Experiences with

Alna

Hi All This is my first post and I appreciate that you may not have the answers just looking for guidance. I was diagnosed with Optic Neuritis in February and was put on short intensive steroids in March sleep deprivation the worst! but sight hasn’t fully and won’t fully return. Ophthalmology thought

My immunoglobulin level was 954 my doctor suggested Ana test and I have diagnosed with ANA week positive and AMA M2 positive with value of 18.. Positive for PBC I have been told I may suffer pbc in future presently my l GGT and alkyne phosphate level is normal.. Undergone ultrasound of liver and stiffness

Dear readers Has anyone on this forum experienced years of symptoms before being diagnosed with lupus please? If so what were your symptoms? I’ve been unwell for nearly 3 years and all the bloods tests carried have come back normal apart from the ANA test which showed slightly higher levels of inflammation

I've been reading on the forum for a while and I am wondering if you could help me as I am struggling to get a diagnosis and some of your stories are similar to mine.Symptoms Tinnitus Internal tremors Burning/Tingling sensations in arms and legs Headaches over the brows Stomach and bowel issues Tiredness

As some of you are aware I was told I had a fatty liver after a US scan last February.Since then I have had 2 ct scans,1 MRI and 1 fibroscan.Found a cyst on liver Had COVID Nov 22 This year my stools have been pale,tired,itchy skin,hairloss,spider veins.headaches and a tad forgetful diarrohea,low BP

My immunoglobulin level was 954 my doctor suggested Ana test and I have diagnosed with ANA week positive and AMA M2 positive with value of 18.. Positive for PBC I have been told I may suffer pbc in future presently my l GGT and alkyne phosphate level is normal.. Undergone ultrasound of liver and stiffness

Hi, Apologies in advance for the long story but I have been so worried about this and am hoping there may be someone on here with similar experience who may be able to reassure me. I am a 65 year old female. I rarely drink alcohol, am only 5 lbs into the overweight bracket, do some form of exercise

Hello all, First time posting…. I have noticed just how incredibly helpful and supportive this community is so figured I would be vulnerable and ask for help. I have just been diagnosed with overlap autoimmune disease- systemic sclerosis/myositis - symptoms include raynauds, interstitial lung disease

Hello everyone. I’m new here. I went to see a private rheumatologist after years of not being “well” in November. This was after I went to the GP with worsening Raynauds. An antibody test showed Positive ANA. Went to rheumatologist and been having tests for other stuff including Raynauds testing. Raynauds

Good morning, I am waiting for my next Rheumatologist appointment and have recently been suffering with issues , I have been on antibiotics 3 times in the last months due to high protein levels being found in my urine ,no blood present,on Reagent strip dip sticks. Once at the hospital ,then two at my

Holiday time is for feasting; We look forward to each treat. The tables are full of our favorite foods; We’ve got lots of good things to eat. We scarf marshmallowed sweet potatoes; There’s cider and eggnog to slurp. There’s so much going down at once, Who can help an occasional burp? Here’

I wanted to quickly get on here and share some thoughts. I have struggled with my health since I was 15, I am now 25. It is honestly hard for me to imagine not being sick in some way now because it has been so long. Through all of this, I have been gaslighted and dismissed by so many doctors and other

Has anyone on here had Chemo with these 2 drugs? Just wondering how you’re getting on in feeling normal? I’m 5 years post chemo and my entire body hurts from head to foot. Doctor is looking at possible Lupus but ANA test is negative. I have joint pain, muscle pain, basically pain anywhere and everywhere

I have not been diagnosed yet and have recently been given an urgent referral to The Royal Free. I have been having flare ups for the past 10 years but they are getting more frequent and worse. My GP has sent me to A&E 3 times. Does anyone get shooting stabbing pain in their ribs and sternum? It feels

Hello all. I am not diagnosed for have been generally unwell with fatigue/joint problems for some years. In August 2021 I became very ill with fever, rash, joint pain, and double pneumonia. I had been briefly bitten by a tick 2 weeks before but no bullseye rash. Doctors said my case was unusual and I

I am absolutely beside myself at the moment. After being seriously unwell for 3 months, especially the last week or 2 being so unwell I wonder how cancer could feel worse... I have a positive ANA & DSDNA. I have booked privately to see a rheumatologist because I cannot wait on the NHS as my life has

Hi everyone, I am curious about certain foods and their connection to flare-ups. I have found that gluten, soy, dairy, and refined sugars cause a lot of problems for me. Is it common for certain foods to make symptoms worse? What foods do you find help with symptoms? My second question is about ANA

RDW 16.0 H (11.5-15.0 %) SEDIMENTATION RATE: 35 H (0-20 MM/HOUR) RHEUMATOID FACTOR, QUANT 181 H (<14 IU/ML) ANA POSITIVE - SPECKLED - TITER 1:160 SJOGREN'S SS-A ANTIBODY >8.0 H (<1.0 AI) dsDNA ANTIBODY 15.0 H (POSITIVE >=3.0 U/ML) HEMOGLOBIN /

Hello all! I'm a 59 year old female living in the Florida Panhandle Haven't had any serious issues of note, arthritis and joint replacements aside. I began with an overall itch in Sept of 2021 and didn't worry too much until about a week later, when I was sleep deprived and torn up from scratching,

good morning everybody. Without giving a whole load of background info my lupus has become more active and the last 6 months I’ve been dealing with a herniated disc and trapped nerve in my neck. I discovered off the back of this that the last 3 years of phone appointments have been with a locum whose