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Swellings??
Does anyone get swelling below collarbone and at top of sternum with lupus? My right tonsil hurts when I swallow but doesn't look inflamed or red. I have had erythmelalgia again today in right hand and wrist and then a few hours later left side and front of nose went bright red. I've also had a tender
Does anyone get swelling below collarbone and at top of sternum with lupus? My right tonsil hurts when I swallow but doesn't look inflamed or red. I have had erythmelalgia again today in right hand and wrist and then a few hours later left side and front of nose went bright red. I've also had a tender
mumsyme
in
LUPUS UK
7 years ago
Jo1 antibodies and ANA
Hello everyone just wondered if it’s possible to have lupus without testing positive for J01 antibodies.tested positive ANA hep 2 cytoplasmic cells and got all the symptoms bar the rash??going to see rheumatologist 29th next Monday so maybe I’ll find some answers then??
Hello everyone just wondered if it’s possible to have lupus without testing positive for J01 antibodies.tested positive ANA hep 2 cytoplasmic cells and got all the symptoms bar the rash??going to see rheumatologist 29th next Monday so maybe I’ll find some answers then??
Domi1041
in
LUPUS UK
7 years ago
What exact labs should one request the doc to do to see if they have PBC?
I have been through a ton of scans and tests and nothing definitive. I have crushing fatigue, pretty bad nausea and itching of the limbs especially, a creeping alk phos (still normal but going higher from 45 last year to 84 now), dialated intrahepatic bile ducts and a dialated common bile duct that does
I have been through a ton of scans and tests and nothing definitive. I have crushing fatigue, pretty bad nausea and itching of the limbs especially, a creeping alk phos (still normal but going higher from 45 last year to 84 now), dialated intrahepatic bile ducts and a dialated common bile duct that does
Suz_anne
in
PBC Foundation
7 years ago
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Liver function test
Hi all should I be worried about my blood results I suffer from health anxiety so I'm sure I'm been overly worried after reading some reading mine don't seem so bad. Serum total protein 73 Serum albumin 43 Serum alkaline phosphates 128 Serum alanine aminotransferase 47 Serum total bilirubin level 5
Hi all should I be worried about my blood results I suffer from health anxiety so I'm sure I'm been overly worried after reading some reading mine don't seem so bad. Serum total protein 73 Serum albumin 43 Serum alkaline phosphates 128 Serum alanine aminotransferase 47 Serum total bilirubin level 5
Jennymiddle
in
British Liver Trust
7 years ago
curious
just curious as to whether its safe to mix up magnesium,optiflex glucosamine 1,500mg,opti turmeric,hair and nail strengthener and st johns wort quite a concoction
just curious as to whether its safe to mix up magnesium,optiflex glucosamine 1,500mg,opti turmeric,hair and nail strengthener and st johns wort quite a concoction
jono54
in
IBS Network
7 years ago
Blood requests
Hi all, so the last lot of bloods my Rheumatologist ordered are considerably more extensive than before. I have had a positive ANA 1:160 up until June 2017 nucleolar pattern and am due for this lot to be taken next week. This time on top of the usual anti-nuclear antibody screen, C34 and anti dsDNA its
Hi all, so the last lot of bloods my Rheumatologist ordered are considerably more extensive than before. I have had a positive ANA 1:160 up until June 2017 nucleolar pattern and am due for this lot to be taken next week. This time on top of the usual anti-nuclear antibody screen, C34 and anti dsDNA its
Queencara78
in
Ehlers-Danlos Support UK
7 years ago
Confused
GP phoned today to say my blood had been looked at again and despite having positive ANA Rheumatologist has stated that no more tests to be done that they reckon not Lupus , will need to ask him what is causing my symptoms , he has however arranged for full blood count and colonoscopy in relation to
GP phoned today to say my blood had been looked at again and despite having positive ANA Rheumatologist has stated that no more tests to be done that they reckon not Lupus , will need to ask him what is causing my symptoms , he has however arranged for full blood count and colonoscopy in relation to
stuart68
in
LUPUS UK
7 years ago
New bloods and reaction to Levothyroxine
Hi Guys So I went to see the doctor last week after staying off Levothyroxine for 2 weeks at his request as I was reacting really badly to it (at this time my TSH was 1.0 apparently normal but they didn't even do the other thyroid tests so I found this to be useless and I was still in a lot of pain
Hi Guys So I went to see the doctor last week after staying off Levothyroxine for 2 weeks at his request as I was reacting really badly to it (at this time my TSH was 1.0 apparently normal but they didn't even do the other thyroid tests so I found this to be useless and I was still in a lot of pain
Kimmicustard
in
Thyroid UK
7 years ago
LUPUS??????
