Posts - Pelvic Pain Support Network | HealthUnlocked

Pelvic Pain Support Network

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Clitoral pain, loss of sensation and injury

I've experienced itching and soreness in my vulva for over a year, as well as clitoral sensitivity and irritation. I started experiencing loss of sensation...

I've experienced itching and soreness in my vulva for over a year, as well as cl...

Limey8

•17 hours ago

2 Replies

At last, something that helps ….

I’ve suffered from pelvic pain for the last 12 years, finding very little to alleviate the pain. A week ago, at the suggestion from family and friends, I...

I’ve suffered from pelvic pain for the last 12 years, finding very little to all...

jellybeanjojo

•4 days ago

16 Replies

People with tight pelvic floor

Hi it’s me again - happy new year I know , it’s awful , spent Christmas in silence suffering while everyone could sit without issues. Im still trying to beat...

Hi it’s me again - happy new year I know , it’s awful , spent Christmas in sile...

PainNoPain

•9 days ago

5 Replies

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Pudendal neuralgia and sleeping

Does anyone have an tips for being able to sleep at night with this.My amitriptyline worked well for sleep for 2 weeks then started to wear off, as soon as I...

Does anyone have an tips for being able to sleep at night with this.My amitripty...

Hedgerow14

•9 days ago

8 Replies

Pudendal neuralgia

Hi I have recently been diagnosed with this awful condition. I have been taking amitriptyline for 3 weeks, it helped a little initially but has now stopped...

Hi I have recently been diagnosed with this awful condition. I have been takin...

Hedgerow14

•11 days ago

20 Replies

Pelvic Floor Trainer Devices....any good with a prolapse ?

Hi, Just wondering if anyone can help with answers for use of these devices while having a prolapse please. I do my pelvic floor exercise's regularly but...

Hi, Just wondering if anyone can help with answers for use of these devices wh...

SoulSoul

•14 days ago

4 Replies

pelvic floor muscle spasms

I noticed a vibrating feeling in my pelvic area first of this year. I googled it was informed it's probably pelvic floor muscle spasms. I take magnesium...

I noticed a vibrating feeling in my pelvic area first of this year. I googled it...

loubyrd

•15 days ago

1 Reply

MRI proctogram

Has anyone had an MRI proctogram or similar? I've had ibs for 28 years now and tried so many things to help. Haven't had much help thru the nhs. I now suffer...

Has anyone had an MRI proctogram or similar? I've had ibs for 28 years now and t...

Jem7

•17 days ago

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acupuncture

hi, has anyone tried acupuncture for their pain? Next step I’m considering x

Aprilbaby24

•19 days ago

12 Replies

Vagifem - Dementia risk

Hi, I’ve just been put on Vagifem for painful vaginal atrophy and reading small print (& online) there’s a risk of dementia for starting it at age 65. I’m 64...

Hi, I’ve just been put on Vagifem for painful vaginal atrophy and reading small...

Trewince01

•21 days ago

4 Replies

Left my job due to surgical menopause/crohnic pelvic pain :(

To cut a very long story short. I'm 50 had a full hysterectomy (including ovaries) in February and was put on Oestrogel 8 weeks later. I was told I needed to...

To cut a very long story short. I'm 50 had a full hysterectomy (including ovarie...

Mindfullness4791

•22 days ago

15 Replies

tried most.

took one pill of carbamazepine. Had convulsion threw up for 6 hours and had gerd for 5 months. Gabapentin I can take up to 1800 mg a day. Very little side...

took one pill of carbamazepine. Had convulsion threw up for 6 hours and had gerd...

Virginiapn

•25 days ago

2 Replies

rodger roberts

does anyone know how to get in contact with Rodger Roberts PNE specialist in Nantes France?

does anyone know how to get in contact with Rodger Roberts PNE specialist in Na...

totoyaya

•27 days ago

5 Replies

Back pain with Anterior Prolapse

Hi, I'm new to the site and most importantly new to this prolapse I have been suffering with for the last 6 weeks. I am an active and otherwise fit 63...

Hi, I'm new to the site and most importantly new to this prolapse I have been su...

SoulSoul

•29 days ago

7 Replies

Change in Periods and Uterus Position

I have been suffering with pelvic pain for about a year now. About a month after the symptoms first started, I was referred for an ultrasound of my uterus and...

I have been suffering with pelvic pain for about a year now. About a month after...

CookieLover101

•1 month ago

1 Reply

At a loss, confused at my symptoms

Hello everyone thank you to whoever reads this and i hope i don't end up writing a novel anyway here goes. 7 years ago i had intense aching on my lower legs...

Hello everyone thank you to whoever reads this and i hope i don't end up writin...

Sonnyh

•1 month ago

7 Replies

Scrunched up feeling in anus?

Hello, I have POP surgery for uterus prolapse and perineum repair 3 months ago. Daily I have a scrunched up feeling in my anus/ rectum that builds after a...

Hello, I have POP surgery for uterus prolapse and perineum repair 3 months ago. ...

Hidden

•1 month ago

2 Replies

Let’s Share Helpful Tips for Management of Vulvar Pain

Let’s share the everyday strategies we use to manage our chronic conditions. I recall a person on this network talking about a pillow that provided relief that...

