Iron profile : So these are my levels... - Restless Legs Syn...

Restless Legs Syndrome

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Iron profile

Baz33 profile image
12 Replies

So these are my levels 6 weeks post iron infusion ,a combination of coming off the gabapentin and moving to pregablin I'm no longer depressed and able to function ,although my legs are still live they are no longer violent.

Serum.iron ..22

Serum tibc 47

Iron transferrin sat 46.8

Serum ferritin 175

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Baz33 profile image
Baz33
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12 Replies
SueJohnson profile image
SueJohnson

Great.

Madlegs1 profile image
Madlegs1

Ferritin is good.

Just keep an eye on triggers.👍💚

ChrisColumbus profile image
ChrisColumbus

I hope that the combination of pregabalin and iron will continue to help you - good luck!

SueJohnson profile image
SueJohnson

Your saturation is on the high side so don't take any iron tablets.

Baz33 profile image
Baz33 in reply to SueJohnson

I've got a review on Tuesday to ask these questions, thankyou .What's the risk of too high please?

SueJohnson profile image
SueJohnson in reply to Baz33

It means you have too much iron in your body. The iron can build up in your vital organs and injure them over time. Here is a source for saying not taking more iron sciencedirect.com/science/a...

Baz33 profile image
Baz33 in reply to SueJohnson

Thankyou

ChrisColumbus profile image
ChrisColumbus in reply to SueJohnson

Good catch. I'd previously seen warnings about TSAT over 50%, but seeing your reference I dug a bit further and found a warning in a paper about haemochromatosis:

"A TSAT higher than 45 percent should be investigated further"

uptodate.com/contents/hered...

(UPDATE: but probably temporarily raised by infusion)

SueJohnson profile image
SueJohnson in reply to ChrisColumbus

True although luckily not in Baz33's case since it was a result of an iron infusion.

ChrisColumbus profile image
ChrisColumbus in reply to SueJohnson

Indeed I was in the process of adding a note to that effect to mine when I spotted your Reply!

Munroist profile image
Munroist

Interesting. When I raised my iron to 175 through supplementation with iron bisglycinate it didn’t make the RLS go away but like you it did seem to make it less violent or twitchy and I generally slept better.

Baz33 profile image
Baz33 in reply to Munroist

I'm always going to suffer ,I've had it since I was 7, however now I'm not taking antidepressants and my iron is up and I'm taking the pregabalin there's a marked difference in my mood,energy levels and thankfully the depression has disappeared since I came off the gabapentin, I'm feeling much more balanced.

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