Posts - Prostate Cancer Network | HealthUnlocked

Prostate Cancer Network

4,941 members • 3,076 posts

All posts for March 2020

Lost Libido

In 2017 had 24 sessions of EBRT and 2 SBRT. Was on Lupron for 18 mos. I have been off ADT almost 2yrs. and have zero libido. Erections came back about a year...

In 2017 had 24 sessions of EBRT and 2 SBRT. Was on Lupron for 18 mos. I have bee...

•4 years ago

Not sleeping

Just finished last radiation treatment on Friday, March 27 During the day I am fine but once the sun goes down things change Frequently feel the need to pee...

Just finished last radiation treatment on Friday, March 27 During the day I am f...

•4 years ago

Test result report

Going to my urologist Tuesday for psa results and 3rd Lupron shot. Has anybody asked for their biopsy test results or xrays to see what the doctors go by? I...

Going to my urologist Tuesday for psa results and 3rd Lupron shot. Has anybody a...

•4 years ago

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^ monthly injections

Hi, I've just started the 6 monthly hormone injections in the bum, now my question is is it 6 calendar months ie:- 26 weeks, or 6 x 4 weeks :- 24 weeks?. the...

Hi, I've just started the 6 monthly hormone injections in the bum, now my questi...

davebakerpurton

•4 years ago

First post op PSA

I just had my 6 week follow up (by phone) My PSA is undetectable!! I repeat the test and visit in 6 weeks. And the urologist cleared me for my next operation...

I just had my 6 week follow up (by phone) My PSA is undetectable!! I repeat the...

•4 years ago

Please help us test out this walk at home platform

Please help us test out this Virtual Race/walk platform. It's free to sign up. Walkthrough the French Alps in your home for 20-30 minutes per day for five days...

Please help us test out this Virtual Race/walk platform. It's free to sign up. W...

Partner•4 years ago

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If you are 70 years or older, time to stay at home.

If you are 70 years or older, time to stay at home. In New York State, it's actually the law. Please watch this five-minute video by Malecare Board of Director...

If you are 70 years or older, time to stay at home. In New York State, it's actu...

Partner•4 years ago

Australian study on PSMA PET/CT vs CT + bone scan (March 2020)

"Interpretation PSMA PET-CT is a suitable replacement for conventional imaging, providing superior accuracy, to the combined findings of CT and bone scanning."...

"Interpretation PSMA PET-CT is a suitable replacement for conventional imaging, ...

•4 years ago

Recommend an integrated Dr.

Would like to have an integrated doctor to visit...somewhere between Santa Barbara and LA... Living in Camarillo (Ventura County)???

Would like to have an integrated doctor to visit...somewhere between Santa Barba...

•4 years ago

Treatment advice prostate cancer

Looking for treatment alternatives and good doctors for newly diagnosed prostate cancer 3+4 7, stage 2. There’s a lot of information out there. Difficult to...

Looking for treatment alternatives and good doctors for newly diagnosed prostate...

•4 years ago

Almond milk and cloudy urine

Up to, say, one month ago I added a little bit of fructose to sweeten my coffee. Then, I substituted fructose with almond milk and liked it more. I noticed...

Up to, say, one month ago I added a little bit of fructose to sweeten my coffee....

•4 years ago

ASL COVID-19 Information

I know many here are members of the deaf or hard of hearing community. Malecare has been transcribing all of our covid19 videos on Malecare.org. Here are the...

I know many here are members of the deaf or hard of hearing community. Malecare ...

Partner•4 years ago

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To any patients of Chris King at UCLA...

My mentor, Chris King, has left UCLA. Typical of him, he didn't want to abandon his patients. He asked me to reach out to any I knew to provide his personal...

My mentor, Chris King, has left UCLA. Typical of him, he didn't want to abandon ...

•4 years ago

Malecare's rapidly growing COVID-19 websection https://malecare.org/prostate-cancer-and-coronavirus-covid-19/

Malecares rapidly growing COVID-19 (for prostate cancer patients) websection. Please help us build this with your suggestions and questions that you would like...

