Lyme Disease?

So basically for the last 2 years I've been experiencing loads of different symptoms which have just got worse and worse. Always get the typical look from my doctor like 'it's all in your head'..

I literally have every symptom of Lyme..

Head pressure on one side

Tinnitus

Dizziness

Brain fog / much slower mental clarity

Difficulty thinking of words

TMJ jaw pressure mainly left side also

Tremors / Shaky hands / Weak legs / Difficulty controlling movement

Constant fatigue

Difficulty focusing on fast moving things (eg traffic going by or reading moving writing)

General feeling 'off' & derealization type feeling

Gassy discomfort pressure type feeling on left side (digestive??)

Strange blurry vision

Because I've had an MRI, Blood tests, CT scans etc & I have so many symptoms I can understand why I sound like a hypochondriac but these symptoms are all very real. I also took citalopram for a few months and it did nothing.

I asked my gp about Lyme as I live near a country park with Lyme warnings and I have been bit by a tic when I was a kid (possibly more recently without realising ?!)

My gp said that the blood tests were all normal and would have shown up any abnormalities..

I'm so sick of it I'm 22 and just want my life back.. Nobody seems to be able to help :( it's ruining my life

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7 Replies

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  • Had all those symptoms too, they always bring up lyme disease on google too. If you've been tested and it's clear then you can stop worrying that it is something serious. I think it's a combination of some anxiety symptoms which cause intense worry, which leads to fatigue and even more symptoms. Vicious cycle. It will pass when you stop focusing on it

  • I agree that this is all in your head and so not easy to fix, but acceptance of that and psychological approaches are the way forward . Otherwise you may have a lifetime ahead of you of multiple symptoms and health anxiety!

    Good luck

    Dave

  • Hi I too have all of these symptoms plus I passed out a couple of months ago out of the blue. My doctor has said its all down to immense anxiety. I do agree with him that yes since my ill health started I have been so very anxious but I don't believe that anxiety is the only answer. I am so worried that I am truly ill and the doctors are missing it. I also can't get over the fact that I passed out when I have no history of this? I feel ill most days and it has changed my life and its affecting everyone around me especially my young daughter. I don't know what my next step is as I feel lost and scared and so worried about the future and no one seems to be able to help me. I just need to feel well again so I can try to be a good mum xx

  • Hi there, I hang around this site looking for people who have similar symptoms to mine since I did find the cause, and it is not merely anxiety. My anxiety lessened hugely when I learned my cause: delayed reaction to Cipro antibiotics, which can cause all of this stuff. Doctors are still oblivious. If you had any antibiotics at any time before this started, it could be that. If not, please never take these antibiotics (fluoroquinolones) because there are safer ones to take. The FDA in the states has added new black box warnings to these drugs, but most doctors remain oblivious. Write to me if you like, if you did take any, and I can steer you to helpful places.

  • obviously not anxiety. Look I've been down the anxiety train since 2010 they've said oh the heart palps are anxiety the difficulty breathing is anxiety the swollen lymph nodes is anxiety (you try explaining that to anyone with half a brain) the reflux is anxiety the brain fog and headaches are migraines due to anxiety. Eventually the brain fog got SO bad that I got an EEG.. and guess what... it was not normal.. my MRI, CT scan, Heart function test, lung function test, etc.. all normal but EEG showed weird activity. Its been two years now and Ive been (mis)diagnosed with epilepsy (absences or simple partials), autoimmune encephalitis, and possibly ehlers danlos syndrome (which is still being investigated). I started looking at lyme disease because when the hair started falling I was like for fuck sakes I'm getting at the bottom of this ASAP (I know a bit materialistic but theres nothing worse than hair EVERYWHERE). I'm not entirely sure if they did the blood test in the hospital they probably did but we shall see. Now they're saying I'm depressed and its making my symptoms worse and honestly like I'm fine. I'm frustrated that I've had memory issues, language issues and logic issues for two years but I'm still kicking and thriving. Sometimes when doctors don't know they rely on mental illness, which makes it all the more confusing and ineffective for people with actual mental illness. Look, sounds to me like you need to keep pushing. However, you can chill because theres literally nothing you can do about the system we are in. This is how doctors are, this is how our system works and all you can do is keep going. Also, the chill aspect is super helpful with how doctors will treat you. You go in anxious about whats going on, they will think thats the only thing wrong. You go in calm, collected and pushy.. you are more likely to get answers. Worry will make matters worse thats for sure but your worry seems to me like theres a reason behind it. I'm 25 so I get the whole I need my life back. And, theres so many other things than just lyme disease. Get your thyroid checked, get an EEG, check if your hypermobile or have physical traits of ehlers, check pain points for fibro. Literally the list goes on, and I don't know your entire background so some of what I just said may not be relevant... However keep searching.. and by that I don't really mean spend HOURS on google seeing if you have the next big brain tumor :P but more like find a good doctor, one that actually cares and wants to figure it out with you... The reassuring thing is that the MRI and everything came back clear. Your organs in themselves are okay, you just need to find out whats causing them to not work at their best.

    Sorry for the massive message but so many people are telling you its in your head, and theres literally no worse feeling. So I felt like I needed to answer.

    I wish you all the best!

    Victoria

  • I know how you feel I'm 23 and have done all that you have done apart from be tested for Lyme but yet again I have had that many blood tests done it's not even funny anymore 😒

    I want answers too it would be nice to know that it's just anxiety but i still can't accept it

  • I was bitten by a tic years ago - been treated by private doc for Lyme disease - taken lots of antibiotics over the years and do feel big improvements after treatment but my gp still says no to Lyme - has anyone here had blood tested privately?

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