Search
Search
About
Log in
Join
Experiences with
Ala-Cort
Posts
Communities
1,749 public posts
Filter results
Halfway Through Docetaxel
Hi All, thought I'd give a random update on my progress now that I'm in the third week of my third cycle of Docetaxel. So far I'm tolerating the chemo quite well. After the usual storm of side effects in the first week of a cycle, pretty much all I'm dealing with is thinning hair (but still have quite
Hi All, thought I'd give a random update on my progress now that I'm in the third week of my third cycle of Docetaxel. So far I'm tolerating the chemo quite well. After the usual storm of side effects in the first week of a cycle, pretty much all I'm dealing with is thinning hair (but still have quite
tom67inMA
in
Advanced Prostate Cancer
5 years ago
Positive ana then negative?
Hi my ana was positive and recently had I checked privately through medichecks. It's came back negative. Still in the process of trying to get a diagnosis. Has this happened to anyone else and does it still count as it was positive previously?
Hi my ana was positive and recently had I checked privately through medichecks. It's came back negative. Still in the process of trying to get a diagnosis. Has this happened to anyone else and does it still count as it was positive previously?
Hidden
in
LUPUS UK
5 years ago
High b12 struggle goes on
Hi - thank you for all your helpful replies in the past. I have had a ct scan of liver which was normal & further liver blood tests following above range reading of alanine aminotransferase level & they have also come back within range, which is a great relief. This still leaves the fact that my b12
Hi - thank you for all your helpful replies in the past. I have had a ct scan of liver which was normal & further liver blood tests following above range reading of alanine aminotransferase level & they have also come back within range, which is a great relief. This still leaves the fact that my b12
Irismay
in
Pernicious Anaemia Society
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Cataract, Liver/Pancreas issues, Elevated M2 AMA, NAFLD and now Dupuytren's, I am only 45!
Was diagnosed with Liver issues/poss PBC in 2009 after elevated alk phos for 10+ years and Elevated M2 AMA (negative in 2003 but positive in 2009, rechecked multiple times by multiple specialists, all positive), and NAFLD, then in 2012 diagnosed with posterior subcapsular cataract in right eye. Spent
Was diagnosed with Liver issues/poss PBC in 2009 after elevated alk phos for 10+ years and Elevated M2 AMA (negative in 2003 but positive in 2009, rechecked multiple times by multiple specialists, all positive), and NAFLD, then in 2012 diagnosed with posterior subcapsular cataract in right eye. Spent
Cooper6
in
PBC Foundation
5 years ago
unusual thyroid results posted as requested. Most of these make no sense to me.
Results form my surgery are as follows: Clinician viewed11 Jan 2019 Result typePathology TestsThyroid function test ResultAbnormal What you need to doMake an appointment to see doctor Specimen Specimen Type: Blood Specimen Reference#: 1 Collected: 11 Jan 2019 Received: 11 Jan 2019 Provider
Results form my surgery are as follows: Clinician viewed11 Jan 2019 Result typePathology TestsThyroid function test ResultAbnormal What you need to doMake an appointment to see doctor Specimen Specimen Type: Blood Specimen Reference#: 1 Collected: 11 Jan 2019 Received: 11 Jan 2019 Provider
lco1
in
Thyroid UK
5 years ago
Radium-223 + Abiraterone & prednisone/prednisolone
New study below. "The addition of radium-223 to abiraterone acetate plus prednisone or prednisolone did not improve symptomatic skeletal event-free survival in patients with castration-resistant prostate cancer and bone metastases, and was associated with an increased frequency of bone fractures compared
New study below. "The addition of radium-223 to abiraterone acetate plus prednisone or prednisolone did not improve symptomatic skeletal event-free survival in patients with castration-resistant prostate cancer and bone metastases, and was associated with an increased frequency of bone fractures compared
pjoshea13
in
Advanced Prostate Cancer
5 years ago
Plaquenil, Amitriptyline and now Cymbalta
Hi Again, (this is a followup to a previous post) So I went to see my regular doctor as a couple of you had suggested. I explained about waking up hot and cold while taking the Plaquenil and Amitriptyline and feeling worse than ever lately. The doctor printed out the letter sent to her from the Rheumatologist
Hi Again, (this is a followup to a previous post) So I went to see my regular doctor as a couple of you had suggested. I explained about waking up hot and cold while taking the Plaquenil and Amitriptyline and feeling worse than ever lately. The doctor printed out the letter sent to her from the Rheumatologist
patmackfin
in
LUPUS UK
5 years ago
Graves, hypo symptoms, no longer functioning, please help!
