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AMA negative but ANA positive
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up 😧!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up 😧!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Liz_K
in
PBC Foundation
Feel lost
Hi all just looking for some advice if possible please. Has anyone had lupus diagnosed without a positive ana ? I have all the symptoms aside from swelling but the rheumatologist has now diagnosed fibromyalgia due to no positive ana. My liver enzymes have been raised since 2014 and I've been having symptoms
Hi all just looking for some advice if possible please. Has anyone had lupus diagnosed without a positive ana ? I have all the symptoms aside from swelling but the rheumatologist has now diagnosed fibromyalgia due to no positive ana. My liver enzymes have been raised since 2014 and I've been having symptoms
Haylz2109
in
LUPUS UK
Negative ANA Test
My ANA was negative but asking biopsy was positive for interface dermatitis ???? the skin doctor said possibly cutaneous lupus. Is it possible to have it on skin only and not in the blood?
My ANA was negative but asking biopsy was positive for interface dermatitis ???? the skin doctor said possibly cutaneous lupus. Is it possible to have it on skin only and not in the blood?
nicole3828
in
LUPUS UK
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What medication do people find most helps their lupus ? Can no longer take HCQ
I've given it a good try with the HCQ, no doubt it works as well, but for me with lupus brain damage, traumatic brain injury and a previous brain haemorrhage setting off seizures last year, as many of you know, the HCQ is unfortunately causing too many seizures by reducing my seizure threshold. After
I've given it a good try with the HCQ, no doubt it works as well, but for me with lupus brain damage, traumatic brain injury and a previous brain haemorrhage setting off seizures last year, as many of you know, the HCQ is unfortunately causing too many seizures by reducing my seizure threshold. After
LottieLou96
in
LUPUS UK
What do you do for a lift?
The kind of "Lift" I'm referring to is the type that you could do with if you have had a night of Afib or disturbed sleep. Sometimes this can leave me a bit jaded and having a daytime nap is not always an option or an answer for that matter. Although I was told not to take "Alka-Seltzer XS, it was never
The kind of "Lift" I'm referring to is the type that you could do with if you have had a night of Afib or disturbed sleep. Sometimes this can leave me a bit jaded and having a daytime nap is not always an option or an answer for that matter. Although I was told not to take "Alka-Seltzer XS, it was never
john6
in
AF Association
Malar rash diagnosis/confirmation
I am ANA positive plus Ds DNA (May be spelled wrong !) also pretty severe Raynauds. I also have what appears to be a Malar Rash.My Rheumy has referred me to dermatology but the wait time is incredibly long/ Have any of you sought a private Dermatologist ? I feel my treatment/care plan is at a standstill
I am ANA positive plus Ds DNA (May be spelled wrong !) also pretty severe Raynauds. I also have what appears to be a Malar Rash.My Rheumy has referred me to dermatology but the wait time is incredibly long/ Have any of you sought a private Dermatologist ? I feel my treatment/care plan is at a standstill
DottyLotty999
in
LUPUS UK
Lost in Autoimmune Land: If my labs are so good, why do I still feel so bad?
Hello, All! Yesterday had my first in-person visit with my rheumatologist in a year and a half. I handed him a 3- page synopsis of all my joint and related issues (only because I would kick myself later for having forgotten certain points!), and had an alarming number of vials of blood drawn. Most
Hello, All! Yesterday had my first in-person visit with my rheumatologist in a year and a half. I handed him a 3- page synopsis of all my joint and related issues (only because I would kick myself later for having forgotten certain points!), and had an alarming number of vials of blood drawn. Most
RxMe
in
Sjogren's Support
Weakly positive ANA
Hi, i have had fibromyalgia for 6 years now however i have now started to experience swelling of toes and hands and suffering pain in arm, shoulder and collar bone with pins and needles in my right arm consistently now since Christmas day. I have had Rheumatoid tests run which have come back clear however
Hi, i have had fibromyalgia for 6 years now however i have now started to experience swelling of toes and hands and suffering pain in arm, shoulder and collar bone with pins and needles in my right arm consistently now since Christmas day. I have had Rheumatoid tests run which have come back clear however
Smithy180
in
My Fibro Community
anyone's thyroid affected by the astrazeneca ?
I had the Astrazeneca in March, & have has a scary time with serious adverse reactions. I'm now seeing a brilliant homeopath & my energy levles were so low he gave me a thyroid remedy, it improved them, he stopped it as levels were good, then they slumped again...So I'm back on his thyroid remedies &
I had the Astrazeneca in March, & have has a scary time with serious adverse reactions. I'm now seeing a brilliant homeopath & my energy levles were so low he gave me a thyroid remedy, it improved them, he stopped it as levels were good, then they slumped again...So I'm back on his thyroid remedies &
Avidreader
in
Thyroid UK
New member with strange neuro issues
Hi There, Hoping there may be someone in this group that may unfortunately be in a similar situation and can shed some light on what’s going on I’m a 26yo female, I have been experiencing a combination of strange neurological and pain symptoms for the last few years which I have never had previously
Hi There, Hoping there may be someone in this group that may unfortunately be in a similar situation and can shed some light on what’s going on I’m a 26yo female, I have been experiencing a combination of strange neurological and pain symptoms for the last few years which I have never had previously
Diagnosistbc
in
Neuro Support
Help! Hair loss and burning scalp
Hi 👋 Just putting this out there to see if my anyone can relate to my symptoms. I’ve had various symptoms over the last 2 years, I won’t bore you with all of them but….digestive/stomach issues, fatigue, swollen lymph nodes in my neck, severe headaches/migraines, achy jaw/cheek bones, facial flushing
Hi 👋 Just putting this out there to see if my anyone can relate to my symptoms. I’ve had various symptoms over the last 2 years, I won’t bore you with all of them but….digestive/stomach issues, fatigue, swollen lymph nodes in my neck, severe headaches/migraines, achy jaw/cheek bones, facial flushing
Cornwall91
in
LUPUS UK
Antinuclear antibodies - help understanding the result
Hi Can anyone help explain what the result below means? And how do you address a positive antinuclear antibody result when having IVF? - is it blood thinners or steroids or something else? Antinuclear antibodies - Positive - Titre 1:80, Nuclear dots Thank you xx
Hi Can anyone help explain what the result below means? And how do you address a positive antinuclear antibody result when having IVF? - is it blood thinners or steroids or something else? Antinuclear antibodies - Positive - Titre 1:80, Nuclear dots Thank you xx
Skittles11
in
Fertility Network UK
Recommended Lupus Specialist in the UK?
