Hi all, it's my first post, I'm hoping I can get some thoughts from you...
I first went to my GP about my aches and pains 7 years ago, they tested for rheumatoid arthritis but it came up negative. I was then sent to see a rheumatologist for a possible lupus diagnosis but they decided it wasn't. I was then fobbed off for a while by various GP's....its osteo, we will eventually replace your knee joints.....you live in manchester - get used to it and take vitamin D....eventually my latest GP wants to query Lupus again as he did a dsDNA test and it came up abnormal. I now have an appointment with a different rheumatologist at the end of January.
I've written a list of symptoms to take with me, I was wondering if anyone could offer me any word of advice for that first appointment.
•Positive ANA and abnormal dsDNA. I have the Lupus Anticoagulant – I see a haematologist annually
•Pains in finger and toe joints, the back of my hands and tops of my feet/ankles puff up. Shoes feel tight and my rings get tight. I’ve had some sharp pain in feet like pins sticking in them. Also some shooting pains in my hands and wrists
•My knees hurt, especially when climbing stairs and driving. My knees also get red and hot
•Muscle aches, I sometimes feel like I have been exercising or have a virus that’s affecting all my big muscles.
•I struggle to get out of bed and up from a chair as I stiffen up.
•I often sleep really badly as I wake up in pain every hour or so and have to change position.
•I feel extremely tired all the time and have had to take naps during the day, even if I have slept well.
•I have dry eyes, if my eyes water for some reason (crying, onions or wind) they start to sting really badly, making them water more!!
•I get a red flush across my nose, cheeks and chest. It’s very red and hot, feels like my skin is burning. Often gets commented on by people.
•I suffer from depression; I came off anti-depressants in the summer.
•My dad has rheumatoid arthritis, my sister has pulmonary sarcoidosis
What do you think....are they going to fob me off again?