Search
Search
About
Log in
Join
Experiences with
Alna
Posts
Communities
941 public posts
Filter results
Just diagnosed and scared.
Two years ago I was diagnosed with Lupus because of symptoms and positive ANA. Last month I decided to get a second opinion because I felt as though my Rheumatologist was cold and wasn't helping. My new rheumy ran a series of tests and found that my liver enzymes were very high and I was again had a
Two years ago I was diagnosed with Lupus because of symptoms and positive ANA. Last month I decided to get a second opinion because I felt as though my Rheumatologist was cold and wasn't helping. My new rheumy ran a series of tests and found that my liver enzymes were very high and I was again had a
Sandb26
in
PBC Foundation
6 years ago
Losing my Mind with this pain and not knowing what to do...feeling isolated in this world!
The issues I have are as follows fatigue, joint and muscle pain, dry eyes, migraines, plus sensitivity to sunlight, swollen joints ( especially feet, knees, and fingers and hands), plus several compression fractures in my back from T10 to L5, I also have numbness and tingling in my hands and feet plus
The issues I have are as follows fatigue, joint and muscle pain, dry eyes, migraines, plus sensitivity to sunlight, swollen joints ( especially feet, knees, and fingers and hands), plus several compression fractures in my back from T10 to L5, I also have numbness and tingling in my hands and feet plus
Aliciasleet
in
LUPUS UK
6 years ago
Can’t get answers??!!
Hi everyone. I am 34 and was diagnosed with PCOS at 17. As I get older it gets worse. After my son was born 6yrs ago, it seems to get more painful and more cysts form. I have been worried for about 4 months now that I may have ovarian cancer. I have several symptoms and my grandmother had it as well.
Hi everyone. I am 34 and was diagnosed with PCOS at 17. As I get older it gets worse. After my son was born 6yrs ago, it seems to get more painful and more cysts form. I have been worried for about 4 months now that I may have ovarian cancer. I have several symptoms and my grandmother had it as well.
ky84
in
SHARE Ovarian Cancer Support
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Pipeline of ataxia related research.
Found a report online being offered for $2000 that summarizes the current pipeline of all known ataxia related drugs. - - - Spinocerebellar Ataxia (SCA) - Companies Involved in Therapeutics Development Bio Blast Pharma Ltd Biohaven Pharmaceutical Holding Company Ltd Cadent Therapeutics Ionis Pharmaceuticals
Found a report online being offered for $2000 that summarizes the current pipeline of all known ataxia related drugs. - - - Spinocerebellar Ataxia (SCA) - Companies Involved in Therapeutics Development Bio Blast Pharma Ltd Biohaven Pharmaceutical Holding Company Ltd Cadent Therapeutics Ionis Pharmaceuticals
sunvox
in
Ataxia UK
6 years ago
Positive ANA but negative double strand bloods?!?! Help!
Hi! I am hoping for some personal experiences pls & advice from anyone who’s had similar experience. I have had two positive ANA blood tests but a negative double strand test which my GP said was specific for Lupus? So when I asked if that means I definitely don’t have lupus she said no!?! - she’s writing
Hi! I am hoping for some personal experiences pls & advice from anyone who’s had similar experience. I have had two positive ANA blood tests but a negative double strand test which my GP said was specific for Lupus? So when I asked if that means I definitely don’t have lupus she said no!?! - she’s writing
Frenchfancy
in
LUPUS UK
6 years ago
AMA titer
Hi everyone. I had AMA and ANA test 10days ago with titer of 1:320 for AMA and 1:640 for ANA, but my rheumatologist Dr wanted to redo them in another labratory. The results came back completely different!! AMA :1:20( more than 1:10 is considered positive) and ANA 1/80!! I’m confused, do I have pbc?Can
Hi everyone. I had AMA and ANA test 10days ago with titer of 1:320 for AMA and 1:640 for ANA, but my rheumatologist Dr wanted to redo them in another labratory. The results came back completely different!! AMA :1:20( more than 1:10 is considered positive) and ANA 1/80!! I’m confused, do I have pbc?Can
Sona_akb
in
PBC Foundation
6 years ago
Do I have lupus
Have had several positive Ana tests over the last 10 years and now had extensive testing with my rheumatologist who assured me the last lot of tests would give them a definitive answer on lupus and as to what’s wrong with me. I have connective tissue disease, frozen shoulder and tendentious I hope I
Have had several positive Ana tests over the last 10 years and now had extensive testing with my rheumatologist who assured me the last lot of tests would give them a definitive answer on lupus and as to what’s wrong with me. I have connective tissue disease, frozen shoulder and tendentious I hope I
Hidden
in
LUPUS UK
6 years ago
B12 deficiency, injections and blood test results
Hello, I wondered whether there's anyone out there with knowledge of B12 deficiency? I've been feeling rubbish with loads of strange symptoms for at least a couple of years. My ferritin is always lowish - hovering around 15-18 ug/L. My folate was 11 ug/L in January, 10 in June and now 9.
