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Erythromyalgia or something else/more? Mast Cell Activation Disorder?
Bit of history first - I've had Reynaud's since a young girl. No other issues related to anything rheumatalogical other than intermittent ulcers rarely until a few years ago. All of a sudden in the middle of winter whenever I'd hop into bed with the heated blanket on my feet would get burning hot, bright
Bit of history first - I've had Reynaud's since a young girl. No other issues related to anything rheumatalogical other than intermittent ulcers rarely until a few years ago. All of a sudden in the middle of winter whenever I'd hop into bed with the heated blanket on my feet would get burning hot, bright
bengali
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
NHS early retirement pension due to ill health
Dear members I have recently had my application for early retirement refused. I was diagnosed with Fibromyalgia and struggle with day to day living and have been off work since May last year. My employment has now ceased due to my ill health too so at the age of 47 I am feeling rather low. I have seen
Dear members I have recently had my application for early retirement refused. I was diagnosed with Fibromyalgia and struggle with day to day living and have been off work since May last year. My employment has now ceased due to my ill health too so at the age of 47 I am feeling rather low. I have seen
CathyCD
in
Fibromyalgia Action UK
6 years ago
Raised CRP with Fibromyalgia?
Hi, I’m a new comer. I saw a rheumatologist for the first time yesterday and was diagnosed with Central Sensitivity Syndrome which he said explains all of the symptoms I’ve been having for the past 10 months. These are multiple joint pains, extreme fatigue, heartburn, IBS, migraine, dry eyes, nose and
Hi, I’m a new comer. I saw a rheumatologist for the first time yesterday and was diagnosed with Central Sensitivity Syndrome which he said explains all of the symptoms I’ve been having for the past 10 months. These are multiple joint pains, extreme fatigue, heartburn, IBS, migraine, dry eyes, nose and
HAM67
in
Fibromyalgia Action UK
6 years ago
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Inconclusive results for connective tissue disorder
Hello all, I was recently given an initial diagnosis of antiphospholipid syndrome after being hospitalized with a second pulmonary embolism since 2015. The first PE was seemingly “unprovoked” but massive, requiring a 4-day hospital stay in an “acute care” unit. I recovered from that incident quite rapidly
Hello all, I was recently given an initial diagnosis of antiphospholipid syndrome after being hospitalized with a second pulmonary embolism since 2015. The first PE was seemingly “unprovoked” but massive, requiring a 4-day hospital stay in an “acute care” unit. I recovered from that incident quite rapidly
WinstonWolfe
in
Hughes Syndrome APS Forum
6 years ago
Medichecks blood results - still unsure what's causing symptoms.
Hi everyone. I received my Medichecks results yesterday and am none the wiser about what the root cause of my symptoms might be. I now understand how some people feel disappointed when they get normal blood results as we are desperate to get a diagnosis. I'll list my results and would welcome any comments
Hi everyone. I received my Medichecks results yesterday and am none the wiser about what the root cause of my symptoms might be. I now understand how some people feel disappointed when they get normal blood results as we are desperate to get a diagnosis. I'll list my results and would welcome any comments
pj16
in
Pernicious Anaemia Society
6 years ago
Chronic Pain 20 years old
Hello everyone, I'm a 20 year old female and I have chronic upper back pain that is unbearable at this point. I was involved in a car accident three years ago where I was t boned. I've been to all kinds of doctors and have found out nothing. The pain is stabbing between my shoulder blades and radiates
Hello everyone, I'm a 20 year old female and I have chronic upper back pain that is unbearable at this point. I was involved in a car accident three years ago where I was t boned. I've been to all kinds of doctors and have found out nothing. The pain is stabbing between my shoulder blades and radiates
Violingirl19
in
Pain Concern
6 years ago
ANA
Has anyone ever had a positive ANA?
Has anyone ever had a positive ANA?
