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Transplant birthday/Mental Health Awareness Week/Lung Transplant Consultation
Today marks 15 years since my bone marrow transplant for leukaemia. Crazy to think so many years have gone by and a definite cause for celebration tonight with my Dad and wife - we're going for a curry. Been a lot of up and downs along the way not least the development of my PPFE which as you many of
Today marks 15 years since my bone marrow transplant for leukaemia. Crazy to think so many years have gone by and a definite cause for celebration tonight with my Dad and wife - we're going for a curry. Been a lot of up and downs along the way not least the development of my PPFE which as you many of
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
5 years ago
New started
Just started c25k this week. Never run in my life ( unless for an ice cream van ) . Just had all clear after stem cell transplant so decided to get fit and loose weight . Oh my god it’s hard , knees really hurt after yesterday , think I just run really badly not naturally like people I see , but determined
Just started c25k this week. Never run in my life ( unless for an ice cream van ) . Just had all clear after stem cell transplant so decided to get fit and loose weight . Oh my god it’s hard , knees really hurt after yesterday , think I just run really badly not naturally like people I see , but determined
Strugglingsurvivor
in
Couch to 5K
5 years ago
Bone Marrow Transplant Aftermath
The experimental bone marrow transplant for prostate cancer had no positive effects for me, as far as we can determine, but I keep getting new chronic side effects, which are likely explained by the bone marrow transplant. First it was loss of the ability for my body to regulate my temperature effectively
The experimental bone marrow transplant for prostate cancer had no positive effects for me, as far as we can determine, but I keep getting new chronic side effects, which are likely explained by the bone marrow transplant. First it was loss of the ability for my body to regulate my temperature effectively
Beauxman
in
Advanced Prostate Cancer
5 years ago
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New test for mutations to calculate the profession of MF
Hi good folks, Hope you all are going OK. Last time I was speaking to my Hemo he told me that a test will be available in about 12 months that will identify all a MF patients mutations and will assist in predicting the progression of the illness. He said it should allow for him to predict how the illness
Hi good folks, Hope you all are going OK. Last time I was speaking to my Hemo he told me that a test will be available in about 12 months that will identify all a MF patients mutations and will assist in predicting the progression of the illness. He said it should allow for him to predict how the illness
Hidden
in
MPN Voice
5 years ago
Hello!
Hi everybody! I'm Dave from SW Michigan. I was diagnosed with HCC about 15 months ago. PVVT meant no surgery or transplant. Has a Y90 procedure done last July in Ann Arbor. It killed 75% of the largest tumor but there was 2 new tumors in my lungs on the last MRI so the Dr. put me on Nexavar. Been taking
Hi everybody! I'm Dave from SW Michigan. I was diagnosed with HCC about 15 months ago. PVVT meant no surgery or transplant. Has a Y90 procedure done last July in Ann Arbor. It killed 75% of the largest tumor but there was 2 new tumors in my lungs on the last MRI so the Dr. put me on Nexavar. Been taking
reddog88
Patient
in
Blue Faery Liver Cancer
5 years ago
CAR T versus Stem Cell transplant for Richter's
Has anyone used CAR T or stem cell transplant for advanced CLL or Richter's?
Has anyone used CAR T or stem cell transplant for advanced CLL or Richter's?
profrich
in
CLL Support
5 years ago
Management of Inflammatory Rheumatic Conditions in the Elderly
Hypothesis and Search Strategy
Several hypotheses guided our study: biologic treatments could benefit both older and younger people; physiological and pathological
ageing
associated with comorbidities, as
well
as co-treatment, could partly explain the risk of serious adverse events (AEs) (e.g.
Hypothesis and Search Strategy
Several hypotheses guided our study: biologic treatments could benefit both older and younger people; physiological and pathological
ageing
associated with comorbidities, as
well
as co-treatment, could partly explain the risk of serious adverse events (AEs) (e.g.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
reduced intensity transplant
If your over 50 and need a stem cell transplant it most likely will be low intensity. It also goes by mini-transplant or RIC transplant. It is NOT a standard stem cell transplant. all your cells are not replaced. you keep most of your own blood cells and have donor cells added to fight your cancer cells
If your over 50 and need a stem cell transplant it most likely will be low intensity. It also goes by mini-transplant or RIC transplant. It is NOT a standard stem cell transplant. all your cells are not replaced. you keep most of your own blood cells and have donor cells added to fight your cancer cells
Hidden
in
CLL Support
5 years ago
So done with this
Hi everyone.. I was diagnose with Giant Cell Arteritis in Sep 2018 so I haven't had it for long it feels longer I hate the headaches,tiredness,body akes,and the weight gain from the prednisone ugh! 😢😢
Hi everyone.. I was diagnose with Giant Cell Arteritis in Sep 2018 so I haven't had it for long it feels longer I hate the headaches,tiredness,body akes,and the weight gain from the prednisone ugh! 😢😢
vicky561
in
PMRGCAuk
5 years ago
Stem Cell Treatment
A little while ago I mentioned that liver transplants could one day become a thing of the past. Day by day the use stem cell treatment and research brings us closer to finding a cure for liver disease. HIV positive man in London becomes second person ever to be cleared of virus after stem cell transplant
A little while ago I mentioned that liver transplants could one day become a thing of the past. Day by day the use stem cell treatment and research brings us closer to finding a cure for liver disease. HIV positive man in London becomes second person ever to be cleared of virus after stem cell transplant
Hidden
in
British Liver Trust
5 years ago
Why is this necessary?
Diagnosed GCA, on Pred , however Consultant has recommended an Endoscopy and Colonoscopy. I do not have any symptoms and feel bad enough, so I declined?
