Posts - Prostate Cancer Network | HealthUnlocked

Prostate Cancer Network

5,258 members•3,324 posts

All posts for November 2021

NCCN re-revises low-risk guidelines

This is probably a tempest in a teapot. NCCN, one of the top organizations that establishes the standard-of-care in the US, has once again changed its low-risk...

This is probably a tempest in a teapot. NCCN, one of the top organizations that ...

•3 years ago

Donating to HealthUnlocked or Malecare?

Two from our community asked how to contribute to HealthUnlocked. Apologies for the confusion. HealthUnlocked is a company that created the platform that...

Two from our community asked how to contribute to HealthUnlocked. Apologies for ...

Partner•3 years ago

Biopsy results of my father. Help with suggesting what I should be looking at.

Thank you so much for your inputs. My father finally had his MRI Fusion TRUS biopsy and below are the results. I am doing all the background work on what the...

Thank you so much for your inputs. My father finally had his MRI Fusion TRUS bio...

•3 years ago

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Acoustic wave and/or Shock wave therapy for ED

Has anyone here had any experience with acoustic wave or low intensity shock wave therapy to treat post radiation ED issues?

Has anyone here had any experience with acoustic wave or low intensity shock wa...

•3 years ago

Focal laser therapy or focal HDR Brachytherapy?

I have a 2 cm lession in the left apex. I'm considering either focal laser thereapy or HDR brachytherapy. ED and incontinence are my biggest concerns. Does...

I have a 2 cm lession in the left apex. I'm considering either focal laser there...

•3 years ago

Treatment-related regret

"Regrets, I've had a few, but then again... too few to mention: https://jamanetwork.com/journals/jamaoncology/fullarticle/2786406

"Regrets, I've had a few, but then again... too few to mention: https://jamanet...

•3 years ago

Brachy boost vs. monotherapy

Hi all, Been reading for a few weeks, and let me start by saying: Thanks! My situation: Active, athletic 60-year-old. Had biopsy 9/21 after PSA went up to...

Hi all, Been reading for a few weeks, and let me start by saying: Thanks! My sit...

•3 years ago

My MSK Precise / SBRT Journey -- Treatment #5

Well, I am happy to say, I had my fifth and final SBRT treatment at MSK in NYC on 11/15. It was a great feeling to ring the "treatment completion" bell that...

Well, I am happy to say, I had my fifth and final SBRT treatment at MSK in NYC o...

•3 years ago

HIFU Question

Was wondering if anyone has experience with HIFU. I know it’s practiced at UCI, Cleveland Clinic snd others. Any recommendations on specific doctors would be...

Was wondering if anyone has experience with HIFU. I know it’s practiced at UCI, ...

•3 years ago

Does ADT Reduce Ones Sense of Balance?

As a hiker, I have found that ADT has reduced my sense of balance. Before I got PCa, I did a lot of mountain climbing, which required a reasonable sense of...

As a hiker, I have found that ADT has reduced my sense of balance. Before I got ...

•3 years ago

Online misinformation and disinformation are big problems

The Surgeon General issued this report about it. It is a must-read for anyone looking for or providing advice online:...

The Surgeon General issued this report about it. It is a must-read for anyone lo...

•3 years ago

Starting SBRT

Hey folks, Sitting in Dana Farber waiting room for 1st of 5 sessions of SBRT on Mridian Viewray. Been on ADT (Orgovyx) for 2 of eventually 6 months. PSA 5.9, 5...

Hey folks, Sitting in Dana Farber waiting room for 1st of 5 sessions of SBRT on ...

•3 years ago

Cribriform? Is this a concerning pathological find?

Cribriform? Is this a concerning pathological find? All clear pathology. Tumor 1-5% of prostate, Gleason 3+4 (15% 4) cribriform present.

Cribriform? Is this a concerning pathological find? All clear pathology. Tumor 1...

•3 years ago

My MSK Precise / SBRT Journey -- Treatment #3

"The waiting is the hardest part..." I had my third treatment of MSK Precise / SBRT on 11/10 and more than 18 hours later, I am feeling fine. The side effects...

"The waiting is the hardest part..." I had my third treatment of MSK Precise / S...

•3 years ago

Just finished my SBRT treatment at MSKCC

It seems like a few members of this board are going through SBRT treatment at Memorial Sloan Kettering (MSK) right now. I just finished my five day course of...

It seems like a few members of this board are going through SBRT treatment at Me...

•3 years ago

My MSK Precise / SBRT Journey -- Treatment #2

I had my second SBRT session on Monday, 11/8, and just about 18 hours later, I am feeling pretty good. Last night, I was pretty tired/fatigued and conked out...

I had my second SBRT session on Monday, 11/8, and just about 18 hours later, I a...

•3 years ago

What does prostate cancer look like? A holiday art project.

Just for fun, please paint/draw/collage/(your choice of medium) a picture of how you imagine a prostate cancer cell (or cells) appear. Literally or (very)...

Just for fun, please paint/draw/collage/(your choice of medium) a picture of how...

Partner•3 years ago

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PSA bounce

I am 14 months post SBRT at UCSF. I had my latest PSA Friday it was 1.134 up from .740 6 months ago. Is this a normal bounce? The Dr said not to worry about it...

I am 14 months post SBRT at UCSF. I had my latest PSA Friday it was 1.134 up fro...

•3 years ago

Any help for ED after Radiation for prostate cancer? I have ben here before, but not for this problem!! Thanks for ANY help!!

Looking for ANY help with this problem ... anyone have a possible answer??

Looking for ANY help with this problem ... anyone have a possible answer??

•3 years ago

Formalin Treatment for Radiation Proctitis

Anyone know of side effects for Formalin treatment for chronic radiation proctitis (severe rectal bleeding). Tried APC, various suppositories, 40 HBOT...

Anyone know of side effects for Formalin treatment for chronic radiation proctit...

•3 years ago

My MSK Precise / SBRT Journey -- Treatment #1

Today I had my first SBRT treatment in earnest and it went very smoothly. I arrived on time and the first step was drinking a cup of water and then waiting 45...

Today I had my first SBRT treatment in earnest and it went very smoothly. I arr...

•3 years ago

Rising PSA after prosectomy

Hey guys want your thoughts. I had a prosectomy in March of 2020, which is approximately 18 months ago. All went well with minimal side affects. However,...

Hey guys want your thoughts. I had a prosectomy in March of 2020, which is ap...

•3 years ago

Denosumab side effects

I was diagnosed with PC in December 2020 (Gleeson 4+3). After PSMA PET scan found it has metasticised to pelvis, ribs, skull. I am taking Aberaterone and...

I was diagnosed with PC in December 2020 (Gleeson 4+3). After PSMA PET scan foun...

•3 years ago

Low T after one year off ADT/ Radiation. Undescended testicles at birth. Psa undetectable

I have been off ADT for one year. My 3+4 gleason score Pca was treated with 44 radiation treatments and lupron. My T has gone from 5 to 30 in 6 months. My uro...

I have been off ADT for one year. My 3+4 gleason score Pca was treated with 44 r...

•3 years ago

Missing the Target: One biopsy for deciding initial treatment

I have not seen anyone bring this up on our forum: The topic of using one biopsy to decide on initial treatment. Any discussion about AS includes advice to...

I have not seen anyone bring this up on our forum: The topic of using one biopsy...

•3 years ago