Hello, I wondered whether there's anyone out there with knowledge of B12 deficiency? I've been feeling rubbish with loads of strange symptoms for at least a couple of years. My ferritin is always lowish - hovering around 15-18 ug/L. My folate was 11 ug/L in January, 10 in June and now 9.
BlackInk
in
Pernicious Anaemia Society
6 years ago
Mild rant, may have gone in a circle
Called endo and she honored my request for an Ft3 test so I got it done yesterday and hope to get a better picture of t3 situation. I havent recently seen the functional med doc and have stopped all supplements due to my stomach issues. I could see there was quite a difference, infact my b12 is still
Called endo and she honored my request for an Ft3 test so I got it done yesterday and hope to get a better picture of t3 situation. I havent recently seen the functional med doc and have stopped all supplements due to my stomach issues. I could see there was quite a difference, infact my b12 is still
JennaShi
in
Thyroid UK
6 years ago
Low B12, positive ANA
Hello, I'm new here and seeking advice after another frustrating GP appointment today. I've got tons of tedious symptoms: Sudden, early menopause (HRT hasn’t helped) Zero libido Daily nausea and stomach issues (often extreme) Weight loss and poor appetite Headaches and facial numbness Muscle twitches
Hello, I'm new here and seeking advice after another frustrating GP appointment today. I've got tons of tedious symptoms: Sudden, early menopause (HRT hasn’t helped) Zero libido Daily nausea and stomach issues (often extreme) Weight loss and poor appetite Headaches and facial numbness Muscle twitches
BlackInk
in
Pernicious Anaemia Society
6 years ago
Erythromyalgia or something else/more? Mast Cell Activation Disorder?
Bit of history first - I've had Reynaud's since a young girl. No other issues related to anything rheumatalogical other than intermittent ulcers rarely until a few years ago. All of a sudden in the middle of winter whenever I'd hop into bed with the heated blanket on my feet would get burning hot, bright
Bit of history first - I've had Reynaud's since a young girl. No other issues related to anything rheumatalogical other than intermittent ulcers rarely until a few years ago. All of a sudden in the middle of winter whenever I'd hop into bed with the heated blanket on my feet would get burning hot, bright
bengali
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
NHS early retirement pension due to ill health
Dear members I have recently had my application for early retirement refused. I was diagnosed with Fibromyalgia and struggle with day to day living and have been off work since May last year. My employment has now ceased due to my ill health too so at the age of 47 I am feeling rather low. I have seen
Dear members I have recently had my application for early retirement refused. I was diagnosed with Fibromyalgia and struggle with day to day living and have been off work since May last year. My employment has now ceased due to my ill health too so at the age of 47 I am feeling rather low. I have seen
CathyCD
in
Fibromyalgia Action UK
6 years ago
Raised CRP with Fibromyalgia?
