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Do I have lupus
I’ve have had high platelets for the past 20 years and have been living with primary Addison’s and hypothyroid for the past 27 years. I literally never feel good. I’ve been seeing a hematologist and she decided to run an ANA on me. CRP 9.7 ANA Ab screen POSITIVE ANA Titer <1:40 ANA pattern none detected
I’ve have had high platelets for the past 20 years and have been living with primary Addison’s and hypothyroid for the past 27 years. I literally never feel good. I’ve been seeing a hematologist and she decided to run an ANA on me. CRP 9.7 ANA Ab screen POSITIVE ANA Titer <1:40 ANA pattern none detected
Anniemari
in
LUPUS UK
3 years ago
Low C3 and C4
Hello, I haven't been diagnosed with Lupus, but it's one of the things I've wondered about following years of symptoms, many matching the diagnostic criteria for Lupus. My GP was unwilling to refer me so I paid for a one-off private rheumatology appointment. She ran a series of blood tests on the NHS
Hello, I haven't been diagnosed with Lupus, but it's one of the things I've wondered about following years of symptoms, many matching the diagnostic criteria for Lupus. My GP was unwilling to refer me so I paid for a one-off private rheumatology appointment. She ran a series of blood tests on the NHS
BlackInk
in
LUPUS UK
3 years ago
updates from last post, warning: long, sorry!
How is everyone doing today? It's quite a sunny day over here in CA and I'm waiting for one of the kids to finish their class for the day. They both got caught up in playing and that resulted in her being late to class. Kind of funny when you hear little miss being forced out of their room for goofing
How is everyone doing today? It's quite a sunny day over here in CA and I'm waiting for one of the kids to finish their class for the day. They both got caught up in playing and that resulted in her being late to class. Kind of funny when you hear little miss being forced out of their room for goofing
JennaShi
in
LUPUS UK
3 years ago
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Is there an age limit to LUPUS?
i wonder if anyone has been told that you cannot have Lupus past the age of the menopause? last year, i was struggling so much i went to see a so called Lupus expert in London, he was supposed to be the absolute authority and he said it is impossible to have LUPUS SLE after menopause and said i had something
i wonder if anyone has been told that you cannot have Lupus past the age of the menopause? last year, i was struggling so much i went to see a so called Lupus expert in London, he was supposed to be the absolute authority and he said it is impossible to have LUPUS SLE after menopause and said i had something
yellowmarie
in
LUPUS UK
3 years ago
Blood tests I had today 😩for what
Good evening all and thank you once again for all the advice I have received for you all reference my PMR . I went to my DR to day to ask if I could have a referral letter to go private to have a dexascan he said it would be of no help at this stage what ever he meant by that 🤔I stated it might be
Good evening all and thank you once again for all the advice I have received for you all reference my PMR . I went to my DR to day to ask if I could have a referral letter to go private to have a dexascan he said it would be of no help at this stage what ever he meant by that 🤔I stated it might be
Maggie1313
in
PMRGCAuk
3 years ago
Florencian
My doctors don't think I have lupus. 1st tested years ago negative. 2nd ANA positive, 3rd ANA negative. I have a rash on my chest and all the symptoms of lupus. Will someone help me with figuring this out? Now the latest is my eyelashes are falling out plus hair on other parts of my body. I'm 63.
My doctors don't think I have lupus. 1st tested years ago negative. 2nd ANA positive, 3rd ANA negative. I have a rash on my chest and all the symptoms of lupus. Will someone help me with figuring this out? Now the latest is my eyelashes are falling out plus hair on other parts of my body. I'm 63.
Florencian
in
LUPUS UK
3 years ago
Update: Hashimoto s new to taking meds helpless, jitters....
Update by Allie323: Hello, its been 27 days since my other post I'm Hashimotos with 1/2 working thyroid who first tried thyroid meds (Armour 15mg. for 2 weeks 11/19 then stopped ) and ironically just stopped being able to fall asleep a year ago Jan2020. ( felt breathing was shallow, weak like air hunger
Update by Allie323: Hello, its been 27 days since my other post I'm Hashimotos with 1/2 working thyroid who first tried thyroid meds (Armour 15mg. for 2 weeks 11/19 then stopped ) and ironically just stopped being able to fall asleep a year ago Jan2020. ( felt breathing was shallow, weak like air hunger
Allie323
in
Thyroid UK
3 years ago
Numbness?
