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AMA negative but ANA positive

Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up 😧!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up 😧!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Liz_K profile image
Liz_K
in PBC Foundation

Feel lost

Hi all just looking for some advice if possible please. Has anyone had lupus diagnosed without a positive ana ? I have all the symptoms aside from swelling but the rheumatologist has now diagnosed fibromyalgia due to no positive ana. My liver enzymes have been raised since 2014 and I've been having symptoms
Hi all just looking for some advice if possible please. Has anyone had lupus diagnosed without a positive ana ? I have all the symptoms aside from swelling but the rheumatologist has now diagnosed fibromyalgia due to no positive ana. My liver enzymes have been raised since 2014 and I've been having symptoms
Haylz2109 profile image
Haylz2109
in LUPUS UK

Negative ANA Test

My ANA was negative but asking biopsy was positive for interface dermatitis ???? the skin doctor said possibly cutaneous lupus. Is it possible to have it on skin only and not in the blood?
My ANA was negative but asking biopsy was positive for interface dermatitis ???? the skin doctor said possibly cutaneous lupus. Is it possible to have it on skin only and not in the blood?
nicole3828 profile image
nicole3828
in LUPUS UK
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What medication do people find most helps their lupus ? Can no longer take HCQ

I've given it a good try with the HCQ, no doubt it works as well, but for me with lupus brain damage, traumatic brain injury and a previous brain haemorrhage setting off seizures last year, as many of you know, the HCQ is unfortunately causing too many seizures by reducing my seizure threshold. After
I've given it a good try with the HCQ, no doubt it works as well, but for me with lupus brain damage, traumatic brain injury and a previous brain haemorrhage setting off seizures last year, as many of you know, the HCQ is unfortunately causing too many seizures by reducing my seizure threshold. After
LottieLou96 profile image
LottieLou96
in LUPUS UK

What do you do for a lift?

The kind of "Lift" I'm referring to is the type that you could do with if you have had a night of Afib or disturbed sleep. Sometimes this can leave me a bit jaded and having a daytime nap is not always an option or an answer for that matter. Although I was told not to take "Alka-Seltzer XS, it was never
The kind of "Lift" I'm referring to is the type that you could do with if you have had a night of Afib or disturbed sleep. Sometimes this can leave me a bit jaded and having a daytime nap is not always an option or an answer for that matter. Although I was told not to take "Alka-Seltzer XS, it was never
john6 profile image
john6
in AF Association

Malar rash diagnosis/confirmation

I am ANA positive plus Ds DNA (May be spelled wrong !) also pretty severe Raynauds. I also have what appears to be a Malar Rash.My Rheumy has referred me to dermatology but the wait time is incredibly long/ Have any of you sought a private Dermatologist ? I feel my treatment/care plan is at a standstill
I am ANA positive plus Ds DNA (May be spelled wrong !) also pretty severe Raynauds. I also have what appears to be a Malar Rash.My Rheumy has referred me to dermatology but the wait time is incredibly long/ Have any of you sought a private Dermatologist ? I feel my treatment/care plan is at a standstill
DottyLotty999 profile image
DottyLotty999
in LUPUS UK

Lost in Autoimmune Land: If my labs are so good, why do I still feel so bad?

Hello, All! Yesterday had my first in-person visit with my rheumatologist in a year and a half. I handed him a 3- page synopsis of all my joint and related issues (only because I would kick myself later for having forgotten certain points!), and had an alarming number of vials of blood drawn. Most
Hello, All! Yesterday had my first in-person visit with my rheumatologist in a year and a half. I handed him a 3- page synopsis of all my joint and related issues (only because I would kick myself later for having forgotten certain points!), and had an alarming number of vials of blood drawn. Most
RxMe profile image
RxMe
in Sjogren's Support

Weakly positive ANA

Hi, i have had fibromyalgia for 6 years now however i have now started to experience swelling of toes and hands and suffering pain in arm, shoulder and collar bone with pins and needles in my right arm consistently now since Christmas day. I have had Rheumatoid tests run which have come back clear however
Hi, i have had fibromyalgia for 6 years now however i have now started to experience swelling of toes and hands and suffering pain in arm, shoulder and collar bone with pins and needles in my right arm consistently now since Christmas day. I have had Rheumatoid tests run which have come back clear however
Smithy180 profile image
Smithy180
in My Fibro Community

anyone's thyroid affected by the astrazeneca ?

I had the Astrazeneca in March, & have has a scary time with serious adverse reactions. I'm now seeing a brilliant homeopath & my energy levles were so low he gave me a thyroid remedy, it improved them, he stopped it as levels were good, then they slumped again...So I'm back on his thyroid remedies &
I had the Astrazeneca in March, & have has a scary time with serious adverse reactions. I'm now seeing a brilliant homeopath & my energy levles were so low he gave me a thyroid remedy, it improved them, he stopped it as levels were good, then they slumped again...So I'm back on his thyroid remedies &
Avidreader profile image
Avidreader
in Thyroid UK

New member with strange neuro issues

Hi There, Hoping there may be someone in this group that may unfortunately be in a similar situation and can shed some light on what’s going on I’m a 26yo female, I have been experiencing a combination of strange neurological and pain symptoms for the last few years which I have never had previously
Hi There, Hoping there may be someone in this group that may unfortunately be in a similar situation and can shed some light on what’s going on I’m a 26yo female, I have been experiencing a combination of strange neurological and pain symptoms for the last few years which I have never had previously
Diagnosistbc profile image
Diagnosistbc
in Neuro Support

