pudendal nerve motor latency test

[65566556____]

anyone had one of these and would like to share their experience. I’m thinking of having one on advise of pain management consultant.

[Karen1954]

Don’t do it!!!!!!! I had one and it has destroyed my life!!!!! The test made my sphincter go crazy and now pounds ALL THE TIME!!!!! I then had Botox and lateral internal sohincterotomy to help with the spasms but I’m SO MUCH WORSE!!!! When the tech told me it affects the sphincter I should have gotten up and run but I didn’t!!! BIG MISTAKE!!!!!!! Please let me know what u decide!!! I’m wishing u good luck!!!

[65566556____ in reply to Karen1954]

I think you’ve decided for me. I had my concerns over it making me worse or giving me symptoms that I didn’t already have. Have you seen anyone that has helped you in any way?

[Karen1954 in reply to 65566556____]

Unfortunately no! All my doctors say it’s nerve related but no one can find what nerves r firing!!!! I’ve had numerous blocks and injections and stimulators etc and NOTHING HAS WORKED!!!! What have u tried and what has caused your problem? I’m really curious!!! Thank u for reaching out!!!!

[65566556____ in reply to Karen1954]

Why did you have the pudendal latency test. They think you have pudendal neuralgia? I have suspected pudendal neuralgia thru cycling. Have you had pudendal nerve block?

[Karen1954 in reply to 65566556____]

It was ridiculous to have as my pudendal block didn’t help so that should have been a sign that I don’t have it but all my doctors said to do it!! As I mentioned it sent me in to a tailspin of pain and here I am in EXCRUCIATING pain and burning!!!! R u going to do it? I wish u the best in everything!!!! Please keep me posted!!!

[kalecolbe12 in reply to 65566556____]

I have to butt in here but I had these issues for 4 years and it was a multiple approach and over time thing for me with pelvic pt,baclofen muscle relaxer...exercises with deep breathing sitting on a tennis ball and moving around on it...heating pad...I also took gabapentin for two years which helped and the last thing left was the burning and anxiety from it all which I take Cymbalta 30 mg once a day for the last 2 years.I am now pretty much back to a normal life with a little flare up now and again which I get under control pretty fast...hope this helps...I was going to try the botox or sphincterotomy at my worst but decided against it but I know they help some people.

[Enf1988]

why ? isnt going to telll you anything

[65566556____ in reply to Enf1988]

I’ve had diagnostic nerve blocks but didn’t get required diagnostic numbness. Trying to find out for sure if it’s pudendal entrapment. Cyclist.

[Enf1988]

im pretty sure an mri will tell u that u have entrapment . u made need a high res mri machine

[65566556____ in reply to Enf1988]

I’ve had 3t mri’s of the pelvis. It came back clear but there is debate over whether it can be seen on an mri. And of course if an inexperienced radiologist is studying it he/she may not even know what he is looking for.

[Mochava in reply to 65566556____]

Neurology diagnosed mine and said the vaginal nerve conduction test in unnecessary.

[65566556____ in reply to Mochava]

I am different in that I have no anal or vaginal pain (internally) but lifestyle (cyclist) and other pain areas point to pn. I guess I just want confirmation before I opt for surgery. Been 2 years now. Steadily getting worse.

[Nike101 in reply to 65566556____]

This is totally spot on. It needs to be a 3T MRI, with an experienced radiologist who regularly interprets and reports on the pudendal nerve.

[65566556____ in reply to Nike101]

Thank you. I have had 3t mri of pelvis. Do you know anyone that can interpret it. I’ve sent several emails to second opinion of mri websites but heard nothing back.

[Nike101 in reply to 65566556____]

Where are you located?

[65566556____ in reply to Nike101]

Essex. But I have the images.

[Nike101 in reply to 65566556____]

I am in Australia. The 3T MRI I underwent in Sydney followed a specially designed pudendal nerve MRI protocol, that was designed by the radiologist who interpreted my scan. It also included functional assessment whilst in the machine (holding and then releasing your pelvic floor). It is so important that a specialised protocol is followed, and that the radiologist has special expertise in pudendal nerve imaging and interpretation.

Dr Hollis is an expert in MRI imaging in NYC, but she advised me that she does not have the bandwidth to read cases remotely.

Is there anywhere in London where a specialised pudendal nerve protocol can be undertaken?

[65566556____ in reply to Nike101]

No. no one here that I can find. Been to Australia 6 times. Love it there.

[Nike101 in reply to 65566556____]

If you are ever here in Sydney, the scanner and radiologist is at Sydney Adventist hospital. Dr Toos Sach. Cost about $700 AUD. A moderator from pudendalhope told me it was one of the most detailed and thorough MRI reports they had ever seen. He knows what he is doing.

[65566556____ in reply to Nike101]

Would love to come for another few weeks in Sydney however this injury prevents any travel. Did yours show impingement? I’m pretty sure I have a pudendal problem. Cyclist. But because I have no internal anus or vagina pain there is just that small element of doubt. Mine is all perineum, labia, glute crease, Sitbone, buttock and down leg.

[Nike101 in reply to 65566556____]

No I was clear of any entrapment. But the report was incredibly detailed. Of course, my bad haha, I too would have no chance of travelling a long distance at the moment either xxx 😂

[65566556____ in reply to Nike101]

So what’s your diagnosis then?

[Nike101 in reply to 65566556____]

Probable stretch injury according to my specialist here. Am very slowly improving

[65566556____ in reply to Nike101]

Pain areas?

[65566556____ in reply to Nike101]

where is your pain located?

[Mochava]

these are very very painful.