Irisw
in
PBC Foundation
6 years ago
first Rheumatology appointment today
I can't find my original post to reply/add to but anyway.... I just got back from my first Rheumatology appointment.(I am ANA positive 1:640 for years on 2 tests) negative for everything else he says although I have dsDNA and ENA in tiny amounts. so todays appointment in and out in 20 minutes, nice
I can't find my original post to reply/add to but anyway.... I just got back from my first Rheumatology appointment.(I am ANA positive 1:640 for years on 2 tests) negative for everything else he says although I have dsDNA and ENA in tiny amounts. so todays appointment in and out in 20 minutes, nice
patmackfin
in
LUPUS UK
6 years ago
Lupus London patient meeting
Just wanted to say a big thank you to everyone involved in arranging the London Lupus and Hughes Syndrome patient meeting. I attended on Friday and after listening to stories, am very thankful for Lupus Uk, this site and the information available to everyone nowadays on the internet. Also extremely
Just wanted to say a big thank you to everyone involved in arranging the London Lupus and Hughes Syndrome patient meeting. I attended on Friday and after listening to stories, am very thankful for Lupus Uk, this site and the information available to everyone nowadays on the internet. Also extremely
Loula82
in
LUPUS UK
6 years ago
PMR/GCA?
I need advice! I am a 43 year old female suffering for 3+ years now and believe it’s PMR and now GCA. Her goes: I first presented with the classic PMR symptoms: hip/back/leg pain, joint pain, low fever on off, fatigue and stiffness, eventually neck and shoulder pain. Physical therapy has caused flare
I need advice! I am a 43 year old female suffering for 3+ years now and believe it’s PMR and now GCA. Her goes: I first presented with the classic PMR symptoms: hip/back/leg pain, joint pain, low fever on off, fatigue and stiffness, eventually neck and shoulder pain. Physical therapy has caused flare
Boozsa
in
PMRGCAuk
6 years ago
To doubt or not to doubt
I need advice! I am a 43 year old female suffering for 3+ years now and believe it’s PMR and now GCA. Her goes: I first presented with the classic PMR symptoms: hip/back/leg pain, joint pain, low fever on off, fatigue and stiffness. I had a positive ANA so got sent to a Rheumatologist who did labs. Here
I need advice! I am a 43 year old female suffering for 3+ years now and believe it’s PMR and now GCA. Her goes: I first presented with the classic PMR symptoms: hip/back/leg pain, joint pain, low fever on off, fatigue and stiffness. I had a positive ANA so got sent to a Rheumatologist who did labs. Here
Boozsa
in
PMRGCAuk
6 years ago
I’d like to introduce myself
New here and want to share my history with you. On Dec 2015 went to primary doctor due to sore throat and while there told him “oh by the way, my index finger is swollen and really hurts.” Sent me to a rheumatologist who thought I had psoriatic arthritis ( I have2 brothers with that) and started me
New here and want to share my history with you. On Dec 2015 went to primary doctor due to sore throat and while there told him “oh by the way, my index finger is swollen and really hurts.” Sent me to a rheumatologist who thought I had psoriatic arthritis ( I have2 brothers with that) and started me
sara1215
in
NRAS
6 years ago
Second opinion?
Hi This is my first post so please bare with me. Can anybody help me with symptoms I’m having and test results. I saw a rhuematologist yesterday who didn’t listen at all and completely dismissed my test results, diagnosed me with fibromyalgia within 5 mins - I’ve been unwell for over 3 years and seen
Hi This is my first post so please bare with me. Can anybody help me with symptoms I’m having and test results. I saw a rhuematologist yesterday who didn’t listen at all and completely dismissed my test results, diagnosed me with fibromyalgia within 5 mins - I’ve been unwell for over 3 years and seen
Littlemisssunshine87
in
LUPUS UK
6 years ago
Feels Like so Much Waiting and Worrying
I'm really trying to go day to day with what's been happening to me. When this all started with stomach problems I didn't really expect to end up here. I keep worrying about things like scleroderma, even though I don't seem to have any of the symptoms of it. I've made a little progress on the gastro
I'm really trying to go day to day with what's been happening to me. When this all started with stomach problems I didn't really expect to end up here. I keep worrying about things like scleroderma, even though I don't seem to have any of the symptoms of it. I've made a little progress on the gastro
eirinym
in
LUPUS UK
6 years ago
New and Confused
Good morning. I have tests coming up that according to my hepatologist, will confirm what she is 95% sure of: PBC. As background, I am 64 years old. I have had Hashimoto's Thyroiditis for 40 years, Crohn's for 12 years, on and off suffering from psoriasis. The Crohn's has been in remission for the
Good morning. I have tests coming up that according to my hepatologist, will confirm what she is 95% sure of: PBC. As background, I am 64 years old. I have had Hashimoto's Thyroiditis for 40 years, Crohn's for 12 years, on and off suffering from psoriasis. The Crohn's has been in remission for the
Chefess
in
PBC Foundation
6 years ago
Positive ANA and history of tests.