Hi, I’m a new comer. I saw a rheumatologist for the first time yesterday and was diagnosed with Central Sensitivity Syndrome which he said explains all of the symptoms I’ve been having for the past 10 months. These are multiple joint pains, extreme fatigue, heartburn, IBS, migraine, dry eyes, nose and
Hi, I’m a new comer. I saw a rheumatologist for the first time yesterday and was diagnosed with Central Sensitivity Syndrome which he said explains all of the symptoms I’ve been having for the past 10 months. These are multiple joint pains, extreme fatigue, heartburn, IBS, migraine, dry eyes, nose and
HAM67
in
Fibromyalgia Action UK
6 years ago
Inconclusive results for connective tissue disorder
Hello all, I was recently given an initial diagnosis of antiphospholipid syndrome after being hospitalized with a second pulmonary embolism since 2015. The first PE was seemingly “unprovoked” but massive, requiring a 4-day hospital stay in an “acute care” unit. I recovered from that incident quite rapidly
Hello all, I was recently given an initial diagnosis of antiphospholipid syndrome after being hospitalized with a second pulmonary embolism since 2015. The first PE was seemingly “unprovoked” but massive, requiring a 4-day hospital stay in an “acute care” unit. I recovered from that incident quite rapidly
WinstonWolfe
in
Hughes Syndrome APS Forum
6 years ago
Medichecks blood results - still unsure what's causing symptoms.
Hi everyone. I received my Medichecks results yesterday and am none the wiser about what the root cause of my symptoms might be. I now understand how some people feel disappointed when they get normal blood results as we are desperate to get a diagnosis. I'll list my results and would welcome any comments
Hi everyone. I received my Medichecks results yesterday and am none the wiser about what the root cause of my symptoms might be. I now understand how some people feel disappointed when they get normal blood results as we are desperate to get a diagnosis. I'll list my results and would welcome any comments
pj16
in
Pernicious Anaemia Society
6 years ago
Chronic Pain 20 years old
Hello everyone, I'm a 20 year old female and I have chronic upper back pain that is unbearable at this point. I was involved in a car accident three years ago where I was t boned. I've been to all kinds of doctors and have found out nothing. The pain is stabbing between my shoulder blades and radiates
Hello everyone, I'm a 20 year old female and I have chronic upper back pain that is unbearable at this point. I was involved in a car accident three years ago where I was t boned. I've been to all kinds of doctors and have found out nothing. The pain is stabbing between my shoulder blades and radiates
Violingirl19
in
Pain Concern
6 years ago
ANA
Has anyone ever had a positive ANA?
Has anyone ever had a positive ANA?
Irisw
in
PBC Foundation
6 years ago
first Rheumatology appointment today
I can't find my original post to reply/add to but anyway.... I just got back from my first Rheumatology appointment.(I am ANA positive 1:640 for years on 2 tests) negative for everything else he says although I have dsDNA and ENA in tiny amounts. so todays appointment in and out in 20 minutes, nice
I can't find my original post to reply/add to but anyway.... I just got back from my first Rheumatology appointment.(I am ANA positive 1:640 for years on 2 tests) negative for everything else he says although I have dsDNA and ENA in tiny amounts. so todays appointment in and out in 20 minutes, nice
patmackfin
in
LUPUS UK
6 years ago
Lupus London patient meeting
Just wanted to say a big thank you to everyone involved in arranging the London Lupus and Hughes Syndrome patient meeting. I attended on Friday and after listening to stories, am very thankful for Lupus Uk, this site and the information available to everyone nowadays on the internet. Also extremely
Just wanted to say a big thank you to everyone involved in arranging the London Lupus and Hughes Syndrome patient meeting. I attended on Friday and after listening to stories, am very thankful for Lupus Uk, this site and the information available to everyone nowadays on the internet. Also extremely
Loula82
in
LUPUS UK
6 years ago
PMR/GCA?
I need advice! I am a 43 year old female suffering for 3+ years now and believe it’s PMR and now GCA. Her goes: I first presented with the classic PMR symptoms: hip/back/leg pain, joint pain, low fever on off, fatigue and stiffness, eventually neck and shoulder pain. Physical therapy has caused flare
I need advice! I am a 43 year old female suffering for 3+ years now and believe it’s PMR and now GCA. Her goes: I first presented with the classic PMR symptoms: hip/back/leg pain, joint pain, low fever on off, fatigue and stiffness, eventually neck and shoulder pain. Physical therapy has caused flare
Boozsa
in
PMRGCAuk
6 years ago
1
...
18
19
20
...
48
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
LUPUS UK
498 results
Thyroid UK
77 results
Scleroderma & Raynaud's UK (SRUK)
46 results
View top 10 communities
Sort by
Most Relevant
Newest