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Lady flu, Christmas parcel fuss, and a house full of stampeding wilderbeast!
I am extremely bad tempered and possibly have lady flu... I have slept very badly for the last week. Mild lady flu has sent my overactive immune system into overdrive, and prior to that my hormones did their normal merry dance. All my bones are throbbing and I want to kick something. I have not
I am extremely bad tempered and possibly have lady flu... I have slept very badly for the last week. Mild lady flu has sent my overactive immune system into overdrive, and prior to that my hormones did their normal merry dance. All my bones are throbbing and I want to kick something. I have not
MaryF
in
Thyroid UK
12 years ago
Warfarin or the new Anticoagulants Xarelto (Rivaroxaban) or Pradaxa (dabigatran)
Many of you who read my blogs know I keep banging on about your therapeutic range, which is measured in percentage of times your are within your range and The Gold Standard is 60%. At your next INR visit, why not ask your provider what your percentage is, it might surprise you. For those with excel
Many of you who read my blogs know I keep banging on about your therapeutic range, which is measured in percentage of times your are within your range and The Gold Standard is 60%. At your next INR visit, why not ask your provider what your percentage is, it might surprise you. For those with excel
Hidden
in
Anticoagulation Support
12 years ago
Is there anyone who'se had a stem cell transplant prepared to help me?
I'm due to have a stem cell transplant very soon as part of a clinical trial. I've got lots of technical info but I'd like to talk informally about the procedure & living with immuno-suppresents afterwards. Any takers? Talking to a doctor over a cup of tea might help but they're not willing to do so
I'm due to have a stem cell transplant very soon as part of a clinical trial. I've got lots of technical info but I'd like to talk informally about the procedure & living with immuno-suppresents afterwards. Any takers? Talking to a doctor over a cup of tea might help but they're not willing to do so
honeycombe3
in
Cure Parkinson's
12 years ago
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Hello new here - have a child of 23 months with asthma
Hello, The forum is great, nice to read about other peoples experiences and know im not the only one worrying or getting no sleep! My daughter has had bronchial issues since she was little and now after many hospital trips, the fact she has had constant bronchitis more or less since September means
Hello, The forum is great, nice to read about other peoples experiences and know im not the only one worrying or getting no sleep! My daughter has had bronchial issues since she was little and now after many hospital trips, the fact she has had constant bronchitis more or less since September means
Hidden
in
Asthma Community Forum
12 years ago
Diagnosed in June 2012 - Hair Loss & Weight
I was diagnosed in June 2012 as Hypothyroid. My doctor actually laughed when he told me and mentioned that I should be in hospital as my reading were so low-high. I have asked him a couple of times since June what my readings were but just couldnt remember what he told me, going back in January so will
I was diagnosed in June 2012 as Hypothyroid. My doctor actually laughed when he told me and mentioned that I should be in hospital as my reading were so low-high. I have asked him a couple of times since June what my readings were but just couldnt remember what he told me, going back in January so will
Kar_Fin
in
Thyroid UK
12 years ago
Flying whilst on Warfarin
Wondered how people manage on holiday whilst taking warfarin. I have been recently diagnosed with a Pulmonary Embolism after returning from a short haul flight. The next time I fly I will still be on Warfarin, what have others with this condition or similar found works for them.
Wondered how people manage on holiday whilst taking warfarin. I have been recently diagnosed with a Pulmonary Embolism after returning from a short haul flight. The next time I fly I will still be on Warfarin, what have others with this condition or similar found works for them.
