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My Story
Hello, I am new to this site but realise now that I might need the support and help of fellow sufferers of Lymphoedema. When I was 30 years old in 1982 I had testicular cancer and following an orchidectomy I was told the histology showed I had a seminoma and after 3 weeks of radiotherapy on my abdomen
Hello, I am new to this site but realise now that I might need the support and help of fellow sufferers of Lymphoedema. When I was 30 years old in 1982 I had testicular cancer and following an orchidectomy I was told the histology showed I had a seminoma and after 3 weeks of radiotherapy on my abdomen
Paulus22
in
LSN
8 years ago
This was my Journey - It May be Helpful to You
I had my TURP (Trans Urethral Resection of the Prostate) in October of 2011 at age 65. Subsequent analysis of the material removed showed cancer cells in less than 5% of the material and Gleason graded 3+3=6. I was staged T1a by my urologist. To say I was shocked when I was told I had the big C, is
I had my TURP (Trans Urethral Resection of the Prostate) in October of 2011 at age 65. Subsequent analysis of the material removed showed cancer cells in less than 5% of the material and Gleason graded 3+3=6. I was staged T1a by my urologist. To say I was shocked when I was told I had the big C, is
ffiore
in
Advanced Prostate Cancer
8 years ago
Skin cancers/lesions - Example images
Given that with CLL, we have a much higher risk of skin cancers, CLL specialist Dr Wierda recommends [i]'at least an annual visit with a dermatologist for skin evaluation and screening for scan cancers'[/i] in this Patient Power interview: http://www.patientpower.info/video/are-cll-patients-at-a-higher-risk-for-skin-cancer-or-other-secondary-cancers
Given that with CLL, we have a much higher risk of skin cancers, CLL specialist Dr Wierda recommends [i]'at least an annual visit with a dermatologist for skin evaluation and screening for scan cancers'[/i] in this Patient Power interview: http://www.patientpower.info/video/are-cll-patients-at-a-higher-risk-for-skin-cancer-or-other-secondary-cancers
AussieNeil
Administrator
in
CLL Support
8 years ago
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Is There a Connection Between MPN Treatment and Skin Cancer?
In this Ask the Expert segment, Patient Power community member, Peggy, wrote, “How strong of a connection is there between long-term use of Jakafi and non-melanoma skin cancer? Should a patient quit taking medication?” Dr. Naveen Pemmarju of MD Anderson Cancer Center responds with a discussion of a
In this Ask the Expert segment, Patient Power community member, Peggy, wrote, “How strong of a connection is there between long-term use of Jakafi and non-melanoma skin cancer? Should a patient quit taking medication?” Dr. Naveen Pemmarju of MD Anderson Cancer Center responds with a discussion of a
mcints
in
Fight MPN
8 years ago
Breast pain
Hi wondering if any of you lovely ladies can tell me if u suffer severe breast pain with having endo Iv never had breast pain before but it is awful and so painful can't even touch it pain relief isn't helping and doctors are useless xx
Hi wondering if any of you lovely ladies can tell me if u suffer severe breast pain with having endo Iv never had breast pain before but it is awful and so painful can't even touch it pain relief isn't helping and doctors are useless xx
Nicolahunny
in
Endometriosis UK
8 years ago
Is Lyme Disease the reason for your endocrine (and other) problems?
Here is a personal comment from someone suffering from Lyme Disease. It goes some way to explaining how doctors and others can be confused into wrongly suspecting an endocrine disorder when in fact the culprit at the bottom of an individual's ill health can be something other than the obvious. It should
Here is a personal comment from someone suffering from Lyme Disease. It goes some way to explaining how doctors and others can be confused into wrongly suspecting an endocrine disorder when in fact the culprit at the bottom of an individual's ill health can be something other than the obvious. It should
janeb15
in
Thyroid UK
8 years ago
Athletes foot-ouch!