Diagnosed GCA, on Pred , however Consultant has recommended an Endoscopy and Colonoscopy. I do not have any symptoms and feel bad enough, so I declined?
Seagu11
in
PMRGCAuk
5 years ago
Hot Flushes increasing
I reduced my prednisolone from 10mg to 9mg at the beginning of February and just about coping with the soreness but have noticed an increase in facial hot flushes and night sweats. Has anyone else felt these side effects have got worse as you reduce?
I reduced my prednisolone from 10mg to 9mg at the beginning of February and just about coping with the soreness but have noticed an increase in facial hot flushes and night sweats. Has anyone else felt these side effects have got worse as you reduce?
Godrevy1960
in
PMRGCAuk
5 years ago
Donating bone marrow to cure sickle cell anaemia
A bone marrow transplant is the only complete cure for treating sickle cell anaemia. This is a kind of treatment in which the patient’s bone marrow is changed to new healthy bone marrow. This is done either by collecting the patient’s own bone marrow or that of a donor. In the case of sickle cell disease
A bone marrow transplant is the only complete cure for treating sickle cell anaemia. This is a kind of treatment in which the patient’s bone marrow is changed to new healthy bone marrow. This is done either by collecting the patient’s own bone marrow or that of a donor. In the case of sickle cell disease
anjana_indheal
in
Living with Sickle Cell Disease
5 years ago
SICKLE CELL NEWSWEEK
FATIMAH had a stroke at the age of 7. She recovered 100% and graduates May 2019 with a degree in Public Finance http://bit.ly/2FAO2KD Zandra Chidinma Nwogu’s first pain crises in eight years - ‘Water Marathon Therapy’ to the rescueh ttp://bit.ly/2HvAi5k Folks with SCD can only TAKE but not GIVE blood
FATIMAH had a stroke at the age of 7. She recovered 100% and graduates May 2019 with a degree in Public Finance http://bit.ly/2FAO2KD Zandra Chidinma Nwogu’s first pain crises in eight years - ‘Water Marathon Therapy’ to the rescueh ttp://bit.ly/2HvAi5k Folks with SCD can only TAKE but not GIVE blood
sicklecellnews
in
Sickle Cell Society
5 years ago
Hey There
Hi everyone this is just a post of me introducing myself, I'm not sure how close of a community you guys are but it's nice to be a part of something where people can really relate. My name is Kelsey I was born and diagnosed with Sickle Cell Anemia and I'm just trying to keep my shit together lol.
Hi everyone this is just a post of me introducing myself, I'm not sure how close of a community you guys are but it's nice to be a part of something where people can really relate. My name is Kelsey I was born and diagnosed with Sickle Cell Anemia and I'm just trying to keep my shit together lol.
sunshinee
in
Sickle Cell Society
5 years ago
Love is : Valentines Day Together in Clinic. . 💘
It's been some time since I posted but I keep in touch with the posts. It's part of me moving on in my lengthy recovery. I know from what I see that there are many new Forum members since I was active and that's great because we know it's one of the best sources of information , support and help for
It's been some time since I posted but I keep in touch with the posts. It's part of me moving on in my lengthy recovery. I know from what I see that there are many new Forum members since I was active and that's great because we know it's one of the best sources of information , support and help for
JediReject
in
MPN Voice
5 years ago
Dad in ICU fighting pneumonia and is slow to wake up from induced coma
Hi everyone. I’m wondering if anyone has any encouragement for our situation. My dad is 78 but has always been extremely healthy - a marathon runner until his back stopped him from running and now he’s been an avid swimmer for years and has had no real medical issues. He had a stem cell transplant
Hi everyone. I’m wondering if anyone has any encouragement for our situation. My dad is 78 but has always been extremely healthy - a marathon runner until his back stopped him from running and now he’s been an avid swimmer for years and has had no real medical issues. He had a stem cell transplant
WhitneyS18
in
ICUsteps
5 years ago
Seeking people with experience of Stem Cell Transplant for Richter's - I have a decision to make!
Hi All Have been reading lots of posts since my diagnosis of CLL 9 months ago - what a great community, which I have found really helpful. I was diagnosed with Non-Hodgkins DLBCL which is a Richter's transformation from previously undiagnosed CLL. I am a healthy 50 year old female, with no symptoms
Hi All Have been reading lots of posts since my diagnosis of CLL 9 months ago - what a great community, which I have found really helpful. I was diagnosed with Non-Hodgkins DLBCL which is a Richter's transformation from previously undiagnosed CLL. I am a healthy 50 year old female, with no symptoms
Buddhababy
in
CLL Support
5 years ago
Private B12 injections in London please?
Hello, Does anyone know of a private GP in the London area or Kent who will give B12 injections please? I have had my loading dose of 6 just over 2 weeks ago, some symptoms went away but dizzyness and strange tiredness after walking for more 10 minutes were still there. I told this to my GP. But now
Hello, Does anyone know of a private GP in the London area or Kent who will give B12 injections please? I have had my loading dose of 6 just over 2 weeks ago, some symptoms went away but dizzyness and strange tiredness after walking for more 10 minutes were still there. I told this to my GP. But now
GastritisB12
in
Pernicious Anaemia Society
5 years ago
Cutaneous Vasculitis
Hi all Back in early 2015 I had the most awful rash and raised itchy lumps over the lower part of my legs. I went to my GP who suggested treating the whole family for Scabies. After many tests and appointments later and biopsies they confirmed Cutaneous Vasculitis. Back in 2018 from July to December
Hi all Back in early 2015 I had the most awful rash and raised itchy lumps over the lower part of my legs. I went to my GP who suggested treating the whole family for Scabies. After many tests and appointments later and biopsies they confirmed Cutaneous Vasculitis. Back in 2018 from July to December
lou1972
in
Vasculitis UK
5 years ago
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