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Angelman syndrome

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Angelman syndrome

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2,598 public posts

Trying to be hopeful?

Hi all you beauties! I’m needing some love right now. I’m currently 5wks3days. I’ve been having some minor brown discharge that has slowly increased in amount over the past week. Today I went to the bathroom and expecting brown I saw bright red blood. I’ve heard so many people say spotting is normal
Hi all you beauties! I’m needing some love right now. I’m currently 5wks3days. I’ve been having some minor brown discharge that has slowly increased in amount over the past week. Today I went to the bathroom and expecting brown I saw bright red blood. I’ve heard so many people say spotting is normal
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Hopingforbaby_
in Fertility Network UK

Hip Replacement OP

I've been blessed and offered a cancellation for the hip op. Very last moment, but grabbed it as I've been reduced to a cripple. Had it last Saturday and I'm back home now learning how to walk again and get my knickers on without bending! Just to say the anaesthetist was great. Gave me methadoxatone
I've been blessed and offered a cancellation for the hip op. Very last moment, but grabbed it as I've been reduced to a cripple. Had it last Saturday and I'm back home now learning how to walk again and get my knickers on without bending! Just to say the anaesthetist was great. Gave me methadoxatone
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oscarandchloe
in PMRGCAuk

Am I entitled to IVF on the NHS

Hi all, after years of tests with my gynaecologist he has finally referred me to an IVF clinic and we had our first appointment today. The Doctor there has said she needs to do some research but she thinks because the Gynaecologist prescribed me Clomiphene that I may now not be entitled to IVF on the
Hi all, after years of tests with my gynaecologist he has finally referred me to an IVF clinic and we had our first appointment today. The Doctor there has said she needs to do some research but she thinks because the Gynaecologist prescribed me Clomiphene that I may now not be entitled to IVF on the
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LillyZL
in Fertility Network UK
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Anyone get chorea with aps?

Just wondering if anyone gets chorea with their aps? I haven't been diagnosed yet waiting for my 2nd test. I have been having these weird facial tics and arm/hand movements, usually followed by a seizure. Its just battling whsts happening to me. Then when I test positive for b2 glycoprotein and thought
Just wondering if anyone gets chorea with their aps? I haven't been diagnosed yet waiting for my 2nd test. I have been having these weird facial tics and arm/hand movements, usually followed by a seizure. Its just battling whsts happening to me. Then when I test positive for b2 glycoprotein and thought
Charts profile image
Charts
in Hughes Syndrome APS Forum

Almost 18 years walking alone with no diagnosis to my vocal tic disorder.

Good Afternoon to you all. I am knew here. This morning I was given hope for my Vocal tic disorder. It was given a name FND. I had given up hope that there would be something that could be done to help my disability in this life, beside the many options of medication. Then finding you guys, people who
Good Afternoon to you all. I am knew here. This morning I was given hope for my Vocal tic disorder. It was given a name FND. I had given up hope that there would be something that could be done to help my disability in this life, beside the many options of medication. Then finding you guys, people who
DarkBlackberry profile image
DarkBlackberry
in Functional Neurological Disorder - FND Hope

Flash backs covid pneumonitis

Hi I’m nearly 6 months post ventilation from covid pneumonitis and the flash backs are now giving me bad panic attacks this is the worst I’ve ever been, I’m waiting for councilling due to start in 3 weeks had anyone get any coping tips that I could possibly try to stop or not be so bad with the flashbacks
Hi I’m nearly 6 months post ventilation from covid pneumonitis and the flash backs are now giving me bad panic attacks this is the worst I’ve ever been, I’m waiting for councilling due to start in 3 weeks had anyone get any coping tips that I could possibly try to stop or not be so bad with the flashbacks
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Nala8573
in ICUsteps

