I've decided to try to understand my situation better before my next appointment with my oncologist.
I had a total thyroidectomy for papillary thyroid cancer in 2013, a lump in my right thyroid lobe, followed by 1.1GBq radioiodine ablation shortly after.
Six months later I had a follow up ultrasound which showed a 5x5x8mm lump left in my left thyroid bed. A whole body scan following this showed it took up radioiodine, so I had a second treatment dose of radioiodine - 5GBq.
Six months after that another follow up ultrasound showed the lump was still there, very slightly shrunk at 5x5x7mm.
Due to a few issues - miscommunication, changing consultants, plus me not pushing because I don't want further radioiodine treatment - I was told it would probably shrink to nothing over several more months and it was left at that, around last April.
During a follow up appointment earlier this year this was looked at again and it was decided I should have a whole body scan to follow this up and to check that nothing in my neck would take up radioiodine. I had a scan and the lump was still there and it took up radioiodine again. An ultrasound followed and confirmed the lump was still there in my left thyroid bed, still the same size as last year, 5x5x7mm.
I would like to know what this lump is. The thyroid cancer was in the right lobe, but this lump is in my left thyroid bed. Why would thyroid tissue survive so much radioiodine? Could it be normal thyroid tissue? It's still taking up radioiodine because it shows up on the whole body scans, but treatment doses haven't got rid of it.
My thyroglobulin levels are undetectable, my tgAb levels are either undetectable, or present but slowly decreasing, depending on who has tested it. I have been given different tgAb results.
Can anyone help?