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Pelvic Pain Support Network

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Anyone have experience of Pudendal implant electrode simulator?

Hi Has anyone out there had a implant consisting of some electrodes or simulators etc to help with chronic nerve pain. I have been potentially offer to have...

Hi Has anyone out there had a implant consisting of some electrodes or simulator...

Jobie18

•2 days ago

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Is this Pudendal Neuralgia?

Hi all, new here and desperate for help. I started with bladder irritation, like UTI full bladder after urination feelings back in May 2023. Did all the tests...

Hi all, new here and desperate for help. I started with bladder irritation, lik...

Silverstaruk

•1 month ago

24 Replies

Back in a hospital bed 😪

I really thought my vagina and stomach was going to burst open Friday n Saturday and was in such horrible pain. Think the paramedics thought I was moaning...

I really thought my vagina and stomach was going to burst open Friday n Saturday...

Hannah818

•1 month ago

1 Reply

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4 years to be diagnosed correctly with a perineal hernia by the incompetent, catastrophic NHS

After being misdiagnosed with a vaginal prolapse in 2022 (I had to wait 2 years to be seen since 2020) The surgeon said scans unnecessary & carrying out a...

After being misdiagnosed with a vaginal prolapse in 2022 (I had to wait 2 years ...

GeetarGirl

•2 months ago

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Treatment has hit a wall. I can not sit without pain.

I have not been able to sit without horrid pain since August. I did too much — and I have not recovered. On top of that, the nerve blocks I have been getting...

I have not been able to sit without horrid pain since August. I did too much — a...

kellerfly

•6 months ago

39 Replies

Patroleum Jelly as a protective barrier for the clitoris and inner lips (away from vagina opening) while healing from an abrasion/cut/burn?

Hello, Me and my husband had sex during a house renovation, following this I started with strong burning/pain in the clitoris area and inner lips. I’ve been...

Hello, Me and my husband had sex during a house renovation, following this I st...

Redskytonight

•7 months ago

7 Replies

TOA advice!

hi all, Looking for some advice after seeing previous posts about tuboovarian abscess. I was admitted to hospital for 5 days approx 3 weeks ago after waking...

hi all, Looking for some advice after seeing previous posts about tuboovarian ...

goldmonkey_

•7 months ago

2 Replies

Suspected Vulvadynia? Severe and constant clitoris pain/burning with some pain underneath. All exacerbated by sitting/walking/weeing.

Me and my husband had sex over 6 weeks ago a few days after I began with burning type pain mainly at the front around my clitoris but it did seem to radiate...

Me and my husband had sex over 6 weeks ago a few days after I began with burning...

Redskytonight

•8 months ago

13 Replies

Can Pudendal neuralgia cause ovary pain as main symptom?

Hello, TL;DR: Mainly pain in ovaries, always worse right before periods, can it still be PN? Or does that make it more likely that it is something else...

Hello, TL;DR: Mainly pain in ovaries, always worse right before periods, can it...

Cattrance

•10 months ago

4 Replies

Prucalopride & Pelvic floor pain

Hi I have been suffering from rectal & pelvic floor pain for last 18 months. 2 months ago I was placed on Prucalopride as the magnesium citrate they I was...

Hi I have been suffering from rectal & pelvic floor pain for last 18 months. 2...

Hopetobewell

•11 months ago

8 Replies

Endometriosis surgery with pelvic floor dysfunction

Hello all, I’m writing to see if anyone here who has pelvic floor dysfunction has also had endometriosis surgery? I’ve been getting Botox injections every 6...

Hello all, I’m writing to see if anyone here who has pelvic floor dysfunction h...

Orange8

•11 months ago

13 Replies

Diagnosis of Pudendal Neuralgia - 43, Female, Asia

Hello all, First of all, I am so glad to have found this group where people understand the debility that an illness like Pudendal Neuralgia [PN] causes. I had...

Hello all, First of all, I am so glad to have found this group where people unde...

Moonsorrow

•1 year ago

28 Replies

long term vulvodynia sufferer

Hi. I was diagnosed with volvodynia in roughly 2018 after years of suffering. It started with recurrent thrush and BV, starting back in the 90s and peaking in...

Hi. I was diagnosed with volvodynia in roughly 2018 after years of suffering. I...

Yellow_Sunshine

•1 year ago

17 Replies

Prolapse 10 months after giving birth.

I had an forceps and episiotomy delivery 10 months ago and have a stage 2 prolapse. Although the bulge feeling has improved I still get pain in my lower...

I had an forceps and episiotomy delivery 10 months ago and have a stage 2 prolap...

Kibble

•1 year ago

1 Reply

Pelvic conjestion syndrome

Hello, for over a year now I've been having chronic pelvic pain, I went to the GP 4 months ago and got a ultrasound referral. They suspect it could be pelvic...

Hello, for over a year now I've been having chronic pelvic pain, I went to the G...

Abarc

•1 year ago

8 Replies

Pain that worsens upon movement? And triggers longer episodes of pelvic pain if I’ve been lifting or especially walking anywhere.

So, just over 3 years ago, I had a tubo-ovarian abscess, which I was in hospital for around a week with… It’s likely that this may have been caused by the coil...

So, just over 3 years ago, I had a tubo-ovarian abscess, which I was in hospital...

Mumof2teenagers

•1 year ago

10 Replies

PTSD after 13 years being probed for pelvic dysfunction

I have been through every treatment and procedure for pelvic dysfunction for 13 years. When I first had it felt like a had a ball in my rectum.I am a very...

I have been through every treatment and procedure for pelvic dysfunction for 13...

razzle51

•2 years ago

3 Replies

Pain Specialist conversation

Hello everyone, I’m super new here and I’ve been looking around a bit so I wanted to make a post. I have had undiagnosed chronic pelvic pain for over 8 years,...