Beta HCG elevation

Morning ladies. I tried to explain to the GP that my clinic requested a Beta blood test to confirm pregnancy. They couldn’t get me in until late this month. I did a little research and there is a company on line - Medichecks. I sent off a blood sample and voilà 783 on day 13 after 5dt 🥰🥰🥰🥰🥰🥰🤞🏻
Morning ladies. I tried to explain to the GP that my clinic requested a Beta blood test to confirm pregnancy. They couldn’t get me in until late this month. I did a little research and there is a company on line - Medichecks. I sent off a blood sample and voilà 783 on day 13 after 5dt 🥰🥰🥰🥰🥰🥰🤞🏻
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Doglover7866
in Fertility Network UK

Sensitive post - Absolutely greatful

So I haven't posted on here for a while since going through the IVF process ....... I guess I'm kind of anxious about jinxing anything 🙃 Anyway I would just like to let you guys know that I am now 21 weeks and Allah has blessed us with a baby boy who is growing daily 💙 and causing me bad ligament
So I haven't posted on here for a while since going through the IVF process ....... I guess I'm kind of anxious about jinxing anything 🙃 Anyway I would just like to let you guys know that I am now 21 weeks and Allah has blessed us with a baby boy who is growing daily 💙 and causing me bad ligament
Shishi19 profile image
Shishi19
in Fertility Network UK

Clomid, clomiphine

hi all! has anyone got any experience on clomid? I'm on day 9 of my cycle, took clomid days 2-5. my period was very light, stopped after 2 days on clomid. yday I started spotting and some today. not a lot at the moment. Having all the fun aches and pains in my ovaries. Definitely not ovulated yet. Has
hi all! has anyone got any experience on clomid? I'm on day 9 of my cycle, took clomid days 2-5. my period was very light, stopped after 2 days on clomid. yday I started spotting and some today. not a lot at the moment. Having all the fun aches and pains in my ovaries. Definitely not ovulated yet. Has
katymcg profile image
katymcg
in Fertility Network UK

Its positive

Hi, lovely ladies, so yesterday my beta hcg done, this is my first ivf, and guess what i m pregnant. I m over the moon and i m so happy.
Hi, lovely ladies, so yesterday my beta hcg done, this is my first ivf, and guess what i m pregnant. I m over the moon and i m so happy.
Anjalichaudhary profile image
Anjalichaudhary
in Fertility Network UK

Private or nhs

**sensitive post*** Some background I’m 39 with epilepsy. After 2 rounds of ivf we got a bfp and currently 10 weeks. Since we’ve told my in-laws they have gone on about private maternity care as my DH sisters both went private, over 16 years ago and it wasn’t as expensive then. I feel it would
**sensitive post*** Some background I’m 39 with epilepsy. After 2 rounds of ivf we got a bfp and currently 10 weeks. Since we’ve told my in-laws they have gone on about private maternity care as my DH sisters both went private, over 16 years ago and it wasn’t as expensive then. I feel it would
Babytwinkle profile image
Babytwinkle
in NCT

succinyl choline not acetyl choline

I posted earlier about using acetyl choline to euthanize dogs in my vet clinic. I was wrong. We used succinyl choline 30 years ago. It's still used as an anesthesia adjunct.
I posted earlier about using acetyl choline to euthanize dogs in my vet clinic. I was wrong. We used succinyl choline 30 years ago. It's still used as an anesthesia adjunct.
kaypeeoh profile image
kaypeeoh
in Cure Parkinson's

Anomaly scan update, 6 months running

Hlo all dears I am currently 6 months running.. My baby is in breech position... What should I do?? And I feel my tummy very tight and stretching .. Does this happens to everyone?? This is my first pregnancy.. I am 36 years old.. So worried alot...
Hlo all dears I am currently 6 months running.. My baby is in breech position... What should I do?? And I feel my tummy very tight and stretching .. Does this happens to everyone?? This is my first pregnancy.. I am 36 years old.. So worried alot...
Momtob profile image
Momtob
in NCT

What specialist do I see to remove Lipomas that are affecting my breathing?

