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Hospital Boomerang
Well back in the nation health all inclusive holiday camp. This weeks good news is my husbands stem cell transplant seems to be doing well. He's out of kings and enjoying home life, so I seem to have taken up residency in his place. Last few weeks was a tad rough admitted to hospital with shingles, but
Well back in the nation health all inclusive holiday camp. This weeks good news is my husbands stem cell transplant seems to be doing well. He's out of kings and enjoying home life, so I seem to have taken up residency in his place. Last few weeks was a tad rough admitted to hospital with shingles, but
knoxie
in
My Ovacome
8 years ago
Vitamin B complex
I am currently in the middle of writing a letter to my gp regarding the withdrawal of my treatment due to high serum b12 !!!!!!! This is in another post. In the meantime I am supplementing with 2x 5000 Swansons Methylcobalamine daily, I think others have said that to make the best of the b12 you should
I am currently in the middle of writing a letter to my gp regarding the withdrawal of my treatment due to high serum b12 !!!!!!! This is in another post. In the meantime I am supplementing with 2x 5000 Swansons Methylcobalamine daily, I think others have said that to make the best of the b12 you should
Kenbowns
in
Pernicious Anaemia Society
8 years ago
Venetoclax or bone marrow transplant?
My son has CLL with 11Q deletion. he could have a haplo transplant with his brother as a half full match donor but given his pneumonia has not subsided he is now looking more towards Venetoclax. The transplant has been postponed non stop because of fever from pneumonia. Feedback will be appreciated.
My son has CLL with 11Q deletion. he could have a haplo transplant with his brother as a half full match donor but given his pneumonia has not subsided he is now looking more towards Venetoclax. The transplant has been postponed non stop because of fever from pneumonia. Feedback will be appreciated.
karenmarie
in
CLL Support
8 years ago
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Gastrin test
Hi everyone, I posted on here a few weeks ago talking about some of my lab results and what they could possibly entail. Some possibilities were atrophic gastritis and pernicious anemia. I definitely have been diagnosed with barrett's esophagus at the young age of 30. The reason why atrophic gastritis
Hi everyone, I posted on here a few weeks ago talking about some of my lab results and what they could possibly entail. Some possibilities were atrophic gastritis and pernicious anemia. I definitely have been diagnosed with barrett's esophagus at the young age of 30. The reason why atrophic gastritis
yogamom1
in
Pernicious Anaemia Society
8 years ago
Autologous stem cell transplantation
Hi all i wish you are doing well with your treatment,I'm interested in information about relapsed &transformed follicular lymphoma treated with r.chop Now going to do autologous bone marrow. Stem cells transplant. Thanks
Hi all i wish you are doing well with your treatment,I'm interested in information about relapsed &transformed follicular lymphoma treated with r.chop Now going to do autologous bone marrow. Stem cells transplant. Thanks
Bhlool
in
Lymphoma Canada
8 years ago
New to group, but old to DLBCL NHL
Hi, my name is Felicia. I was diagnosed at 24 yrs ago when I was 28 with Stage 1b DLBCL NHL. I had a football size encapsulated tumor in my chest cavity. I had 6 months of PROMACE CYTOBOM, (they don't even use that regiment anymore) & 4 wks of radiation. I was fine for 23 yrs. In Feb 2015, I found
Hi, my name is Felicia. I was diagnosed at 24 yrs ago when I was 28 with Stage 1b DLBCL NHL. I had a football size encapsulated tumor in my chest cavity. I had 6 months of PROMACE CYTOBOM, (they don't even use that regiment anymore) & 4 wks of radiation. I was fine for 23 yrs. In Feb 2015, I found
fwhip14
in
Non Hodgkin's Lymphoma Friends
8 years ago
Can Hashis flare up ?