Hello everyone, I’m super new here and I’ve been looking around a bit so I want...

Cathrynsr97

•2 years ago

4 Replies

Pelvic Pain in one spot, chronic.

Hello, I'm 53 and had endometriosis. (Removed left ovary and tube 19 years ago.)I was almost officially in menopause last year and, I had an ovarian cyst. It...

Hello, I'm 53 and had endometriosis. (Removed left ovary and tube 19 years ago.)...

hotterthanhale

•2 years ago

2 Replies

heavy bleeding and severe pain

I miscarried on Christmas day and bled until 18th Jan, I’ve just began bleeding again yesterday and the flow is extremely heavy and painful. Any movement or...

I miscarried on Christmas day and bled until 18th Jan, I’ve just began bleeding...

Stuck_Indoors

•2 years ago

3 Replies

trigger point and nerve injections

Has anyone had pelvic floor trigger point injections or ilioinguinal, iliohypogastric and genitofemoral nerve infiltrations? Doctor has scheduled me for both...

Has anyone had pelvic floor trigger point injections or ilioinguinal, iliohypoga...

hannah11

•2 years ago

6 Replies

Chronic vulvar pain experts in the UK

I'm trying to find specialists or clinics in the UK who specialize in vulvar pain/vulvodynia, but not many seem to come up. I'm only looking for places that...

I'm trying to find specialists or clinics in the UK who specialize in vulvar pai...

Rose996

•2 years ago

1 Reply

Lyrica v Cymbalta

Hello everyone! I have been suffering with PN for about a year and have tried physical therapy and nerve blocks with little success. I have been hesitant...

Hello everyone! I have been suffering with PN for about a year and have tried p...

Mshrink

•2 years ago

7 Replies

Does anyone know of any exercises you can do with an umbilical hernia?

Without it resulting in sticking out and causing intense sharp pain. Even exercises around the house would help. I would be most grateful for any advice...

Without it resulting in sticking out and causing intense sharp pain. Even ex...

Lotus-Blossom

•2 years ago

2 Replies

Constant pain in lower abdomen

Hi everyone, I have been having constant pain in my lower belly/abdomen since Thursday last week. It was so painful I went to A and E and was told it was...

Hi everyone, I have been having constant pain in my lower belly/abdomen since Th...

Bec9878

•2 years ago

3 Replies

chronic pain

Hello all, first time posting. I've had chronic pain on moving for over ten years, can't remember when it started. My pain is threefold, all on walking. 1.pain...

Hello all, first time posting. I've had chronic pain on moving for over ten year...

artcave

•2 years ago

2 Replies

Zoloft alternative??? Chronic prostatitis and pelvic floor pain caused by SSRIs.

Hello. I’ve had such a horrible experience with Zoloft for years and never saw it coming. Intense pelvic pain, penile burning, cramps, tightness, all more...

Hello. I’ve had such a horrible experience with Zoloft for years and never saw i...

JLatore

•2 years ago

5 Replies

At the end of my tether

When I had sepsis two years ago i ended up in hospital , when I was discharged I was told I would be under a Gynaecologist, I have still not had a one to...

When I had sepsis two years ago i ended up in hospital , when I was discharged I...

Lamly

•2 years ago

2 Replies

Gynaecological / pelvic exam pain ?

I have a gynaecological exam coming up but I also have likely pudendal neuralgia and do have vulvodynia so I’m terrified that this is going to hurt terribly....

I have a gynaecological exam coming up but I also have likely pudendal neuralgia...

Hidden

•2 years ago

2 Replies

Rectal Prolapse since a child, advice needed. Kegels help?

Im around 23 years old now, I have had a full rectal prolapse for as long as I can remember as a kid proabbly around 12-13 maybe younger. I was so stupid I...

Im around 23 years old now, I have had a full rectal prolapse for as long as I c...

fml654321

•2 years ago

2 Replies

Write a post or ask a question

Posts - Pelvic Pain Support Network | HealthUnlocked

Pelvic Pain Support Network

All things Pelvic Pain Support Network posts

Anyone have experience of Pudendal implant electrode simulator?

Is this Pudendal Neuralgia?

Back in a hospital bed 😪

4 years to be diagnosed correctly with a perineal hernia by the incompetent, catastrophic NHS

Treatment has hit a wall. I can not sit without pain.

Patroleum Jelly as a protective barrier for the clitoris and inner lips (away from vagina opening) while healing from an abrasion/cut/burn?

TOA advice!

Suspected Vulvadynia? Severe and constant clitoris pain/burning with some pain underneath. All exacerbated by sitting/walking/weeing.

Can Pudendal neuralgia cause ovary pain as main symptom?

Prucalopride & Pelvic floor pain

Endometriosis surgery with pelvic floor dysfunction

Diagnosis of Pudendal Neuralgia - 43, Female, Asia

long term vulvodynia sufferer

Prolapse 10 months after giving birth.

Pelvic conjestion syndrome

Pain that worsens upon movement? And triggers longer episodes of pelvic pain if I’ve been lifting or especially walking anywhere.

PTSD after 13 years being probed for pelvic dysfunction

Pain Specialist conversation

Pelvic Pain in one spot, chronic.

heavy bleeding and severe pain

trigger point and nerve injections

Chronic vulvar pain experts in the UK

Lyrica v Cymbalta

Does anyone know of any exercises you can do with an umbilical hernia?

Constant pain in lower abdomen

chronic pain

Zoloft alternative??? Chronic prostatitis and pelvic floor pain caused by SSRIs.

At the end of my tether

Gynaecological / pelvic exam pain ?

Rectal Prolapse since a child, advice needed. Kegels help?

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