Experiences with

Aicardi-goutieres syndrome (AGS)

I take nebivolol (beta blocker) and micardis to treat high blood pressure and irregular heartbeat (minor).I have refractory rls and have just commenced weaning slowly off Sifrol (.250 mg) Just wondering if ALL beta blockers worsen rls or does anyone have one that’s ok to use? My cardiologist had no idea

Yesterday (Saturday) I had one of the loveliest and most memorable days that I've had for some time......I went into London to meet my DIL-to-be, to see her in the wedding dress she'd shortlisted as, 'the one'! The date had been agreed and on the calendar for a few months but I was becoming increasingly

Hi all you beauties! I’m needing some love right now. I’m currently 5wks3days. I’ve been having some minor brown discharge that has slowly increased in amount over the past week. Today I went to the bathroom and expecting brown I saw bright red blood. I’ve heard so many people say spotting is normal

I've been blessed and offered a cancellation for the hip op. Very last moment, but grabbed it as I've been reduced to a cripple. Had it last Saturday and I'm back home now learning how to walk again and get my knickers on without bending! Just to say the anaesthetist was great. Gave me methadoxatone

Hi all, after years of tests with my gynaecologist he has finally referred me to an IVF clinic and we had our first appointment today. The Doctor there has said she needs to do some research but she thinks because the Gynaecologist prescribed me Clomiphene that I may now not be entitled to IVF on the

Just wondering if anyone gets chorea with their aps? I haven't been diagnosed yet waiting for my 2nd test. I have been having these weird facial tics and arm/hand movements, usually followed by a seizure. Its just battling whsts happening to me. Then when I test positive for b2 glycoprotein and thought

Good Afternoon to you all. I am knew here. This morning I was given hope for my Vocal tic disorder. It was given a name FND. I had given up hope that there would be something that could be done to help my disability in this life, beside the many options of medication. Then finding you guys, people who

Hi I’m nearly 6 months post ventilation from covid pneumonitis and the flash backs are now giving me bad panic attacks this is the worst I’ve ever been, I’m waiting for councilling due to start in 3 weeks had anyone get any coping tips that I could possibly try to stop or not be so bad with the flashbacks

Morning ladies. I tried to explain to the GP that my clinic requested a Beta blood test to confirm pregnancy. They couldn’t get me in until late this month. I did a little research and there is a company on line - Medichecks. I sent off a blood sample and voilà 783 on day 13 after 5dt 🥰🥰🥰🥰🥰🥰🤞🏻

So I haven't posted on here for a while since going through the IVF process ....... I guess I'm kind of anxious about jinxing anything 🙃 Anyway I would just like to let you guys know that I am now 21 weeks and Allah has blessed us with a baby boy who is growing daily 💙 and causing me bad ligament

hi all! has anyone got any experience on clomid? I'm on day 9 of my cycle, took clomid days 2-5. my period was very light, stopped after 2 days on clomid. yday I started spotting and some today. not a lot at the moment. Having all the fun aches and pains in my ovaries. Definitely not ovulated yet. Has

Hi, lovely ladies, so yesterday my beta hcg done, this is my first ivf, and guess what i m pregnant. I m over the moon and i m so happy.

**sensitive post*** Some background I’m 39 with epilepsy. After 2 rounds of ivf we got a bfp and currently 10 weeks. Since we’ve told my in-laws they have gone on about private maternity care as my DH sisters both went private, over 16 years ago and it wasn’t as expensive then. I feel it would

I posted earlier about using acetyl choline to euthanize dogs in my vet clinic. I was wrong. We used succinyl choline 30 years ago. It's still used as an anesthesia adjunct.

Hlo all dears I am currently 6 months running.. My baby is in breech position... What should I do?? And I feel my tummy very tight and stretching .. Does this happens to everyone?? This is my first pregnancy.. I am 36 years old.. So worried alot...

I have lipomas that are blocking my lymphatic system in my scapula, shoulder near my armpit and it is causing me a lot of discomfort, swelling pressure, and labored breathing? Any help or advice is welcome. Thank you Nets67

Hello, lovely lot. I'm new here. 33 weeks with baby number 4. I know there are a lot of posts about polyhydramnios, but I'm really looking for some specific details about your experiences if that's okay. As lots have said, the internet can be a bit scary and there I was at 4am googling frantically

Hello likeminded travellers! I’m starting my 6th IVF cycle shortly. It’s been tough but I remain optimistic. Anyway, I’ve been snorting 4 shots daily of synarel for 2 months - now we’ve increased to 6 shots per day. I appreciate that it works - and it’s helping me to eventually / hopefully fall pregnant

Hi All, I have been struggling with thin endometrium for almost 2 years now ( i have 6 excellent quality embryos from the first IVF cycle) , tried all the conventional methods of hormonal therapies - i have taken boxes of progynova but it doesnt seem to help. My doc has not suggested to try PRP therapy

Does any body on this site, have a very rare lung disease called pulmonary langerhans cell histiocytosis?