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Lupus and Sjogrens issue
Has anybody ever had issues with lupus/sjogrens in their ears? I caught a cold and mucus has settled in my Eustachian tubes or something and they have been blocked now for over 15 months. I have so much fullness and pressure in both ears and I have lost a lot of my hearing. Prednisone hasn't helped
Has anybody ever had issues with lupus/sjogrens in their ears? I caught a cold and mucus has settled in my Eustachian tubes or something and they have been blocked now for over 15 months. I have so much fullness and pressure in both ears and I have lost a lot of my hearing. Prednisone hasn't helped
Nanosaint
in
LUPUS UK
1 day ago
Help with air conditioning and dry mouth
My sister is going on a coach trip and the coach has air conditioning, she is struggling with a dry nose and mouth with Sjogrens also she has earache with it. She wonders if anyone on here has any tips on how to cope on the journey to relieve the symptoms please?
My sister is going on a coach trip and the coach has air conditioning, she is struggling with a dry nose and mouth with Sjogrens also she has earache with it. She wonders if anyone on here has any tips on how to cope on the journey to relieve the symptoms please?
greenfingers
in
The Australian Sjögren's Syndrome Association
1 day ago
Lupus connected to Radiation
I recently read an article where someone felt that Lupus was connected to radiation exposure. Around 1989 I had a full radiation treatment for breast cancer. Back then they radiated your entire side back to front and I had horrific burns. 25 years later I was diagnosed with Sjogrens and Lupus. Has anyone
I recently read an article where someone felt that Lupus was connected to radiation exposure. Around 1989 I had a full radiation treatment for breast cancer. Back then they radiated your entire side back to front and I had horrific burns. 25 years later I was diagnosed with Sjogrens and Lupus. Has anyone
DogHospiceMom
in
LUPUS UK
1 day ago
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Patient's view least important in diagnosis 🙄
Who'd have thought it? Research for Lupus Trust and in a Sjogren's UK newsletter but very applicable for us and others...https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/kead685/7473364?login=false UPDATE: larger photos of all three pages of the article uploaded below.
Who'd have thought it? Research for Lupus Trust and in a Sjogren's UK newsletter but very applicable for us and others...https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/kead685/7473364?login=false UPDATE: larger photos of all three pages of the article uploaded below.
Agitator23
in
Thyroid UK
1 day ago
Stroke Prevention in A fib
Just wondering if there has been any buzz/chatter about the drug — Abelacimab (MAA868) a monoclonal antibody that binds to the coagulation (clot forming) factor XI and locks it in the inactive state, preventing it from being activated thereby preventing thrombosis i.e. blood clots . It seems to have
Just wondering if there has been any buzz/chatter about the drug — Abelacimab (MAA868) a monoclonal antibody that binds to the coagulation (clot forming) factor XI and locks it in the inactive state, preventing it from being activated thereby preventing thrombosis i.e. blood clots . It seems to have
Aegean56
in
Atrial Fibrillation Support
1 day ago
Blood thinner question
Hello. One of my afib medications is Xarelto, 20 mgs. I was put on a program from when I was in the hospital last November for afib to help me with the cost of the medication, the program was good for a full year. I just called in my refill for my meds, for the next 90 days. That will take me into
Hello. One of my afib medications is Xarelto, 20 mgs. I was put on a program from when I was in the hospital last November for afib to help me with the cost of the medication, the program was good for a full year. I just called in my refill for my meds, for the next 90 days. That will take me into
gbn_
in
Atrial Fibrillation Support
2 days ago
Blood Sugar Level
I was diagnosed and started taking C/L this past June (25/100 3x daily) and since then have noticed an increase in my fasting glucose level. I usually stay a bit under 100 but now I am usually over that sometimes as high as around 110. Is this a common side effect of taking the med or PD in general.
