreciated!!! Low WBC, low Neutrophils TSH 1.500 uIU/mL 0.450-4.500
loutomaio
in
Thyroid UK
3 years ago
Iron
Hi all, I just wanted to say that when my Iron was very low back in 2016 I decided to take Floradix liquid iron and my result went up from 73 to 111 in 5months The hospital were considering a blood transfusion when it was 73 but decided to prescribe iron tablets which I did not take but took Floradix
Hi all, I just wanted to say that when my Iron was very low back in 2016 I decided to take Floradix liquid iron and my result went up from 73 to 111 in 5months The hospital were considering a blood transfusion when it was 73 but decided to prescribe iron tablets which I did not take but took Floradix
ginid
in
Thyroid UK
3 years ago
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Eye haemorrhage
My optician has diagnosed a small haemorrhage in my left eye and thinks that this could be due to the prednisalone that I'm taking for PMR. She will be asking the doctor to carry out blood tests. My steroids have just been reduced from 15mg to 12.5 mg. Has anybody had a similar problem with prednisalone
My optician has diagnosed a small haemorrhage in my left eye and thinks that this could be due to the prednisalone that I'm taking for PMR. She will be asking the doctor to carry out blood tests. My steroids have just been reduced from 15mg to 12.5 mg. Has anybody had a similar problem with prednisalone
Hidden
in
PMRGCAuk
3 years ago
MMA test
Hi does anyone know if you can get the MMA test on the NHS. I have had a telephone consultation with my doctor after I sent in my Medichecks Thyroid and Active B12 results. My Active B12 is 41 range 25.1 - 165 and Viapath recommend to be tested for MMA if level is below 70. I emailed Medichecks to
Hi does anyone know if you can get the MMA test on the NHS. I have had a telephone consultation with my doctor after I sent in my Medichecks Thyroid and Active B12 results. My Active B12 is 41 range 25.1 - 165 and Viapath recommend to be tested for MMA if level is below 70. I emailed Medichecks to
lucylocks
in
Thyroid UK
3 years ago
Very high IF Antibodies 300s
In August before my treatment my IF antibodies were 1.2 and I was diagnosed with pernicious anemia (B-12 160 with neuropathy). Now, after weekly injections on June 11th my B-12 is 2,000 and my IF antibodies are in the upper 300s. Does this jump in antibodies indicate pernicious anemia OR is it a side
In August before my treatment my IF antibodies were 1.2 and I was diagnosed with pernicious anemia (B-12 160 with neuropathy). Now, after weekly injections on June 11th my B-12 is 2,000 and my IF antibodies are in the upper 300s. Does this jump in antibodies indicate pernicious anemia OR is it a side
strazzin
in
Pernicious Anaemia Society
3 years ago
GP says it’s low B12 Level but not PA
My B12 serum level was 248 which my GP says is at the low end of normal. She ordered one B12 injection a month for 3 months (3 injections total). I have pins and needles pain in my ribs and pelvis and also loose stool but am not fatigued or nausea. I was on Omeprazole for 23 days last month. I asked
My B12 serum level was 248 which my GP says is at the low end of normal. She ordered one B12 injection a month for 3 months (3 injections total). I have pins and needles pain in my ribs and pelvis and also loose stool but am not fatigued or nausea. I was on Omeprazole for 23 days last month. I asked
Pain12345
in
Pernicious Anaemia Society
3 years ago
Gastritis improvement with injections
I am curious if those with gastritis have found it improved after injections. I had an endoscopy last year, after monthly injections were started, which showed moderate gastritis. This year, the endoscopy showed marked improvement, along with better bowel movements and less intestinal cramping. The
I am curious if those with gastritis have found it improved after injections. I had an endoscopy last year, after monthly injections were started, which showed moderate gastritis. This year, the endoscopy showed marked improvement, along with better bowel movements and less intestinal cramping. The
siamesefrmsiam
in
Pernicious Anaemia Society
3 years ago
Oxford researchers identify levels of antibody protection required to prevent symptomatic COVID-19.
Researchers from the University of Oxford have today released their findings about the so-called ‘correlates of protection’ against symptomatic COVID-19; potentially a tool to speed up safe development of new vaccines which may assist regulators in assessing the likely potency of any new COVID-19 vaccine
Researchers from the University of Oxford have today released their findings about the so-called ‘correlates of protection’ against symptomatic COVID-19; potentially a tool to speed up safe development of new vaccines which may assist regulators in assessing the likely potency of any new COVID-19 vaccine
2greys
in
Lung Conditions Community Forum
3 years ago
Question about IV iron for anyone who has gotten an infusion.
Hey guys. Just asking this out of curiosity. But has anyone actually had RLS go away or improve after an IV iron infusion? I got one back in October and didn’t notice a perceivable difference. Pretty sure my levels are on the lower end now, so I’m getting an iron panel tomorrow but I just wanted to see
Hey guys. Just asking this out of curiosity. But has anyone actually had RLS go away or improve after an IV iron infusion? I got one back in October and didn’t notice a perceivable difference. Pretty sure my levels are on the lower end now, so I’m getting an iron panel tomorrow but I just wanted to see
Jademarie1
in
Restless Legs Syndrome
3 years ago
Blood test results and confused
Hi All, Still waiting to be seen by ENT. Meanwhile here is the result of blood test, can anyone help me understand if i've suddenly switched from hypothyriod to hyperthyriod? Is it possible and if so what is the next steps? Thank you.x TSH - 0.04mU/L (0.30 - 4.20mU/L) T3 - 5.6pmol/L (2.40-6.00pmol/L)
Hi All, Still waiting to be seen by ENT. Meanwhile here is the result of blood test, can anyone help me understand if i've suddenly switched from hypothyriod to hyperthyriod? Is it possible and if so what is the next steps? Thank you.x TSH - 0.04mU/L (0.30 - 4.20mU/L) T3 - 5.6pmol/L (2.40-6.00pmol/L)
noteboo
in
Thyroid UK
3 years ago
Jakavi
I started Jakavi treatment some months ago as I was progressing from PV to myelofibrosis. I had immediate relief from itching but it seems to have returned. Enlsrged spleen, haematocrit down, platelets low and white cells not well controlled. What now?
