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Aplastic anaemia
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Pins and needles help
Friends, I have been diagnosed with Pernicious Anemia and am suffering the classical pins and needles sensation in my arms and legs. B12 jabs have significantly reduced the sensation but I still have some remaining. Is there any over the counter or “home grown” products which can help relief?
Friends, I have been diagnosed with Pernicious Anemia and am suffering the classical pins and needles sensation in my arms and legs. B12 jabs have significantly reduced the sensation but I still have some remaining. Is there any over the counter or “home grown” products which can help relief?
mallard16
in
Pernicious Anaemia Society
21 hours ago
Is it worth doing pernicious anemia test with active B12 of 68?
I'm working on getting my levels of B12, folate, ferritin and D up to ideal levels, if I can, for my thyroid. I recently got a B12 result from monitor my health of 68 pmol/L (range 38-210). I have read that you can still have B12 deficiency even if your B12 is around my level (I heard over 70 is needed
I'm working on getting my levels of B12, folate, ferritin and D up to ideal levels, if I can, for my thyroid. I recently got a B12 result from monitor my health of 68 pmol/L (range 38-210). I have read that you can still have B12 deficiency even if your B12 is around my level (I heard over 70 is needed
Carrie234
in
Thyroid UK
1 day ago
Folate/Folic acid supplement
I have been using Folic Acid 5mg oral supplement EOD since starting b12 injections just over three weeks ago. I was getting some loose bowel, so was advised to try Methylfolate every day instead. However I am wondering if I should be using injectable Folic 5mg instead. My problem is malabsorption due
I have been using Folic Acid 5mg oral supplement EOD since starting b12 injections just over three weeks ago. I was getting some loose bowel, so was advised to try Methylfolate every day instead. However I am wondering if I should be using injectable Folic 5mg instead. My problem is malabsorption due
Chickens44
in
Pernicious Anaemia Society
5 days ago
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Strange definition of pernicious anemia
Found this questionable definition of pernicious anemia on a Johns Hopkins web page about gastritis: [i]
Pernicious anemia
. This is a form of anemia that happens when your stomach can't digest vitamin B-12.[/i] Even the best seem to get it wrong. https://www.hopkinsmedicine.org/health/conditions-and-diseases
Found this questionable definition of pernicious anemia on a Johns Hopkins web page about gastritis: [i]
Pernicious anemia
. This is a form of anemia that happens when your stomach can't digest vitamin B-12.[/i] Even the best seem to get it wrong. https://www.hopkinsmedicine.org/health/conditions-and-diseases
palmier
in
Pernicious Anaemia Society
5 days ago
Once I start supplementing B12, will my B12 blood tests still be accurate?
I would like to know if blood tests will still be a useful measure of my B12 levels, once I have started supplementing B12. I would be testing active B12. The reason I ask is that I have read pernicious anemia people saying that once they start injections (and supplements too maybe), that the B12 blood
I would like to know if blood tests will still be a useful measure of my B12 levels, once I have started supplementing B12. I would be testing active B12. The reason I ask is that I have read pernicious anemia people saying that once they start injections (and supplements too maybe), that the B12 blood
Carrie234
in
Thyroid UK
6 days ago
buprenorphine Patches For Fibromyalgia Head Hair Loss
Been on buprenorphine patches & have noticed head hair loss.Now changing from 5mg to 15 mg shortly as 5 mg doesn't work on me nor does 10mg. Not clumps of hair more like loose strands of hair. Anyone else having these issues etc I'm male by the way. Kindest Regards
Been on buprenorphine patches & have noticed head hair loss.Now changing from 5mg to 15 mg shortly as 5 mg doesn't work on me nor does 10mg. Not clumps of hair more like loose strands of hair. Anyone else having these issues etc I'm male by the way. Kindest Regards
Fibroguy66
in
Fibromyalgia Action UK
7 days ago
Monitoring
Hello everyone Its been a while since i've been on this forum so apologies if this is a common question or if it has been asked recently but I'll make it short and sweet. I am a pernicious anemia sufferer since diagnosis in 2012 and have been on injections ever since now I don't know if it's just me
