Posts - Prostate Cancer Network | HealthUnlocked

Prostate Cancer Network

4,944 members • 3,077 posts

All posts for December 2022

tonight none of us are alone

None of us are alone. Whatever agony, pain sadness or loneliness you feel is acknowledged as your genuine personal experience. No “post” can dispel or...

None of us are alone. Whatever agony, pain sadness or loneliness you feel is ac...

Partner•1 year ago

Introduce myself

Hello from Australia. So happy to have discovered this community. My health has recently taken a nose dive but I live a healthy life (food, body weight,...

Hello from Australia. So happy to have discovered this community. My health has ...

•1 year ago

erleada

I have been on erleada for 3 months and everything was fine .I suddenly broke out in a rash .I mean rash big time .I could not get hold of my Dr so I stopped...

I have been on erleada for 3 months and everything was fine .I suddenly broke o...

•1 year ago

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High risk treatment - go conventional or experimental?

Hello Folks, Lots of great posts and discussions on this site. I thought I'd come aboard and get some feedback. 58 yrs old great health except for Gleason...

Hello Folks, Lots of great posts and discussions on this site. I thought I'd co...

LongTimeRunning

•1 year ago

MRI with suspicious spots and negative biopsy

Just wanted an opinion. Let us say you see a high PIRAD score on MRI, but MRI-targeted biopsy is benign. Should that make you nervous? Talking to urologists at...

Just wanted an opinion. Let us say you see a high PIRAD score on MRI, but MRI-ta...

•1 year ago

PSA Bounce

I'm 3 yrs post SBRT for 3 + 4 gleason. After treatment PSA decreased gradually with a small bump to 0.5 and stayed at that level for two readings six months...

I'm 3 yrs post SBRT for 3 + 4 gleason. After treatment PSA decreased gradually w...

•1 year ago

"The human voice helps us understand our agony."

Malecare raises awareness and funds for prostate cancer research and treatment. Indeed, we are the only patient advocacy nonprofit that has patented several...

Malecare raises awareness and funds for prostate cancer research and treatment. ...

Partner•1 year ago

Nearly 7 years after diagnosis - it's decision time.

Happy holidays gang. I was hoping to put things off a bit longer but, rather reluctantly, think it's time I seriously considered treatment for my PC. I live in...

Happy holidays gang. I was hoping to put things off a bit longer but, rather rel...

•1 year ago

Welcome to our party

Consider this post an invitation to be a guest at a party where you bring food or a bottle of wine to contribute to the festivities. In this case, the party...

Consider this post an invitation to be a guest at a party where you bring food ...

Partner•1 year ago

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Stuck between deciding on IMRT CONDENSED and SBRT with 4 months ORGOVXY- Have Jan 12th date to make decision for UCLA (meet with Dr. Kishan)

I will give you the facts as I know them and who recommends each therapy: 1. I live near UCLA so convenience is not a factor ,however 20 IMRT...

I will give you the facts as I know them and who recommends each therapy: 1. I ...

•1 year ago

Think about the QoL (Quality of Life)

I had thought about posting this for the new year but wanted to express my intention for all of you to heal..........starting today. When I had cancer in two...

I had thought about posting this for the new year but wanted to express my inten...

•1 year ago

My 12 month Journey on Active Surveillance

Hi all, I wanted to share some positive news in hope that it may help others in a similar situation as myself. A bit of quick history - I have been...

Hi all, I wanted to share some positive news in hope that it may help others ...

•1 year ago

TO TAKE OR NOT TAKE ORGYVYX HORMONE WITH CARDIAC PROBLEMS.

I am scheduled for SBRT on 1/12/ 23 at UCLA. They are recommending 4 months of ORGYVYX/Regulix.(ADT HORMONE) (I have Afib , and other CARDIAC...

I am scheduled for SBRT on 1/12/ 23 at UCLA. They are recommending 4 months of O...

•1 year ago

Life Is Good until it's not...and it's not any more.

In to hospice this week. Boy their drugs sure work better than what I was able to get with my drs. After a few months of trial and error treatments, my...

In to hospice this week. Boy their drugs sure work better than what I was able ...

•1 year ago

Pain in the lower tailbone?

Just receiving my diagnosis post MRI and biopsy and don’t yet have a Gleason score but doc says 99% sure the tumor found in my prostate is cancer. For the last...