Malecares rapidly growing COVID-19 (for prostate cancer patients) websection. Pl...

Partner•4 years ago

Four Brief and Calm COVID19 videos

Four (five minutes long) video's from Malecare Board of Director member Vincent Santillo, MD with relaxing and helpful Covid19 coronavirus suggestions. Let us...

Four (five minutes long) video's from Malecare Board of Director member Vincent ...

Partner•4 years ago

Why does Europe, Netherlands, do seven(7)sessions of radiation therapy and the US do up to forty-two (42)?

My radiation started concurrent with hormone therapy no delays waiting for hormone therapy 4-6 weeks

My radiation started concurrent with hormone therapy no delays waiting for hormo...

•4 years ago

HDR Brachytherapy and PSA numbers (what to expect)

I go back to the RO for my first 3 month check up in May 2020. Is there a rule of thumb on what kind of drop in PSA to expect or look for? peace

I go back to the RO for my first 3 month check up in May 2020. Is there a rule o...

•4 years ago

If you just had 2 sessions of HDR Brachytherapy

30 days ago, how compromised is your immune system? peace

30 days ago, how compromised is your immune system? peace

•4 years ago

RP and coronavirus

This may sound stupid. I had a RP 5 months]No radiation or chemo or anything. Does having RP surgery put me in a higher risk for coronavirus?

This may sound stupid. I had a RP 5 months]No radiation or chemo or anything. ...

•4 years ago

Covid19 symptom chart

Excellent chart

Excellent chart

Partner•4 years ago

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Radical prostatectomy successful - now what?

6 weeks after surgery and my recovery has progressed relatively well. My first post-surgery blood test showed my PSA score to be 'undetectable'. My urinary...

6 weeks after surgery and my recovery has progressed relatively well. My first p...

•4 years ago

Christmas in February (and August)

Another PSA blood test another undetectable. I cannot think of a better present than that. I know that is not the case with so many of my fellow PC patients. I...

Another PSA blood test another undetectable. I cannot think of a better present ...

•4 years ago

Prostate Cancer Genetic Testing

All prostate cancer does not behave the same. This can make deciding on a treatment plan difficult. Prostate cancer aggressiveness tests observe the biopsy...

All prostate cancer does not behave the same. This can make deciding on a treatm...

Partner•4 years ago

Progress update - one month after surgery

So my surgery was 5 weeks ago and I started back to work this past Monday. The surgery report was all pretty good, getting my first PSA soon. Mentally I’m...

So my surgery was 5 weeks ago and I started back to work this past Monday. The...

•4 years ago

Post IMRT questions

Have not been here for a while. I had IMRT about 14 months ago and have been on Lupron for a little longer. My Questions: Had a recent heart attack (minor) and...

Have not been here for a while. I had IMRT about 14 months ago and have been on ...

•4 years ago

The Journey Continues part 2

Dear all, Following from my visit to my RO he has advised that nothing should be done at the moment in terms of further treatment. I have another PSA test in...

Dear all, Following from my visit to my RO he has advised that nothing should be...

•4 years ago

End to active surviellance

I have been on active surveillance for eleven years. That has now ended. For the last couple of years my PSA has been slowly rising, doubling time, 3.0 to...

I have been on active surveillance for eleven years. That has now ended. For ...

GeoffNoLongerAS

•4 years ago

What next?

I had my Prostate removed about two years ago, then I did external beam radiation last year. Now my PSA is rising in the last 6 months from .1 to .27 My...

I had my Prostate removed about two years ago, then I did external beam radiatio...

•4 years ago

Bidet

Thank you for whoever commented and suggested a bidet. I got it this weekend and installed it Monday. While I’ve only used it once, I already believe I’ll...

Thank you for whoever commented and suggested a bidet. I got it this weekend and...

•4 years ago

Aggressive Clinical Trial Patient at JH

Hi, I’m happy to have found this network. I’m in a clinical trial at Johns Hopkins. My treatment course is more aggressive than standard and beyond obviously...

Hi, I’m happy to have found this network. I’m in a clinical trial at Johns Hop...

•4 years ago

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