I'm loving running but not loving athletes foot which is causing a lot of pain between fourth and little toe on one foot. Any pressure from shoes at all on that toe is very painful and spooling running! Im trying some athletes foot powder but any other advice will be gratefully received!
I'm loving running but not loving athletes foot which is causing a lot of pain between fourth and little toe on one foot. Any pressure from shoes at all on that toe is very painful and spooling running! Im trying some athletes foot powder but any other advice will be gratefully received!
Hillrunner2201
in
Couch to 5K
8 years ago
My ankles are hugely swollen, I have large calluses on my big toes, and my heels split and really hurt.
This is my first post. Prior to this I have been a lurker. I feel embarrassed talking about my cancer with friends and family. People ask me how I am--or how I feel-- and I don't want to start. I don't want to be one of those people who is constantly whining about their health problems. I was diagnosed
This is my first post. Prior to this I have been a lurker. I feel embarrassed talking about my cancer with friends and family. People ask me how I am--or how I feel-- and I don't want to start. I don't want to be one of those people who is constantly whining about their health problems. I was diagnosed
ptprism
in
CLL Support
8 years ago
Jakafi
This is being tested at MD Anderson to be used to alleviate CLL symptoms like fatigue and enlarged nodes. Results in 2018. Me and my football players neck would love this. Has any ever tries this? Virginia
This is being tested at MD Anderson to be used to alleviate CLL symptoms like fatigue and enlarged nodes. Results in 2018. Me and my football players neck would love this. Has any ever tries this? Virginia
virdieblue
in
CLL Support
8 years ago
Thyroid cancer, thyroxine and implant
I'm wondering if anyone can help me. I was diagnosed with medullary thyroid cancer in January after having my first operation in December. I then had a completion of a total thyroidectomy in February. Throughout this I've had the nexplanon implant this is my second one and I've never had a period on
I'm wondering if anyone can help me. I was diagnosed with medullary thyroid cancer in January after having my first operation in December. I then had a completion of a total thyroidectomy in February. Throughout this I've had the nexplanon implant this is my second one and I've never had a period on
Devonlaraa
in
Thyroid UK
8 years ago
Representation on the Lyme Disease Guideline Committee.
Here's a petition that could help a large number of people on this site. Please sign it. Thank you. https://www.gopetition.com/petitions/patient-representation-on-the-lyme-disease-guideline-committee.html Jane x
Here's a petition that could help a large number of people on this site. Please sign it. Thank you. https://www.gopetition.com/petitions/patient-representation-on-the-lyme-disease-guideline-committee.html Jane x
janeb15
in
Thyroid UK
8 years ago
Niacin flush...help
Hi everyone just need some advice re Bcomplex I have taken Bcomplex for a while now but recently changed brand and I am having serious skin flushes, the first time I took it a few weeks ago I was driving when I felt my face tingle then it gradually went very red like a bad case of sunburn I was very
Hi everyone just need some advice re Bcomplex I have taken Bcomplex for a while now but recently changed brand and I am having serious skin flushes, the first time I took it a few weeks ago I was driving when I felt my face tingle then it gradually went very red like a bad case of sunburn I was very
maro
in
Thyroid UK
8 years ago
Enlarged Prostate advice needed
This is my first post, and I hope I am in the correct forum. I have a greatly enlarged prostate, over 170 g, and my urination is weak. I do take lots of herbal pills to help. Anyone know the least harmful method to increase urination? The TURP is to extreme for me, as I do not want to have permanent
This is my first post, and I hope I am in the correct forum. I have a greatly enlarged prostate, over 170 g, and my urination is weak. I do take lots of herbal pills to help. Anyone know the least harmful method to increase urination? The TURP is to extreme for me, as I do not want to have permanent
alwayslooking
in
Advanced Prostate Cancer
8 years ago
Shocked !!!
