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Hi everyone
Diagnosed 2 years ago, stem cell transplant 1 year ago, currently on lenalidomide maintenance as part of the Myeloma XI trial. I'm doing OK at the moment, long may it continue!
Diagnosed 2 years ago, stem cell transplant 1 year ago, currently on lenalidomide maintenance as part of the Myeloma XI trial. I'm doing OK at the moment, long may it continue!
Louis-Henry
in
Myeloma UK
8 years ago
Hello
Hello, I am new here and from Japan, wish my country had site like this. I started to have lung problem as part of complication called GVHD which is from my stem cell transplant from blood cancer, i have other several complications but this is the hardest one. I was in the hospital for three weeks in
Hello, I am new here and from Japan, wish my country had site like this. I started to have lung problem as part of complication called GVHD which is from my stem cell transplant from blood cancer, i have other several complications but this is the hardest one. I was in the hospital for three weeks in
nonchan
in
Lung Conditions Community Forum
8 years ago
Frightening news - White CBC of 22,000 and liver panels elevated - RA, PMR and GCA with an ALL leukemia history
The title pretty much sums it up and I'd be lying if I said I wasn't scared. I'm a pretty cool customer and when I hear hoofbeats I look for horses not zebras. I went for my Actemra infusion yesterday and had the normal blood draw which is full metabolic, CBC and ESR with liver panels. My liver numbers
The title pretty much sums it up and I'd be lying if I said I wasn't scared. I'm a pretty cool customer and when I hear hoofbeats I look for horses not zebras. I went for my Actemra infusion yesterday and had the normal blood draw which is full metabolic, CBC and ESR with liver panels. My liver numbers
Nitrobunny
in
NRAS
8 years ago
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A thankful run
It's not been a great week. My lovely hairdresser's husband has died after a long struggle with liver cancer, and I have just heard that my cousin has to have another stem cell transplant after Christmas and that a friend has just been diagnosed with breast cancer. I was talking myself out of a run today
It's not been a great week. My lovely hairdresser's husband has died after a long struggle with liver cancer, and I have just heard that my cousin has to have another stem cell transplant after Christmas and that a friend has just been diagnosed with breast cancer. I was talking myself out of a run today
Ullyrunner
Graduate
in
Couch to 5K
8 years ago
homocysteine, intrinsic factor and Parietal cell antibody tests results?
Hi, I have been reading other posts and now have received my fathers results for the B12 followup tests. I convinced his GP to give him B12 injections of hydroxy 1000mg over a 2 week period back in September. His neurological symptoms improved dramatically, depression and suicidal thoughts disappeared
Hi, I have been reading other posts and now have received my fathers results for the B12 followup tests. I convinced his GP to give him B12 injections of hydroxy 1000mg over a 2 week period back in September. His neurological symptoms improved dramatically, depression and suicidal thoughts disappeared
jbthyro
in
Pernicious Anaemia Society
8 years ago
I didn't have pernicious anemia I have cancer
This is just a heads up for anyone who has read some of my earlier posts. Several months ago I had been trying to find answers to my recently diagnosed pernicious anemia, but unfortunately after more blood tests I was found to have AML leukemia. I spent nearly four hours in the Mayo Clinic last week
This is just a heads up for anyone who has read some of my earlier posts. Several months ago I had been trying to find answers to my recently diagnosed pernicious anemia, but unfortunately after more blood tests I was found to have AML leukemia. I spent nearly four hours in the Mayo Clinic last week
oldtimeradioguy
in
Pernicious Anaemia Society
8 years ago
New Member
I'm new to the forum and have myleo fibrosis. I am waiting on a stem cell transplant at City of Hope
I'm new to the forum and have myleo fibrosis. I am waiting on a stem cell transplant at City of Hope
linbatten
in
Fight MPN
8 years ago
Intro