Hello everyone Its been a while since i've been on this forum so apologies if this is a common question or if it has been asked recently but I'll make it short and sweet. I am a pernicious anemia sufferer since diagnosis in 2012 and have been on injections ever since now I don't know if it's just me
Davy28
in
Pernicious Anaemia Society
10 days ago
Iron profile
So these are my levels 6 weeks post iron infusion ,a combination of coming off the gabapentin and moving to pregablin I'm no longer depressed and able to function ,although my legs are still live they are no longer violent. Serum.iron ..22 Serum tibc 47 Iron transferrin sat 46.8 Serum ferritin 175
So these are my levels 6 weeks post iron infusion ,a combination of coming off the gabapentin and moving to pregablin I'm no longer depressed and able to function ,although my legs are still live they are no longer violent. Serum.iron ..22 Serum tibc 47 Iron transferrin sat 46.8 Serum ferritin 175
Baz33
in
Restless Legs Syndrome
7 months ago
Bloating
Hey guys, quick question, I have pernicious anemia/ gastritis and recently no matter what I eat or drink even it's only a probiotic drink or an apple and water for that day my stomach bloats up so big and tight but when morning comes, I go to the restroom and my stomach goes back down until I drink
Hey guys, quick question, I have pernicious anemia/ gastritis and recently no matter what I eat or drink even it's only a probiotic drink or an apple and water for that day my stomach bloats up so big and tight but when morning comes, I go to the restroom and my stomach goes back down until I drink
25092
in
Pernicious Anaemia Society
24 days ago
EOD may not continue...
I have had 2 loading doses of B12. Before the 3rd set of loading doses began, the nurses queried the reason for such frequency...This started the drs querying it despite agreeing another 2 nd and 3rd course of B12 due to neurological symptoms. It appears my improvement in symptoms was not quite enough
I have had 2 loading doses of B12. Before the 3rd set of loading doses began, the nurses queried the reason for such frequency...This started the drs querying it despite agreeing another 2 nd and 3rd course of B12 due to neurological symptoms. It appears my improvement in symptoms was not quite enough
La2016
in
Pernicious Anaemia Society
25 days ago
Does fear play a role with pernicious anemia?
Hey guys, I hope this message finds you well. It's good to have a place to come that someone has some understanding of what you're going through! I messaged here before about having fear of a lot of things that I didn't have before this PA/B12 deficiency and sometimes I think of myself as a wimp because
Hey guys, I hope this message finds you well. It's good to have a place to come that someone has some understanding of what you're going through! I messaged here before about having fear of a lot of things that I didn't have before this PA/B12 deficiency and sometimes I think of myself as a wimp because
25092
in
Pernicious Anaemia Society
28 days ago
Sitagliptin
Hi all Does anyone know if this medicine for type 2 diabetes has any effect on RLS/PLMD. I did a search and could not find it. I have been on 2 diabetic mecicines and both have sent my legs crazy or has other side effects. Thanks.
Hi all Does anyone know if this medicine for type 2 diabetes has any effect on RLS/PLMD. I did a search and could not find it. I have been on 2 diabetic mecicines and both have sent my legs crazy or has other side effects. Thanks.
CORFUORBUST
in
Restless Legs Syndrome
7 months ago
Bruxism, botulinum toxin, Hashimoto, anxiety, tension
I have had Hashimoto's Thyroiditis since 2014. I'm 34 years old. In addition I also have diabetes, PCOS and PTSD. I suffer from bruxism, a lot of anxiety, I live in a houve with children with autism. I broke my teeth and a dentist reconstructed them. Now I use dental plaque to sleep. But I still
I have had Hashimoto's Thyroiditis since 2014. I'm 34 years old. In addition I also have diabetes, PCOS and PTSD. I suffer from bruxism, a lot of anxiety, I live in a houve with children with autism. I broke my teeth and a dentist reconstructed them. Now I use dental plaque to sleep. But I still
Margimet
in
Thyroid UK
7 months ago
Intrinsic Factor result
bit disappointing it didn’t come back positive., but I know they don’t always accurately reflect the underlying condition.It also means my pernicious anaemia could be due to long term use of PPIs rather than autoimmune gastritis. (By the way stopped PPIs in December last year) .
bit disappointing it didn’t come back positive., but I know they don’t always accurately reflect the underlying condition.It also means my pernicious anaemia could be due to long term use of PPIs rather than autoimmune gastritis. (By the way stopped PPIs in December last year) .