I was diagnosed and started taking C/L this past June (25/100 3x daily) and since then have noticed an increase in my fasting glucose level. I usually stay a bit under 100 but now I am usually over that sometimes as high as around 110. Is this a common side effect of taking the med or PD in general.
j4dx
in
Cure Parkinson's
2 days ago
My method weight reduce. Overweight,obesity
My method for weight reduction is for me and for other people with permanent overweight! This method change the hollow carbohydrate in another food with very low calories! Its a very good methode for weight reduce, and for a permanet same weight! The best method for a permanent weightreduction
My method for weight reduction is for me and for other people with permanent overweight! This method change the hollow carbohydrate in another food with very low calories! Its a very good methode for weight reduce, and for a permanet same weight! The best method for a permanent weightreduction
Uwe45
in
Healthy Eating
2 days ago
Looking for typical Prednisone reduction schedule new on Actemra
Haven't been around much lately. This has probably been the worst, six months of my seven years with pmr and final recent eye surgery for double vision 7.8 Have spent the last six months deciding on starting Actemra at the urging of my rheumatologist. Round and round with insurance (U.S.) appeal, re-submission
Haven't been around much lately. This has probably been the worst, six months of my seven years with pmr and final recent eye surgery for double vision 7.8 Have spent the last six months deciding on starting Actemra at the urging of my rheumatologist. Round and round with insurance (U.S.) appeal, re-submission
JanetGarrettN
in
PMRGCAuk
3 days ago
Finally Referred To Audiology
I have not posted in a while. Some of you may remember my hearing dropped off significantly and I developed tinnitus after a nasty bout of Covid Delta in late 2021. Despite endless drops, syringing and micro-suction the problem has remained. The tinnitus was worse was I was on courses of exotic anti-biotics
I have not posted in a while. Some of you may remember my hearing dropped off significantly and I developed tinnitus after a nasty bout of Covid Delta in late 2021. Despite endless drops, syringing and micro-suction the problem has remained. The tinnitus was worse was I was on courses of exotic anti-biotics
MichaelJH
in
Tinnitus UK
3 days ago
low cortisol
hello, I’ve repeatedly had lowish 9am cortisol (around 250ish mark) but passed SST. However, private endo has said he wants to trial a low dose of hydrocortisone to see if it helps my symptoms of chronic fatigue, headaches, muscle aches etc. etc. I’m nervous to trial a steroid when I don’t have Addison
hello, I’ve repeatedly had lowish 9am cortisol (around 250ish mark) but passed SST. However, private endo has said he wants to trial a low dose of hydrocortisone to see if it helps my symptoms of chronic fatigue, headaches, muscle aches etc. etc. I’m nervous to trial a steroid when I don’t have Addison
RoseStar
in
Thyroid UK
3 days ago
Danger of taking over the counter painkillers when on Anticoagulants
Has anyone heard recently of medics raising the danger of taking otcs regularly when on Anticoagulants, sometimes causing death from Pulmonary Embolisms or Deep Vein Thrombosis?
Has anyone heard recently of medics raising the danger of taking otcs regularly when on Anticoagulants, sometimes causing death from Pulmonary Embolisms or Deep Vein Thrombosis?
lynwest
in
Atrial Fibrillation Support
4 days ago
change in tinnitus any advice?
