Posts - Prostate Cancer Network | HealthUnlocked

Prostate Cancer Network

4,947 members • 3,081 posts

All posts for March 2023

Grass roots and prostate cancer

me on the radio 2019 - blast from the past https://on.soundcloud.com/ktjoJ

me on the radio 2019 - blast from the past https://on.soundcloud.com/ktjoJ ...

Darryl

Partner•1 year ago

2 Replies

Night time fasting

Any credence to this theory? https://www.mdpi.com/2072-6643/13/8/2662

witantric

•1 year ago

7 Replies

Oncotype and active surveillance

I am on AS (1 core 10% GL6 in mri guided biopsy). Oncotype score is 40, so in the middle :-( Thoughts. I am super confused now

I am on AS (1 core 10% GL6 in mri guided biopsy). Oncotype score is 40, so in th...

witantric

•1 year ago

5 Replies

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First PSA test and got PSA Free % of 25

Hi. I Just had my frist PSA screening done and got borderline results: PSA: 0.4 PSA Free: 0.1 PSA Free%: 25. Any thoughts on how concerned I should be...

Hi. I Just had my frist PSA screening done and got borderline results: PSA: 0....

Swimjim00

•1 year ago

2 Replies

$13K for 6 months of Orgovyx. Is it worth it?

My RO wants me on 6 months of Orgovyx as part of my upcoming SRT. My private insurance has rejected Orgovyx coverage in favor of Eligard or Firmagon. RO says...

My RO wants me on 6 months of Orgovyx as part of my upcoming SRT. My private ins...

Rams91

•1 year ago

23 Replies

diet for you

Best Prostate Cancer Diet and Lifestyle https://youtu.be/J2DryV9E914

Darryl

Partner•1 year ago

Be the first to reply

What is "high volume" GL 6?

I was watching Dr. Klotz's video on AS. He mentioned that people with "high volume GL 6" should reconsider AS. What exactly is high volume GL 6? He never...

I was watching Dr. Klotz's video on AS. He mentioned that people with "high volu...

witantric

•1 year ago

16 Replies

Trimix storage

I've searched the archives here, but couldn't find information on storing trimix. I've read recommendations stating that it can be frozen for up to a year....

I've searched the archives here, but couldn't find information on storing trimix...

Smallfall

•1 year ago

4 Replies

Pain after intercourse

First I would like to thank all the people in this community for providing excellent advice and encouragement. I had radiation and Lupron in 2020, and my PSA...

First I would like to thank all the people in this community for providing excel...

paladin7

•1 year ago

4 Replies

quick update

just spoke with my urology nurse consultant, my PSA is now 0.05, looks like the hormone treatment is working, looking like radiotherapy will start April/ May,...

just spoke with my urology nurse consultant, my PSA is now 0.05, looks like the ...

ukpete

•1 year ago

7 Replies

zoladex 3.6mg injection

Hi, I will be having radiotherapy in about 3/4 weeks I’ve had a course of Bicalutamide 150mg tablets and I’m having a monthly zoladex injection in my...

Hi, I will be having radiotherapy in about 3/4 weeks I’ve had a course of Bical...

ukpete

•1 year ago

5 Replies

Minor incontinence

I had a RO approximately 2 1/2 years ago with a recurrence 12 months later. I have had 37 sessions of radiotherapy and am in month 16 of 18 hormone therapy in...

I had a RO approximately 2 1/2 years ago with a recurrence 12 months later. I h...

Runner1957

•1 year ago

2 Replies

Followup on friend I mentioned.

He just got biopsy back. Lotta 4+3. His wife however, is telling me the Doc is saying it's Stage 1., which is absurd unless I'm woefully ill-informed. There...

He just got biopsy back. Lotta 4+3. His wife however, is telling me the Doc is...

WhatHump

•1 year ago

16 Replies

Decided to have a robot assisted laparoscopic radical prostatectomy - update

Reasons for my decision: I made a decision based on my understanding, see below. Radiation - no effect on urinary leakage, sexual function initially preserved...

Reasons for my decision: I made a decision based on my understanding, see below....

Hockeyforever

•1 year ago

15 Replies

Positive Margins -- Will I need additional treatment?

3 months post RALP and PSA is undetectable by standard test. My surgical pathology results are pasted below. Do you think I will need additional treatment?...

3 months post RALP and PSA is undetectable by standard test. My surgical pathol...

SmasherOfAjumma

•1 year ago

21 Replies

Will miss 2 daily doses of Orgovyx (repercussions?)

The pharmacy sent me several bottles of Orgovyx in Jan.. As a result I mindlessly assumed I had another bottle when I ran out of my last pill today! The...

The pharmacy sent me several bottles of Orgovyx in Jan.. As a result I mindlessl...

Scooter22

•1 year ago

12 Replies

Malecare is one of the first organizations (and first patient advocacy nonprofit) to implement chatgpt.

Malecare is one of the first organizations (and first patient advocacy nonprofit) to implement chatgpt. We call it Cancer Copilot. It will slowly replace our...

Malecare is one of the first organizations (and first patient advocacy nonprofit...

Darryl

Partner•1 year ago

6 Replies

Starting Keytruda

I, I will be starting Keytruda on Friday. Looked at all the negative affects, but having a little choice on what to do. Hopefully it’ll affect the cancer in...

I, I will be starting Keytruda on Friday. Looked at all the negative affects, b...