gel1
in
Lung Conditions Community Forum
12 years ago
Haematologist vist
Received copy of letter sent to GP by Haematologist (he was really nice and knew all about aps, only young so hopefully its part of their training) its states 'as you know she is a complicated patient' been called alot worse. Given heparin injections for when INR below 3.0. Nice to have a positive
Received copy of letter sent to GP by Haematologist (he was really nice and knew all about aps, only young so hopefully its part of their training) its states 'as you know she is a complicated patient' been called alot worse. Given heparin injections for when INR below 3.0. Nice to have a positive
sharonap
in
Hughes Syndrome APS Forum
12 years ago
Flu Vaccine reminder
Hi Again Just a little reminder to those people who are entitled to a free flu vaccine just how important the vaccine is. According to the Department of Health last year only 50% of people with respiratory illnesses had the flu vaccine. The Health Protection Agency (HPA) have found that people
Hi Again Just a little reminder to those people who are entitled to a free flu vaccine just how important the vaccine is. According to the Department of Health last year only 50% of people with respiratory illnesses had the flu vaccine. The Health Protection Agency (HPA) have found that people
Jo_BLFHelpline
British Lung Foundation
in
Lung Conditions Community Forum
12 years ago
Epilepsy app
A great thing about digital technology is how people can get involved. Epilepsy Society’s pioneering, free iPhone app was launched in 2010. Our android app was then developed with the help of two volunteers with technological expertise. Thanks guys! Since then the app’s been downloaded over 6000
A great thing about digital technology is how people can get involved. Epilepsy Society’s pioneering, free iPhone app was launched in 2010. Our android app was then developed with the help of two volunteers with technological expertise. Thanks guys! Since then the app’s been downloaded over 6000
epilepsysociety1
in
Epilepsy Society
12 years ago
Combination of sand like substance as well as grainy salt like substance underneath top layer of skin. Anyone else experience with PBC?
Hi all! Previously I was diagnosed with seborrheic dermatitis. However after several dermatologist visits & trying the expensive prescribed shampoos and scalp oils the dermatologist informed me that the extremely dry, dandruff, and something that feels like a combination of sand and grains of salt was
Hi all! Previously I was diagnosed with seborrheic dermatitis. However after several dermatologist visits & trying the expensive prescribed shampoos and scalp oils the dermatologist informed me that the extremely dry, dandruff, and something that feels like a combination of sand and grains of salt was
kathjean
in
PBC Foundation
12 years ago
Is there anyone on here who has had pbc for more than 10yrs, suffered with the itch but never been on urso?
I have suffered with the dreaded itch for 11yrs and have been on urso all this time (apart from first 3 months of my pregnancy 6 yrs ago). I have managed to live with it all this time and using questran light has helped but have never gotten rid of it completely. Then from sep 2011- aug 2012 it became
I have suffered with the dreaded itch for 11yrs and have been on urso all this time (apart from first 3 months of my pregnancy 6 yrs ago). I have managed to live with it all this time and using questran light has helped but have never gotten rid of it completely. Then from sep 2011- aug 2012 it became
littlemo
in
PBC Foundation
12 years ago
pregnancy induction
Im due to be induced next wednesday, im just wondering how they go about inducing someone who has Hughes Syndrome. I have been told i have to stay on Fragmin and Aspirin until im in active labour, restarting both 6 to 8 hours after baby born and that they will keep me in from induction process to at
Im due to be induced next wednesday, im just wondering how they go about inducing someone who has Hughes Syndrome. I have been told i have to stay on Fragmin and Aspirin until im in active labour, restarting both 6 to 8 hours after baby born and that they will keep me in from induction process to at
katrinahug03
in
Hughes Syndrome APS Forum
12 years ago
Hairloss advice needed please
Has anyone had to come off methotrexate due to hairloss. Every time I wash my hair Im losing handfulls. This is making me feel very upset now. I use good salon shampoo, take vitamins and folic acid 6 times a week. Don't know what to do but its really making me depressed.
Has anyone had to come off methotrexate due to hairloss. Every time I wash my hair Im losing handfulls. This is making me feel very upset now. I use good salon shampoo, take vitamins and folic acid 6 times a week. Don't know what to do but its really making me depressed.
Hidden
in
NRAS
12 years ago
Side Effects for Which Medication Makes Your Hair Fall Out?