Just receiving my diagnosis post MRI and biopsy and don’t yet have a Gleason sco...

•1 year ago

Malecare is irrevocably tied to your health

You are Malecare's community and family, which is an excellent way to say that you will never be alone. We hope you will join our work by donating as much as...

You are Malecare's community and family, which is an excellent way to say that y...

Partner•1 year ago

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IMRT CONDENSED -4 Months ADT VS SBRT -4 Months ADT

The finding of the ECE after review by MSK increased my cancer to higher risk by my RO's. They are split , one recommending IMRT with 4 months rather than...

The finding of the ECE after review by MSK increased my cancer to higher risk b...

•1 year ago

Are there benefits of ADT Beyond 18 months?

Specifically, for high risk prostate cancer after EBRT plus LD brachytherapy, is there any evidence of benefit of extending ADT beyond 18 months?

Specifically, for high risk prostate cancer after EBRT plus LD brachytherapy, is...

•1 year ago

PATH REVIEW FROM MSK REREAD IDENTIFIES FOCAL" EPE" EXTRAPROSTATIC EXTENSION.

I just got the path review from Sloan Kettering : IT SAID: "In Part 4 (left posterior) they did identify FOCAL EXTRAPROSTATIC EXTENSION.." ...

I just got the path review from Sloan Kettering : IT SAID: "In Part 4 (left pos...

•1 year ago

Testosterone Levels -- Post SBRT

Would like to get some info/opinions on testosterone levels following SBRT. Background: I was treated for G7(3+4) prostate cancer at MSKCC in NYC in November...

Would like to get some info/opinions on testosterone levels following SBRT. Bac...

•1 year ago

ECE and CRIBRIFORM FOUND IN PATH REVIEW OF MSK BIOPSY BY UCSF

I am scheduled for SBRT at UCLA for 1/12/ 2023. However , UCSF did a path review of MSK's Biopsy report, and indicated that UCSF found additionally : 1....

I am scheduled for SBRT at UCLA for 1/12/ 2023. However , UCSF did a path revi...

•1 year ago

This is how to help you and us

Dear Particpants of Malecare's Prostate Cancer Community, I am asking you to support Malecare's help to men with prostate cancer and their families. Malecare...

Dear Particpants of Malecare's Prostate Cancer Community, I am asking you to su...

Partner•1 year ago

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Proctitis from Radiation

I had 27 sessions of IMRT in 2019 for prostate cancer. Even though I had the SpaceOAR procedure, I believe I have some rectal damage. Every now and then when I...

I had 27 sessions of IMRT in 2019 for prostate cancer. Even though I had the Spa...

•1 year ago

2 weeks post Surgery

2 Week after RALP Has not been too bad since surgery . Most of the pain was gone in 3 days. Getting the Catheter removed was a big relief. Urinary issue...

2 Week after RALP Has not been too bad since surgery . Most of the pain was g...

•1 year ago

Doc says lose the belly fat!

we went for a surgical consultation yesterday with Dr. Patel in Celebration, Fl. The visit went well. A little background; he is Gleason 7 (4+3), PSA 4.92,...

we went for a surgical consultation yesterday with Dr. Patel in Celebration, Fl....

•1 year ago

Not All Prostate Biopsies Are Alike!

I had my 4th prostate biopsy recently to pleasantly discover it wasn't painful, at all, perhaps a little uncomfortable at times, but not painful like my...

I had my 4th prostate biopsy recently to pleasantly discover it wasn't painful, ...

•1 year ago

Turn Chaos into Step by Step Action

Please donate at: https://malecare.org/donate

Please donate at: https://malecare.org/donate

Partner•1 year ago

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moderate hypofraction RT

how many oncologists and treatment centres are moving away from the standard of 6-8 weeks of RT to 4 weeks of moderate Hypofraction or even hypofaction? In all...

how many oncologists and treatment centres are moving away from the standard of ...

•1 year ago

Genetic testing

I am thinking of getting Prolaris genetic testing and also getting testing for the BRCA1 gene. A doctor friend told me that if the genetic testing comes back...

I am thinking of getting Prolaris genetic testing and also getting testing for t...

•1 year ago

PSA gone up again

got my blood results back for my 3 month PSA test and its gone up to 0.16, my urology nurse has got me an appointment with the consultant on Monday, is it...

got my blood results back for my 3 month PSA test and its gone up to 0.16, my ur...

•1 year ago

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