Autistic and just diagnosed with Epilepsy im so scared

[Brynrhian]

Hi my son is 22, Autistic and has learning difficulties he has just had his second seizure, so has been told he is Epileptic, im scared, gave him his first dose of Sodium Valterate this morning, i hate hes on this medicine, i cant eat or sleep and trying to be Strong for my beautiful boy.

[Comedy]

I am so sorry to hear what you are going through. My son is 27 with autism and started seizures at age 12. As far as autism, I thought we were doing well and honestly it is the least of our problems since epilepsy but I will tell you that he was on 11 different medications and even did the pre test for seizure surgery but about 16 months ago he went onto depakote and has been seizure free for 14 months. So I guess what I am saying is that I hope you have the same success with your sons Med as my son has had and he is happier on this Med. He was defeated with all of the Previous seizures. Sending lots of prayers your way. You are not alone.

[Brynrhian in reply to Comedy]

Hi thank you for replying, im glad your son is doing better ❤️Very early days for him.

[EpilepsyAction1 Partner Epilepsy Action]

Hi

Thank you for your message. A new diagnosis can be scary and difficult to deal with.

I'm glad to see you've heard from others on this platform, as sharing information and experiences can be a good idea. Can I just check you also know about our other services?

We have lots of information on our website epilepsy.org.uk that may be useful for you. This includes information about diagnosis, treatment, seizure types, first aid, daily living, wellbeing and information specifically for carers of someone with epilepsy and a learning disability.

We have our talk and support groups epilepsy.org.uk/talk-and-su.... And we are on Facebook facebook.com/epilepsyaction and twitter twitter.com/epilepsyaction.

Finally, please feel free to contact our helpline team. You can either email [e-mail] or phone the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5pm and Saturday 10am until 4pm.

Regards

Jess

Epilepsy Action Helpline Team

[Brynrhian in reply to EpilepsyAction1]

Thank you ❤️