I have lipomas that are blocking my lymphatic system in my scapula, shoulder near my armpit and it is causing me a lot of discomfort, swelling pressure, and labored breathing? Any help or advice is welcome. Thank you Nets67
I have lipomas that are blocking my lymphatic system in my scapula, shoulder near my armpit and it is causing me a lot of discomfort, swelling pressure, and labored breathing? Any help or advice is welcome. Thank you Nets67
Hidden profile image
Hidden
in Asthma Community Forum

Polyhydramnios specifics

Hello, lovely lot. I'm new here. 33 weeks with baby number 4. I know there are a lot of posts about polyhydramnios, but I'm really looking for some specific details about your experiences if that's okay. As lots have said, the internet can be a bit scary and there I was at 4am googling frantically
Hello, lovely lot. I'm new here. 33 weeks with baby number 4. I know there are a lot of posts about polyhydramnios, but I'm really looking for some specific details about your experiences if that's okay. As lots have said, the internet can be a bit scary and there I was at 4am googling frantically
marlboroughmama profile image
marlboroughmama
in NCT

Synarel is a troll! Anyone relate?

Hello likeminded travellers! I’m starting my 6th IVF cycle shortly. It’s been tough but I remain optimistic. Anyway, I’ve been snorting 4 shots daily of synarel for 2 months - now we’ve increased to 6 shots per day. I appreciate that it works - and it’s helping me to eventually / hopefully fall pregnant
Hello likeminded travellers! I’m starting my 6th IVF cycle shortly. It’s been tough but I remain optimistic. Anyway, I’ve been snorting 4 shots daily of synarel for 2 months - now we’ve increased to 6 shots per day. I appreciate that it works - and it’s helping me to eventually / hopefully fall pregnant
VMJ007 profile image
VMJ007
in Fertility Network UK

PRP - Thin Endometrium - feedback anyone ?

Hi All, I have been struggling with thin endometrium for almost 2 years now ( i have 6 excellent quality embryos from the first IVF cycle) , tried all the conventional methods of hormonal therapies - i have taken boxes of progynova but it doesnt seem to help. My doc has not suggested to try PRP therapy
Hi All, I have been struggling with thin endometrium for almost 2 years now ( i have 6 excellent quality embryos from the first IVF cycle) , tried all the conventional methods of hormonal therapies - i have taken boxes of progynova but it doesnt seem to help. My doc has not suggested to try PRP therapy
VG2021 profile image
VG2021
in Fertility Network UK

Rare diseases

Does any body on this site, have a very rare lung disease called pulmonary langerhans cell histiocytosis?
Does any body on this site, have a very rare lung disease called pulmonary langerhans cell histiocytosis?
Sandrapez profile image
Sandrapez
in Lung Conditions Community Forum

MMC Chromosome results “Trisomy for Chromosome 15”

Hi, I had a MMC almost 7 weeks ago and just had genetic testing results back from London lab. My husband and myself now need to go for a blood test to see if we are carriers of any chromosomal errors. We’ve had 55 eggs collected over 4 fresh cycles - all four ending in miscarriage. I read up about our
Hi, I had a MMC almost 7 weeks ago and just had genetic testing results back from London lab. My husband and myself now need to go for a blood test to see if we are carriers of any chromosomal errors. We’ve had 55 eggs collected over 4 fresh cycles - all four ending in miscarriage. I read up about our
Downonthefarm profile image
Downonthefarm
in Fertility Network UK

Best foundation for telangiectasia?

Hi all, Anyone out there found a good foundation to cover telangiectasia on the face? I was diagnosed with systemic sclerosis 3 years ago. I know it seems trivial with all the other things we have to deal with but the redness on my face gets me down sometimes and I wondered if anyone has found the holy
Hi all, Anyone out there found a good foundation to cover telangiectasia on the face? I was diagnosed with systemic sclerosis 3 years ago. I know it seems trivial with all the other things we have to deal with but the redness on my face gets me down sometimes and I wondered if anyone has found the holy
Helenlouise40 profile image
Helenlouise40
in Scleroderma & Raynaud's UK (SRUK)
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