Pudendal Nueralgia Tips Please

[Poodlemomma]

Good Morning Everyone! I am wondering if anyone has any tips or advice on how to navigate the options for PN treatment given my history below:I had a hystorectomy 2 years ago and woke up in immediate pudendal nerve pain with terrible bladder spasms and nerve shocking and stabbing pain yhrougout the area of the pudendal nerve. I was misdiagnosed and brushed off for months until I used AI to Google my symptoms and told my urologist about them. They had done bladder botox with no improvement as well as a low dose of Cymbalta (which helped a tiny bit). They sent me to get a pudendal nerve block which was positive as it alleviated pain for several hours after. However, it flared my pain for months and triggered piriformis syndrome. I then did botox to the entire pelvic floor and it worsened my symptoms that were mostly on the keft to both sides. However, the botox allievated the pirformis syndrome. I've been in PT for over a year with minimal gains. Any ideas of what next steps may be? Do any of you know what makes a patient a good candidate for entrsptment surgery? Thank you!

[Summer20244]

I had nerve block gave me butt cheek pain

The only thing that has helped me so far is the ketamine infusion And pelvic floor stretches mine came in after surgery .

[VFR1200]

You should see a pudendal neuralgia specialist, who can treat you with the right medication and even refer you for treatments such as Pulsed RadioFrequency or even de-compression surgery. Contact the Bristol Pain Clinic, Dr Gareth Greenslade, who has helped me considerably.

[Mochava]

hi.. sorry for what your going through. The pudendal shot did the same thing to me. After seeing neurologist, and spine specialist they suggested a cottle epidural and I finally had it done, painless and pain free… no side effects.

[Summer20244 in reply to Mochava]

How long will the injection work for ?

[RobertVerde]

I have also suffered from Pudendal Neuralgia for many years. I had seen many urologists for this and none had any idea what was wrong with me. Most performed cystoscopy procedures / prescribed Cipro and then told me it was in my “head”.

I finally found a doctor that knew what the problem was the instant I met him. He suggested I see a Physical Therapist that specialized in treating this type of medical issue. Note: this doc has since retired.

I was lucky to find a PT that was located close to me that literally saved my life. I am pretty much pain free for 95% of the time and she taught me how to self-treat when I have flare ups. I go once a month for a tune up to be sure I am OK.

Daily Meds: I take 150 MG of Pregabalin in the AM / PM & 20 MG of Duloxetene PM only

Here are two websites that will help with information:

pudendalhope.info/ - this one also has listings of PT's around the world.

health.usnews.com/health-ne...

I also found a book that helped me as well: “A headache in the Pelvis” which you can find on Amazon.

Good Luck!