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Pelvic Pain Support Network

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Pain after Salpingectomy

I’ve had pelvic pain in my LHS since the birth of my son in Oct 2021, and passed it off for a long time believing it to be a normal sort of pain that just...

I’ve had pelvic pain in my LHS since the birth of my son in Oct 2021, and passed...

Salpy1

•4 days ago

5 Replies

vulvodynia

I have had burning pain on and off on just one side of genital area, not inside for about a year. I almost feel like it was brought on by having a Brazilian...

I have had burning pain on and off on just one side of genital area, not inside ...

Mandy61

•11 days ago

4 Replies

anal/rectal irritation from Brukinsa

Is anyone else in the group on Brukinsa for a blood cancer? Two days after starting it, I’m having a flare up of anal/rectal irritation. I had about 5 pretty...

Is anyone else in the group on Brukinsa for a blood cancer? Two days after start...

Andilynn

•12 days ago

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pelvic pain post hysterectomy

I have suffered from heavy periods for years and have had ovarian cysts, fibroids, prolapse and endometriosis. I have had many awful things like flooding in...

I have suffered from heavy periods for years and have had ovarian cysts, fibroid...

HappyBaker

•13 days ago

3 Replies

Lyrica for nerve pelvic pain

has anyone been prescribed Lyrica for nerve pain? I am coming off notriptyline and moving onto Lyrica. 50mg in the morning and 50mg at night. online there’s...

has anyone been prescribed Lyrica for nerve pain? I am coming off notriptyline a...

PainNoPain

•19 days ago

17 Replies

Pudendal surgery Successful recovery 🙏🏼

I want to share my story of overcoming pelvic floor pain, in hope to help others receive the same help I got. I lived with this pain for seven years. At 24,...

I want to share my story of overcoming pelvic floor pain, in hope to help others...

Hans78

•22 days ago

12 Replies

Anyone have experience of Pudendal implant electrode simulator?

Hi Has anyone out there had a implant consisting of some electrodes or simulators etc to help with chronic nerve pain. I have been potentially offer to have...

Hi Has anyone out there had a implant consisting of some electrodes or simulator...

Jobie18

•22 days ago

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Still in pain….

Hi All How’s it your pain today? have you all had enough of suffering in silence? Just a simple sitting position you’re in pain? I posted a while back on...

Hi All How’s it your pain today? have you all had enough of suffering in silen...

PainNoPain

•22 days ago

5 Replies

In 24/7 pelvic pain since 3 years - no diagnosis or treatment

Hi, I'm a 28 year old woman from Germany. I've had IBS since 16, never received any effective help (not for lack of trying on my part) so I've subsisted on an...

Hi, I'm a 28 year old woman from Germany. I've had IBS since 16, never received ...

Foxgloves96

•27 days ago

9 Replies

pelvic congestion syndrome

Hi there, I’m just wondering if anyone has had a successful ovarian vein embolisation procedure? I have a triple prolapse, endometriosis, adenomyosis and...

Hi there, I’m just wondering if anyone has had a successful ovarian vein embol...

Belle2024

•28 days ago

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nearly 5 years now, still none the wiser..

So its been nearly 5 years since i had pain start on my right side below ribs, since then pain has increased and expanded ( now includes whole pelvis, low...

So its been nearly 5 years since i had pain start on my right side below ribs, s...

rubine7521

•1 month ago

2 Replies

Incontinence advice.

Hello Ladies. I wonder if anyone has any advice as to which incontinence product works best. I have a prolapse and wear Always towels which, up to now, have...

Hello Ladies. I wonder if anyone has any advice as to which incontinence product...

Keys2theworld

•1 month ago

14 Replies

Massachusetts

anyone know any dr in Massachusetts Boston area that treats pudendal neuralgia.

anyone know any dr in Massachusetts Boston area that treats pudendal neuralgia. ...

Ishtar21

•1 month ago

1 Reply

pudendal nerve decompression surgery

hi, has anyone had surgery for pudendal neuralgia within the UK and can recommend anyone? Thanks in advance.

hi, has anyone had surgery for pudendal neuralgia within the UK and can recommen...

kate46

•1 month ago

6 Replies

Vaginal swab results are weird and GP won't see me

So I have been suffering with pelvic pain for 10 months now. About 2 weeks ago, I went to the GP for the umpteenth time to ask for help. The woman I saw did a...

So I have been suffering with pelvic pain for 10 months now. About 2 weeks ago, ...

CookieLover101

•2 months ago

3 Replies

chronic recurring PID

just looking for some advice. I have been struggling with chronic PID for the last seven years. I have been gaslit by the NHS, suffered extensive delays...

just looking for some advice. I have been struggling with chronic PID for th...

hannahb05

•2 months ago

9 Replies

Rectocele repair - struggling to poop!

I had surgery to repair a rectocele prolapse on Sunday (4 days ago). I've been taking Laxido, psyllium and drinking plenty of water, probably a bit too much to...

I had surgery to repair a rectocele prolapse on Sunday (4 days ago). I've been t...