I'm reaching out to this community some time after initially joining to see if you can help me help my mother. I initially joined as I was having miscarriages and after 5years of fighting to get help my normal tsh finally slumped enough (from 1.2 to 3.4) to get some t4, and hey presto, we conceived and
I'm reaching out to this community some time after initially joining to see if you can help me help my mother. I initially joined as I was having miscarriages and after 5years of fighting to get help my normal tsh finally slumped enough (from 1.2 to 3.4) to get some t4, and hey presto, we conceived and
arcticsun
in
Thyroid UK
5 years ago
Little bit closer
Not sure where topost this but just wanted to share last results of ANA test and that might get an appointment with Rheum doc and ultimately get closer to finding out whats going on and a diagnosis. I have hope. Its not been easy with alot symproms, pain and lack of sleep but I’m thankful for all of
Not sure where topost this but just wanted to share last results of ANA test and that might get an appointment with Rheum doc and ultimately get closer to finding out whats going on and a diagnosis. I have hope. Its not been easy with alot symproms, pain and lack of sleep but I’m thankful for all of
JennaShi
in
Thyroid UK
5 years ago
Help with "normal" blood test results but feeling terrible
Can anyone help with these test results I have been struggling for over a month feeling tired, going hot and cold, tired/achey, headache feeling like my brain was in fog, poor memory, subtle off balance feeling. She sent me for blood tests but has said "No action required" even though some results are
Can anyone help with these test results I have been struggling for over a month feeling tired, going hot and cold, tired/achey, headache feeling like my brain was in fog, poor memory, subtle off balance feeling. She sent me for blood tests but has said "No action required" even though some results are
carer999
in
Thyroid UK
5 years ago
Plaquenil, and now Amitriptyline
Hi, I posted here 4 months ago after my first Rheumatologist appointment. At that appointment ,I was told I have Fibromyalgia and(I feared Lupus as I have a positive ANA 1:640 homogenous) given 2 cortisone shots in my neck and prescribed Plaquenil. So on Dec 18th I went back, 2 more cortisone shots
Hi, I posted here 4 months ago after my first Rheumatologist appointment. At that appointment ,I was told I have Fibromyalgia and(I feared Lupus as I have a positive ANA 1:640 homogenous) given 2 cortisone shots in my neck and prescribed Plaquenil. So on Dec 18th I went back, 2 more cortisone shots
patmackfin
in
LUPUS UK
5 years ago
HI, I am new here.
Hello, this is my first post. I am not officially diagnosed with APS yet. I had a stroke while on vacation. I am 49 years old, had flown two days prior to the CVA and was on an antiviral for shingles around the right side of my torso. I was in Orlando and had ridden roller coasters for two days, as well
Hello, this is my first post. I am not officially diagnosed with APS yet. I had a stroke while on vacation. I am 49 years old, had flown two days prior to the CVA and was on an antiviral for shingles around the right side of my torso. I was in Orlando and had ridden roller coasters for two days, as well
Roarah
in
Hughes Syndrome APS Forum
5 years ago
First Rhuem Appointment
Hi Everyone, This is my first post, and I'm writing from Canada. I'm wondering if anyone has any advice or information that could help me. At the beginning of December I was tested for autoimmune diseases and came back with positive Ana (speckled pattern) and Scl-70. I was only screened because I'm
Hi Everyone, This is my first post, and I'm writing from Canada. I'm wondering if anyone has any advice or information that could help me. At the beginning of December I was tested for autoimmune diseases and came back with positive Ana (speckled pattern) and Scl-70. I was only screened because I'm
Calgarygirl
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
High SGPT and SGOT values
My SGPT values are very high - 247 , where upper limit is 50. PFA report and suggest. Having MF 500 MG 3 times a day. And Veniz 37.5 mg 1 capsule at night I am non drinker and non smoker last 6 Hba1c are below 6