I have tried to find the answer to why my hair is coming out by the handfuls. I had my thyroid checked and a lot of other blood work done, Nothing..my thyroid is good and so is everything else. So why is my hair falling out? I am a woman and a little vain I don't want to lose my hair. For a man it's
I have tried to find the answer to why my hair is coming out by the handfuls. I had my thyroid checked and a lot of other blood work done, Nothing..my thyroid is good and so is everything else. So why is my hair falling out? I am a woman and a little vain I don't want to lose my hair. For a man it's
Precious44
in
Cure Parkinson's
12 years ago
Pain in knee joints
Hi all, I have APS, and severe lung disease, however, twice now, both times after taking steroids for my breathing, I am suffering terrible pain in my knees, pain score of 9 out 10 ....... My left leg is the worst, also being the leg I had a DVT, it is also really swollen with fluid. I don't think I
Hi all, I have APS, and severe lung disease, however, twice now, both times after taking steroids for my breathing, I am suffering terrible pain in my knees, pain score of 9 out 10 ....... My left leg is the worst, also being the leg I had a DVT, it is also really swollen with fluid. I don't think I
Lesley_D
in
Hughes Syndrome APS Forum
12 years ago
Take Care
For all the Care-Givers, especially the Spouses such as my wife- JUNE 2.24.11.219 Unlike you, I have never suffered Alone Those tears on my pillow are not mine Alone In this darkest of nights I will not sleep Alone I do not stumble on this rocky and treacherous path Alone Now that we
For all the Care-Givers, especially the Spouses such as my wife- JUNE 2.24.11.219 Unlike you, I have never suffered Alone Those tears on my pillow are not mine Alone In this darkest of nights I will not sleep Alone I do not stumble on this rocky and treacherous path Alone Now that we
DeParkiePoet
in
Cure Parkinson's
12 years ago
DepoProvera compatible with APS?
I just began DepoProvera injections to prevent ovulation due to serious bleeding after a normal ovulation. Is anyone else out there using this form of birth control and have you had any problems with it?
I just began DepoProvera injections to prevent ovulation due to serious bleeding after a normal ovulation. Is anyone else out there using this form of birth control and have you had any problems with it?
olleberj
in
Hughes Syndrome APS Forum
12 years ago
Has anyone else been on urso for many years ,come off it and improved symptom wise in doing so?
I have been taking urso for 10years and after reaching the end of my tether with the horrendous itch I decided to stop taking the urso to see if I would feel any different. I based my decision on my blood results over the last 11 yrs which is when I first took the itch amongst other symptoms. There
I have been taking urso for 10years and after reaching the end of my tether with the horrendous itch I decided to stop taking the urso to see if I would feel any different. I based my decision on my blood results over the last 11 yrs which is when I first took the itch amongst other symptoms. There
littlemo
in
PBC Foundation
12 years ago
does anyone have vulvodynia/vestibulodynia and endo? recommended to use numbing cream and dilators to desensitize the area-sounds scary!
just been to the hospital (nothing new there) and been diagnosed with possible vulvodynia and vestibulodynia, possibly as a result of trauma relating to endo etc. they have given me information leaflets but i dont really understand what it is. does anyone else have this diagnosis? they were talking to
just been to the hospital (nothing new there) and been diagnosed with possible vulvodynia and vestibulodynia, possibly as a result of trauma relating to endo etc. they have given me information leaflets but i dont really understand what it is. does anyone else have this diagnosis? they were talking to
lm330
in
Endometriosis UK
12 years ago
Fragmin and bleeding does anyone else get this.
Hi I have started Fragmin 2 days ago the only thing I'm concerned about is today at work I noticed blood coming from one of the injection marks not a lot just enough to know some blood had come out. Does this happen to any one else . Thanks xx
Hi I have started Fragmin 2 days ago the only thing I'm concerned about is today at work I noticed blood coming from one of the injection marks not a lot just enough to know some blood had come out. Does this happen to any one else . Thanks xx
Moonbug
in
Hughes Syndrome APS Forum
12 years ago
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