Help! Hair loss and burning scalp

Hi 👋 Just putting this out there to see if my anyone can relate to my symptoms. I’ve had various symptoms over the last 2 years, I won’t bore you with all of them but….digestive/stomach issues, fatigue, swollen lymph nodes in my neck, severe headaches/migraines, achy jaw/cheek bones, facial flushing
Hi 👋 Just putting this out there to see if my anyone can relate to my symptoms. I’ve had various symptoms over the last 2 years, I won’t bore you with all of them but….digestive/stomach issues, fatigue, swollen lymph nodes in my neck, severe headaches/migraines, achy jaw/cheek bones, facial flushing
Cornwall91 profile image
Cornwall91
in LUPUS UK

Antinuclear antibodies - help understanding the result

Hi Can anyone help explain what the result below means? And how do you address a positive antinuclear antibody result when having IVF? - is it blood thinners or steroids or something else? Antinuclear antibodies - Positive - Titre 1:80, Nuclear dots Thank you xx
Hi Can anyone help explain what the result below means? And how do you address a positive antinuclear antibody result when having IVF? - is it blood thinners or steroids or something else? Antinuclear antibodies - Positive - Titre 1:80, Nuclear dots Thank you xx
Skittles11 profile image
Skittles11
in Fertility Network UK

Recommended Lupus Specialist in the UK?

Hello, I’m at my wits end now with my diagnosis journey. I am sick of doctors looking at me like Im some kind of hypochondriac and dismissing all of my symptoms, telling me there is nothing wrong with me when quite clearly there is. My only assumption is that I just haven’t found the right consultant
Hello, I’m at my wits end now with my diagnosis journey. I am sick of doctors looking at me like Im some kind of hypochondriac and dismissing all of my symptoms, telling me there is nothing wrong with me when quite clearly there is. My only assumption is that I just haven’t found the right consultant
SadGirlRaceClub profile image
SadGirlRaceClub
in LUPUS UK

Cost of Interferon Alfa 2a

Does Interferon Alfa 2a (Pegasus) cost $1000 for 180mcg/ml ?? Without insurance?
Does Interferon Alfa 2a (Pegasus) cost $1000 for 180mcg/ml ?? Without insurance?
MrThara profile image
MrThara
in MPN Voice

Symptoms are back with a vengeance!

I’ve been months without any symptoms of PBC. No fatigue or joint pain. No brain fog at all! Back to normal before this ever came up. Then this past week after my son had the stomach flu and I had several sleepless nights and BAM!!My symptoms are back. I haven’t been diagnosed Bc I declined the liver
I’ve been months without any symptoms of PBC. No fatigue or joint pain. No brain fog at all! Back to normal before this ever came up. Then this past week after my son had the stomach flu and I had several sleepless nights and BAM!!My symptoms are back. I haven’t been diagnosed Bc I declined the liver
JessiG19 profile image
JessiG19
in PBCers Organization

Peg injections - two in one day

Hi all, I’m on peginterferon Alfa-2a for ET and a few weeks ago my dose was increased to 180mg. The hospital pharmacy deliver my medication and I can only assume they’ve ran out of 180mg syringes as I’ve been sent about 8 boxes of 90mg pre filled syringes meaning I’m expected to do 2 injections after
Hi all, I’m on peginterferon Alfa-2a for ET and a few weeks ago my dose was increased to 180mg. The hospital pharmacy deliver my medication and I can only assume they’ve ran out of 180mg syringes as I’ve been sent about 8 boxes of 90mg pre filled syringes meaning I’m expected to do 2 injections after
FashionLover profile image
FashionLover
in MPN Voice

Rheumatologist tel consultation

Hi everyone, I spoke to my rheumatologist yesterday and had a very odd conversation with him, although he’s quite pleased with my progress re GCA he now wants me to start on a treatment used for lupus, apparently I have very high levels of antibodies, ANA positive, I thought high levels was a good thing
Hi everyone, I spoke to my rheumatologist yesterday and had a very odd conversation with him, although he’s quite pleased with my progress re GCA he now wants me to start on a treatment used for lupus, apparently I have very high levels of antibodies, ANA positive, I thought high levels was a good thing
2013mayo profile image
2013mayo
in PMRGCAuk

Ana test

Just wondering if anyone has a negative ana but still has scleroderma? My hands have started showing symptoms but my ana test a couple months ago was negative..
Just wondering if anyone has a negative ana but still has scleroderma? My hands have started showing symptoms but my ana test a couple months ago was negative..
Katie2333 profile image
Katie2333
in Scleroderma & Raynaud's UK (SRUK)

Awaiting diagnosis (fibromyalgia)

I’ve recently had a letter saying I’ve had a weakly Positive ANA blood test result with an anticentromere pattern. Does anyone know what this means. I’ve not got my appointment until 24th December when I go back to see the rheumatologist. Any help or advice would be really appreciated in lots of pain
I’ve recently had a letter saying I’ve had a weakly Positive ANA blood test result with an anticentromere pattern. Does anyone know what this means. I’ve not got my appointment until 24th December when I go back to see the rheumatologist. Any help or advice would be really appreciated in lots of pain
Larma profile image
Larma
in Fibromyalgia Action UK

How to prepare for Rheumatology Appointment

Hello, I'm new here. I have an appointment with rheumatology on Saturday, and would love some advice on how to prepare for it fully. I've been referred because a recurrent miscarriage clinic picked up a positive ANA test- the repeat test was also positive (a weak positive.) I have struggled with joint
Hello, I'm new here. I have an appointment with rheumatology on Saturday, and would love some advice on how to prepare for it fully. I've been referred because a recurrent miscarriage clinic picked up a positive ANA test- the repeat test was also positive (a weak positive.) I have struggled with joint
natmitch profile image
natmitch
in LUPUS UK
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