Looking for a case study who has pelvic inflammatory disease

Hi Karen, I would be happy for you to talk to me, I have had a lot of pelvic inflammatory disease, starteting with hysterectomy and then ovaries and then gall bladder and then Ic and had to have cystoplasty and fifteen years on have adhesions surround the bowel and giving me sub acute bowel obstruction. And No there is no help out there when you you are so desperate for it. Doctors are very easy to get you out of the surgery within ten minutes with a " take paracetamol" I struggle to get comfortable and found by mistake that Tramadol eases the pain but makes constipation worse so viscious circle.

let me know if I can help, we need to have more awareness and maybe more research so women can lead a reasonable pain free existence. If I was not a coward I would have happily ended my life. The pain is unbearable and no one listens.

Hi there, not sure if you have now completed your research, but if I can add to the conversation at all, I would be happy to.

I had it the year before last following complications post IUD procedure. Not fun; had no idea where to go with the post hospital pain/issues; didn't want to fuss!

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Hi I have been diagnosed with dilated pelvic veins. Is this the same?

Hi Karen, I have just been diagnosed with pelvic organ prolapse. I am 71 and doctor was unhelpful saying I should just live with it. It is extremely uncomfortable, but now I would say it is painful. I have paid to see a physio and she seems ok. Talked me through the probable reasons for it. Seems quite right about it too. She has given me exercises and advice about how I go to the loo. This has improved. But it seems hard to keep up exercises when it feels like there is nothing happening and no improvement. I pressed my doctor for physio, but there was an 8 week delay. Said I must try this first. Would be interested if you can give me any advice. Thanks

I have had pelvic floor issues for 13 years. It was only about 8 years ago that I first read a very small article in the entire internet about Pudendal Neuralgia. I copied and took that to the neurologist whom I was treating with at the time. He read it and asked me where I got it! He kept the article, but didn't change any treatment. He treated with high powered medication only which continued to change, but did nothing for me. I changed doctor's several times with several injections here and there, which did NO good. I had an SI joint fusion and also had my coccyx removed in an attempt to relieve the pain! Nothing helped! Hey, I was only searching for relief and believed each attempt would be the hit! I continued to change pain specialist as each had a new treatment. I have tried three spinal cord stimulators. (neurostimulators) Nothing has ever worked....until my GYN referred me to a diagnostic radiologist who was employed by the Orthopedic Spine Institute. I had the injection. He used a fluoroscope guided steroid procedure. I had relief for a while and when I asked for another he refused and said I needed a CT guided injection, and since he didn't have access to one and didn't have hospital privileges, he refused. So far I have been unable to have a CT guided by someone who knows how to do it.

Medical Marijuana is legal in my state and I finally saw a doctor and started that route. Since I hurt when sitting or lying down, I could not sleep much at night. I cannot take much THC during the day as I get a sluggish and uncomfortable feeling, but the medication I use at night must help with the pain, inflammation, and makes me drowsy. This works for sleeping! I am still searching for something to ease this very debilitating condition.

I will tell you for certain, opiods do not work for neuropathic pain!

I will help if there is any additional information you may want.

There are several support groups which I find are very helpful. People freely answer and ask questions. There are not physicians properly trained to deal with pelvic floor issues in the US.