I thought I was doing well (always dangerous) I have the usual long back story of misdiagnosis of CFS then was lucky to see Dr Skinner got on the right path and have used both private and NHs Endos to get the treatment I need for my Hashimotos. I take nature thyroid 3 and a quarter grains spread
I thought I was doing well (always dangerous) I have the usual long back story of misdiagnosis of CFS then was lucky to see Dr Skinner got on the right path and have used both private and NHs Endos to get the treatment I need for my Hashimotos. I take nature thyroid 3 and a quarter grains spread
spacestar
in
Thyroid UK
8 years ago
Stem cell transplant
I have been reading a lot about this and seems this is the cure for our dieses I am currently trying to get this done has anyone had it done or can tell me more about it thanks. If anybody wants more info then please do message me and will forward the forums and websites I have been looking into. They
I have been reading a lot about this and seems this is the cure for our dieses I am currently trying to get this done has anyone had it done or can tell me more about it thanks. If anybody wants more info then please do message me and will forward the forums and websites I have been looking into. They
Tmunney999
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Parietal cell test
Hi everyone, I'm new here and had a couple questions. A little history.. I had the parietal cell antibody test done (3 times) and each time my test has come back abnormal with a reading of 113.5 or higher. My intrinsic factor was negative about a year ago and hasn't been tested since. My B12 levels have
Hi everyone, I'm new here and had a couple questions. A little history.. I had the parietal cell antibody test done (3 times) and each time my test has come back abnormal with a reading of 113.5 or higher. My intrinsic factor was negative about a year ago and hasn't been tested since. My B12 levels have
yogamom1
in
Pernicious Anaemia Society
8 years ago
Woohoo husband home
Surprise of the week, my husband who has just undergone a stem cell transplant at Kings came home earlier than anticipated yesterday his transplant is doing very well and having him home is a real boost😃I have done 3 of 6 chemos now and was struggling with the travelling to see him. CT scan booked for
Surprise of the week, my husband who has just undergone a stem cell transplant at Kings came home earlier than anticipated yesterday his transplant is doing very well and having him home is a real boost😃I have done 3 of 6 chemos now and was struggling with the travelling to see him. CT scan booked for
knoxie
in
My Ovacome
8 years ago
Pins and needles after b12
hi there, so I was recently diagnosed as being deficient in b12. I do not test positive for intrinsic factor but for parietal cell antibody. I had a number of neurological symptoms that came on at once a few months ago-the main symptom being a burning scalp, then on/off dizziness and an on/off feeling
hi there, so I was recently diagnosed as being deficient in b12. I do not test positive for intrinsic factor but for parietal cell antibody. I had a number of neurological symptoms that came on at once a few months ago-the main symptom being a burning scalp, then on/off dizziness and an on/off feeling
kel226
in
Pernicious Anaemia Society
8 years ago
Share your experience with stem cell transplant (bone marrow transplantation)
Please share to let others know what to expect or better inform their decision making with their doctor hey....
Please share to let others know what to expect or better inform their decision making with their doctor hey....
SimoneHU
HealthUnlocked
in
Myeloma Warriors
8 years ago
Professor Dasgupta on video
Hello everyone! At the PMRGCAuk AGM held in June, Professor Bhaskar Dasgupta, whose name many of you will be familiar with (he is President of our charity and a leading expert on PMR and GCA), spoke about why 2016 is a landmark year for Polymyalgia Rheumatica and Giant Cell Arteritis. Here is a link
Hello everyone! At the PMRGCAuk AGM held in June, Professor Bhaskar Dasgupta, whose name many of you will be familiar with (he is President of our charity and a leading expert on PMR and GCA), spoke about why 2016 is a landmark year for Polymyalgia Rheumatica and Giant Cell Arteritis. Here is a link
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
8 years ago
stem cell transplant
Good morning, has anyone tried stem cell transplant. I have applied and been accepted. I have stiffness, cant walk most of the time. I am so looking forward to being able to walk, less meds etc. Please respond if you have had this procedure. The neurologist I was going to told me several times' There
Good morning, has anyone tried stem cell transplant. I have applied and been accepted. I have stiffness, cant walk most of the time. I am so looking forward to being able to walk, less meds etc. Please respond if you have had this procedure. The neurologist I was going to told me several times' There
Kathleen
in
Cure Parkinson's
8 years ago
MPN Voice Patients’ Forum – Inverness
Friday 28th October 2016, 10 am - 2 pm, registration from 9.30 am
Eden Court Theatre, Bishops Road, Inverness, IV3 5SA
The forum will be held in The MacLean Room
Programme
The programme is yet to be finalized, but will include talks from haematologists, specialist nurses
Friday 28th October 2016, 10 am - 2 pm, registration from 9.30 am
Eden Court Theatre, Bishops Road, Inverness, IV3 5SA
The forum will be held in The MacLean Room
Programme
The programme is yet to be finalized, but will include talks from haematologists, specialist nurses
Mazcd
MPNVoice
in
MPN Voice
8 years ago
POSITIVE Gastric Parietal Cell AB/ Low Methylmalonic acid and Homocysteine.