I started Jakavi treatment some months ago as I was progressing from PV to myelofibrosis. I had immediate relief from itching but it seems to have returned. Enlsrged spleen, haematocrit down, platelets low and white cells not well controlled. What now?
lucieboo
in
MPN Voice
3 years ago
Folic Acid and B12 injections
I have always had low Iron and Folate but until recently my GP has done nothing to correct the levels. It was a diagnosis of Oral Lichen Planus to have my Haematinics checked, I have also been diagnosed with Bile Acid Malapsorption. I was put on B12 injections for life but my folate has now gone down
I have always had low Iron and Folate but until recently my GP has done nothing to correct the levels. It was a diagnosis of Oral Lichen Planus to have my Haematinics checked, I have also been diagnosed with Bile Acid Malapsorption. I was put on B12 injections for life but my folate has now gone down
B52s
in
Pernicious Anaemia Society
3 years ago
Too much B12
I think I’ve overdone it on the B12....!!! 😩 I had annual leave last week so I decided to SI daily hydroxocobalamin alongside taking a sublingual Cyano, 400mcg folic acid, magnesium, calcium, B Complex and an electrolyte drink (9 days in a row) and then after 2 days break I SI Cyano for the first time
I think I’ve overdone it on the B12....!!! 😩 I had annual leave last week so I decided to SI daily hydroxocobalamin alongside taking a sublingual Cyano, 400mcg folic acid, magnesium, calcium, B Complex and an electrolyte drink (9 days in a row) and then after 2 days break I SI Cyano for the first time
User2020-1
in
Pernicious Anaemia Society
3 years ago
Random Strange question about Black Poop/Iron Pills :-)
Hey guys Sorry for the topic so early at breakfast time hehe but... I managed to get the ferrous fumarate yesterday (capsules 305mg) and took one before I went to bed at 12pm. Just did my normal morning poop after taking thyroid meds which always kick starts this and it was pretty much all black. Nothing
Hey guys Sorry for the topic so early at breakfast time hehe but... I managed to get the ferrous fumarate yesterday (capsules 305mg) and took one before I went to bed at 12pm. Just did my normal morning poop after taking thyroid meds which always kick starts this and it was pretty much all black. Nothing
Saggyuk
in
Thyroid UK
3 years ago
Cyanocobalamin v Hydroxocobalamin
Hi all I've just managed to find the information I had read online a while back regarding the various forms of Vitamin B12 and which one to use. Although CliveAlive has used the Cyanocobalamin version for years - is now in his 80s - which speaks for itself, Dr Ben Lynch has other ideas. I don't know
Hi all I've just managed to find the information I had read online a while back regarding the various forms of Vitamin B12 and which one to use. Although CliveAlive has used the Cyanocobalamin version for years - is now in his 80s - which speaks for itself, Dr Ben Lynch has other ideas. I don't know
Moggy1234
in
Pernicious Anaemia Society
3 years ago
B12 injection appointment
Hi, Following on from my previous post (not sure if I should have started new or just added to last one, if admin want to let me know) Anyway, I went to my appointment and had my jab as I had an ampoule with me but have been told I will no longer be given B12 injections. When I asked why, i was told
Hi, Following on from my previous post (not sure if I should have started new or just added to last one, if admin want to let me know) Anyway, I went to my appointment and had my jab as I had an ampoule with me but have been told I will no longer be given B12 injections. When I asked why, i was told
lfc4eva
in
Pernicious Anaemia Society
3 years ago
Asking for help to interpret blood results
Hi there! Today I received some laboratory results and I would like to have further advice and help to understand the results. My GP gave me a referral to a hematologist and I would like to know what I should ask for. I still don't have the guidance of a good health professional and I still feel lost
Hi there! Today I received some laboratory results and I would like to have further advice and help to understand the results. My GP gave me a referral to a hematologist and I would like to know what I should ask for. I still don't have the guidance of a good health professional and I still feel lost
Praga
in
Pernicious Anaemia Society
3 years ago
Neutrophils have bottomed out.
I am supposed to have finished my 4th round of FCR last week but the start of it was delayed for a week because my ANC was .5 (2-7.5 is normal). Blood was checked again last week and it actually dropped to .4. Here we are now two weeks after I was supposed to start round 4 and my neutrophils now read
I am supposed to have finished my 4th round of FCR last week but the start of it was delayed for a week because my ANC was .5 (2-7.5 is normal). Blood was checked again last week and it actually dropped to .4. Here we are now two weeks after I was supposed to start round 4 and my neutrophils now read
CallmeT
in
CLL Support
3 years ago
Reoccurring symptoms - is this “normal” ?
I have been receiving injections for a year now. Progress has been made but I still get some very bad days. I had loading doses and then monthly injections which was not nearly enough. Right now I inject about once a week. Some days I feel good and then I hit stretches of days when I feel awful. I
I have been receiving injections for a year now. Progress has been made but I still get some very bad days. I had loading doses and then monthly injections which was not nearly enough. Right now I inject about once a week. Some days I feel good and then I hit stretches of days when I feel awful. I
Ctadds1
in
Pernicious Anaemia Society
3 years ago
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