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Inflammatory mystery
So Ive been having horrible muscular aches and joint pain for months since last September and saw a dermatologist for a skin rash I had who told me it was a sun allergy (Solar urticaria). I was still continuing to get pain and fatigue, headaches and tingling in my toes and hands. I then as referred to
So Ive been having horrible muscular aches and joint pain for months since last September and saw a dermatologist for a skin rash I had who told me it was a sun allergy (Solar urticaria). I was still continuing to get pain and fatigue, headaches and tingling in my toes and hands. I then as referred to
lizd121
in
LUPUS UK
7 years ago
Multiple symptoms
Hello, I'm new to this forum but have been a subscriber of health unlocked for a while. I was wondering whether anyone may have experienced autoimmune symptoms but don't have a positive Ana.? I have raynaurds, or at least a type or circulation / vascular disorder. I constantly feel light headed/ slightly
Hello, I'm new to this forum but have been a subscriber of health unlocked for a while. I was wondering whether anyone may have experienced autoimmune symptoms but don't have a positive Ana.? I have raynaurds, or at least a type or circulation / vascular disorder. I constantly feel light headed/ slightly
Chillybilly
in
Thyroid UK
7 years ago
Scleroderma in a 22 yr male????????
Hi,everyone....I am a 22 year old male....I was having Raynaud's like symptoms since last two winters though I didn't get it this winter perhaps bcoz of a warmer climate....I am having shortness of breath since last two years even at rest which I have noticed getting aggravated after talking food and
Hi,everyone....I am a 22 year old male....I was having Raynaud's like symptoms since last two winters though I didn't get it this winter perhaps bcoz of a warmer climate....I am having shortness of breath since last two years even at rest which I have noticed getting aggravated after talking food and
Fick
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
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Disappointing news
I was really pleased to be able to report that I had been told that there was now no inflammation in my liver, it was the Research nurse that told me a message from the doctor as I was not eligible for the RESOLVE-IT trial. My bloods were all within normal range and I was feeling over the moon. I had
I was really pleased to be able to report that I had been told that there was now no inflammation in my liver, it was the Research nurse that told me a message from the doctor as I was not eligible for the RESOLVE-IT trial. My bloods were all within normal range and I was feeling over the moon. I had
annew272
in
British Liver Trust
7 years ago
Sjrogens/Lupus/May be/Help
Anyone with ANA positive homogenous pattern titre 1:1280 as well as a lupus anticoagulant which was detected. Often have aching episodes flu like symptoms and feel very unwell especially on waking after lying on my back and bottom. Often have bouts of faecal urgency and now incomplete evacuation. This
Anyone with ANA positive homogenous pattern titre 1:1280 as well as a lupus anticoagulant which was detected. Often have aching episodes flu like symptoms and feel very unwell especially on waking after lying on my back and bottom. Often have bouts of faecal urgency and now incomplete evacuation. This
Sandra2468
in
Arthritis Action
7 years ago
Blood tests
Hi, I'm looking for some help with interpreting my blood test results. I feel that everything is being looked at separately and no connections are being made. I had Laryngeal cancer last year and was treated with radical radiotherapy, my treatment finished in January 2016. I was diagnosed hypothyroid
Hi, I'm looking for some help with interpreting my blood test results. I feel that everything is being looked at separately and no connections are being made. I had Laryngeal cancer last year and was treated with radical radiotherapy, my treatment finished in January 2016. I was diagnosed hypothyroid
Jackie-2124
in
Thyroid UK
7 years ago
New Here - Working on a Diagnosis
Hello everyone! I just thought I'd share an introduction. I am Chelsea, almost 39 married with four kiddos (1, 6, 11, & 14). I have had high platelets since at least 2006. I did have two normal counts in 2005 but I was pregnant at that time which sometimes lowers them so we are searching for earlier
Hello everyone! I just thought I'd share an introduction. I am Chelsea, almost 39 married with four kiddos (1, 6, 11, & 14). I have had high platelets since at least 2006. I did have two normal counts in 2005 but I was pregnant at that time which sometimes lowers them so we are searching for earlier
ChelseaF
in
MPN Voice
7 years ago
Only you will get how exciting this is...
