The reason I ask the below question yesterday is because I have hypercalceimia and I don’t know what Vit supplements I can take without making it worse . I feel worse now than ever and my life is dismal so poorly all time just existing and frightened .
hi all can anyone tell me the difference between pth and pthrl blood test I have been to see a professor of endocrinology and he says I need a parathyroid removing due to my hypercalcemia I still feel absolutely like I am dying and so nauseous I have also been diagnosed with reactive hyperglycaemia am still on 50 micrograms of Levo but no effect as yet . My nhs endo still hopeless and the professor at Oxford as written to gp , nhs endo and another professor he knows , to tell them what he thinks of all my results as my nhs endo won’t prescribe Levo . I forgot to ask what the difference with the 2 above test the results where:
Serum parathyroid hormone:
5.0 pmol/L
Normal range:
2.0 to 9.3
Plasma parathyroid hormone related peptide level:
6.5 pmol/L
Normal range: <1.5
Not had any more test since last ones I posted but am due .
I just feel so poorly all time and feel so so unwell . 🤗🥰
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Jemjet
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Hi Slowdragon Vit d was 74.9 mol 20th feb the adjusted calcium goes up and down 2.67 mmol feb 2nd pth was feb 2nd pthrl was 19th feb . Started Levo on 3 rd April by private thyroid specialist . Stopped all vits coz don’t know which affect the hypocalcaemia feel crap when I eat with the hyperglycaemia am so confused and unwell
Hi I weigh 49.7kg seem to have lost some was 52kg but my natural weight is 46kg . This is terrifying me as so unwell I started the Levo 3rd of April but since have been worse not even a little better how long before putting it up do I need to wait ? Thanks for help xx
Most easily available (and often most easily tolerated) are Mercury Pharma or Accord
Mercury Pharma make 25mcg, 50mcg and 100mcg tablets
Mercury Pharma also boxed as Eltroxin. Both often listed by company name on pharmacy database - Advanz
Accord only make 50mcg and 100mcg tablets. Accord is also boxed as Almus via Boots,
Wockhardt is very well tolerated, but only available in 25mcg tablets. Some people remain on Wockhardt, taking their daily dose as a number of tablets
Lactose free brands - currently Teva or Vencamil only
Teva makes 25mcg, 50mcg, 75mcg and 100mcg
Many patients do NOT get on well with Teva brand of Levothyroxine.
Teva is lactose free.But Teva contains mannitol as a filler instead of lactose, which seems to be possible cause of problems. Mannitol seems to upset many people, it changes gut biome
Teva is the only brand that makes 75mcg tablet.
So if avoiding Teva for 75mcg dose ask for 25mcg to add to 50mcg or just extra 50mcg tablets to cut in half
But for some people (usually if lactose intolerant, Teva is by far the best option)
Vencamil (currently 100mcg only) is lactose free and mannitol free. 25mcg and 50mcg tablets hopefully available from summer 2024
Also I don’t know what vitamins supplements to take coz of the hypercalcaemia Am very confused and the reactive hyperglycaemia doesn’t help , it makes so I don’t know what’s making me so unwell my nhs endo says my pth is 6.5 but it says on patient access my result was 5.00 it’s my other that is 6.5 shows how much she knows and because she will not agree about hashimotos and tpo and is a diabetic specialist not thyroid , I don’t think she knows what she’s doing she got the professors report on 2nd may telling her what he thinks from all my test and med reports and this morning I got letter moving my appointment to end of June , it should be next Tuesday . This report also went to her manager and my gp but have heard nothing . The proffessor in Oxford says I need a thyroid specialist and he gave the name of whom to refer me too and also said which test and scans they need to do as well as the meds I need ,
Am getting nowhere and I thought might go to pals do you think it will help ? Again I feel like a massive burden and hypochondriac ☹️🤔
That’s good to know xx it is a thyroid clinic in Bristol that is prescribing as my gp can’t due to the nhs endo saying I don’t have hashimotos. And my tpo is 1 blip she says
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Persuading GP to increase Levo
Are My Vit D Levels Low Due to Parathyroid?
Recent blood results (T3 only) 
Am I hypothyroid. Appreciate your opinion.
