Experiences with

Alna

Hi all - I posted this on NRAS website and loads of helpful replies. As lupus is part of my diagnosis I thought I would post here too: Oh where to start. Feet have been bad for a few years. Reached crisis point a few weeks ago. Agreed with GP after asking about crutches to take short course of steroids

Oh where to start. Feet have been bad for a few years. Reached crisis point a few weeks ago. Agreed with GP after asking about crutches to take short course of steroids as instructed by rheumatology. They worked within a day. Had rheumatology appointment, referred to cMATS again, appointment tomorrow

After being referred to Rheumatology in August 2023 by Orthopaedic department because of my hand symptoms. Was seen by Rheumatology in January 2024 where I was misdiagnosed with Fibromyalgia a condition I don’t have as I have never had widespread pain or tender points, told to take amitriptyline and

After being referred to Rheumatology in August 2023 by Orthopaedic department because of my hand symptoms. Was seen by Rheumatology in January 2024 where I was misdiagnosed with Fibromyalgia a condition I don’t have as I have never had widespread pain or tender points, told to take amitriptyline and

I've been reading the forum for several months now, having been chronically ill since Easter. My story - I have been prescribed thyroxine for 25 years and have been mostly very stable. I have previously tested positive for antibodies so I assumed it was Hashis. Last Sept I suffered shingles, close unexpected

11 weeks ago my Levothyroxine (Teva) was increased a tiny bit from 100 to 125 on alternate days.Latest results TSH 0.11 (0.27-4.2) T3 1.0 (3.1-4.2) T4 23 (12-22) I've reduced again to 100mcg as of a few days ago. They'll retest again in a couple of months. I have a telephone appt with a GP on the

Hello, I'm new here and just looking for some advice on my recent blood results... I am normally fit and well, but the last two months have really taken a toll on me. It started off with digestive issues, frequent headaches, pins and needles, muscle/joint stiffness and loosing more hair than usual.

Hi everyone, I was just wondering if anyone has been seen at the Fever Clinic of the Royal Free Hospital. After having problems with low-grade fevers, mouth ulcers, eczema-like rashes, extreme fatigue, sore throat, lightheadedness and stomach issues on and off for 2 years now, I was referred to Infectious

Recent GP visit with a mouth full of ulcers brought long standing health issues to a head. I have a long history of health issues since contracting mononucleosis in 1987. Fatigue, dizziness, headaches, migraines, Endometriosis, sleep disorder - hypnogogic hallucinations, sun allergy that began as a rash

I've committed the cardinal sin and entrusted Dr Google to diagnose me leading to feeling pretty distraught about the future, or lack of it... I've developed puffy fingers in the last few months, pretty much always brought on by activities - DIY, weeding in the garden. They don't tend to become puffy

Hello I have a newbie’s question about diagnosis, please. Do you need to be experiencing symptoms such as visible butterfly rash and red/swollen joints at the time you see the rheumatologist for a diagnosis? Or can/will they go from photos and history? I’ve had symptoms that could be SLE for several

Due to my ongoing failing health I've had to do my own research as to the pathway of blood test results, symptoms and the progression/knock on effects of having doctors who refuse to help. I have had to be extremely proactive in my own diagnosis, following the path of autoimmune conditions (co-morbid

Hello everyone, I am new to this forum, and I am looking for any insights and answers as I feel I am constantly hitting a brick wall with getting any type of answer. I am a 34 year old female (caucasian), I am 5'4 and 12.7 stone- I could probably do with losing 2 stone but I am not significantly '

I have had one positive ana test ,three months later had another one that was negative?I have a rash on my cheeks &nose & forehead, pain in my hands& fingers &toes feels like frostbite, my legs feel really heavy, pain in my stomach & chest pain, sensitive to sunlight & bright lights. I was diagnosed

Brychni 23 hours ago•3 Replies Hello 👋 I posted this message on the Raynaud's and scleroderma group but after some research wondered if anyone here can help.me: Got my blood results back from rheumatology today, they were looking for scleroderma because of my worsening Raynaud's and finger ulcers.

Hello lovely peopleGot my blood results back from rheumatology today, they were looking for scleroderma because of my worsening Raynaud's and finger ulcers. Thankfully I tested negative for everything except the one in the title : PM Scl 100. Does anyone know what this means, if anything. To recap I

Hello, I was wondering if anyone can offer any advice or support. For years now Iv been having body pains being exhausted to the point I would fall asleep sat up. Not being able to do normal day to day things some days. . I got diagnosed with vit d deficiency I’m on tablets everyday for this for

Hello, I have just joined this site and would be very grateful for any advice given. Sorry this might be a bit long winded🤪 So… my ethnicity is of Asian origin and ever since I can remember I don’t think a day has gone by where I don’t suffer from joint aches , muscle pain body stiffness and chronic

hi I’ve just been diagnosed with lupus via positive ANA test ! Only symptoms are the sun burning my neck and chest and my glands swell !! No medication given at the moment as I don’t have any other symptoms? Is there medication for this sun allergy ??? Thank you for any help !!!

hi, this will be a bit of a long one sorry. I am really confused and don’t know whether to accept my gps answer or go private for a second opinion. My issues started more noticeably in October last year when I started heavily bleeding and having long periods and very short periods of time of not bleeding