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MS or Lupus
Hi All This is my first post and I appreciate that you may not have the answers just looking for guidance. I was diagnosed with Optic Neuritis in February and was put on short intensive steroids in March sleep deprivation the worst! but sight hasn’t fully and won’t fully return. Ophthalmology thought
Hi All This is my first post and I appreciate that you may not have the answers just looking for guidance. I was diagnosed with Optic Neuritis in February and was put on short intensive steroids in March sleep deprivation the worst! but sight hasn’t fully and won’t fully return. Ophthalmology thought
Gossygirl76
in
LUPUS UK
20 days ago
ANA Positive AMA M2 positive am I having Pbc.?❓
My immunoglobulin level was 954 my doctor suggested Ana test and I have diagnosed with ANA week positive and AMA M2 positive with value of 18.. Positive for PBC I have been told I may suffer pbc in future presently my l GGT and alkyne phosphate level is normal.. Undergone ultrasound of liver and stiffness
My immunoglobulin level was 954 my doctor suggested Ana test and I have diagnosed with ANA week positive and AMA M2 positive with value of 18.. Positive for PBC I have been told I may suffer pbc in future presently my l GGT and alkyne phosphate level is normal.. Undergone ultrasound of liver and stiffness
Sneha_winner
in
PBC Foundation
1 month ago
Help please
Dear readers Has anyone on this forum experienced years of symptoms before being diagnosed with lupus please? If so what were your symptoms? I’ve been unwell for nearly 3 years and all the bloods tests carried have come back normal apart from the ANA test which showed slightly higher levels of inflammation
Dear readers Has anyone on this forum experienced years of symptoms before being diagnosed with lupus please? If so what were your symptoms? I’ve been unwell for nearly 3 years and all the bloods tests carried have come back normal apart from the ANA test which showed slightly higher levels of inflammation
fish47
in
LUPUS UK
2 months ago
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Lupus or not.Any advice
I've been reading on the forum for a while and I am wondering if you could help me as I am struggling to get a diagnosis and some of your stories are similar to mine.Symptoms Tinnitus Internal tremors Burning/Tingling sensations in arms and legs Headaches over the brows Stomach and bowel issues Tiredness
I've been reading on the forum for a while and I am wondering if you could help me as I am struggling to get a diagnosis and some of your stories are similar to mine.Symptoms Tinnitus Internal tremors Burning/Tingling sensations in arms and legs Headaches over the brows Stomach and bowel issues Tiredness
Paula1710
in
LUPUS UK
2 months ago
sorry to bother you Any advice would be appreciated.
As some of you are aware I was told I had a fatty liver after a US scan last February.Since then I have had 2 ct scans,1 MRI and 1 fibroscan.Found a cyst on liver Had COVID Nov 22 This year my stools have been pale,tired,itchy skin,hairloss,spider veins.headaches and a tad forgetful diarrohea,low BP
As some of you are aware I was told I had a fatty liver after a US scan last February.Since then I have had 2 ct scans,1 MRI and 1 fibroscan.Found a cyst on liver Had COVID Nov 22 This year my stools have been pale,tired,itchy skin,hairloss,spider veins.headaches and a tad forgetful diarrohea,low BP
Paula1710
in
British Liver Trust
2 months ago
Got ANA positive and AMA M2 positive. Am I heading towards PBC
My immunoglobulin level was 954 my doctor suggested Ana test and I have diagnosed with ANA week positive and AMA M2 positive with value of 18.. Positive for PBC I have been told I may suffer pbc in future presently my l GGT and alkyne phosphate level is normal.. Undergone ultrasound of liver and stiffness
My immunoglobulin level was 954 my doctor suggested Ana test and I have diagnosed with ANA week positive and AMA M2 positive with value of 18.. Positive for PBC I have been told I may suffer pbc in future presently my l GGT and alkyne phosphate level is normal.. Undergone ultrasound of liver and stiffness
Sneha_winner
in
PBCers Organization
2 months ago
Advice if possible
Hi, Apologies in advance for the long story but I have been so worried about this and am hoping there may be someone on here with similar experience who may be able to reassure me. I am a 65 year old female. I rarely drink alcohol, am only 5 lbs into the overweight bracket, do some form of exercise
Hi, Apologies in advance for the long story but I have been so worried about this and am hoping there may be someone on here with similar experience who may be able to reassure me. I am a 65 year old female. I rarely drink alcohol, am only 5 lbs into the overweight bracket, do some form of exercise
Husband2022
in
British Liver Trust
2 months ago
Just diagnosed scleroderma/myositis - any help or guidance appreciated
Hello all, First time posting…. I have noticed just how incredibly helpful and supportive this community is so figured I would be vulnerable and ask for help. I have just been diagnosed with overlap autoimmune disease- systemic sclerosis/myositis - symptoms include raynauds, interstitial lung disease
Hello all, First time posting…. I have noticed just how incredibly helpful and supportive this community is so figured I would be vulnerable and ask for help. I have just been diagnosed with overlap autoimmune disease- systemic sclerosis/myositis - symptoms include raynauds, interstitial lung disease
ruablue
in
Scleroderma & Raynaud's UK (SRUK)
2 months ago
New & confused! ACL+ results, now what?