Chickens44
in
Pernicious Anaemia Society
1 month ago
Iron deficiency problem? But told satisfactory . Please can anyone advise
Hi everyone, Hope you are all keeping well as we can be. Apologies for this long post I recently requested in Sep to have my VIT D levels checked as I recognised some of the symptoms from when I was deficient. And for some reason my levels had dropped so started 5 weeks ago to take a twice weekly
Hi everyone, Hope you are all keeping well as we can be. Apologies for this long post I recently requested in Sep to have my VIT D levels checked as I recognised some of the symptoms from when I was deficient. And for some reason my levels had dropped so started 5 weeks ago to take a twice weekly
PJDJ_08
in
Thyroid UK
7 months ago
Numbness after methyl injections
Hello everyone, I recently switched from cyanocobalamin to methylcobalamin. The first few injections I felt euphoric and normal again, had wake up symptoms like tingling, twitches and burning pain. But as I continue to inject, it seems like the effect has dulled and now I have more numbness than anything
Hello everyone, I recently switched from cyanocobalamin to methylcobalamin. The first few injections I felt euphoric and normal again, had wake up symptoms like tingling, twitches and burning pain. But as I continue to inject, it seems like the effect has dulled and now I have more numbness than anything
QianYunxi
in
Pernicious Anaemia Society
2 months ago
Low B12 and ferritin questions
Over the past year I have had frequent respiratory infections and when not ill, I am always exhausted. I often need to stay in bed on my days off recovering. Alongside the exhaustion and frequent infections I have dealt with nausea and gastric problems which I always thought were due to IBS. I faint
Over the past year I have had frequent respiratory infections and when not ill, I am always exhausted. I often need to stay in bed on my days off recovering. Alongside the exhaustion and frequent infections I have dealt with nausea and gastric problems which I always thought were due to IBS. I faint
bakedbean5007
in
Pernicious Anaemia Society
2 months ago
Non-Functional B12 Cellular Activity.
Non-Functional B12 Cellular Activity. A study posted by technoid. https://pure.tudelft.nl/ws/portalfiles/portal/153859755/Design_of_a_treatment_protocol_to_improve_the_health_of_B12_deficient_patients.pdf It is a study of the biochemistry of vitamin B12 cellular metabolism. 4 years of treating B12
Non-Functional B12 Cellular Activity. A study posted by technoid. https://pure.tudelft.nl/ws/portalfiles/portal/153859755/Design_of_a_treatment_protocol_to_improve_the_health_of_B12_deficient_patients.pdf It is a study of the biochemistry of vitamin B12 cellular metabolism. 4 years of treating B12
WIZARD6787
in
Pernicious Anaemia Society
7 months ago
High neutrophil count😱
My wife's last blood test showed her platelets were up at @800 And her neutrophil count at over 70, her Hgb was 116, hematocrit was 0.38 which is high for her, but as it was only three weeks since she had three units of packed red cells and a bag of iron, that was expected. I read in the guardian of
My wife's last blood test showed her platelets were up at @800 And her neutrophil count at over 70, her Hgb was 116, hematocrit was 0.38 which is high for her, but as it was only three weeks since she had three units of packed red cells and a bag of iron, that was expected. I read in the guardian of
jointpain
in
MPN Voice
7 months ago
hashimotos/parathyroid
The reason I ask the below question yesterday is because I have hypercalceimia and I don’t know what Vit supplements I can take without making it worse . I feel worse now than ever and my life is dismal so poorly all time just existing and frightened . hi all can anyone tell me the difference between
The reason I ask the below question yesterday is because I have hypercalceimia and I don’t know what Vit supplements I can take without making it worse . I feel worse now than ever and my life is dismal so poorly all time just existing and frightened . hi all can anyone tell me the difference between
Jemjet
in
Thyroid UK
2 months ago
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