Hi I'm Christiana. I was diagnosed with T cell lymphoblastic lymphoma, stage 4b in 2013. My treatment protocol has been ukall12. After 6 months inpatient treatment then and a donor stem cell transplant I'm doing well, being monitored frequently but all's good. I've been writing a blog this year diarying
Hi I'm Christiana. I was diagnosed with T cell lymphoblastic lymphoma, stage 4b in 2013. My treatment protocol has been ukall12. After 6 months inpatient treatment then and a donor stem cell transplant I'm doing well, being monitored frequently but all's good. I've been writing a blog this year diarying
Christiana_
in
Leukaemia Support
8 years ago
Tocilizumab and Giant Cell Arteritis
John Mills on behalf of VUK is Interested in hearing about the experiences of anyone who has been treated with Tocilizumab for treating GCA. (Good or Bad) NICE are doing an appraisal of this drug and VUK have been invited to take part in the consultation. Please contact John.mills@vasculitis.org.uk
John Mills on behalf of VUK is Interested in hearing about the experiences of anyone who has been treated with Tocilizumab for treating GCA. (Good or Bad) NICE are doing an appraisal of this drug and VUK have been invited to take part in the consultation. Please contact John.mills@vasculitis.org.uk
Suzym2u
in
PMRGCAuk
8 years ago
Tocilizumab for Giant Cell Arteritis (Temporal Arteritis)
John Mills on behalf of VUK are interested in hearing about the experiences of anyone who has been treated with Tocilizumab for treating GCA. (Good or Bad) NICE are doing an appraisal of this drug and VUK have been invited to take part in the consultation. Please contact John.mills@vasculitis.org.uk
John Mills on behalf of VUK are interested in hearing about the experiences of anyone who has been treated with Tocilizumab for treating GCA. (Good or Bad) NICE are doing an appraisal of this drug and VUK have been invited to take part in the consultation. Please contact John.mills@vasculitis.org.uk
Suzym2u
Vasculitis UK
in
Vasculitis UK
8 years ago
My labs are MCH is 26.2. My RDW is 15.1.
My concern is that I might have something wrong. In my family sickle cell anemia runs on my mother's side of the family. My second cousin has that she died from it. I also want to know is it possible I might have it.
My concern is that I might have something wrong. In my family sickle cell anemia runs on my mother's side of the family. My second cousin has that she died from it. I also want to know is it possible I might have it.
AjahY
in
Pernicious Anaemia Society
8 years ago
Rising haematocrit levels
Hi I haven't been in touch for a while. I am jack 2 positive ET diagnosed 7 years ago. I take 500 hydrea daily and plavix. My haematocrit level has been rising and is now at .49. Does anyone know if there are any diet changes I could make to reduce this a bit? I read something about spinach and broccoli
Hi I haven't been in touch for a while. I am jack 2 positive ET diagnosed 7 years ago. I take 500 hydrea daily and plavix. My haematocrit level has been rising and is now at .49. Does anyone know if there are any diet changes I could make to reduce this a bit? I read something about spinach and broccoli
Margo18
in
MPN Voice
8 years ago
Hemoglobin c trait...SCT..SCA...what do I have
I am 44 I was diagnosed with SCA 3 years ago after several visits to the hospital, several admissions...multiple blood transfusions and a hematologist ...I am now being told that I do not have SCT or SCD or SCA but Hemoglobin C trait and that this causes no problems at all. Funny thing is this I never
I am 44 I was diagnosed with SCA 3 years ago after several visits to the hospital, several admissions...multiple blood transfusions and a hematologist ...I am now being told that I do not have SCT or SCD or SCA but Hemoglobin C trait and that this causes no problems at all. Funny thing is this I never
Diamondlyfe16
in
Sickle Cell Society
8 years ago
What to buy OH for Christmas
As Christmas is looming again I thought I'd tell you how to bring back that childhood feeling of the excitement at being faced with a pile of presents not knowing what you were about to unwrap. I don't know about anyone else but now that gifts are often requests rather than surprises Christmas has kind
As Christmas is looming again I thought I'd tell you how to bring back that childhood feeling of the excitement at being faced with a pile of presents not knowing what you were about to unwrap. I don't know about anyone else but now that gifts are often requests rather than surprises Christmas has kind
