Search
Search
About
Log in
Join
Experiences with
Alna
Posts
Communities
935 public posts
Filter results
HI, I am new here.
Hello, this is my first post. I am not officially diagnosed with APS yet. I had a stroke while on vacation. I am 49 years old, had flown two days prior to the CVA and was on an antiviral for shingles around the right side of my torso. I was in Orlando and had ridden roller coasters for two days, as well
Hello, this is my first post. I am not officially diagnosed with APS yet. I had a stroke while on vacation. I am 49 years old, had flown two days prior to the CVA and was on an antiviral for shingles around the right side of my torso. I was in Orlando and had ridden roller coasters for two days, as well
Roarah
in
Hughes Syndrome APS Forum
5 years ago
First Rhuem Appointment
Hi Everyone, This is my first post, and I'm writing from Canada. I'm wondering if anyone has any advice or information that could help me. At the beginning of December I was tested for autoimmune diseases and came back with positive Ana (speckled pattern) and Scl-70. I was only screened because I'm
Hi Everyone, This is my first post, and I'm writing from Canada. I'm wondering if anyone has any advice or information that could help me. At the beginning of December I was tested for autoimmune diseases and came back with positive Ana (speckled pattern) and Scl-70. I was only screened because I'm
Calgarygirl
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Phantom electric shock
I am 57 and recently cured of Hep c. I have many Lupus like symptoms and I had a borderline positive ANA test but hoping the Hep caused it. My question is if anyone has heard of phantom electric shock and what could cause it? I don't have a pace maker.
I am 57 and recently cured of Hep c. I have many Lupus like symptoms and I had a borderline positive ANA test but hoping the Hep caused it. My question is if anyone has heard of phantom electric shock and what could cause it? I don't have a pace maker.
Shishin
in
LUPUS UK
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Anti thyroid peroxidase >1000
Hi just wondering if there is a connection between lupus and autoimmune thyroid disease. Currently my thyroid levels are within normal range. A blood test in my showed tpo over 1000 and a positive ANA. At the moment I am at risk of developing autoimmune thyroid disease so to have 6 monthly thyroid checks
Hi just wondering if there is a connection between lupus and autoimmune thyroid disease. Currently my thyroid levels are within normal range. A blood test in my showed tpo over 1000 and a positive ANA. At the moment I am at risk of developing autoimmune thyroid disease so to have 6 monthly thyroid checks
Hidden
in
LUPUS UK
5 years ago
Finally ANA Positive
Hello Everyone, After a year of getting nowhere with my diagnosis I made the decision to get a second Rheumatology opinion. I am so glad I did! I have all the symptoms of Lupus but without the positive ANA result I was getting the brush off from my Rheumy, he just didn’t give two hoots about the pain
Hello Everyone, After a year of getting nowhere with my diagnosis I made the decision to get a second Rheumatology opinion. I am so glad I did! I have all the symptoms of Lupus but without the positive ANA result I was getting the brush off from my Rheumy, he just didn’t give two hoots about the pain
Crazy_Cat_Woman
in
LUPUS UK
5 years ago
Lupus flare, thyroid problems, cfs?
Hello everyone, I wondered if anyone had any advice or similar experiences, or can just shed any light onto what now feels like a very big mess that has become my life! 10 years ago I was diagnosed with SLE. I'd been unwell for about a year with severe fatigue, up and down flu like symptoms, exhaustion
Hello everyone, I wondered if anyone had any advice or similar experiences, or can just shed any light onto what now feels like a very big mess that has become my life! 10 years ago I was diagnosed with SLE. I'd been unwell for about a year with severe fatigue, up and down flu like symptoms, exhaustion
SarahLuna
in
LUPUS UK
5 years ago
Dr Graham RV Hughes' Blog: December 2018
It’s wonderful when one gets to a meeting or a conference which is both outstanding, and at the same time, somewhat outside ones own circle of expertise or experience. So, a while ago, I found myself in a conference on metal allergies. Organised by my good friend Dr Shideh Pouria, one of the UK’s leading
It’s wonderful when one gets to a meeting or a conference which is both outstanding, and at the same time, somewhat outside ones own circle of expertise or experience. So, a while ago, I found myself in a conference on metal allergies. Organised by my good friend Dr Shideh Pouria, one of the UK’s leading
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Positive Ana then negative
Hi everyone. 4 weeks ago my pcp ordered blood work because he suspected I had a thyroid issue. He also did an Ana test. The Ana test came back positive and I was referred to a rheumatologist. After a physical examine he believed I may have lupus or RA. I have extreme joint pain, anemia, low vitamin D
Hi everyone. 4 weeks ago my pcp ordered blood work because he suspected I had a thyroid issue. He also did an Ana test. The Ana test came back positive and I was referred to a rheumatologist. After a physical examine he believed I may have lupus or RA. I have extreme joint pain, anemia, low vitamin D
Kwilliams123084
in
LUPUS UK
6 years ago
Another autoantibody has appeared!