Goldberg

•1 year ago

2 Replies

European approach to prostate cancer

Making prostate cancer screenings helpful. A conversation with Hendrik Van Poppel, MD, PhD https://youtu.be/kXcGydQK1SU

Making prostate cancer screenings helpful. A conversation with Hendrik Van Poppe...

Darryl

Partner•1 year ago

2 Replies

Improved robotic surgery?

https://medicalxpress.com/news/2023-03-technique-postoperative-complications-prostate-cancer.html Sounds like it.. not that I'm suggesting anyone get...

https://medicalxpress.com/news/2023-03-technique-postoperative-complications-pro...

Don_1213

•1 year ago

1 Reply

ED Results after 20 IMRT Treatments ?????

I am g7 (4-3). 68 psa 8. I just finished 20 IMRT treatments at UCLA . Please advise me again the ED side effects with radiation and...

I am g7 (4-3). 68 psa 8. I just finished 20 IMRT treatments at UCLA . Please a...

JWS13

•1 year ago

3 Replies

treatment decision

Anyone on here been treated with MSK Precise® Radiation Therapy? I was diagnosed with G 3+4 one year ago & after researching & second opinions and more...

Anyone on here been treated with MSK Precise® Radiation Therapy? I was diagnosed...

930911

•1 year ago

19 Replies

PSA elevated due to Covid

Has anyone experienced an elevated PSA due to Covid? I have been testing my PSA in 3-4wk cycles, and it has been on a nice downward trend the past 140 days or...

Has anyone experienced an elevated PSA due to Covid? I have been testing my PSA...

Maximode

•1 year ago

5 Replies

New Study Result Being Dangerously Oversimplified

Was watching the National News on ABC a day or two ago. One of the major stories was a "breakthrough study" regarding Prostate Cancer. They refer to a...

Was watching the National News on ABC a day or two ago. One of the major storie...

jazj

•1 year ago

11 Replies

PSA after SBRT for Oligometastatic

I recently had SBRT (5x9gray radiation treatments) for a single spot on L7. The spot was found by a PET/PSMA scan. PSA at the time of the scan was 1.1. (Dec...

I recently had SBRT (5x9gray radiation treatments) for a single spot on L7. The ...

billd50

•1 year ago

6 Replies

New NEJ 10 year study RE: "Active Monitoring shows 99% same survival rate for localized Cancer" as Surgery & Radiation

What are your thoughts on the following:"New NEJ 10 year study RE: "Active Monitoring shows 99% same survival rate for localized Prostate Cancer" as Surgery &...

What are your thoughts on the following:"New NEJ 10 year study RE: "Active Monit...

JWS13

•1 year ago

14 Replies

Inquiring about HIFU and/or Beth Israel in Boston

I am wondering if there might be members of the group who have undergone HIFU (High Intensity Focused Ultrasound) who might be able to share from their...

I am wondering if there might be members of the group who have undergone HIFU (H...

allshallbewell

•1 year ago

20 Replies

A free and easy way to train Google and YouTube to value "prostate cancer"

Malecare ran its first prostate cancer support group 25 years ago, on Wednesday, March 11, 1998. Most nonprofit organizations would use a 25th anniversary as a...

Malecare ran its first prostate cancer support group 25 years ago, on Wednesday,...

Darryl

Partner•1 year ago

Be the first to reply

Moving to 6 month psa check

I wonder if anyone in this forum felt like they wish they would have stayed with the 3 month psa check rather than moving to 6 month psa checks

I wonder if anyone in this forum felt like they wish they would have stayed with...

twostrats

•1 year ago

12 Replies

BCR Prediction?

5 years post-prostatectomy at age 59: GL 4+3 (80% pattern 4), PSA 2.9, negative margins, perineural invasion identified, negative lymph nodes (8), tumor...

5 years post-prostatectomy at age 59: GL 4+3 (80% pattern 4), PSA 2.9, negative...

PlateBlocker

•1 year ago

6 Replies

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Guidelines regarding commercial use, promotion or solicitati...

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Posts - Prostate Cancer Network | HealthUnlocked

Prostate Cancer Network

All posts for March 2023

Grass roots and prostate cancer

Night time fasting

Oncotype and active surveillance

First PSA test and got PSA Free % of 25

$13K for 6 months of Orgovyx. Is it worth it?

diet for you

What is "high volume" GL 6?

Trimix storage

Pain after intercourse

quick update

zoladex 3.6mg injection

Minor incontinence

Followup on friend I mentioned.

Decided to have a robot assisted laparoscopic radical prostatectomy - update

Positive Margins -- Will I need additional treatment?

Will miss 2 daily doses of Orgovyx (repercussions?)

Malecare is one of the first organizations (and first patient advocacy nonprofit) to implement chatgpt.

Starting Keytruda

European approach to prostate cancer

Improved robotic surgery?

ED Results after 20 IMRT Treatments ?????

treatment decision

PSA elevated due to Covid

New Study Result Being Dangerously Oversimplified

PSA after SBRT for Oligometastatic

New NEJ 10 year study RE: "Active Monitoring shows 99% same survival rate for localized Cancer" as Surgery & Radiation

Inquiring about HIFU and/or Beth Israel in Boston

A free and easy way to train Google and YouTube to value "prostate cancer"

Moving to 6 month psa check

BCR Prediction?

Search posts

Pinned Posts

Latest poll

Aware of our online community's impact, resources & support—please consider helping sustain & expand our group. https://malecare.org/donate

Archive