Hello everyone. I’m new here. I went to see a private rheumatologist after years of not being “well” in November. This was after I went to the GP with worsening Raynauds. An antibody test showed Positive ANA. Went to rheumatologist and been having tests for other stuff including Raynauds testing. Raynauds
Hello everyone. I’m new here. I went to see a private rheumatologist after years of not being “well” in November. This was after I went to the GP with worsening Raynauds. An antibody test showed Positive ANA. Went to rheumatologist and been having tests for other stuff including Raynauds testing. Raynauds
LUCYSGM
in
Hughes Syndrome APS Forum
2 months ago
Urinary issues worried about hypertension
Good morning, I am waiting for my next Rheumatologist appointment and have recently been suffering with issues , I have been on antibiotics 3 times in the last months due to high protein levels being found in my urine ,no blood present,on Reagent strip dip sticks. Once at the hospital ,then two at my
Good morning, I am waiting for my next Rheumatologist appointment and have recently been suffering with issues , I have been on antibiotics 3 times in the last months due to high protein levels being found in my urine ,no blood present,on Reagent strip dip sticks. Once at the hospital ,then two at my
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
Christmas Chuckle
Holiday time is for feasting; We look forward to each treat. The tables are full of our favorite foods; We’ve got lots of good things to eat. We scarf marshmallowed sweet potatoes; There’s cider and eggnog to slurp. There’s so much going down at once, Who can help an occasional burp? Here’
Holiday time is for feasting; We look forward to each treat. The tables are full of our favorite foods; We’ve got lots of good things to eat. We scarf marshmallowed sweet potatoes; There’s cider and eggnog to slurp. There’s so much going down at once, Who can help an occasional burp? Here’
Paul_and_Sue_Wood
in
Multiple System Atrophy Trust
6 months ago
Learning to validate myself
I wanted to quickly get on here and share some thoughts. I have struggled with my health since I was 15, I am now 25. It is honestly hard for me to imagine not being sick in some way now because it has been so long. Through all of this, I have been gaslighted and dismissed by so many doctors and other
I wanted to quickly get on here and share some thoughts. I have struggled with my health since I was 15, I am now 25. It is honestly hard for me to imagine not being sick in some way now because it has been so long. Through all of this, I have been gaslighted and dismissed by so many doctors and other
BrooklyneDeanne
in
LUPUS UK
3 months ago
Chemotherapy with Etoposide and Cisplatin
Has anyone on here had Chemo with these 2 drugs? Just wondering how you’re getting on in feeling normal? I’m 5 years post chemo and my entire body hurts from head to foot. Doctor is looking at possible Lupus but ANA test is negative. I have joint pain, muscle pain, basically pain anywhere and everywhere
Has anyone on here had Chemo with these 2 drugs? Just wondering how you’re getting on in feeling normal? I’m 5 years post chemo and my entire body hurts from head to foot. Doctor is looking at possible Lupus but ANA test is negative. I have joint pain, muscle pain, basically pain anywhere and everywhere
rareoldme
in
My Ovacome
3 months ago
Stabbing pain in ribs & negative ANA
I have not been diagnosed yet and have recently been given an urgent referral to The Royal Free. I have been having flare ups for the past 10 years but they are getting more frequent and worse. My GP has sent me to A&E 3 times. Does anyone get shooting stabbing pain in their ribs and sternum? It feels
I have not been diagnosed yet and have recently been given an urgent referral to The Royal Free. I have been having flare ups for the past 10 years but they are getting more frequent and worse. My GP has sent me to A&E 3 times. Does anyone get shooting stabbing pain in their ribs and sternum? It feels
Bee2023