Hello. I've been the proud owner of a AMAs for at least 10 years, but I have normal liver function test so the GI people don't want to see me. I'm female, 49 and have been suffering from painful and slightly swollen joints recently, especially my knuckles (the PIP joints specifically) on both hands
Hello. I've been the proud owner of a AMAs for at least 10 years, but I have normal liver function test so the GI people don't want to see me. I'm female, 49 and have been suffering from painful and slightly swollen joints recently, especially my knuckles (the PIP joints specifically) on both hands
gallnaemare
in
PBC Foundation
6 years ago
LBBB at 39
Hi! I was just diagnosed with left bundle branch block. I am a healthy 39-year-old female. I eat well and work out frequently.I was having PACs and so my doctor did an EKG. I have seen a cardiologist. He doesn’t seem very concerned. I Try not to worry, but so weird and rare at my age. I had an echo
Hi! I was just diagnosed with left bundle branch block. I am a healthy 39-year-old female. I eat well and work out frequently.I was having PACs and so my doctor did an EKG. I have seen a cardiologist. He doesn’t seem very concerned. I Try not to worry, but so weird and rare at my age. I had an echo
JenniferTexas
in
British Heart Foundation
6 years ago
Rheumatology appointment in January
Hi all, it's my first post, I'm hoping I can get some thoughts from you... I first went to my GP about my aches and pains 7 years ago, they tested for rheumatoid arthritis but it came up negative. I was then sent to see a rheumatologist for a possible lupus diagnosis but they decided it wasn't. I was
Hi all, it's my first post, I'm hoping I can get some thoughts from you... I first went to my GP about my aches and pains 7 years ago, they tested for rheumatoid arthritis but it came up negative. I was then sent to see a rheumatologist for a possible lupus diagnosis but they decided it wasn't. I was
JaxPow
in
LUPUS UK
6 years ago
positive ANA negative anticoagulant test
I haven't been to a doc in a while but was told a number of years ago based on DSDNA test with numbers of 1000 to 1? I recently went to a new doctor and my old records aren't available. Physicians assistant order bloodwork and told me I was positive for ANA but no lupus anticoagulants detected. I
I haven't been to a doc in a while but was told a number of years ago based on DSDNA test with numbers of 1000 to 1? I recently went to a new doctor and my old records aren't available. Physicians assistant order bloodwork and told me I was positive for ANA but no lupus anticoagulants detected. I
phantomkirby
in
Hughes Syndrome APS Forum
6 years ago
Graves’ disease, in remission since May 2018 but in lots of pain
In the spring of 2016, I started to feel unwell and to display various of the symptoms of hyperthyroidism. The first symptom I experienced was physical pain. In May 2017, I was diagnosed with Graves hyperthyroidism and started taking medication. By the autumn of 2017, my thyroid levels were back within
In the spring of 2016, I started to feel unwell and to display various of the symptoms of hyperthyroidism. The first symptom I experienced was physical pain. In May 2017, I was diagnosed with Graves hyperthyroidism and started taking medication. By the autumn of 2017, my thyroid levels were back within
SolSun
in
Thyroid UK
6 years ago
Diagnosing blood tests
Hi, has anyone on here been diagnosed with Lupus or another autoimmune disease without having a positive ANA double strand blood test result? My GP hasn’t referred me to rheumatology as he said my ANA blood test was positive but not massively so & the double strand test was negative? My ANA blood test
Hi, has anyone on here been diagnosed with Lupus or another autoimmune disease without having a positive ANA double strand blood test result? My GP hasn’t referred me to rheumatology as he said my ANA blood test was positive but not massively so & the double strand test was negative? My ANA blood test
Frenchfancy
in
LUPUS UK
6 years ago
Just diagnosed and scared.
