Hi everyone I had chronic pelvic pain 9 years in the making been through every test going all normal even though I have fibroids I'm still at my wits ends no further in neither better in the way of pain I am with the pain management at the walton centre
I just wanted ask you all has anyone's pain better through Physio exercises please 🙏
Definitely! Find a specialist physiotherapist. Even if this is not the answer, you should get some advice as to what you need to do. Good luck!
Like the other person, definitely. I wouldn't be where I am today if it wasn't for my pelvic floor physio. I have been seeking her for 2 years now. However, make sure it is a pelvic floor physio not just a physio.He or she will be able to give you some good advice.
Take care
I went through 8 years of pelvic PTs (tried over 20 of them) and only got worse- it helps some but is not for everyone and can be a huge waste of money. Worth a try but don't expect anything or you may be very disappointed.
Hi. Same with me. I had a pinched nerve in my groin near my rectum. A PT did internal work and made me even more injured. I quit going.
Same here, I tried PT with the proper specialist for 4-5 months, only seemed to get worse, though I would attempt it again with another PT specialist, maybe there are numerous ways to handle the situation, and one does different than the other.
Thank you 🙏
Thank you 🙏
I have also suffered from Pudendal Neuralgia for many years. I had seen many urologists for this and none had any idea what was wrong with me. Most performed cystoscopy procedures / prescribed Cipro and then told me it was in my “head”.
I finally found a doctor that knew what the problem was the instant I met him. He suggested I see a Physical Therapist that specialized in treating this type of medical issue. Note: this doc has since retired.
I was lucky to find a PT that was located close to me that literally saved my life. I am pretty much pain free for 95% of the time and she taught me how to self-treat when I have flare ups. I go once a month for a tune up to be sure I am OK.
Daily Meds: I take 150 MG of Pregabalin in the AM / PM & 20 MG of Duloxetene in PM
Here are two websites that will help with information:
pudendalhope.info/ - this one also has listings of PT's around the world.
health.usnews.com/health-ne...
I also found a book that helped me as well: “A headache in the Pelvis” which you can find on Amazon.
Good Luck!
Thank you Robert I'm so glad you eventually found what you have been searching for and that it's helped you tremendously I will certainly look into the health.usnews.com I do believe there probably isn't enough dr who are experienced in that of what we are all going through to say it is all your head the audacity of it cheers again
I hope you find relief as well. The book really helped me.
😊
I found a great pelvic floor physio in Ireland through pudendalhope.info website. She does internal massage and also works on my back as the pain is referred to my spine when I sit down. Definitely need one that specialises in this area. She name is Maeve Whelan at Milltown physio, Dublin.
Cheers will definitely be very helpful for those who are in Ireland
Hello there. So sorry to hear another beautiful lady is suffering. Mine is probably about 10 years and I am up the wall. However I have something wonderful to share with you. A friend recently sent me an app called the buff muff challenge. buffmuff.comIt's a pelvic floor program and it has helped me quite a bit. It gives so much information , videos, and how to do kegel exercises correctly. Good luck. Let me know how you get on. I'm on day 20 of the 28 day challenge and have seen a pelvic floor physio twice. She says my pelvic floor is very strong from the exercises but I need to do some release work as I have hypertension in my pelvis.
I will check it out love the name buffmuff it's a long time isn't to go through pain thar we all have I'm totally at my wits end I'm also with the pelvic pain management but very nice to talk to but not helping with the pain do I carry on there I keep asking myself why up all night in pain too xx
I know. I had to give up my job coz of the no sleep. 8 years now waking up from midnight. I used to be gorgeous now I just look pain ravaged and gaunt. I have 4 prolapses which cause my bowel to be trapped so I have to use colonic irrigation to empty it. I can't eat now coz going for a poo is agony so I have meal replacement drinks. They promised me an operation 3 years ago but keep putting me off and now they say I need to put weight on before they will admit me but I can't coz I can't eat. The GPs have been disgraceful. I have been mostly ignored, won't give me pain relief, told I am just old, learn to live with it . Before I did this buff muff challenge I was only leaving the house about once every 3 or 4 weeks, I was in bits and getting nowhere. So being a gobby Scouser living in Yorkshire, I gave them hell. I wrote the complaint of all complaints. I have employed a pelvic floor physio and started the buff muff challenge and it has been a life changer. I am going out every day. I have not wet myself for five days. I have been going for a poo and not having to do the horrible colonic irrigation thing. And I have put some weight on. But yesterday the hospital phoned. They told me they are going to remove my whole bowel when for the past 4 years they have said they are just going to remove the small part that curls back on itself which causes this Obstructive Defecation. I hate their guts and they are liars. In 4 years since the GP referred me I have seen one doctor for 5 minutes, waited months and months and months for tests that they never gave me the results to and the rest of the "care" I received has been very infrequent phone calls. I have seen one uro gynae who told me my uterus wasn't hanging out enough yet but my GP says I need a full hysterectomy coz it's nearly out. And the cheeky 'nurse Shipman' who rang me yesterday told me I have had a lot of support. Sorry to be so long winded but they have destroyed my health and mental wellbeing and I wanted to emphasize to you the importance of ditching the doctor, the physio and vagina coach have done more for me in one month than them idiots have done in 8 years. I am still struggling by about 7pm and an still in pain most of the time but it's only been a month. I take my pregabalin at 2 in the morning coz my pain is worse from about 3 til 9 am. I'm thinking about becoming a vagina coach myself, God knows I've learned enough about the dam things while this has dragged on. Please give it a go. It will help. Good luck. Hey we are not alone in this any more, that's actually been the hardest thing . Take care
Omg what you are going through I can't believe it you can tell your scouser jokes made me laugh vag coach etc I'm scouseJust had pals on the phone do I feel like that im going round I circles chasing it's tail the chasing up with hospitals being passed from pillar to post & secretary's phones not being answered heart wrenching I just looked into buffmuff really good for prolapses & that good talking to you you made me laugh onwards & upwards fighting for some decent pain relief as 20mg patch & 10mg antriptylene at night doesn't do naff all good luck to you x
I thought you mentioned the Walton Centre, my grandsons live by Goodison. So as not to take up time on this site if you send me your email, I have some details on pain relief, and believe me, you would not believe what is going on with our healthcare and older people. I have also found a British version of buff muff. Lots and lots of information to share. Omg the Universe sends us what we need 🤗♥️
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