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
Reoccurring chest rash
Hello all. I am not diagnosed for have been generally unwell with fatigue/joint problems for some years. In August 2021 I became very ill with fever, rash, joint pain, and double pneumonia. I had been briefly bitten by a tick 2 weeks before but no bullseye rash. Doctors said my case was unusual and I
Hello all. I am not diagnosed for have been generally unwell with fatigue/joint problems for some years. In August 2021 I became very ill with fever, rash, joint pain, and double pneumonia. I had been briefly bitten by a tick 2 weeks before but no bullseye rash. Doctors said my case was unusual and I
Alisha6653
in
LUPUS UK
4 months ago
First RH appointment tomorrow
I am absolutely beside myself at the moment. After being seriously unwell for 3 months, especially the last week or 2 being so unwell I wonder how cancer could feel worse... I have a positive ANA & DSDNA. I have booked privately to see a rheumatologist because I cannot wait on the NHS as my life has
I am absolutely beside myself at the moment. After being seriously unwell for 3 months, especially the last week or 2 being so unwell I wonder how cancer could feel worse... I have a positive ANA & DSDNA. I have booked privately to see a rheumatologist because I cannot wait on the NHS as my life has
Alicexo
in
LUPUS UK
4 months ago
Food and Flare-Ups, Clinical Significance of ANA
Hi everyone, I am curious about certain foods and their connection to flare-ups. I have found that gluten, soy, dairy, and refined sugars cause a lot of problems for me. Is it common for certain foods to make symptoms worse? What foods do you find help with symptoms? My second question is about ANA
Hi everyone, I am curious about certain foods and their connection to flare-ups. I have found that gluten, soy, dairy, and refined sugars cause a lot of problems for me. Is it common for certain foods to make symptoms worse? What foods do you find help with symptoms? My second question is about ANA
BrooklyneDeanne
in
LUPUS UK
4 months ago
RA or LUPUS Lab Results
RDW
16.0 H
(11.5-15.0 %) SEDIMENTATION RATE:
35 H
(0-20 MM/HOUR) RHEUMATOID FACTOR, QUANT
181 H
(<14 IU/ML) ANA POSITIVE - SPECKLED - TITER 1:160 SJOGREN'S SS-A ANTIBODY
>8.0 H
(<1.0 AI) dsDNA ANTIBODY
15.0 H
(POSITIVE >=3.0 U/ML) HEMOGLOBIN /
RDW
16.0 H
(11.5-15.0 %) SEDIMENTATION RATE:
35 H
(0-20 MM/HOUR) RHEUMATOID FACTOR, QUANT
181 H
(<14 IU/ML) ANA POSITIVE - SPECKLED - TITER 1:160 SJOGREN'S SS-A ANTIBODY
>8.0 H
(<1.0 AI) dsDNA ANTIBODY
15.0 H
(POSITIVE >=3.0 U/ML) HEMOGLOBIN /
Hypocon1
in
NRAS
4 months ago
Very newly diagnosed PBC still undergoing testing
Hello all! I'm a 59 year old female living in the Florida Panhandle Haven't had any serious issues of note, arthritis and joint replacements aside. I began with an overall itch in Sept of 2021 and didn't worry too much until about a week later, when I was sleep deprived and torn up from scratching,
Hello all! I'm a 59 year old female living in the Florida Panhandle Haven't had any serious issues of note, arthritis and joint replacements aside. I began with an overall itch in Sept of 2021 and didn't worry too much until about a week later, when I was sleep deprived and torn up from scratching,
Hidden
in
PBCers Organization
5 months ago
information request for Professor D’Cruz
good morning everybody. Without giving a whole load of background info my lupus has become more active and the last 6 months I’ve been dealing with a herniated disc and trapped nerve in my neck. I discovered off the back of this that the last 3 years of phone appointments have been with a locum whose
good morning everybody. Without giving a whole load of background info my lupus has become more active and the last 6 months I’ve been dealing with a herniated disc and trapped nerve in my neck. I discovered off the back of this that the last 3 years of phone appointments have been with a locum whose
Mifford
in
LUPUS UK
5 months ago
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