Experiences with

Alna

Hi Im new on here, and not even sure I'm on the right sight. But I just wanted to ask a question in the hope that someone would know and be able to reassure me. My daughter has had a negative ANA test but it says underneath Cytoplasmic staining. Ive obv looked this up on google and am now highly concerned

Hi, My bloods came back positive for Lupus and the Dr told me it was Lupus. I have all the symptoms and have been ill for about six years. I had my 1st F2F with a Rheumatologist and was told my ANA was negative and because I hadn’t ever miscarriaged she didn’t know if it was. Hi Dd I feel dreadful can

I’ve have had high platelets for the past 20 years and have been living with primary Addison’s and hypothyroid for the past 27 years. I literally never feel good. I’ve been seeing a hematologist and she decided to run an ANA on me. CRP 9.7 ANA Ab screen POSITIVE ANA Titer <1:40 ANA pattern none detected

I’ve have had high platelets for the past 20 years and have been living with primary Addison’s and hypothyroid for the past 27 years. I literally never feel good. I’ve been seeing a hematologist and she decided to run an ANA on me. CRP 9.7 ANA Ab screen POSITIVE ANA Titer <1:40 ANA pattern none detected

Hello, I haven't been diagnosed with Lupus, but it's one of the things I've wondered about following years of symptoms, many matching the diagnostic criteria for Lupus. My GP was unwilling to refer me so I paid for a one-off private rheumatology appointment. She ran a series of blood tests on the NHS

How is everyone doing today? It's quite a sunny day over here in CA and I'm waiting for one of the kids to finish their class for the day. They both got caught up in playing and that resulted in her being late to class. Kind of funny when you hear little miss being forced out of their room for goofing

i wonder if anyone has been told that you cannot have Lupus past the age of the menopause? last year, i was struggling so much i went to see a so called Lupus expert in London, he was supposed to be the absolute authority and he said it is impossible to have LUPUS SLE after menopause and said i had something

Good evening all and thank you once again for all the advice I have received for you all reference my PMR . I went to my DR to day to ask if I could have a referral letter to go private to have a dexascan he said it would be of no help at this stage what ever he meant by that 🤔I stated it might be

My doctors don't think I have lupus. 1st tested years ago negative. 2nd ANA positive, 3rd ANA negative. I have a rash on my chest and all the symptoms of lupus. Will someone help me with figuring this out? Now the latest is my eyelashes are falling out plus hair on other parts of my body. I'm 63.

Update by Allie323: Hello, its been 27 days since my other post I'm Hashimotos with 1/2 working thyroid who first tried thyroid meds (Armour 15mg. for 2 weeks 11/19 then stopped ) and ironically just stopped being able to fall asleep a year ago Jan2020. ( felt breathing was shallow, weak like air hunger

Hi there, I’ve posted a few times about strange symptoms snd blood test results. I’m still not medicated or really been diagnosed with anything. Briefly my results so far: positive ANA antibodies, strongly positive Antiphospholipid antibodies (2 out of three 12 weeks apart), confirmed vasculitis following

Recently I switched to a new rheumatologist affiliated with a cardio-rheumatology program (due to arrhythmia, cholesterol and valve issues). He ran a new blood panel on me, with a surprising result: My anti-CCP levels (tested twice before at almost 200) were now negative! Several years ago, I had

Hi everyone, I’m new here. I just had a question I was hoping someone might be able to answer. My blood work came out positive for ANA with elevated anti-DNA and Immunoglobulin M. Does this mean I have lupus? What if I am showing few other symptoms and all the other blood work was fine? Thanks so much

Hi guys! So I’ve been suffering with headaches for a month and 2 weeks along with diarrhea and a facial/ neck rash. Everyday is a new symptom and I just can’t seem to figure it out. I’ve literally had every test done, mri, cat scan blood work and next I’m seeing an allergist. But my doctor also wants

I have recently been diagnosed with an ILD/possible NSIP , it’s not clear really what’s happening as I have only had a couple of telephone consultations , it really shocked me I just wasn’t expecting this it’s all happening so quick. Up until last October I was still running/working out but started experiencing

Help Please Hi, I am still searching for a diagnosis after 5 years. I have been told possible Betchets, lupus, undifferentiated connective tissue disorder. I have a positive ANA, joint pain, scleritis in both eyes and ocular hypertension. My concern is I have been feeling unwell with fever, night

I was told by my General Dr. that my ANA test showed that I had ANTISCLERODERMA-70 Antibodies. That along with the symptoms I have been having he recommended that I go see a Rheumatologist. When I made it to her she immediately told me that most of the tests done in a general practice office were false

Ok so bear with me please this is a long story. So for the past 2 years I've had the following symptoms which flare up and then I feel great and the they come back with a vengeance. Nocturnal back pain where I can barely move my back when I wake up at say 3am in the morning to go to the toilet, like

Hi, I'm a Hashi thyroid patient. I have been suffering with rashes which seem to be related to the sun. I was referred to Dermatology who performed an ANA test to rule out Lupus. My results show positive for ANA and anti-La antibodies but negative for ds-DNA. I have no clue what this may indicate - sjögren's

Hi has anyone had a positive immune test for this virus CMV linked to autoimmune disorder or hepatitis? It’s come up in my blood tests with raised liver enzymes, enlarged liver on ultrasound. Rheumatologist nurse wasn’t familiar with it but on research it seems there is a link. I’m under investigations