Hello, I want to provide a clear history of facts. Last December, I experienced joint pain, my hands were burning for no reason, and my joints were cracking. I felt really run down as well. I ordered my GP (where I had to pay for private referral to rheumy...) to send me there and test me for Sjogren's
Hello, I want to provide a clear history of facts. Last December, I experienced joint pain, my hands were burning for no reason, and my joints were cracking. I felt really run down as well. I ordered my GP (where I had to pay for private referral to rheumy...) to send me there and test me for Sjogren's
darkknightlt
in
LUPUS UK
6 years ago
Positive ANA 1:80
I am currently in the process of doing something about my fatigue, and weird symptoms I had for years. January 2018, I was tested by a rheumy because I was afraid of having Sjogren's. My symptoms were dry mouth at night. I had a lot of antibodies tests then and all of them said negative. I got a referral
I am currently in the process of doing something about my fatigue, and weird symptoms I had for years. January 2018, I was tested by a rheumy because I was afraid of having Sjogren's. My symptoms were dry mouth at night. I had a lot of antibodies tests then and all of them said negative. I got a referral
darkknightlt
in
Thyroid UK
6 years ago
Thyroid issues
Good morning! I am struggling to find some answers about my health as all I can hear from my GP is all blood test are in the range. The most recent blood test I have had done was in April 2018 and the results are as follow: TSH 2.36 mu/L (0.35-5.50mu/L) free T4 13 pmol/L (9.00-22.70pmol/L) free T3 4.2
Good morning! I am struggling to find some answers about my health as all I can hear from my GP is all blood test are in the range. The most recent blood test I have had done was in April 2018 and the results are as follow: TSH 2.36 mu/L (0.35-5.50mu/L) free T4 13 pmol/L (9.00-22.70pmol/L) free T3 4.2
Felly35
in
Thyroid UK
6 years ago
VATS BIOPSY RESULTS FINALLY
Hi, I have posted a few times. I had a VATS lung biopsy and have a general diagnosis FINALLY. They first told me they were almost sure I had constrictive Bronchiolitis (thanks for those that have it who were so kind and helpful). The biopsy showed Cellular Interstitial Pneumonitis and most likely Hypersensitivity
Hi, I have posted a few times. I had a VATS lung biopsy and have a general diagnosis FINALLY. They first told me they were almost sure I had constrictive Bronchiolitis (thanks for those that have it who were so kind and helpful). The biopsy showed Cellular Interstitial Pneumonitis and most likely Hypersensitivity
rottiro1
in
Lung Conditions Community Forum
6 years ago
Blog: July 2018 by Professor Graham R V Hughes MD FRCP
Wonderful. Wall to wall sunshine. Temperatures in the high 80’s and low 90’s. (How deceitful I feel advising my patients to avoid the sun!). This month our monthly medical journal LUPUS, now in its 27th year, received news of its rising ‘impact factor’. The annual ‘impact factor’ is a slightly imperfect
Wonderful. Wall to wall sunshine. Temperatures in the high 80’s and low 90’s. (How deceitful I feel advising my patients to avoid the sun!). This month our monthly medical journal LUPUS, now in its 27th year, received news of its rising ‘impact factor’. The annual ‘impact factor’ is a slightly imperfect
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
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