My rheumatologist looked at my b12 levels last year along with some other tests and diagnosed me with PA. My family doctor disagrees because my b12 was at 319 and he says that is within normal ranges. I do test positive for the gastric parietal cell antibody 35.1 but he said my Methylmalonic acid
My rheumatologist looked at my b12 levels last year along with some other tests and diagnosed me with PA. My family doctor disagrees because my b12 was at 319 and he says that is within normal ranges. I do test positive for the gastric parietal cell antibody 35.1 but he said my Methylmalonic acid
Tigerlilly81
in
Pernicious Anaemia Society
8 years ago
Not understanding
I'm 46yrs. Old. I just got a test done for Sickle Cells. The doctor's assistance called to tell me first that I tested positive for Sickle Cell, then called me back to tell I shouldn't worry it's just might be the trait. I've been in pain all my adult life. I have yellow eyes, have chronic pain daily
I'm 46yrs. Old. I just got a test done for Sickle Cells. The doctor's assistance called to tell me first that I tested positive for Sickle Cell, then called me back to tell I shouldn't worry it's just might be the trait. I've been in pain all my adult life. I have yellow eyes, have chronic pain daily
Maurethiahollins
in
Sickle Cell Society
8 years ago
NHS England refusing second Stem Cell Transplants
Hi everybody not many of you will know yet but NHS England at the being of July issued an edict proclaiming that they would Not routinely Pay for a Second Stem Cell Transplant for relapsed patients with Blood Disorders even when the Consulants think it viable and the best option This came after some
Hi everybody not many of you will know yet but NHS England at the being of July issued an edict proclaiming that they would Not routinely Pay for a Second Stem Cell Transplant for relapsed patients with Blood Disorders even when the Consulants think it viable and the best option This came after some
bronx77
in
CLL Support
8 years ago
Giant Cell Arteritis and Mycophenolate
I am a 64 year old male who has suffered from GCA for 6 years. I did manage to get down to 3.5mgs of prednisilone a day although would have relapses. My new consultant was keen for me to have a scan to see how the inflammation was behaving however that then really set me back. I had to come off my drugs
I am a 64 year old male who has suffered from GCA for 6 years. I did manage to get down to 3.5mgs of prednisilone a day although would have relapses. My new consultant was keen for me to have a scan to see how the inflammation was behaving however that then really set me back. I had to come off my drugs
Stkeyna
in
PMRGCAuk
8 years ago
No surgery for me
Well after only a few days I have the results of my pet and Mri scans. Emergency apointme with oncologist Good news no cancer in upper body, bad news Mri shows mass on bladder plus mass on upper vagina and infiltration to blood vessels so no surgery possible oh bugger was counting on that so its back
Well after only a few days I have the results of my pet and Mri scans. Emergency apointme with oncologist Good news no cancer in upper body, bad news Mri shows mass on bladder plus mass on upper vagina and infiltration to blood vessels so no surgery possible oh bugger was counting on that so its back
knoxie
in
My Ovacome
8 years ago
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