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I have been dealing with a skin condition for almost 3 years. I have seen other posts like mine. One person was even trying to get on a talk show. I too have been dismissed by health providers. I have had one person mention Reactive perforating collagenosis (RPC) Reactive perforating collagenosis (RPC
I have been dealing with a skin condition for almost 3 years. I have seen other posts like mine. One person was even trying to get on a talk show. I too have been dismissed by health providers. I have had one person mention Reactive perforating collagenosis (RPC) Reactive perforating collagenosis (RPC
Mystery20
in
MY SKIN
5 months ago
I Got Rid Of 90% Of My Dandruff/Seborrheic Dermatitis With One Simple Change (ditch yeast)
I have been off wheat for over a year, but the last few weeks I have been having sourdough bread. I think I will stop. I want to stay away from gluten, lectins, ATI,
and also stay away from yeast
. I stumbled across this video today: I Got Rid Of 90% Of My Dandruff/Seborrheic Dermatitis With
I have been off wheat for over a year, but the last few weeks I have been having sourdough bread. I think I will stop. I want to stay away from gluten, lectins, ATI,
and also stay away from yeast
. I stumbled across this video today: I Got Rid Of 90% Of My Dandruff/Seborrheic Dermatitis With
Bolt_Upright
in
Cure Parkinson's
5 months ago
Taking hours to fall asleep
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Opie__
in
Restless Legs Syndrome
5 months ago
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The RLS nightmare
My name is Tim and RLS sucks!!!!! In 2013 i was put on disability because I have flat back syndrome and it has caused chronic pain for over 20 years non stop 24/7 and I am addicted to opioids. On June 20th of this yr I received a dbl laminectomy on my l4 and l5 vertebra and the knife was removed. Now
My name is Tim and RLS sucks!!!!! In 2013 i was put on disability because I have flat back syndrome and it has caused chronic pain for over 20 years non stop 24/7 and I am addicted to opioids. On June 20th of this yr I received a dbl laminectomy on my l4 and l5 vertebra and the knife was removed. Now
Miloboy23
in
Restless Legs Syndrome
6 months ago
Hair Loss on Acalabrutinib
Has anyone suffered significant hair loss while taking this drug? Does the hair loss stop at some point in time. Does the hair regrow? This is the one thing the oncologist said wouldn't happen. I have been taking an iron supplement and 5,000 mcg of biotin, information that I read in other posts. My hair
Has anyone suffered significant hair loss while taking this drug? Does the hair loss stop at some point in time. Does the hair regrow? This is the one thing the oncologist said wouldn't happen. I have been taking an iron supplement and 5,000 mcg of biotin, information that I read in other posts. My hair
Vinweesel2023
in
CLL Support
6 months ago
low grade ovarian cancer in the lungs
I had pleural effusion for 2 years. My doctor didn't say that the cancer could get into the lungs but it did. I received 6 rounds of weekly taxol and carbo platin but it didn't work. Now my doctor wants to stop all treatment and send me to hospice care. please let me know if you have had that experience
I had pleural effusion for 2 years. My doctor didn't say that the cancer could get into the lungs but it did. I received 6 rounds of weekly taxol and carbo platin but it didn't work. Now my doctor wants to stop all treatment and send me to hospice care. please let me know if you have had that experience
Alex29
in
My Ovacome
1 year ago
reaction to carboplatin
I’m on my second recurrence and currently on carbo/gemcitabine.. ive had a reaction on last three cycles each one being harder than the last.. my question is has this happened to anyone else and , if so what was was the outcome? It’s been mentioned they may slow carb infusion over Two hour period
I’m on my second recurrence and currently on carbo/gemcitabine.. ive had a reaction on last three cycles each one being harder than the last.. my question is has this happened to anyone else and , if so what was was the outcome? It’s been mentioned they may slow carb infusion over Two hour period
SKpaints1
in
My Ovacome
6 months ago
ADT and crying
Does anyone else that has been on ADT drugs for years have trouble with tears or crying for no real reason? I tear up anymore at just the thought of something sad. It’s a major pain in the ass, not to mention embarrassing because I am still employed. Wondering if there is a solution other than stopping
Does anyone else that has been on ADT drugs for years have trouble with tears or crying for no real reason? I tear up anymore at just the thought of something sad. It’s a major pain in the ass, not to mention embarrassing because I am still employed. Wondering if there is a solution other than stopping
joeguy
in
Advanced Prostate Cancer
6 months ago
scooter
So I got my results of the echocardiogram a couple of weeks ago. Then we went away in the caravan so I could ignore the results. Got back, read my results and I felt my shoulders flump.. I have signs, they reckon, that I have a high possibility of Pulmonary hypertension. Something new for hubby to research
So I got my results of the echocardiogram a couple of weeks ago. Then we went away in the caravan so I could ignore the results. Got back, read my results and I felt my shoulders flump.. I have signs, they reckon, that I have a high possibility of Pulmonary hypertension. Something new for hubby to research
Zand60
in
Lung Conditions Community Forum
1 year ago
Zanubrutinib and hair loss?