Hi there, I’ve posted a few times about strange symptoms snd blood test results. I’m still not medicated or really been diagnosed with anything. Briefly my results so far: positive ANA antibodies, strongly positive Antiphospholipid antibodies (2 out of three 12 weeks apart), confirmed vasculitis following
Hi there, I’ve posted a few times about strange symptoms snd blood test results. I’m still not medicated or really been diagnosed with anything. Briefly my results so far: positive ANA antibodies, strongly positive Antiphospholipid antibodies (2 out of three 12 weeks apart), confirmed vasculitis following
Daisyyellow
in
Hughes Syndrome APS Forum
4 years ago
Heart & Sole (Diagnosis)
Recently I switched to a new rheumatologist affiliated with a cardio-rheumatology program (due to arrhythmia, cholesterol and valve issues). He ran a new blood panel on me, with a surprising result: My anti-CCP levels (tested twice before at almost 200) were now negative! Several years ago, I had
Recently I switched to a new rheumatologist affiliated with a cardio-rheumatology program (due to arrhythmia, cholesterol and valve issues). He ran a new blood panel on me, with a surprising result: My anti-CCP levels (tested twice before at almost 200) were now negative! Several years ago, I had
RxMe
in
LUPUS UK
4 years ago
Positive ANA and anti-DNA
Hi everyone, I’m new here. I just had a question I was hoping someone might be able to answer. My blood work came out positive for ANA with elevated anti-DNA and Immunoglobulin M. Does this mean I have lupus? What if I am showing few other symptoms and all the other blood work was fine? Thanks so much
Hi everyone, I’m new here. I just had a question I was hoping someone might be able to answer. My blood work came out positive for ANA with elevated anti-DNA and Immunoglobulin M. Does this mean I have lupus? What if I am showing few other symptoms and all the other blood work was fine? Thanks so much
TrickkiNikki
in
LUpus Patients Understanding and Support
4 years ago
Has anyone had ongoing headaches for two months with diarrhea, and a rash? I’ve had every test done.. could this be celiacs?
Hi guys! So I’ve been suffering with headaches for a month and 2 weeks along with diarrhea and a facial/ neck rash. Everyday is a new symptom and I just can’t seem to figure it out. I’ve literally had every test done, mri, cat scan blood work and next I’m seeing an allergist. But my doctor also wants
Hi guys! So I’ve been suffering with headaches for a month and 2 weeks along with diarrhea and a facial/ neck rash. Everyday is a new symptom and I just can’t seem to figure it out. I’ve literally had every test done, mri, cat scan blood work and next I’m seeing an allergist. But my doctor also wants
Aidackovic
in
National Migraine Centre
4 years ago
ILD/possible NSIP
I have recently been diagnosed with an ILD/possible NSIP , it’s not clear really what’s happening as I have only had a couple of telephone consultations , it really shocked me I just wasn’t expecting this it’s all happening so quick. Up until last October I was still running/working out but started experiencing
I have recently been diagnosed with an ILD/possible NSIP , it’s not clear really what’s happening as I have only had a couple of telephone consultations , it really shocked me I just wasn’t expecting this it’s all happening so quick. Up until last October I was still running/working out but started experiencing
Hidden
in
Lung Conditions Community Forum
4 years ago
Help Please regarding bloods
Help Please Hi, I am still searching for a diagnosis after 5 years. I have been told possible Betchets, lupus, undifferentiated connective tissue disorder. I have a positive ANA, joint pain, scleritis in both eyes and ocular hypertension. My concern is I have been feeling unwell with fever, night
Help Please Hi, I am still searching for a diagnosis after 5 years. I have been told possible Betchets, lupus, undifferentiated connective tissue disorder. I have a positive ANA, joint pain, scleritis in both eyes and ocular hypertension. My concern is I have been feeling unwell with fever, night
Suzywhizzo
in
Behçet's UK
4 years ago
Finally got to see a Rheumatologist.