My SGPT values are very high - 247 , where upper limit is 50. PFA report and suggest. Having MF 500 MG 3 times a day. And Veniz 37.5 mg 1 capsule at night I am non drinker and non smoker last 6 Hba1c are below 6
Indian1990
Star
in
Diabetes India
5 years ago
Repeat pudendal nerve compression
I wanted to know if anyone here has ever had repeat pudendal nerve decompression surgery and their outcome? I had bilateral pudendal nerve decompression surgery in Nantes in 2013 with 50% improvement up until the last 18 months when the symptoms have worsened progressively. I had a spinal cord stimulator
I wanted to know if anyone here has ever had repeat pudendal nerve decompression surgery and their outcome? I had bilateral pudendal nerve decompression surgery in Nantes in 2013 with 50% improvement up until the last 18 months when the symptoms have worsened progressively. I had a spinal cord stimulator
foxbat
in
Pelvic Pain Support Network
6 years ago
High SGPT Values
My SGPT values are very high - 247 , where upper limit is 50. PFA report and suggest. Having MF 500 MG 3 times a day. And Veniz 37.5 mg 1 capsule at night I am non drinker and non smoker
My SGPT values are very high - 247 , where upper limit is 50. PFA report and suggest. Having MF 500 MG 3 times a day. And Veniz 37.5 mg 1 capsule at night I am non drinker and non smoker
Indian1990
in
British Liver Trust
5 years ago
Phantom electric shock
I am 57 and recently cured of Hep c. I have many Lupus like symptoms and I had a borderline positive ANA test but hoping the Hep caused it. My question is if anyone has heard of phantom electric shock and what could cause it? I don't have a pace maker.
I am 57 and recently cured of Hep c. I have many Lupus like symptoms and I had a borderline positive ANA test but hoping the Hep caused it. My question is if anyone has heard of phantom electric shock and what could cause it? I don't have a pace maker.
Shishin
in
LUPUS UK
6 years ago
Dic Carlson, Just wondering how you are doing...
Hey, Dic, Wondering if you have had any success or anything at least promising, in the various things you have been trying. I am recommending a book, by Julia Ross, called The Mood Cure. She has a full chapter (ch. 3) on serotonin and what the body uses it for, one of those many very important
Hey, Dic, Wondering if you have had any success or anything at least promising, in the various things you have been trying. I am recommending a book, by Julia Ross, called The Mood Cure. She has a full chapter (ch. 3) on serotonin and what the body uses it for, one of those many very important
lauraflora
in
Restless Legs Syndrome
6 years ago
Anti thyroid peroxidase >1000
Hi just wondering if there is a connection between lupus and autoimmune thyroid disease. Currently my thyroid levels are within normal range. A blood test in my showed tpo over 1000 and a positive ANA. At the moment I am at risk of developing autoimmune thyroid disease so to have 6 monthly thyroid checks
Hi just wondering if there is a connection between lupus and autoimmune thyroid disease. Currently my thyroid levels are within normal range. A blood test in my showed tpo over 1000 and a positive ANA. At the moment I am at risk of developing autoimmune thyroid disease so to have 6 monthly thyroid checks
Hidden
in
LUPUS UK
6 years ago
App version 2 is coming!!
And it is going to be awesome!!!!!! Beyond awesome!!! So, how do you get it? Make sure you are registered with the PBC Foundation. Both registering with us and using the app are absolutely free. I encourage you in the strongest terms to get ready to make sure you have this. It will have a huge
And it is going to be awesome!!!!!! Beyond awesome!!! So, how do you get it? Make sure you are registered with the PBC Foundation. Both registering with us and using the app are absolutely free. I encourage you in the strongest terms to get ready to make sure you have this. It will have a huge
PBCRobert
Administrator
in
PBC Foundation
6 years ago
1
...
34
35
36
...
88
Next page
10
20
30
40
50
60
70
80
Filter results
Clear filters
Posted in
All communities
LUPUS UK
503 results
Thyroid UK
279 results
PBC Foundation
122 results
View top 10 communities
Sort by
Most Relevant
Newest