Hello and Happy Holidays to all! After almost 5 years post captivate trial, I will likely start Zanubrutinib in February or March. My specialist suggested taking Simvastatin in combination with Celebrex experimentally for a couple of months to see if my numbers remain stable. If not, then I will begin
Hello and Happy Holidays to all! After almost 5 years post captivate trial, I will likely start Zanubrutinib in February or March. My specialist suggested taking Simvastatin in combination with Celebrex experimentally for a couple of months to see if my numbers remain stable. If not, then I will begin
fell
in
CLL Support
6 months ago
Luke’s Liver
Good evening all. Since January I have experienced liver issues which was initially thought to of been caused by a virus and assumed I’d make a full recovery despite my liver being inflamed and having highly elevated liver counts after a course of Steroids My levels did return to normal and I seemed
Good evening all. Since January I have experienced liver issues which was initially thought to of been caused by a virus and assumed I’d make a full recovery despite my liver being inflamed and having highly elevated liver counts after a course of Steroids My levels did return to normal and I seemed
Lukeliver
in
British Liver Trust
19 days ago
Morning check in
Well the melatonin was a little bit of help bur still woke up every 2 hours ... talk to anxiety support contacted my doctor about using prescription sleep aid. He's starting me on trazadonne 50 MG..will take before bedtime any suggestions... also gonna get word search fill in books to help during
Well the melatonin was a little bit of help bur still woke up every 2 hours ... talk to anxiety support contacted my doctor about using prescription sleep aid. He's starting me on trazadonne 50 MG..will take before bedtime any suggestions... also gonna get word search fill in books to help during
jojo15210
in
Anxiety and Depression Support
6 months ago
Picking
My husband with PD has been picking at his skin. Especially his hands. Dermatologist recommended lotions for dry skin. Neurologist says it’s not due to PD. He thinks he is peeling skin, but I don’t see anything. Seems to me to be more like a habit, like biting nails. Has anyone else had this feeling?
My husband with PD has been picking at his skin. Especially his hands. Dermatologist recommended lotions for dry skin. Neurologist says it’s not due to PD. He thinks he is peeling skin, but I don’t see anything. Seems to me to be more like a habit, like biting nails. Has anyone else had this feeling?
Shirleyam
in
Cure Parkinson's
6 months ago
buprenorphine study
Just wondering what people think about the recent study below? Study population was people with opioid use disorder (OUD) who are taking buprenorphine to manage it. Apparently an unusually high percentage of participants had RLS symptoms. I thought Bup alleviated symptoms? I’m in the process of getting
Just wondering what people think about the recent study below? Study population was people with opioid use disorder (OUD) who are taking buprenorphine to manage it. Apparently an unusually high percentage of participants had RLS symptoms. I thought Bup alleviated symptoms? I’m in the process of getting
707twitcher
in
Restless Legs Syndrome
7 months ago
Advice for Hair Loss?
Anyone have a remedy for hair loss from liver disease? My hair is falling out a lot every day. I’ve been using collagen and keratin shampoo and I’ve tried rosemary oil but nothing works. I’m gonna be bald soon 😱 Does anything work? I read that the hair loss can be from lack of protein. I eat a lot
Anyone have a remedy for hair loss from liver disease? My hair is falling out a lot every day. I’ve been using collagen and keratin shampoo and I’ve tried rosemary oil but nothing works. I’m gonna be bald soon 😱 Does anything work? I read that the hair loss can be from lack of protein. I eat a lot
FlippinOut
in
British Liver Trust
7 months ago
Liver disease, mast cells and antihistamine
I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link with autoimmune diseases of the gut and the use of antihistamines as a treatment.. I wondered if anything was known about autoimmune liver diseases, mast cells and antihistamines. I found this 2017 research paper https://
I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link with autoimmune diseases of the gut and the use of antihistamines as a treatment.. I wondered if anything was known about autoimmune liver diseases, mast cells and antihistamines. I found this 2017 research paper https://
Readlots
in
PBC Foundation
3 months ago
Stage 4 fibrosis of the Liver
I contracted Hepatitis A in 2020, undiagnosed for 2 months. Six months later I was told I had NALD and last year I was sent for ultrasound scans and blood tests to check for cancer. In March this year, I was told I had Stage 4 Fibrosis of the liver. Does anyone know if this can be reversed, any treatments
I contracted Hepatitis A in 2020, undiagnosed for 2 months. Six months later I was told I had NALD and last year I was sent for ultrasound scans and blood tests to check for cancer. In March this year, I was told I had Stage 4 Fibrosis of the liver. Does anyone know if this can be reversed, any treatments
Wi-llow
in
British Liver Trust
3 months ago
Hair loss while tapering Prednisone
Hi. Yet another issue. My hair has started falling out in clumps. I am devastated. I had some loss when I was on Pred at different times over the last 5 years especially in the beginning. I began tapering to 2 mg then 1 in late spring and maintaining that except with some flares when I took more. This
Hi. Yet another issue. My hair has started falling out in clumps. I am devastated. I had some loss when I was on Pred at different times over the last 5 years especially in the beginning. I began tapering to 2 mg then 1 in late spring and maintaining that except with some flares when I took more. This
bluegirl7
in
PMRGCAuk
7 months ago
Wednesday Word
[u][i]
ALT - Alanine Transaminase
[/i][/u] This is a blood test performed as part of your routine liver panel test. It is released more so by the [u][i]
hepatocytes -(liver cells)
[/i][/u] so it's associated more with hepatitis rather than PBC. ALT can be elevated in both non responders
[u][i]
ALT - Alanine Transaminase
[/i][/u] This is a blood test performed as part of your routine liver panel test. It is released more so by the [u][i]
hepatocytes -(liver cells)
[/i][/u] so it's associated more with hepatitis rather than PBC. ALT can be elevated in both non responders
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
4 months post TT
hi everyone! I am writing because I wanted to see if anybody had similar experiences. I am four months post total thyroidectomy, and in the first month or so I didn’t really feel many or any symptoms. Now in the past two months, I feel like I am feeling more symptoms of hypothyroidism than I did, in
hi everyone! I am writing because I wanted to see if anybody had similar experiences. I am four months post total thyroidectomy, and in the first month or so I didn’t really feel many or any symptoms. Now in the past two months, I feel like I am feeling more symptoms of hypothyroidism than I did, in
Rfranzoni
in
Thyroid UK
7 months ago
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