Search
Search
About
Log in
Join
Experiences with
Alna
Posts
Communities
941 public posts
Filter results
Lupus?
I've have had positive ANA for over two years and other symptoms and have been on medication for Lupus im now confused as when I had a check up the other day the specialist said it might not be lupus but also told me my blood test is showing that there's a problem with my Liver so I've now got to see
I've have had positive ANA for over two years and other symptoms and have been on medication for Lupus im now confused as when I had a check up the other day the specialist said it might not be lupus but also told me my blood test is showing that there's a problem with my Liver so I've now got to see
steph1
in
LUPUS UK
10 years ago
Positive ANA&Positive DsDna/ Negative ANA & Positive DdDna
Hello everyone, I am from the United Statesand saw your blog and thought I'd join. I am 33 recently had tests done positive ANA positive DsDna then sent to rheumatologist who retested Neg ANA and slightly higher still positive DsDna. I have a lot of the symptoms of SLE my mother also has and was diagnosed
Hello everyone, I am from the United Statesand saw your blog and thought I'd join. I am 33 recently had tests done positive ANA positive DsDna then sent to rheumatologist who retested Neg ANA and slightly higher still positive DsDna. I have a lot of the symptoms of SLE my mother also has and was diagnosed
Stormyweather541
in
LUPUS UK
10 years ago
Unsure if have lupus
Hi, I'd be grateful for any advise as I'm feeling really stuck. I saw gp back in sept as had been suffering bad fatigue, migraine type headaches aggravated by light, muscle aches and feeling really down, this had been ongoing for 2-3 months after bad chest infection and I was also pregnant at the time
Hi, I'd be grateful for any advise as I'm feeling really stuck. I saw gp back in sept as had been suffering bad fatigue, migraine type headaches aggravated by light, muscle aches and feeling really down, this had been ongoing for 2-3 months after bad chest infection and I was also pregnant at the time
mrs_t
in
LUpus Patients Understanding and Support
10 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Migraine aura and Lupus?
Hello all, hope you are feeling well today! I was wondering if any of you get Migraine with aura along with Lupus? I was diagnosed with Migraine Aura, after it being ignored by GPs for a long time. I get horrible episodes of light, halos and zig zags, so much I can hardly see. I go slightly numb down
Hello all, hope you are feeling well today! I was wondering if any of you get Migraine with aura along with Lupus? I was diagnosed with Migraine Aura, after it being ignored by GPs for a long time. I get horrible episodes of light, halos and zig zags, so much I can hardly see. I go slightly numb down
kittyIM
in
LUPUS UK
10 years ago
Flares
Hi all I have posted before but not had a diagnosis of any SLE but have diagnosed Raynauds think it was ANA test I had for this , i also suffer mainly right sided joint pain, oral lichen planus ,small intermittent itchy rash on right ankle headaches and constant UTI and microscopic haematuria even when
Hi all I have posted before but not had a diagnosis of any SLE but have diagnosed Raynauds think it was ANA test I had for this , i also suffer mainly right sided joint pain, oral lichen planus ,small intermittent itchy rash on right ankle headaches and constant UTI and microscopic haematuria even when
kazhodluckymilo17
in
LUPUS UK
10 years ago
ANA blood test in September, results back end of November...
Hi all, I've been feeling very ill for a long time, I am 21 years old but feel like I'm 80. I've seen countless doctors and I've been pushed around, ignored and patronised. Finally, I got the diagnosis of endometriosis. Before that I had an ANA blood test done, for weeks after all was silent. I began
Hi all, I've been feeling very ill for a long time, I am 21 years old but feel like I'm 80. I've seen countless doctors and I've been pushed around, ignored and patronised. Finally, I got the diagnosis of endometriosis. Before that I had an ANA blood test done, for weeks after all was silent. I began
kittyIM
in
LUPUS UK
10 years ago
Good doctors in Bournemouth?
