Experiences with

Ageing well

Pls , I Am 29 years old now and a Sickle Cell Patient too. When I was 19 years, my hip joint started to pain me and I attended to the hospital, they told me the hip is reducing so I have to wear crutches to walk and I did that for a year. However when I used the crutches for a year the pain reduced

I've just had a [planned] phone call from a nurse from the, out of county, hospital who are going to treat 'my bones.' She was going through what I had B12D etc., apart from the osteoporosis, and listed MGUS. I asked what it was - answer "A blood disorder." Noone at my surgery had told me I had it

I try to always drink water but most times drinking water makes me feel nauseated. I don't know why?

my first test came back positive for gastric parietal cell antibodies using the Elisa test. Second test tests 5 years later for parietal cell antibody titers, comes back negative. Ok is this something that comes and goes?

i had severe weight loss, and lot of symptoms in 2018, i went to specialist and got infections tests and all came back good.. but my CD8 cells are very less in the immunity test. after few months with continued symptoms i researched and found my symptoms are related to b12 deficiency and got tested and

anti parietal cell antibody test For b12 is it worth ?

Hi I wrote a couple of weeks ago asking if anyone had been told that their tocilizumab was being extended. I’ve heard nothing from rheumatology or G.P but today I’ve had a txt from the company that deliver the injections to say they are delivering early March. Not sure if it’s the normal 8 weeks supply

Sorry I'm going a bit off piste but I feel very scared. My husband has had trouble with his mobility and memory for a couple of years and yesterday got a diagnosis of Normal postural Hydrocephalus. He has been advised to have a lumber puncture to drain some fluid to see if it temporarily improves with

just taken my 15 yo daughter to doct as has history of low b12 and iron, her injections were stopped last year on a paediatrician advice and to monitor every 3 months which we have been doing and have stayed pretty stable even though she tested positive to parietal cell antibody, shes been complaining

just taken my 15 yo daughter to doct as has history of low b12 and iron, her injections were stopped last year on a paediatrician advice and to monitor every 3 months which we have been doing and have stayed pretty stable even though she tested positive to parietal cell antibody, shes been complaining

My Rheumatologist has let me know that it is fine for me to have the COVID Vaccine and to continue having my Tocilizumab injections. I am also on 10 mgs of Prednisalone. I have Giant Cell Arteritis/Large Vessel Vasculitis.

Hi. Firstly, I just want to say how grateful I am to have found this forum. It is invaluable and has answered some of my questions before I have even asked them - ie. blurry eyes etc. I would love some advice though if you can still put up with me. My consultant reduced my 40mg dose of prednisolone

It seems my tongue and sometimes the roof of my mouth feel like I burnt myself with a hot beverage when that is not the case. Sometimes brushing the area with my tooth brush seems to help. I’ve tried all sorts of toothpaste formulations. In can vary during the day and from day to day. I avoid any toothpastes

Afternoon all... Warwick has managed to POST a reply on MATES, and if any of you can, I am sure that he would love to say hi... He's not feeling terribly himself Eight (8) days into his Stem Cell Transplant, but he did manage to [i]POST[/i] the message below on MATES, and so I Posted here again

Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The

Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest... I met

I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?

A update on my very surprising results when combining Ibrutinib + Idelalisib + Venetoclax. Initial Post with more detail: https://healthunlocked.com/cllsupport/posts/145327977/my-n-of-1-trial-with-ibrutinib-idelalisib-venetoclax-that-lead-to-remission-of-richters-in-three-weeks. I just had a second [

Hi all, It’s been a while since I’ve posted on the site but I’ve been keeping up to date with all your posts. I hope you’re all keeping safe and as well as you can. I have a question to anyone in their 70s who was/is officially shielding and lives in Scotland. Have you received your letter inviting

I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant