Posts - Prostate Cancer Network | HealthUnlocked

Prostate Cancer Network

5,287 members•3,352 posts

All posts for April 2019

A Medical Adventure - HIFU

So glad to be back home from Germany after HIFU treatment. Alan had to have a TURP to remove calcium deposits followed by HIFU the same day since calcium...

So glad to be back home from Germany after HIFU treatment. Alan had to have a TU...

•6 years ago

Relief from hot flashes?

OK, guys, I have another year on Lupron and these hot flashes are driving me crazy. 12 to 15 every day all day long. Skeptical of introducing more chemicals...

OK, guys, I have another year on Lupron and these hot flashes are driving me cra...

•6 years ago

Disability benefits?

Hi all. Im starting to think of trying to get disability benefits but dont know where to start so im starting here lol. Im 57 stage 4 with mets to bones all...

Hi all. Im starting to think of trying to get disability benefits but dont know ...

•6 years ago

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If you are using PSA to monitor your cancer, you may want to avoid curcumin (and some other supplements)

Curcumin is labeled as a Pan-Assay Interference Compound (PAINS) that interferes with the validity of PSA tests. Patients should be wary of taking it and other...

Curcumin is labeled as a Pan-Assay Interference Compound (PAINS) that interferes...

•6 years ago

Starting week 6 of RT and on 4th month of ADT. Life on life's terms.

Hey Fellas, I know it has been a minute since I have posted. Although the pc treatments have been a little challenging, mostly inconvenient actually, I have...

Hey Fellas, I know it has been a minute since I have posted. Although the pc tr...

•6 years ago

New Member

New to forum 53 years old 18 years of urinary issues urgency, infections, bph proctitis, retention twice. prostate is 5 times bigger than suppose to be. 3rd...

New to forum 53 years old 18 years of urinary issues urgency, infections, bph pr...

•6 years ago

Should SBRT be THE preferred treatment for intermediate risk prostate cancer?

Unfortunately, not enough patients meet with a radiation oncologist who specializes in SBRT. While the authors stop short of recommending SBRT as the...

Unfortunately, not enough patients meet with a radiation oncologist who speciali...

•6 years ago

Radiation levels.

I might have written this somewhere else, but ... The rt finished on 1 Feb. and was 60 Gy in 20 fractions. I have no idea if that's a low or high dose in 20...

I might have written this somewhere else, but ... The rt finished on 1 Feb. and ...

•6 years ago

Active Surveillance how long to wait?

I was diagnosed last year in July had a biopsy - Gleason score 6 my PSA was 4.2. Just has another PSA was 4.4 going for another biopsy in August. Question is...

I was diagnosed last year in July had a biopsy - Gleason score 6 my PSA was 4.2....

•6 years ago

Axumin Results

I had an Axumin scan on Friday (PSA rose from 0.03 to 0.24 in the past 3 months - RP in July 2018). There were 3 suspicious areas: right external iliac chain...

I had an Axumin scan on Friday (PSA rose from 0.03 to 0.24 in the past 3 months ...

•6 years ago

Active surveillance....trending down

Hello all, I'm a new member to the club and also been a "lurker" since the diagnosis of PCa was made. My story, I'm a 42 year old African-American male. I...

Hello all, I'm a new member to the club and also been a "lurker" since the diagn...

•6 years ago

Whole gland HIFU erections

hi i am post 2 months after whole gland HIFU No nighttime spontaneous erections and erection during sex is not as hard as before Anybody have had a similar...

hi i am post 2 months after whole gland HIFU No nighttime spontaneous erections...

•6 years ago

Urgent reminder to all those on or going into ADT or recovering from surgery

Many of you have seen other posts where I recommend using my invention the JoyLoop or simply The Loop to help create and/or shore up erections. "Use it or Lose...

Many of you have seen other posts where I recommend using my invention the JoyLo...

•6 years ago

Study the Survivors

Nice editorial in Nature this week on the need to study cancer survivors https://www.nature.com/articles/d41586-019-01095-9 Here is a little if the link...

Nice editorial in Nature this week on the need to study cancer survivors https:/...

•6 years ago

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after prostate surgery problem

After prostate surgery my bladder is leaking internally , its been seven weeks and i still have catheter in, doctor says healing is slow. Most prostate surgery...

After prostate surgery my bladder is leaking internally , its been seven weeks a...

•6 years ago

A Long Journey To This Place

It was devastating news in early November to hear that Alan has aggressive prostate cancer (Gleason 4+3 in 20% of one core and 4+4 in 30% of a second core with...

It was devastating news in early November to hear that Alan has aggressive prost...

•6 years ago

Three months & 10 days after surgery

I had the RP in early January 2019. The post surgery path report was good. I'm still leaking a little...more than I thought I would at this point. I was...

I had the RP in early January 2019. The post surgery path report was good. I'...

•6 years ago

Prostatectomy in June 2018

New to the group. Biopsy in April 2018 showed cancer in prostate, Gleeson score of 8. Radical prostatectomy in June 2018. Post surgery pathology showed...

New to the group. Biopsy in April 2018 showed cancer in prostate, Gleeson score ...

•6 years ago

guess what: men with prostate cancer have depression!

Fervaha et al. Urol Onc: Seminars and Original Investigations 37(2019) 282-288 report that 1 in 6 men with CaP have depression. Some have suicidal...

Fervaha et al. Urol Onc: Seminars and Original Investigations 37(2019) 282-288 r...

•6 years ago

REZUM PROSTATE THERAPY

two weeks out lots of trips to bathroom,pain in penis and no bladder control

two weeks out lots of trips to bathroom,pain in penis and no bladder control

•6 years ago

Wine Guy

Hi all I'm new to this. Not used to discussing my health with anyone other than my Doctor. I.m 60 yrs. and had Hifu procedure done 4 yrs. ago. Had some...

Hi all I'm new to this. Not used to discussing my health with anyone other than...

•6 years ago

Herbal cleanse

Had RP in 2017 and radiation and ADT in 2018...I am now undetectable at <.014..I'm doing a liver and kidney cleanse with milk thistle and fenugreek, fenugreek...

Had RP in 2017 and radiation and ADT in 2018...I am now undetectable at <.014..I...

•6 years ago

New Member

Hi All, I guess I am one of the newer members of the club nobody wants to join. I have been lurking for a few weeks, but finally decided to spill my guts. I...

Hi All, I guess I am one of the newer members of the club nobody wants to join. ...

•6 years ago