Two years ago I was diagnosed with Lupus because of symptoms and positive ANA. Last month I decided to get a second opinion because I felt as though my Rheumatologist was cold and wasn't helping. My new rheumy ran a series of tests and found that my liver enzymes were very high and I was again had a
Two years ago I was diagnosed with Lupus because of symptoms and positive ANA. Last month I decided to get a second opinion because I felt as though my Rheumatologist was cold and wasn't helping. My new rheumy ran a series of tests and found that my liver enzymes were very high and I was again had a
Sandb26
in
PBC Foundation
6 years ago
Losing my Mind with this pain and not knowing what to do...feeling isolated in this world!
The issues I have are as follows fatigue, joint and muscle pain, dry eyes, migraines, plus sensitivity to sunlight, swollen joints ( especially feet, knees, and fingers and hands), plus several compression fractures in my back from T10 to L5, I also have numbness and tingling in my hands and feet plus
The issues I have are as follows fatigue, joint and muscle pain, dry eyes, migraines, plus sensitivity to sunlight, swollen joints ( especially feet, knees, and fingers and hands), plus several compression fractures in my back from T10 to L5, I also have numbness and tingling in my hands and feet plus
Aliciasleet
in
LUPUS UK
6 years ago
Can’t get answers??!!
Hi everyone. I am 34 and was diagnosed with PCOS at 17. As I get older it gets worse. After my son was born 6yrs ago, it seems to get more painful and more cysts form. I have been worried for about 4 months now that I may have ovarian cancer. I have several symptoms and my grandmother had it as well.
Hi everyone. I am 34 and was diagnosed with PCOS at 17. As I get older it gets worse. After my son was born 6yrs ago, it seems to get more painful and more cysts form. I have been worried for about 4 months now that I may have ovarian cancer. I have several symptoms and my grandmother had it as well.
ky84
in
SHARE Ovarian Cancer Support
6 years ago
Pipeline of ataxia related research.
Found a report online being offered for $2000 that summarizes the current pipeline of all known ataxia related drugs. - - - Spinocerebellar Ataxia (SCA) - Companies Involved in Therapeutics Development Bio Blast Pharma Ltd Biohaven Pharmaceutical Holding Company Ltd Cadent Therapeutics Ionis Pharmaceuticals
Found a report online being offered for $2000 that summarizes the current pipeline of all known ataxia related drugs. - - - Spinocerebellar Ataxia (SCA) - Companies Involved in Therapeutics Development Bio Blast Pharma Ltd Biohaven Pharmaceutical Holding Company Ltd Cadent Therapeutics Ionis Pharmaceuticals
sunvox
in
Ataxia UK
6 years ago
Positive ANA but negative double strand bloods?!?! Help!
Hi! I am hoping for some personal experiences pls & advice from anyone who’s had similar experience. I have had two positive ANA blood tests but a negative double strand test which my GP said was specific for Lupus? So when I asked if that means I definitely don’t have lupus she said no!?! - she’s writing
Hi! I am hoping for some personal experiences pls & advice from anyone who’s had similar experience. I have had two positive ANA blood tests but a negative double strand test which my GP said was specific for Lupus? So when I asked if that means I definitely don’t have lupus she said no!?! - she’s writing
Frenchfancy
in
LUPUS UK
6 years ago
AMA titer
Hi everyone. I had AMA and ANA test 10days ago with titer of 1:320 for AMA and 1:640 for ANA, but my rheumatologist Dr wanted to redo them in another labratory. The results came back completely different!! AMA :1:20( more than 1:10 is considered positive) and ANA 1/80!! I’m confused, do I have pbc?Can
Hi everyone. I had AMA and ANA test 10days ago with titer of 1:320 for AMA and 1:640 for ANA, but my rheumatologist Dr wanted to redo them in another labratory. The results came back completely different!! AMA :1:20( more than 1:10 is considered positive) and ANA 1/80!! I’m confused, do I have pbc?Can
Sona_akb
in
PBC Foundation
6 years ago
1
...
17
18
19
...
47
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
LUPUS UK
494 results
Thyroid UK
76 results
Scleroderma & Raynaud's UK (SRUK)
46 results
View top 10 communities
Sort by
Most Relevant
Newest