Fear of bladder prolapse returning

[Meze]

Hi5 years ago, after 2 years of incontinence issues,I had a major pelvic floor repair operation. It was traumatic as I needed much more stitching,recovery took over a year and I had to self catheterise for 6 months and struggle with dilators.

My pudendal nerve was cut during the op.

Now I am finding that my incontinence has returned and I feel a dragging ache in my vagina.It's also difficult to find a comfortable position to sit in,especially in the evenings. I wake to pee once or twice a night which is exhausting.

My Dr's appointment is not for a month.

Should I keep on with my Squeezy app exercises or rest? I walk and do yoga which helps. Does the Buff Muff help - has anyone used it?

Also,has anyone found a good pelvic floor specialist physio in East Sussex please?

Sending love and thoughts to anyone else suffering pelvic pain.

Sarah

[Country_Bumpkin87]

hi

I don’t know if the woman I met does Sussex more likely I’m afraid only parts of west Kent… I saw her privately at Tonbridge clinic however she also does private clinics at Nigel’s health club & I am trying to get under her incontinence support team via nhs- who said they’d refer but never bloody did 😡😳😔

Not had a prolapse so situation different but 37 menopausal having had years of chronic pelvic pain including hip osteoarthritis.

Had bladder/kidney ultrasound told all was fine then discharged again- even had to chase to get gynae to find me within their system- 11/04 a consult bet it doesn’t include scan even if it does not hopefully on much lol/

Anyway I can look her name up if you can get to Tonbridge Kent to see her- I’m super anxious yet she made everything so easy to talk test & plan… must go back just would rather nhs than private as can’t fund the consults or tests needed😳😔

I actually found her via the squeezy app- yet newer phone I don’t seem to have downloaded so now really should again!

Let me know if you’d like her name xx

[Meze in reply to Country_Bumpkin87]

HiThanks very much for this information.

It's very helpful.

Is that the Southdown club- Nigel Baker's one in Lewes?

I would really like the name of the person in Tonbridge please. That's not far to travel.

I'll have a look on the Squeezy app too.

I'd rather go NHS too..it just takes so long to see anyone.Finally got a Dr's appointment for 4 weeks time!

From my experience you have to keep ringing and emailing to see anyone.Worth it in the end.

I also found the book ' Heal Pelvic Pain' by Amy Stein brilliant to read.Helpful hints on exercises,diet and medication. I still refer to it.

Warm baths are good and a massage sometimes and a hot water bottle and keeping the area warm.Yoga helps too- Adrienne on line is fantastic. Stress makes it worse so try to keep relaxed.

Good luck with everything.

You will heal in time.

Love Sarah xx

[Country_Bumpkin87 in reply to Meze]

Sorry typo Nizels health club also near tonbridge. Restore-physio is her site Aishling her name- I must get back to fill her in & get further help/advice- she did not poo poo being menopausal advised accordingly I said I’d be back but have had other setbacks/scares now more relevant as was told high blood pressure linked to a uti I didn’t know I had- clearing that then they can sort why suddenly my pressures well above normal for me- means it may not be the thyroid playing games as could all be that alongside endometriosis back to bite me in the bum! 😔

She is lovely & available nhs (just got to try getting under her team) having to self refer as guess what after scans that go never did a referral 😱😡

It’s getting exhausting just chasing for answers to get back to being as right as I can. Not got alot of hope with gynae at mtw but we shall see can ask to be sent on if not happy xx

[Country_Bumpkin87 in reply to Country_Bumpkin87]

restore-physio.co.uk

I’ve also just emailed to get back in contact needing further help. She was so each to chat with & talk symptoms wasn’t embarrassing at all learning how hypertonic my pelvic floor is & sadly think she’ll tell me it hasn’t improved a lot despite her homework.

I got a great email report alongside lots of links & tips to follow for everyday bathroom problems 🙂

Also if you do struggle- there’s a card you can download or pay for physically showing the public & staff wherever that you need easy access to a loo!

chrome://external-file/BABC059_Just-cant-Wait-2.pdf

Xx