After being let down time and time again, I've not been to a doctor for about 4 years. I have had a chest infection for 3-4 weeks and I honstly felt I'd rather end up in A&E than ever have to look at my doctors face ever again. I had 2 positive ANA tests, positive lupus coagulant test, low end of normal
After being let down time and time again, I've not been to a doctor for about 4 years. I have had a chest infection for 3-4 weeks and I honstly felt I'd rather end up in A&E than ever have to look at my doctors face ever again. I had 2 positive ANA tests, positive lupus coagulant test, low end of normal
MaverickUK
in
Thyroid UK
10 years ago
NDT/T3 only in UK
Hey guys, I'm new here. I have suffered with extreme fatigue for 20 years, mostly mental but also physical. The mental is what stops me living my life though. 4 years ago I had many tests done. I had low end of normal thyroid, positive lupus coagulant test, positive ANA tests, low end of acceptable
Hey guys, I'm new here. I have suffered with extreme fatigue for 20 years, mostly mental but also physical. The mental is what stops me living my life though. 4 years ago I had many tests done. I had low end of normal thyroid, positive lupus coagulant test, positive ANA tests, low end of acceptable
MaverickUK
in
Thyroid UK
10 years ago
Waiting on Diagnosis
I have recently been to Rheumatology after being referred by my GP following a positive ANA result. I have now been recalled for more blood tests including Haemochromatosis due to high transferrin saturation. My Cons thought I maybe 'borderline' Lupus and I am a bit confused. My symptoms have included
I have recently been to Rheumatology after being referred by my GP following a positive ANA result. I have now been recalled for more blood tests including Haemochromatosis due to high transferrin saturation. My Cons thought I maybe 'borderline' Lupus and I am a bit confused. My symptoms have included
mctag44
in
LUPUS UK
10 years ago
What does it all mean?
Hi lovely peeps I'm new to this journey and after some pointers into what's going on??? Doctor is clueless / his words...., Tsh 6.4 Ferritin 25 No thyroid antibodies Weak positive ana Folate 21.8 B12 987 On armor 2 grains - and symtpoms have gotten better (usual symtoms) but still have Tiredness
Hi lovely peeps I'm new to this journey and after some pointers into what's going on??? Doctor is clueless / his words...., Tsh 6.4 Ferritin 25 No thyroid antibodies Weak positive ana Folate 21.8 B12 987 On armor 2 grains - and symtpoms have gotten better (usual symtoms) but still have Tiredness
Natalie286
in
Thyroid UK
10 years ago
Will I be put on meds for discoid lupus?
Hi everyone. Can anyone tell me what will happen now that I have been diagnosed with discoid lupus? I have a lot of mild symptoms of SLE but my ANA test was negative. I was given Elocon cream and told to return to dermy in 6-8 weeks. I wasn't given anything for my other symptoms though. Feeling confused
Hi everyone. Can anyone tell me what will happen now that I have been diagnosed with discoid lupus? I have a lot of mild symptoms of SLE but my ANA test was negative. I was given Elocon cream and told to return to dermy in 6-8 weeks. I wasn't given anything for my other symptoms though. Feeling confused
rad123
in
LUPUS UK
10 years ago
newly diagnosed with no support
Hi everyone. I was diagnosed with discoid lupus 2 days ago. I have had symptoms of SLE for around 2 years but never put the symptoms together even though my Dad had SLE!! I had biopsies on a facial lesion and when I went to see the dermy for my results I was seen by his reg. She told me it was lupus
Hi everyone. I was diagnosed with discoid lupus 2 days ago. I have had symptoms of SLE for around 2 years but never put the symptoms together even though my Dad had SLE!! I had biopsies on a facial lesion and when I went to see the dermy for my results I was seen by his reg. She told me it was lupus
rad123
in
LUpus Patients Understanding and Support
10 years ago
Confussed
Yesterday went to rheumatologist to get test results. He had said when I went in before, he was pretty sure it was RA. After getting tests back RF is negative but ANA positive, now I don't know if RA or Lupus. ANA can be positive in RA too I guess. Started me on PLAQUENIL 200mg 2 times per day.
Yesterday went to rheumatologist to get test results. He had said when I went in before, he was pretty sure it was RA. After getting tests back RF is negative but ANA positive, now I don't know if RA or Lupus. ANA can be positive in RA too I guess. Started me on PLAQUENIL 200mg 2 times per day.
jetttsd
in
NRAS
10 years ago
LUPUS RASH?
Hi everyone, I have many Lupus signs, though diagnosed with CFS/ME and Fibro. I have rashing over the front of my neck. It is at its worst the more poorly days, but pretty much there to some degree all the time. Had odd occasions when it is faintly over brow of nose. My ana test comes back as 'normal
Hi everyone, I have many Lupus signs, though diagnosed with CFS/ME and Fibro. I have rashing over the front of my neck. It is at its worst the more poorly days, but pretty much there to some degree all the time. Had odd occasions when it is faintly over brow of nose. My ana test comes back as 'normal
jellynpain
in
LUPUS UK
10 years ago
Are sticky blood and APS the same thing?