Hi everyone, just having a bit of a moan. Along with RA/PMR/DIABETES and dealing with the meds, I have had some sun damage skin on my face which was treated with liquid nitrogen back in 2010. This came back quite slowly and was treated last October by my GP with a cream. The problem came back again
Hi everyone, just having a bit of a moan. Along with RA/PMR/DIABETES and dealing with the meds, I have had some sun damage skin on my face which was treated with liquid nitrogen back in 2010. This came back quite slowly and was treated last October by my GP with a cream. The problem came back again
MaryTH
in
NRAS
8 years ago
VISUAL CONTRAST SENSITIVITY TEST may reveal conditions with underlying infections like biotoxins, lyme disease and deficiencies.
This is an interesting test you can do online for free even though they would like a $10 donation but not necessary. There are certain markers in your test showing where the weaknesses may be. I wouldn't try to diagnose anything from it but if you have high scores it may give you a lift. I think
This is an interesting test you can do online for free even though they would like a $10 donation but not necessary. There are certain markers in your test showing where the weaknesses may be. I wouldn't try to diagnose anything from it but if you have high scores it may give you a lift. I think
Heloise
in
Thyroid UK
8 years ago
gabapentin
Thank you for the numerous informative answers that I have received from everyone I will hold on for a while before I start to use this drug I am uncomfortable but that I can live with for the time being I am on so many other treatment for other ailments heart AF , osteopinia ,I am taking calcium tablets
Thank you for the numerous informative answers that I have received from everyone I will hold on for a while before I start to use this drug I am uncomfortable but that I can live with for the time being I am on so many other treatment for other ailments heart AF , osteopinia ,I am taking calcium tablets
durango
in
Advanced Prostate Cancer
8 years ago
Cellulitis survey
The LSN are involved in some research into cellulitis and have been asked to encourage as many of you as are able to fill in the online questionnaire linked below - it only take a few minutes and may lead to some very relevant further studies. Please use the link below or copy and paste into your search
The LSN are involved in some research into cellulitis and have been asked to encourage as many of you as are able to fill in the online questionnaire linked below - it only take a few minutes and may lead to some very relevant further studies. Please use the link below or copy and paste into your search
LymphSuppNetwork
LSN
in
LSN
8 years ago
Self medicating
I think if I go down root of self medicating I won't b advising my gp of what I'm doing.prob won't even notice now, as endo discharged me she won't check my bloods for another year, so will have to arrange myself. But what about the poor people with very limited funds who can't afford to self medicate.it
I think if I go down root of self medicating I won't b advising my gp of what I'm doing.prob won't even notice now, as endo discharged me she won't check my bloods for another year, so will have to arrange myself. But what about the poor people with very limited funds who can't afford to self medicate.it
tactano50
in
Thyroid UK
8 years ago
turps after brachetherapy
I saw my consultant last Thursday he wants me to have a bone scan, I am having the scan tomorrow he also mentions self catheter or fitting permanent catheter I have tried self catheter that's a no go for me to painful and fitted one I hear can give me constant infections other than that he is talking
I saw my consultant last Thursday he wants me to have a bone scan, I am having the scan tomorrow he also mentions self catheter or fitting permanent catheter I have tried self catheter that's a no go for me to painful and fitted one I hear can give me constant infections other than that he is talking
durango
in
Advanced Prostate Cancer
8 years ago
A Personal Introduction
My Name is Lee Gallagher and I live in the state of Queensland Australia. I am 68 years old and was diagnosed with advanced prostate cancer in January 2012 after becoming symptomatic with painful and increasing urination events. My Gleason score was 5+4 =9 in all eighteen segments, my PSA at the time
My Name is Lee Gallagher and I live in the state of Queensland Australia. I am 68 years old and was diagnosed with advanced prostate cancer in January 2012 after becoming symptomatic with painful and increasing urination events. My Gleason score was 5+4 =9 in all eighteen segments, my PSA at the time
lrgalla
in
Advanced Prostate Cancer
8 years ago
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