Mummybear0213

•2 months ago

4 Replies

Argh - what on earth is wrong with me?

Big sigh... I have no clue what is wrong with me. I've had a niggling pain deep in my right pelvis area probably for about a year now. It's almost hard to...

Big sigh... I have no clue what is wrong with me. I've had a niggling pain deep...

endotheline

•2 months ago

11 Replies

Is this Pudendal Neuralgia?

Hi all, new here and desperate for help. I started with bladder irritation, like UTI full bladder after urination feelings back in May 2023. Did all the tests...

Hi all, new here and desperate for help. I started with bladder irritation, lik...

Silverstaruk

•2 months ago

24 Replies

pessary short vaginal passage

looking for advise. I had a bladder prolapse op 8 years ago failed in less than a year. Prior to that had tried ring/ doughnut pessary but was told as I had a...

looking for advise. I had a bladder prolapse op 8 years ago failed in less than ...

Maisiemugwump

•2 months ago

2 Replies

Dealing with Shame

I'm 21 and have had vaginismus for as long as I can remember. I've never been able to use a tampon or even insert my full pinky finger inside myself. It took...

I'm 21 and have had vaginismus for as long as I can remember. I've never been ab...

Nerd222

•2 months ago

1 Reply

Endrometri cyst?

Has anyone had experience of this type of cyst on or near ovary? Endrometri cyst? Not even sure if I've spelt that right. I've just had nightmare week after...

Has anyone had experience of this type of cyst on or near ovary? Endrometri cyst...

Hannah818

•2 months ago

18 Replies

Study indicates parabens positively associated with prostate cancer risk

Too late for us but probably best to try and avoid parabens. Relationship between exposure to parabens and benzophenones and prostate cancer risk in the...

Too late for us but probably best to try and avoid parabens. Relationship betwe...

Graham49

•2 months ago

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Back in a hospital bed 😪

I really thought my vagina and stomach was going to burst open Friday n Saturday and was in such horrible pain. Think the paramedics thought I was moaning...

I really thought my vagina and stomach was going to burst open Friday n Saturday...

Hannah818

•2 months ago

1 Reply

pain near perineum

since having a total hysterectomy in 2019 for very early stage cancer which cured it I have developed nagging pain near the perineum which at times feels as if...

since having a total hysterectomy in 2019 for very early stage cancer which cure...

Lara1244

•2 months ago

14 Replies

pelvic pain

hi everyone ive never posted before but im at my wits end too i dont know how many doctors im suppose to go to ive gone to a lot of doctors and i cant get the...

hi everyone ive never posted before but im at my wits end too i dont know how ma...

frankle77

•2 months ago

2 Replies

Help i am dying pls 🙏

Want very urgent information about Peritoneal tb"Hello everyone, I'm reaching out for support and advice. Six months ago, I was diagnosed with peritoneal TB....

Want very urgent information about Peritoneal tb"Hello everyone, I'm reaching o...

Painlover

•2 months ago

1 Reply

Teenager struggling right now

hello! I have three children. One is a teenager and the other two are 9 and 11 years old. All of them have dealt with bedwetting and bladder problems...

hello! I have three children. One is a teenager and the other two are 9 and 11 y...

JenniferSee

•2 months ago

1 Reply

Botox injections helped when nothing else did

I experienced Pudendal Neuralgia pain for almost 2 years after an MVA into my pelvis, fracturing my sacrum. Tried everything, pain injections, lyrica,...

I experienced Pudendal Neuralgia pain for almost 2 years after an MVA into my pe...

Crofem

•2 months ago

11 Replies

vulvodynia

after seeing a private consultant today, this is my new diagnosis, come off Duloxetine and try amatriptuline, meditation, cognitive therapy and a tens machine....

after seeing a private consultant today, this is my new diagnosis, come off Dulo...

Aprilbaby24

•2 months ago

3 Replies

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Posts - Pelvic Pain Support Network | HealthUnlocked

Pelvic Pain Support Network

Pain after Salpingectomy

vulvodynia

anal/rectal irritation from Brukinsa

pelvic pain post hysterectomy

Lyrica for nerve pelvic pain

Pudendal surgery Successful recovery 🙏🏼

Anyone have experience of Pudendal implant electrode simulator?

Still in pain….

In 24/7 pelvic pain since 3 years - no diagnosis or treatment

pelvic congestion syndrome

nearly 5 years now, still none the wiser..

Incontinence advice.

Massachusetts

pudendal nerve decompression surgery

Vaginal swab results are weird and GP won't see me

chronic recurring PID

Rectocele repair - struggling to poop!

Argh - what on earth is wrong with me?

Is this Pudendal Neuralgia?

pessary short vaginal passage

Dealing with Shame

Endrometri cyst?

Study indicates parabens positively associated with prostate cancer risk

Back in a hospital bed 😪

pain near perineum

pelvic pain

Help i am dying pls 🙏

Teenager struggling right now

Botox injections helped when nothing else did

vulvodynia

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