Hello, I’m at my wits end now with my diagnosis journey. I am sick of doctors looking at me like Im some kind of hypochondriac and dismissing all of my symptoms, telling me there is nothing wrong with me when quite clearly there is. My only assumption is that I just haven’t found the right consultant
Hello, I’m at my wits end now with my diagnosis journey. I am sick of doctors looking at me like Im some kind of hypochondriac and dismissing all of my symptoms, telling me there is nothing wrong with me when quite clearly there is. My only assumption is that I just haven’t found the right consultant
SadGirlRaceClub
in
LUPUS UK
Cost of Interferon Alfa 2a
Does Interferon Alfa 2a (Pegasus) cost $1000 for 180mcg/ml ?? Without insurance?
Does Interferon Alfa 2a (Pegasus) cost $1000 for 180mcg/ml ?? Without insurance?
MrThara
in
MPN Voice
Symptoms are back with a vengeance!
I’ve been months without any symptoms of PBC. No fatigue or joint pain. No brain fog at all! Back to normal before this ever came up. Then this past week after my son had the stomach flu and I had several sleepless nights and BAM!!My symptoms are back. I haven’t been diagnosed Bc I declined the liver
I’ve been months without any symptoms of PBC. No fatigue or joint pain. No brain fog at all! Back to normal before this ever came up. Then this past week after my son had the stomach flu and I had several sleepless nights and BAM!!My symptoms are back. I haven’t been diagnosed Bc I declined the liver
JessiG19
in
PBCers Organization
Peg injections - two in one day
Hi all, I’m on peginterferon Alfa-2a for ET and a few weeks ago my dose was increased to 180mg. The hospital pharmacy deliver my medication and I can only assume they’ve ran out of 180mg syringes as I’ve been sent about 8 boxes of 90mg pre filled syringes meaning I’m expected to do 2 injections after
Hi all, I’m on peginterferon Alfa-2a for ET and a few weeks ago my dose was increased to 180mg. The hospital pharmacy deliver my medication and I can only assume they’ve ran out of 180mg syringes as I’ve been sent about 8 boxes of 90mg pre filled syringes meaning I’m expected to do 2 injections after
FashionLover
in
MPN Voice
Rheumatologist tel consultation
Hi everyone, I spoke to my rheumatologist yesterday and had a very odd conversation with him, although he’s quite pleased with my progress re GCA he now wants me to start on a treatment used for lupus, apparently I have very high levels of antibodies, ANA positive, I thought high levels was a good thing
Hi everyone, I spoke to my rheumatologist yesterday and had a very odd conversation with him, although he’s quite pleased with my progress re GCA he now wants me to start on a treatment used for lupus, apparently I have very high levels of antibodies, ANA positive, I thought high levels was a good thing
2013mayo
in
PMRGCAuk
Ana test
Just wondering if anyone has a negative ana but still has scleroderma? My hands have started showing symptoms but my ana test a couple months ago was negative..
Just wondering if anyone has a negative ana but still has scleroderma? My hands have started showing symptoms but my ana test a couple months ago was negative..
Katie2333
in
Scleroderma & Raynaud's UK (SRUK)
Awaiting diagnosis (fibromyalgia)
I’ve recently had a letter saying I’ve had a weakly Positive ANA blood test result with an anticentromere pattern. Does anyone know what this means. I’ve not got my appointment until 24th December when I go back to see the rheumatologist. Any help or advice would be really appreciated in lots of pain
I’ve recently had a letter saying I’ve had a weakly Positive ANA blood test result with an anticentromere pattern. Does anyone know what this means. I’ve not got my appointment until 24th December when I go back to see the rheumatologist. Any help or advice would be really appreciated in lots of pain
Larma
in
Fibromyalgia Action UK
How to prepare for Rheumatology Appointment
Hello, I'm new here. I have an appointment with rheumatology on Saturday, and would love some advice on how to prepare for it fully. I've been referred because a recurrent miscarriage clinic picked up a positive ANA test- the repeat test was also positive (a weak positive.) I have struggled with joint
Hello, I'm new here. I have an appointment with rheumatology on Saturday, and would love some advice on how to prepare for it fully. I've been referred because a recurrent miscarriage clinic picked up a positive ANA test- the repeat test was also positive (a weak positive.) I have struggled with joint
natmitch
in
LUPUS UK
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