So I went to see the doctor last week after staying off Levothyroxine for 2 weeks at his request as I was reacting really badly to it (at this time my TSH was 1.0 apparently normal but they didn't even do the other thyroid tests so I found this to be useless and I was still in a lot of pain all over my body with many, many other hypo symptoms) - I felt better within 24 hours of stopping the levo in terms of no bloating/nausea/breathlessness/mucus in throat. It would seem I am quite allergic to this tablet! When I told him this, he said 'I have told you I cant prescribe the other drug as its too expensive and you won't get an appointment with an endo for absolutely months and months and months ' he was arrogant with me and uncaring and spoke to me like he just couldn't be bothered dealing with me.
I ended up shouting at him and bursting into tears and saying well what am I supposed to do - would he give a needed drug that contained nuts to a nut allergy sufferer? After shouting at him saying I felt like I was getting nowhere with him and I just feel so ill, he apologised to me then started to listen. I mentioned speaking to you guys and he didn't even know about the vitamins etc. he then looked on the system and low and behold he found me a fast track appointment to see an endo in 5 weeks time.
In the mean time, he agreed to do the bloods for the vitamins mentioned and also a coeliac test (as I am also struggling to eat loads of different foods) and liver function test and another thyroid test (he said he can only do TSH though as I am already diagnosed!) he said that the endo would be able to do T3 test etc. though. I asked him what to do in the mean time with the levo and he said 'well - you'll just have to be ill with it until you see the specialist' I had the blood tests, then took the levo for the first time yesterday and was severely ill - I could hardly breathe due to fluid around my abdomen and I was on the loo within 20 minutes. I then felt breathless and really nauseous all day. I am also struggling to eat/drink anything at all with milk in it now - it gives me the same symptoms.
I phoned the surgery and they advised me to just stop taking it so now I am unmedicated for 5 weeks until I see the specialist. So - please see below my new results for everything (I'm just waiting for the coeliac test to come back now) - any advise would be gratefully received as your help last time has helped me to get him to do something!
TSH is now 1.6 (0.2-4.0) (he wouldn't do the other tests and I have been off levo for 3 weeks now - previously 1.0 whilst on levo then before that it was 9.7)
B12 452ng/L (211 - 911)
Ferritin 143 ug/L (10-291)
Folate 2.9ug/L (3-14.4)
Vit D 14.4 nmol/L (<30 indicates deficiancy)
Serum total bilirubin level 13 umol/L (<21)
Serum alkaline phosphatase level 87 iu/L (30-130)
Serum alanine aminotransferase level 128 (<40)
Serum calcium level 2.23 (2.2 - 2.6)
Serum albumin level 45 g/L (35-50)
Serum adjusted calcium concentration 2.13 mmol/L (2.2-2.6)
Serum inorganic phosphate level 0.82mmol/L (0.8-1.5)
Thanks in advance!