Ok, so we are taking our 7 year old away for the night to stay near a hotel near Longleat for a half term treat (in a vague attempt to beat the crowds in the morning). I take the usual deep breath (as am aware that eating out 9 times out of 10 has resulted in some unwanted symptoms reappearing). Plans
Ok, so we are taking our 7 year old away for the night to stay near a hotel near Longleat for a half term treat (in a vague attempt to beat the crowds in the morning). I take the usual deep breath (as am aware that eating out 9 times out of 10 has resulted in some unwanted symptoms reappearing). Plans
Hidden
in
Gluten Free Guerrillas
7 years ago
Please help!
Hello APS family. How is everyone doing? I am very happy to have found this forum, APS is so little recognize and so many people are not aware of it. I need some help and some advice from you guys! About two weeks ago I went to the ER, because of a scotoma on my left eye vision and some zig zag
Hello APS family. How is everyone doing? I am very happy to have found this forum, APS is so little recognize and so many people are not aware of it. I need some help and some advice from you guys! About two weeks ago I went to the ER, because of a scotoma on my left eye vision and some zig zag
Textra88
in
Hughes Syndrome APS Forum
7 years ago
Tingling Lips
Does anyone else have tingling or numb lips, fingers or toes? Or burning arms and legs as if the blood in your veins is red hot and enlarged? I've had a very awkward doctor who for the last 4 years has hinted that all my symptoms, crippling fatigue and brain fog being the most debilitating, are in my
Does anyone else have tingling or numb lips, fingers or toes? Or burning arms and legs as if the blood in your veins is red hot and enlarged? I've had a very awkward doctor who for the last 4 years has hinted that all my symptoms, crippling fatigue and brain fog being the most debilitating, are in my
HRW2017
in
LUPUS UK
7 years ago
Looking for KIND Rheumatologist in Essex
So my journey has been a long painful one, I am not yet officially diagnosed but have positive ANA, Anti DNA and am totally disabled by what I and a few other docs think is Lupus or a connective Tissue Disease, I also have Hashimotos and lots of other high Autoimmune Antibodies. My positive tests go
So my journey has been a long painful one, I am not yet officially diagnosed but have positive ANA, Anti DNA and am totally disabled by what I and a few other docs think is Lupus or a connective Tissue Disease, I also have Hashimotos and lots of other high Autoimmune Antibodies. My positive tests go
riannabri
in
LUPUS UK
7 years ago
I am curious, how many of you have a diagnosis of SLE but have never had organ involvement? And how many of you have been diagnosed with ..
I am curious, how many of you have a diagnosis of SLE but have never had organ involvement? And how many of you have been diagnosed with SCLE but this has ended up as SLE? I was diagnosed with SCLE in October/November 2013. Here are some of my blood test results: ANA positive (but crucially no level
I am curious, how many of you have a diagnosis of SLE but have never had organ involvement? And how many of you have been diagnosed with SCLE but this has ended up as SLE? I was diagnosed with SCLE in October/November 2013. Here are some of my blood test results: ANA positive (but crucially no level
Wendy39
in
LUPUS UK
7 years ago
Tests
Hi, Last year I started feeling poorly, red rash, joint pain and feeling extremely tired. At first I thought it was just a reaction to something until I started to feel very poorly, Like having the flu. I went to see several doctors who were not sure what was wrong so they sent me to a rheumatologist
Hi, Last year I started feeling poorly, red rash, joint pain and feeling extremely tired. At first I thought it was just a reaction to something until I started to feel very poorly, Like having the flu. I went to see several doctors who were not sure what was wrong so they sent me to a rheumatologist
Larny
in
LUPUS UK
7 years ago
Night sweats- any advice please
I have been diagnosed with undifferentiated connective tissue disease. Blood tests have shown weakly positive ANA with cytoplasmic speckles and mildly positive anticardiolipin antibodies IGM at 36 (Iโm not sure what that really means). I have been taking Hydroxychloroquine 200mg for a year now. I suffer