Hi I'm new to this forum. I have been told by my liver consultant I have tested positive for lupus having positive ANA and double stranded DNA. However he says it maybe due to my PBC. Is it possible to have both of are the test results because of PBC.
Hi I'm new to this forum. I have been told by my liver consultant I have tested positive for lupus having positive ANA and double stranded DNA. However he says it maybe due to my PBC. Is it possible to have both of are the test results because of PBC.
Taya
in
LUPUS UK
7 years ago
Suppliments
Hi I’m new here, I’ve got lots of things getting me down at the moment. Has anyone taken supplements to help with Anxiety. I’m thinking of taking St Johns Wort And 5 HTP.
Hi I’m new here, I’ve got lots of things getting me down at the moment. Has anyone taken supplements to help with Anxiety. I’m thinking of taking St Johns Wort And 5 HTP.
goragon
in
Anxiety and Depression Support
7 years ago
NEED SOME AVISE
HI, ITS BEEN A WHILE SINCE MY LAST POST. A LOT HAS HAPPENED SINCE. WELL LET ME START, WENT TO THE HEPATOLGIST ON NOV. 10 AND SHE SAID I HAD OVERLAP SINDROME WHICH I STARTED ON PRED AND AZA. BUT BEFORE STARTING MY LAB WORKS WHERE 50% MUCH BETTER SINCE I WAS FIRST DIAGNOSED WITH PBC AND TAKING 1 GRM
HI, ITS BEEN A WHILE SINCE MY LAST POST. A LOT HAS HAPPENED SINCE. WELL LET ME START, WENT TO THE HEPATOLGIST ON NOV. 10 AND SHE SAID I HAD OVERLAP SINDROME WHICH I STARTED ON PRED AND AZA. BUT BEFORE STARTING MY LAB WORKS WHERE 50% MUCH BETTER SINCE I WAS FIRST DIAGNOSED WITH PBC AND TAKING 1 GRM
YADILURO
in
PBC Foundation
7 years ago
Positive Ana 1:320 now it's negative
Hi all. Just back from my rheumatology appt feeling quite disheartened 😢 I had a positive Ana test 6months ago by a private rheumatologist and have aching joints, chronic fatigue, hair loss etc. Today I have been told all tests have come back normal, bloods fine, bone scan fine by NHS. Am told I have
Hi all. Just back from my rheumatology appt feeling quite disheartened 😢 I had a positive Ana test 6months ago by a private rheumatologist and have aching joints, chronic fatigue, hair loss etc. Today I have been told all tests have come back normal, bloods fine, bone scan fine by NHS. Am told I have
DaniDC
in
LUPUS UK
7 years ago
Awaiting more tests
I have had face rash for last five years or so, last 3 years fingers get rash then split and bleed dermatologist tested and came back with 4 pages full of what I'm allergic too although put fingers down to stress and signed me off caseload. My head has been scabbing for last 4 years which I thought might
I have had face rash for last five years or so, last 3 years fingers get rash then split and bleed dermatologist tested and came back with 4 pages full of what I'm allergic too although put fingers down to stress and signed me off caseload. My head has been scabbing for last 4 years which I thought might
stuart68
in
LUPUS UK
7 years ago
Mycophenolate
Hi All! I was diagnosed with Systemic Scleroderma with Raynaud’s eight months ago. I have a strongly positive ANA raised ESR and anaemia,GAVE (watermelon stomach)...for which I had an endoscopy and argon diathermy last month and to be repeated next month! My Rheumatologist has suggested that I start
Hi All! I was diagnosed with Systemic Scleroderma with Raynaud’s eight months ago. I have a strongly positive ANA raised ESR and anaemia,GAVE (watermelon stomach)...for which I had an endoscopy and argon diathermy last month and to be repeated next month! My Rheumatologist has suggested that I start
Misty2552017
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Hospital Appointment this morning
1st Rhematologist appointment this morning, after seeing a muskoskelatal specialist for fibro. High positive ANA blood present, Will find out whats going on, not looking forward to it, needs must Wish me luck x
1st Rhematologist appointment this morning, after seeing a muskoskelatal specialist for fibro. High positive ANA blood present, Will find out whats going on, not looking forward to it, needs must Wish me luck x
Louby-
in
Fibromyalgia Action UK
7 years ago
Can it be?
