Posts - Prostate Cancer Network | HealthUnlocked

Prostate Cancer Network

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All posts for August 2019

AS Protocol - Recent MRI

Hi Folks, I was diagnosed with G6 PCa in August 2017 after a biopsy at MSKCC (2 of 14 cores -- 1% and 3%). I just had my scheduled MRI this week -- here are...

Hi Folks, I was diagnosed with G6 PCa in August 2017 after a biopsy at MSKCC (2 ...

Hope4Happiness

•5 years ago

4 Replies

Mice and men

I see studies that are successful in mice but fail in men. But the dose rates in mg per kg are much lower in men, depending on a strange relationship based on...

I see studies that are successful in mice but fail in men. But the dose rates in...

TFBUNDY

•5 years ago

1 Reply

Newly diagnosed with Prostrate Cancer

I am the medical advocate for my brother who was just diagnosed with Prostrate CA~ Gleason score 3+3=6, Grade Group 1. His age is 67. If anyone has this same...

I am the medical advocate for my brother who was just diagnosed with Prostrate C...

palgirl22

•5 years ago

27 Replies

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Diagnosed in July

After having had my first physical in about 13 years, my PSA was 16.75! I’m 52. Repeat was 14 and biopsy was positive. This was early July. Most core...

After having had my first physical in about 13 years, my PSA was 16.75! I’m 52....

RA9903

•5 years ago

39 Replies

The Conference Prostate Cancer Question Catcher is now live!

Write in your questions for the Prostate Cancer Patient Conference, here: https://malecare.org/prostate-cancer-question-catcher/ Hundreds of people will be...

Write in your questions for the Prostate Cancer Patient Conference, here: https:...

Darryl

Partner•5 years ago

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Finished HDR-BT and IMRT

It's been a long haul, started in March with neoadjunctive ADT, Lupron+Zytiga, for PCa diagnosed at t3bN1M0 +SV +/mesorectal lymph node, and PSA 33. By June,...

It's been a long haul, started in March with neoadjunctive ADT, Lupron+Zytiga, ...

timotur

•5 years ago

5 Replies

Spike in PSA

My husband has been on Zytiga w/ prednisone for 14 months after tolerating only 3 cycles of chemo. His PSA has been below 1 for a year. This week it went from...

My husband has been on Zytiga w/ prednisone for 14 months after tolerating only ...

WVtwinsmama

•5 years ago

5 Replies

MP MRI finally...

I finally got my MP MRI. Had to travel 5 hours to find a facility that would do it that had a 3.0 Tesla MRI and would let me pay out of pocket. Best money I...

I finally got my MP MRI. Had to travel 5 hours to find a facility that would do...

Hidden

•5 years ago

15 Replies

cost of fenbendazole

Fenbendazole works the same way as chemo drugs like the taxanes and vinca- derived drugs by preventing cell division. Right now it's affordable from Amazon,...

Fenbendazole works the same way as chemo drugs like the taxanes and vinca- deriv...

kapakahi

•5 years ago

11 Replies

Urethral Strictures...TURP/PCa/Proton

Does anyone in our group have a experience with recurring urethral strictures which are a result of a TURP last August and proton beam radiation in the winter?...

Does anyone in our group have a experience with recurring urethral strictures wh...

MBOY1

•5 years ago

11 Replies

Drinking beetroot juice

T.Allen..i am considering drinking beetroot juice for health benefits, just got my 1 1/2 year post RP and radiation undetectable at <.014..will beetroot juice...

T.Allen..i am considering drinking beetroot juice for health benefits, just got ...

jokerwild477

•5 years ago

8 Replies

Can't sleep

I am about 9 months into a two-year course of ADT and cannot get a decent night's sleep. I also had two months of radiation. There's ample literature...

I am about 9 months into a two-year course of ADT and cannot get a decent night'...

jazzy53

•5 years ago

20 Replies

Prostate Cancer Patient Conference

I looked at the agenda that Darryl posted for the Prostate Cancer Patient Conference he organized for October 5 in New York. See:...

I looked at the agenda that Darryl posted for the Prostate Cancer Patient Confer...

AlanMeyer

Moderator•5 years ago

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incontinence 1 year after TURP

Just updating, I've still got incontinence 13 months after TURP. Slowed down a little but still there. Still get painful spasms. Anyone with a suggestion?...

Just updating, I've still got incontinence 13 months after TURP. Slowed down a l...

LVRob129

•5 years ago

10 Replies

Cortisone for pinched sciatic nerve

Pinched sciatic nerve scheduled for cortisone shot. Oncologist ordered MRI as psa has ticked up from .016 to .081 in last 6 months. Should I be concerned?...

Pinched sciatic nerve scheduled for cortisone shot. Oncologist ordered MRI as p...

Mjex

•5 years ago

11 Replies

questions for the urologist when we talk about libido, sexual dysfunction and all that fun stuff

Hello again I made an appointment to speak with the Urologist about Libido, lack of erection, orgasm etc etc but that was before I found...