hi, wonder if anyone can give some advice I had tinnitus that started after having my baby 2 years ago mainly in the right ear it was like crickets a high ringing I was referred to ENT for an MRI for internal auditory Metus and all came back clear so they discharged me so I learned to live with the
hi, wonder if anyone can give some advice I had tinnitus that started after having my baby 2 years ago mainly in the right ear it was like crickets a high ringing I was referred to ENT for an MRI for internal auditory Metus and all came back clear so they discharged me so I learned to live with the
lhc8893
in
Tinnitus UK
4 days ago
Cure your RLS with castor oil
I have been suffering with RLS for nearly 45 years. I am now 75 and it is getting worse. I used to have several days between RLS attacks. Now I have one every night. I’ve been taking carbidopa/levodopa for 2 years. Helped so much but I believe augmentation is kicking in. Where before I had to
I have been suffering with RLS for nearly 45 years. I am now 75 and it is getting worse. I used to have several days between RLS attacks. Now I have one every night. I’ve been taking carbidopa/levodopa for 2 years. Helped so much but I believe augmentation is kicking in. Where before I had to
Deborahok
in
Restless Legs Syndrome
4 days ago
biologic medication and possible side effects
Wondering if anyone has had something similar happen. I’ve had severe p since 2020 and PA soon after and started the biologic adalimumab in January 2020 after systemic treatments failed/side effects became to bad. In June this month my adalimumab was swapped as it want working wellto ustekinumab which
Wondering if anyone has had something similar happen. I’ve had severe p since 2020 and PA soon after and started the biologic adalimumab in January 2020 after systemic treatments failed/side effects became to bad. In June this month my adalimumab was swapped as it want working wellto ustekinumab which
katienewland
in
NRAS
4 days ago
yuflyma - adalimumab
Has anyone had experience with the Biosimilar Yuflyma ( Adalimumab) I’ve been having fortnightly injections for the last 2 months I was on injectable methotrexate but became quite ill with it after 2 yrs use I’m now going through a terrible flare in my hands wrists fingers knees ankles and shoulders
Has anyone had experience with the Biosimilar Yuflyma ( Adalimumab) I’ve been having fortnightly injections for the last 2 months I was on injectable methotrexate but became quite ill with it after 2 yrs use I’m now going through a terrible flare in my hands wrists fingers knees ankles and shoulders
skinclinic
in
NRAS
4 days ago
Progynova with vitamin supplements
Hello ladies, hope everyone is doing well.Has anyone taken Progynova 2mg with vitamin D &E and fish oil supplements and pregnacare. Is it ok to mix the supplements with Progynova? Day 8 scan showed 5.5 endometrial lining in the middle while the sides it was 4, is it normal or the lining is to thin.
Hello ladies, hope everyone is doing well.Has anyone taken Progynova 2mg with vitamin D &E and fish oil supplements and pregnacare. Is it ok to mix the supplements with Progynova? Day 8 scan showed 5.5 endometrial lining in the middle while the sides it was 4, is it normal or the lining is to thin.
Shazchan
in
Fertility Network UK
4 days ago
Pyelonephritis
Hi there. I was diagnosed last Friday with a UTI which travelled up into the kidneys causing unbelievable pain. I had to go to A&E in the middle of a night and this is when I was diagnosed and they gave me some antibiotics, seven day course of which I finished on Friday. But I still had some back pain
Hi there. I was diagnosed last Friday with a UTI which travelled up into the kidneys causing unbelievable pain. I had to go to A&E in the middle of a night and this is when I was diagnosed and they gave me some antibiotics, seven day course of which I finished on Friday. But I still had some back pain
Carter00
in
Pain Concern
5 days ago
Is Riding a Bike possible after having Radiation Cystitis w/ hematuria, 18 months after HBOT treatment
It is been 18 months since my last Hyperbaric Oygen Treatment for radiation cystitis. I had bleeding with clots multiple times which sent me to the ER. I have not had any bleeding since then, except one time a few months ago while doing exercises related to physical therapy. My urologist says as long
It is been 18 months since my last Hyperbaric Oygen Treatment for radiation cystitis. I had bleeding with clots multiple times which sent me to the ER. I have not had any bleeding since then, except one time a few months ago while doing exercises related to physical therapy. My urologist says as long
Teddy28
in
Advanced Prostate Cancer
5 days ago
Joint surgery and how to avoid it
I was diagnosed with RA in December and started methotrexate. I have been reading posts in this group and searching previous posts and finding them so helpful, thanks to everybody who shares their experiences. I have noticed quite a lot of people sharing about joint surgery and joint correction and
I was diagnosed with RA in December and started methotrexate. I have been reading posts in this group and searching previous posts and finding them so helpful, thanks to everybody who shares their experiences. I have noticed quite a lot of people sharing about joint surgery and joint correction and
purplecyclist
in
NRAS
5 days ago
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