Let’s share the everyday strategies we use to manage our chronic conditions. I r...

IndieLee

•1 month ago

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My Journey with Ankylosing Spondylitis (10-year journey)

It all began subtly during my college years—symptoms that seemed trivial at the time but would soon change my life forever. Fatigue weighed heavily on me,...

It all began subtly during my college years—symptoms that seemed trivial at the ...

Albatrossss

•1 month ago

4 Replies

amatriptyline

hi, after trying a lot of meds for vulvodynia, they put me on amatriptyline and fazed out Duluxetine. What a nightmare!!!! Nightmares being one of the...

hi, after trying a lot of meds for vulvodynia, they put me on amatriptyline and ...

Aprilbaby24

•1 month ago

9 Replies

Pain after Salpingectomy

I’ve had pelvic pain in my LHS since the birth of my son in Oct 2021, and passed it off for a long time believing it to be a normal sort of pain that just...

I’ve had pelvic pain in my LHS since the birth of my son in Oct 2021, and passed...

Salpy1

•1 month ago

5 Replies

vulvodynia

I have had burning pain on and off on just one side of genital area, not inside for about a year. I almost feel like it was brought on by having a Brazilian...

I have had burning pain on and off on just one side of genital area, not inside ...

Mandy61

•2 months ago

4 Replies

anal/rectal irritation from Brukinsa

Is anyone else in the group on Brukinsa for a blood cancer? Two days after starting it, I’m having a flare up of anal/rectal irritation. I had about 5 pretty...

Is anyone else in the group on Brukinsa for a blood cancer? Two days after start...

Andilynn

•2 months ago

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pelvic pain post hysterectomy

I have suffered from heavy periods for years and have had ovarian cysts, fibroids, prolapse and endometriosis. I have had many awful things like flooding in...

I have suffered from heavy periods for years and have had ovarian cysts, fibroid...

HappyBaker

•2 months ago

3 Replies

Lyrica for nerve pelvic pain

has anyone been prescribed Lyrica for nerve pain? I am coming off notriptyline and moving onto Lyrica. 50mg in the morning and 50mg at night. online there’s...

has anyone been prescribed Lyrica for nerve pain? I am coming off notriptyline a...

PainNoPain

•2 months ago

20 Replies

Pudendal surgery Successful recovery 🙏🏼

I want to share my story of overcoming pelvic floor pain, in hope to help others receive the same help I got. I lived with this pain for seven years. At 24,...

I want to share my story of overcoming pelvic floor pain, in hope to help others...

Hans78

•2 months ago

12 Replies

Anyone have experience of Pudendal implant electrode simulator?

Hi Has anyone out there had a implant consisting of some electrodes or simulators etc to help with chronic nerve pain. I have been potentially offer to have...

Hi Has anyone out there had a implant consisting of some electrodes or simulator...

Jobie18

•2 months ago

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Still in pain….

Hi All How’s it your pain today? have you all had enough of suffering in silence? Just a simple sitting position you’re in pain? I posted a while back on...

Hi All How’s it your pain today? have you all had enough of suffering in silen...

PainNoPain

•2 months ago

6 Replies

In 24/7 pelvic pain since 3 years - no diagnosis or treatment

Hi, I'm a 28 year old woman from Germany. I've had IBS since 16, never received any effective help (not for lack of trying on my part) so I've subsisted on an...

Hi, I'm a 28 year old woman from Germany. I've had IBS since 16, never received ...

Foxgloves96

•2 months ago

9 Replies

pelvic congestion syndrome

Hi there, I’m just wondering if anyone has had a successful ovarian vein embolisation procedure? I have a triple prolapse, endometriosis, adenomyosis and...

Hi there, I’m just wondering if anyone has had a successful ovarian vein embol...

Belle2024

•2 months ago

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Write a post or ask a question

Posts - Pelvic Pain Support Network | HealthUnlocked

Pelvic Pain Support Network

Clitoral pain, loss of sensation and injury

At last, something that helps ….

People with tight pelvic floor

Pudendal neuralgia and sleeping

Pudendal neuralgia

Pelvic Floor Trainer Devices....any good with a prolapse ?

pelvic floor muscle spasms

MRI proctogram

acupuncture

Vagifem - Dementia risk

Left my job due to surgical menopause/crohnic pelvic pain :(

tried most.

rodger roberts

Back pain with Anterior Prolapse

Change in Periods and Uterus Position

At a loss, confused at my symptoms

Scrunched up feeling in anus?

Let’s Share Helpful Tips for Management of Vulvar Pain

My Journey with Ankylosing Spondylitis (10-year journey)

amatriptyline

Pain after Salpingectomy

vulvodynia

anal/rectal irritation from Brukinsa

pelvic pain post hysterectomy

Lyrica for nerve pelvic pain

Pudendal surgery Successful recovery 🙏🏼

Anyone have experience of Pudendal implant electrode simulator?

Still in pain….

In 24/7 pelvic pain since 3 years - no diagnosis or treatment

pelvic congestion syndrome

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