Experiences with

Aicardi-goutieres syndrome (AGS)

If I have antibodies flagged as "high" on a blood test which are associated with Sjogren's (Anti-SS-B), Polymyositis (Anti-Jo-1) and SLE (Ribosomal P), does that mean I have all three autoimmune diseases? I was originally confirmed with Lupus. I'm relatively new to all this & these labs were 1/7/21

Hi all, Looking for similar experiences here, hope you ladies don’t mind. So our little euploid embryo (our last one!), which we had PGS tested last year, is now unbelievably 14 weeks! I need to pinch myself everyday - it has been an emotional roller coaster every week! Last week when we had our dating

Has anyone had this? I’ve never seen someone have this so early before. It’s normally a lot later on in pregnancy! We have a referral to Fetal medicine tomorrow and I’m worried

Hello everyone. I’m just looking for a little bit of hope. My first round of IVF failed, I didn’t even make it to two weeks - I miscarried at 5 days post transfer despite being maxed out on hormones. We had our remaining embryos tested and they had chromosomal abnormalities and had to be discarded. So

Does anyone have experience of this condition? I've been told that it is a component in unclassified connective tissue disease - in other words, doctors aren't sure what it is that I have - I certainly have morphea and scleroderma plus this. Can anyone add any information on this? Has caused the skin

Onycholysis.... anyone else have this? I had this 6 months ago my thumbs are symmetrical in damage and now it's flared up on my left hand really bad. I'm wondering if I'm having a flare up or have rheumatoid arthritis as well as hashimotos..my little fingers swollen and painful. I'm taking multivitamins

Hello lovelies, I’m sure you’ve all felt like this at some point but today I feel truly fed up. My cyst was still there at my second can yesterday and now have to wait another week to see if it goes on it’s own with my period. Then another 3 weeks to start buserelin again, 2 weeks for another period

Hiya.. how do I stop myself from having hitting tics? I randomly try to hit my 13 year old shihztu when I'm angry and I don't know why. Is it apart of autism or am I having a different tic with another problem with me?

I had some blood test to see if I meet the criteria for biologocal asthma treatments, my cons told me my eosinophils count needs to be 0.3 or above and my last count in October was 0.4. My cons didn't say in my letter wether I qualify or not with this result and wants to do my tests in a few months

Not much I can say I hoped after losing our daughter Amelia at 20 weeks pregnant this was my happy ending but it's not to be. 😢 I feel devastated that it hasn't ended how we wanted but we will continue to try again and not be beaten and focus on our daughter Francesca after 7 years of trying she is

We have four beautiful blastocysts waiting on ice for us in Greece and were due to have a transfer in Feb. But due a logistical nightmare because of covid, we’ve decided to delay this until Spring when hopefully travel to Greece should be bit less stressful. But I am just feeling so sorry for myself

"You don't discover new continents if you don't have the courage to lose sight of the old shores." Andre Gide An elevated level of the amino acid homocysteine in the blood is neurotoxic and has been reported as a truly important risk factor for developing Parkinson's, as well as cardiovascular disease

Burning mouth syndrome

Hi to anyone reading this... I feel very grateful to be writing this but just wanted to put it out there as worrying here. I had ovulation induction treatment with trigger coming up to 3 weeks ago now and have had 1st blood test today and hcg has come back at 1612....has anyone had experience of this

I have come to the slow realisation 2 years post abi that my whole life has been reset. I have learned to walk all over and gradually have relearned who i am. This feels like a knowledge of the core of who i was as im not exactly the same as i was before, ie less tolerant, less able to argue efffectively

Hello all! Congrats on all the good news I read :) I found out about these NK cells august 2020.. after failed FETs.. I went to an autoimmune specialist who informed me of the elevated NK cells. As a result I went on more supplements, started some extra medications 2 weeks prior to FET and weekly intralipid

I had my 12 week scan last Tuesday. My NT measurement was 3.3mm (sonographer advised this was high side of normal range 3.5mm is classed as high) I had my combined bloods done on the same day. I recieved a phone call today from my screening midwife to advise higher risk of combined Edwards and Patau

Some of us who have been dealing with the aftermath of sepsis, septic shock & post sepsis syndrome have watched all the emphasis on long Covid and felt huge empathy for their suffering. Now we are starting to see confirmation of something that we surmised months ago. https://www.healthleadersmedia.com

Has anyone else experienced this at their 12 week scan? The measurement is apparently accepted at 3.5mm or below and mine was 3.9mm. We have been referred to a specialist unit at another hospital next week but I'm naturally now worrying myself sick!! My consultant mentioned the risk of chromosomal abnormalities

I have given him Mucinex but don't know if this is the same and is ok to take.