Diagnosed with lupus. Positive ANA and positive dsDNA. Fatigue, mild facial rash and pain in my joints, mainly knees. Can I be misdiagnosed with those test being positive? Nervous!!!
Diagnosed with lupus. Positive ANA and positive dsDNA. Fatigue, mild facial rash and pain in my joints, mainly knees. Can I be misdiagnosed with those test being positive? Nervous!!!
Hidden
in
Lupus Foundation of Florida
7 years ago
Is it really Lupus
Blood work came back stating positive ANA and positive dsDNA. Slight rash on my face, fatigue and joint pain especially my knees. Can it be a misdiagnosis?
Blood work came back stating positive ANA and positive dsDNA. Slight rash on my face, fatigue and joint pain especially my knees. Can it be a misdiagnosis?
Hidden
in
Lupus Foundation of Florida
7 years ago
Should I stop t3 without increasing Tironsint T4
Levels before taking half dose of t3. TSH 1.89 (47-4.68) T4 1.10 (.78-2.19) T3 2.8 (2.2-4.2) Taking 25mg Tironsiny Was taking 10mg T3 now last 2 wekks only 5 and suppose to stop T3 altogether today because I am so shaky and anxiety but scared to stop it all together as I heard it helps with depression
Levels before taking half dose of t3. TSH 1.89 (47-4.68) T4 1.10 (.78-2.19) T3 2.8 (2.2-4.2) Taking 25mg Tironsiny Was taking 10mg T3 now last 2 wekks only 5 and suppose to stop T3 altogether today because I am so shaky and anxiety but scared to stop it all together as I heard it helps with depression
Loriputnam11
in
Thyroid UK
7 years ago
Know thyself.
Diagnosed first w/fibromyalgia. slowly Progressed to definitive lupus symptoms Including positive ANA off and on. Have been on hydrocloroquine for 4 years. Helps. Now seem to be progessing.. Have Experienced GP scepticism and family Denial when I seem okay often.
Diagnosed first w/fibromyalgia. slowly Progressed to definitive lupus symptoms Including positive ANA off and on. Have been on hydrocloroquine for 4 years. Helps. Now seem to be progessing.. Have Experienced GP scepticism and family Denial when I seem okay often.
ekdona
in
LUPUS UK
7 years ago
Dr Referring me to Rhematologist. Keeps mentioning Lupus but I have no symptoms
I am freakin out here. I’m 28 years old and I went in for a physical. I had horrible pregnancies and just wanted to see how my body was doing a year after my baby. I did an ANA test a year ago which was negative and never thought about it again. We live in Upstate NY and it’s winter. We have a 2 and
I am freakin out here. I’m 28 years old and I went in for a physical. I had horrible pregnancies and just wanted to see how my body was doing a year after my baby. I did an ANA test a year ago which was negative and never thought about it again. We live in Upstate NY and it’s winter. We have a 2 and
Jeniedo
in
LUPUS UK
7 years ago
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