I have been diagnosed with undifferentiated connective tissue disease. Blood tests have shown weakly positive ANA with cytoplasmic speckles and mildly positive anticardiolipin antibodies IGM at 36 (Iโm not sure what that really means). I have been taking Hydroxychloroquine 200mg for a year now. I suffer
paula-moo
in
LUPUS UK
7 years ago
Increased positive ANA
Hi, I am very confused. I had an ANA test 3 months ago and results were positive 1:80, the doctor asked for lupus and raumathoid tests and it came negative. I repeated the ANA test after 3 months and the results were 1:160. I went to the rheumatologist with slight joints pain at few hands fingers but
Hi, I am very confused. I had an ANA test 3 months ago and results were positive 1:80, the doctor asked for lupus and raumathoid tests and it came negative. I repeated the ANA test after 3 months and the results were 1:160. I went to the rheumatologist with slight joints pain at few hands fingers but
Dinasamir
in
LUPUS UK
7 years ago
ANA positive years ago
I think I might have asked this somewhere b4 but I can't remember where or what answer I got and I haven't the strength to search back through... When I was first diagnosed with ITP 12 years ago, long b4 any of my symptoms started, the doctors tested my ANA the old way. The result was 15 iu/ml. I know
I think I might have asked this somewhere b4 but I can't remember where or what answer I got and I haven't the strength to search back through... When I was first diagnosed with ITP 12 years ago, long b4 any of my symptoms started, the doctors tested my ANA the old way. The result was 15 iu/ml. I know
1985mum
in
LUPUS UK
7 years ago
Got a diagnosis now stumped?
Thanks to all who replied to my question about getting diagnosed it's been a great help! As I have now been to see rheumy I am now more confused, after chatting to her about all my symptoms etc. she has said I have fibromyalgia and discharged me. I'm not sure to be relieved to get a diagnosis or not
Thanks to all who replied to my question about getting diagnosed it's been a great help! As I have now been to see rheumy I am now more confused, after chatting to her about all my symptoms etc. she has said I have fibromyalgia and discharged me. I'm not sure to be relieved to get a diagnosis or not
hunnybuns79
in
LUPUS UK
7 years ago
Hashimoto's in the USA
So I am not from that side of the pond as most of you are. I happened upon this site by happenstance & have found it very, very informative. So thank all of you up front for sharing your stories, experiences, ups & downs. It has made me feel normal in a very not normal world. I have been considered
So I am not from that side of the pond as most of you are. I happened upon this site by happenstance & have found it very, very informative. So thank all of you up front for sharing your stories, experiences, ups & downs. It has made me feel normal in a very not normal world. I have been considered
gzc721
in
Thyroid UK
8 years ago
Gluton free
Hi don't remember if I posted or no ,๐ But would like to share gluton free diet. Didn't have hashi diagnosed, had TT for cancer. However, as an experiment I tried gluton free and lost a uncomfortable feeling I used to get after eating ๐๐ every day, had in the past positive ANA blood test but got nowhere
Hi don't remember if I posted or no ,๐ But would like to share gluton free diet. Didn't have hashi diagnosed, had TT for cancer. However, as an experiment I tried gluton free and lost a uncomfortable feeling I used to get after eating ๐๐ every day, had in the past positive ANA blood test but got nowhere
Gcart
in
Thyroid UK
8 years ago
Lupus diagnosis help...
So I've been unwell for 3 years and I'm still not fully diagnosed, originally diagnosed with fibromyalgia but specialist say I have something else. Have had positive ANA result but not during recent testing. Smooth muscle test positive to. GP is certain I have lupus but can't do anything until rhuemo
So I've been unwell for 3 years and I'm still not fully diagnosed, originally diagnosed with fibromyalgia but specialist say I have something else. Have had positive ANA result but not during recent testing. Smooth muscle test positive to. GP is certain I have lupus but can't do anything until rhuemo
Dwarman
in
LUPUS UK
8 years ago
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