Hello again I made an appointment to speak with the Urologist about Lib...

pjd55d

•5 years ago

9 Replies

progress with fenbendazole?

backstory - 11 years with PCa, no mets, 4 HIFUs (!), always figured I still had it but more or less under control - PSA after the last HIFU in 2015 had been...

backstory - 11 years with PCa, no mets, 4 HIFUs (!), always figured I still had ...

kapakahi

•5 years ago

8 Replies

Prostate Cancer Conference Agenda Updated

Updated Agenda for Prostate Cancer Patient Conference Click here to sign up www.prostatecancerconference.org (Please sign up for tickets today...there are a...

Updated Agenda for Prostate Cancer Patient Conference Click here to sign up www...

Darryl

Partner•5 years ago

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The definition of SECOND biochemical recurrence (after prostatectomy AND salvage radiation)

While there is a standard definition of biochemical recurrence (BCR) after prostatectomy (i.e., confirmed PSA ≥ 0.2 ng/ml), there is a confusing array of...

While there is a standard definition of biochemical recurrence (BCR) after prost...

Tall_Allen

•5 years ago

11 Replies

PSA 4.7 51yr old RP vs RT

Just diagnosed. 2 legions. 15 out of 19 sample positive. Most 3+3 few 3+4. Went to see drs at MSK in NYC. Surgeon says surgery better. RO says radiation...

Just diagnosed. 2 legions. 15 out of 19 sample positive. Most 3+3 few 3+4. Went...

LBbeachbum

•5 years ago

31 Replies

Crazy fast spike in PSA - anyone experience similar?

All, I am new to this board and humbled by the camaraderie I am seeing here. I am 57 years old. Over the coarse of a year, my PSA went from 2.4 to 3.4, and...

All, I am new to this board and humbled by the camaraderie I am seeing here. I a...

jazzlover2

•5 years ago

20 Replies

Muscle or Bone Pain

Has anyone else experiences rather sever muscle or bone pain while undergoing prostate EBRT? Every other day or so my wrist or ankle or something hurts enough...

Has anyone else experiences rather sever muscle or bone pain while undergoing pr...

RenoPatient

•5 years ago

5 Replies

SRT on the horizon

New poster but have been lurking for over a year. RP June 2016, Dr. Lee, UPENN. 4-3 (80% G4), focal EPE, Apical Margin+, T3a. Undetectable 18 months, then...

New poster but have been lurking for over a year. RP June 2016, Dr. Lee, UPENN. ...

JayMot

•5 years ago

17 Replies

PSMA PET finds more cancer than Axumin

For guys with rising PSA, post-prostatectomy... This is for the Ga-68-PSMA-11 PET/CT scan. It was especially good at detecting cancer in the pelvic lymph...

For guys with rising PSA, post-prostatectomy... This is for the Ga-68-PSMA-11 PE...

Tall_Allen

•5 years ago

2 Replies

Detectible PSA two years after RP

I had a radical prostatectomy in June of 2017. I had several different Gleason numbers from the biopsy prior to surgery. The highest Gleason number was 7....

I had a radical prostatectomy in June of 2017. I had several different Gleaso...

Hutchig

•5 years ago

12 Replies

Nerve Sparing Prostate Surgery recommendations

Does anyone have a recommendation for a surgeon that is known for their nerve sparing technique? My understanding is that there are only a handful of these...

Does anyone have a recommendation for a surgeon that is known for their nerve sp...

Maddog2Blues

•5 years ago

29 Replies

Low PSA

My PSA has always been <1. Five years ago I had a spike to 1.7. It was due to a testosterone supplement. I had a biopsy , the first of three, and they...

My PSA has always been <1. Five years ago I had a spike to 1.7. It was due to...

Inwood

•5 years ago

9 Replies

PSA lows and highs - 1yr after radiation HDR Brachytherapy

I had HDR brachytherapy one year ago. After treatment, my 3 month PSA test showed a 2.5 and three months later it was 1.7. Now, one year later, it is back up...

I had HDR brachytherapy one year ago. After treatment, my 3 month PSA test showe...

curtisbirch

•5 years ago

9 Replies

Posts - Prostate Cancer Network | HealthUnlocked

Prostate Cancer Network

All posts for August 2019

AS Protocol - Recent MRI

Mice and men

Newly diagnosed with Prostrate Cancer

Diagnosed in July

The Conference Prostate Cancer Question Catcher is now live!

Finished HDR-BT and IMRT

Spike in PSA

MP MRI finally...

cost of fenbendazole

Urethral Strictures...TURP/PCa/Proton

Drinking beetroot juice

Can't sleep

Prostate Cancer Patient Conference

incontinence 1 year after TURP

Cortisone for pinched sciatic nerve

questions for the urologist when we talk about libido, sexual dysfunction and all that fun stuff

progress with fenbendazole?

Prostate Cancer Conference Agenda Updated

The definition of SECOND biochemical recurrence (after prostatectomy AND salvage radiation)

PSA 4.7 51yr old RP vs RT

Crazy fast spike in PSA - anyone experience similar?

Muscle or Bone Pain

SRT on the horizon

PSMA PET finds more cancer than Axumin

Detectible PSA two years after RP

Nerve Sparing Prostate Surgery recommendations

Low PSA

PSA lows and highs - 1yr after radiation HDR Brachytherapy

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