As I am trying to understand this condition and looking to getting tests done, I want to understand the terms. Is sticky blood the same thing as APS? Is low vitamin D a common symptom? I guess mine is very low. Strange as I have a pretty nice tan ;>) I guess I will list other symptoms I have: Extreme
As I am trying to understand this condition and looking to getting tests done, I want to understand the terms. Is sticky blood the same thing as APS? Is low vitamin D a common symptom? I guess mine is very low. Strange as I have a pretty nice tan ;>) I guess I will list other symptoms I have: Extreme
iskihard
in
Hughes Syndrome APS Forum
10 years ago
UCTD, Joint Pain, Plaquenil
I'm a 31 y/o female. I woke up one morning back in April 2013 with achy hands and didn't understand why they felt so achy. I just lived with it until July. It wasn't horrible, just annoying, and it came and went--sometimes made worse by chopping veggies or cleaning--sometimes those activities were
I'm a 31 y/o female. I woke up one morning back in April 2013 with achy hands and didn't understand why they felt so achy. I just lived with it until July. It wasn't horrible, just annoying, and it came and went--sometimes made worse by chopping veggies or cleaning--sometimes those activities were
hperkins26
in
LUPUS UK
10 years ago
ANA Blood test & swollen glands & neck stiffness
Hey all! I'm currently waiting on my ANA blood test results, they were done on Sept 23rd and they still aren't back. I ring the GP almost everyday, nothing. They keep promising to ring me up and say what's is happening, but they keep delaying & delaying. I was told they'd call today, needless to say
Hey all! I'm currently waiting on my ANA blood test results, they were done on Sept 23rd and they still aren't back. I ring the GP almost everyday, nothing. They keep promising to ring me up and say what's is happening, but they keep delaying & delaying. I was told they'd call today, needless to say
kittyIM
in
LUPUS UK
10 years ago
A quick question
I have been diagonisrd with conective tissue disease and fibro ( positive ana speckled, positive anti RNP and DsDna). I am on plaquenil 200 mg per day and lyrica 150 mg per day My question is i have noticed a rash on my cheaks and nose after being in the sun for short periods then it seems to lighten
I have been diagonisrd with conective tissue disease and fibro ( positive ana speckled, positive anti RNP and DsDna). I am on plaquenil 200 mg per day and lyrica 150 mg per day My question is i have noticed a rash on my cheaks and nose after being in the sun for short periods then it seems to lighten
Hopey
in
LUpus Patients Understanding and Support
10 years ago
Opinions Please!!!
Hi :) I need everyones opinions & input but first let me fill you in on my family medical history with autoimmune disease as well as my own. Family History: Twin Sister: Eczema, Raynauds (Not severe), Erythema Nodosum Grandfather: Protein C deficiency & Factor 5 Leiden Mutation "Sticky Blood" (Blood
Hi :) I need everyones opinions & input but first let me fill you in on my family medical history with autoimmune disease as well as my own. Family History: Twin Sister: Eczema, Raynauds (Not severe), Erythema Nodosum Grandfather: Protein C deficiency & Factor 5 Leiden Mutation "Sticky Blood" (Blood
Hidden
in
LUPUS UK
10 years ago
Just a quick question
Had my rhematology appointment a month ago my thuemy was happy that plaquenil seems to be working blood results back within normal limits rhuemy says ctd and fibro (lyrica for fibro) my question is anti rnp, dsdna, ana positive does this indicate sle or mctd? no malar rash so am just trying to work out
Had my rhematology appointment a month ago my thuemy was happy that plaquenil seems to be working blood results back within normal limits rhuemy says ctd and fibro (lyrica for fibro) my question is anti rnp, dsdna, ana positive does this indicate sle or mctd? no malar rash so am just trying to work out
Hopey
in
LUPUS UK
10 years ago
1
...
39
40
41
...
48
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
LUPUS UK
498 results
Thyroid UK
77 results
Scleroderma & Raynaud's UK (SRUK)
46 results
View top 10 communities
Sort by
Most Relevant
Newest