I was told by my General Dr. that my ANA test showed that I had ANTISCLERODERMA-70 Antibodies. That along with the symptoms I have been having he recommended that I go see a Rheumatologist. When I made it to her she immediately told me that most of the tests done in a general practice office were false
I was told by my General Dr. that my ANA test showed that I had ANTISCLERODERMA-70 Antibodies. That along with the symptoms I have been having he recommended that I go see a Rheumatologist. When I made it to her she immediately told me that most of the tests done in a general practice office were false
_7810
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Can anyone help please
Ok so bear with me please this is a long story. So for the past 2 years I've had the following symptoms which flare up and then I feel great and the they come back with a vengeance. Nocturnal back pain where I can barely move my back when I wake up at say 3am in the morning to go to the toilet, like
Ok so bear with me please this is a long story. So for the past 2 years I've had the following symptoms which flare up and then I feel great and the they come back with a vengeance. Nocturnal back pain where I can barely move my back when I wake up at say 3am in the morning to go to the toilet, like
Babylove1111
in
LUPUS UK
4 years ago
ANA test - Sjogrens, Lupus?
Hi, I'm a Hashi thyroid patient. I have been suffering with rashes which seem to be related to the sun. I was referred to Dermatology who performed an ANA test to rule out Lupus. My results show positive for ANA and anti-La antibodies but negative for ds-DNA. I have no clue what this may indicate - sjögren's
Hi, I'm a Hashi thyroid patient. I have been suffering with rashes which seem to be related to the sun. I was referred to Dermatology who performed an ANA test to rule out Lupus. My results show positive for ANA and anti-La antibodies but negative for ds-DNA. I have no clue what this may indicate - sjögren's
Minimouse1
in
Thyroid UK
4 years ago
Cytomegalovirus CMV positive- has anyone experienced this ?
Hi has anyone had a positive immune test for this virus CMV linked to autoimmune disorder or hepatitis? It’s come up in my blood tests with raised liver enzymes, enlarged liver on ultrasound. Rheumatologist nurse wasn’t familiar with it but on research it seems there is a link. I’m under investigations
Hi has anyone had a positive immune test for this virus CMV linked to autoimmune disorder or hepatitis? It’s come up in my blood tests with raised liver enzymes, enlarged liver on ultrasound. Rheumatologist nurse wasn’t familiar with it but on research it seems there is a link. I’m under investigations
Hidden
in
LUPUS UK
4 years ago
Borderline ANA
Hello, I have been ill on and off for several years. Tiredness, rash on face and chest, aches and pains all over, hair loss. Everytime I recover I just want to put it behind me and carry on living my life. Unfortunately, this last episode has really done me and enough us enough. So dr's, blood test and
Hello, I have been ill on and off for several years. Tiredness, rash on face and chest, aches and pains all over, hair loss. Everytime I recover I just want to put it behind me and carry on living my life. Unfortunately, this last episode has really done me and enough us enough. So dr's, blood test and
BonnyB
in
LUPUS UK
4 years ago
Taking Steroids before my first Rheumatology appointment?
Hello, I am being investigated for autoimmune disorders including lupus. I have a strong family history, rashes, history of low wbc, unexplained fever, G6PD anemia, nerve muscle and joint pain, fainting episodes, a positive ANA, (at this time, it is low at 1:40 homogeneous pattern and mytotic centrosome
Hello, I am being investigated for autoimmune disorders including lupus. I have a strong family history, rashes, history of low wbc, unexplained fever, G6PD anemia, nerve muscle and joint pain, fainting episodes, a positive ANA, (at this time, it is low at 1:40 homogeneous pattern and mytotic centrosome
ALJ780
in
LUPUS UK
4 years ago
Thyroid nodules and high TPO
Hi, I’ve been going through a lot this year and I still don’t know if I blame my liver or my thyroid or both. My liver came back as fatty and mildly enlarged in May but with a normal variation called Riedel’s lobe. My enzymes were all fine but just a tiny bit higher than the normal by like 3 points.
Hi, I’ve been going through a lot this year and I still don’t know if I blame my liver or my thyroid or both. My liver came back as fatty and mildly enlarged in May but with a normal variation called Riedel’s lobe. My enzymes were all fine but just a tiny bit higher than the normal by like 3 points.
Amethyst91
in
Thyroid UK
4 years ago
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