Is Riding a Bike possible after having Radiation Cystitis w/ hematuria, 18 months after HBOT treatment

[Teddy28]

It is been 18 months since my last Hyperbaric Oygen Treatment for radiation cystitis. I had bleeding with clots multiple times which sent me to the ER. I have not had any bleeding since then, except one time a few months ago while doing exercises related to physical therapy.

My urologist says as long as I don't get clots, I should not think my Hematuria / Radiation Cystitis is recurring. He said I could ride a bit, perhaps starting in a gym with a recumbant bike, but did not think the pressure of sitting would trigger any more bleeding with clots. He did say that in my case, because I am using a supra pubic catheter, I could get instances of minor bleeding (with no clots) just because the catheter rubs the inner bladder walls.

What I want to know is whether anyone else who had this hematuria / radiation cystitis condition and who is now in remission (or hopefully cured) has been able to ride a few miles at a moderate speed, without triggering any bleeding. I am curious, even if you do not use a catheter. I am not looking to do long distance riding - just a few miles to help keep in shape. It is one of the activities I really miss.

Thank you for any insight you might have.

[Pokerplayer]

why ride a bike and take a chance just walk or treadmill? Seating on bike seat not a good idea. Just my opinion.

[Teddy28 in reply to Pokerplayer]

Can you provide your thinking on why you suggest avoiding being? Have you had this situation? Thanks again.

[Pokerplayer in reply to Teddy28]

Sry

[Pokerplayer in reply to Teddy28]

I have radiation pro -itis and and radiation cystitis

[Teddy28 in reply to Pokerplayer]

Pokerplayer - Were you advised by your doctor to avoid biking?

[Pokerplayer in reply to Teddy28]

Thin. Bicycle seats to me is putting pressure where you dont need it

[mistersafety]

Hey there Teddy28 -- Lifelong cyclist here. Transitioned to a 2 wheel recumbent (high racer) just before prostate cancer diagnosis & treatment. The high racer recumbent is fast and fun but there was a learning curve. I rode without issues all through treatment and beyond. Just got home from the Tour de Wyoming -- highly recommended! There are lots of choices and different kinds of recumbents. PM me for more details if you want.

[Teddy28]

Just a quick update. I have tested bike riding at 18 months after my HBOT treatments. No bleeding whatsoever. I have only ridden 20 minutes, just a few miles on level surfaces. My orthopedic surgeon wants me to wait until a year following spinal fusion, but given I am in a small community with minimal cars, he was ok for short rides. Even with biking shorts I could feel some discomfort since I haven’t gone biking in about 2 years. My urologist said there could be slight bleeding due to suprapubic catheter, which I occasionally get, but biking didn't trigger it. I am thrilled. Limited opportunity now because of cold weather but will do some in the gym.