ShellyC23
in
PMRGCAuk
8 years ago
Sickle Cell Trait - HELP
I found this site searching to see if there is any correlation between horrible menstrual cycles, fainting spells or migraines and sickle cell trait. I feel like I take my daughter to the Dr all the time with different problems and ask them if there is anything linking her medical issues to the trait
I found this site searching to see if there is any correlation between horrible menstrual cycles, fainting spells or migraines and sickle cell trait. I feel like I take my daughter to the Dr all the time with different problems and ask them if there is anything linking her medical issues to the trait
mssara
in
Sickle Cell Society
8 years ago
Symptoms and the trait
Hi everyone. We're seeing a lot of posts about symptoms and sickle cell trait at the moment, which is food for thought, and we might in future produce information resources about this, because there isn't a lot out there. A quick overview on what's known: -Sickle cell trait means you carry one copy of
Hi everyone. We're seeing a lot of posts about symptoms and sickle cell trait at the moment, which is food for thought, and we might in future produce information resources about this, because there isn't a lot out there. A quick overview on what's known: -Sickle cell trait means you carry one copy of
SCSZoe
Administrator
in
Sickle Cell Society
8 years ago
NCT02478125 - for prostate cancer metatstses
This was at Johns Hopkins just last week. I went down for a screening interview, which was wonderful, and the whole experience was fantastic. Unfortunately, I was too healthy for the trial, so I have to at least wait. I characterize it as an "off label" use of a pretty standard procedure: essentially
This was at Johns Hopkins just last week. I went down for a screening interview, which was wonderful, and the whole experience was fantastic. Unfortunately, I was too healthy for the trial, so I have to at least wait. I characterize it as an "off label" use of a pretty standard procedure: essentially
Hidden
in
Understanding Clinical Trials
8 years ago
Advice on S.C.D and S.C.T
Hello my name is Cazzera, and I have not replied for a while, as I am doing so much much research to educate for Sickle Cell Disease which I suffer form myself. I would just like to advice the post about having sickle cell trait and suffered fro years. Although I am not medically trained I would advice
Hello my name is Cazzera, and I have not replied for a while, as I am doing so much much research to educate for Sickle Cell Disease which I suffer form myself. I would just like to advice the post about having sickle cell trait and suffered fro years. Although I am not medically trained I would advice
cazzera
in
Sickle Cell Society
8 years ago
The Sickle Cell Journey
I thank The Almighty God that. I don't have sickle cell disease because having the trait has been more than i can stand over the years. When i was a young girl i was hospitalized off & on do to Crisis. I had to take shots daily during my stay for weeks at a time. When in my 20's i had criss so bad i
I thank The Almighty God that. I don't have sickle cell disease because having the trait has been more than i can stand over the years. When i was a young girl i was hospitalized off & on do to Crisis. I had to take shots daily during my stay for weeks at a time. When in my 20's i had criss so bad i
Tone124
in
Sickle Cell Society
8 years ago
Dr doesn't believe positive parietal cell antibody bloodwork?
Hey guys it's me again! So we all know now I have very low ferritin and am on twice weekly b12 shots. Feeling alive finally! BUT, my stomach issues and not absorbing a lot of other vitamins well sent me to the gastroenterologist. He saw my blood work from my naturopath. I told him naturopath diagnosed
Hey guys it's me again! So we all know now I have very low ferritin and am on twice weekly b12 shots. Feeling alive finally! BUT, my stomach issues and not absorbing a lot of other vitamins well sent me to the gastroenterologist. He saw my blood work from my naturopath. I told him naturopath diagnosed
Ladyawkward
in
Pernicious Anaemia Society
8 years ago
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