Wife has hms +eds type 2 when was the last time you both spent time as a husband and wife like walking hand in hand down street??

[Christaylor4076]

Hi I'm 42 and my wife is also 42 and she has this horrible condition,

Last year she had knee surgery to make dislocation less which was I think a great success. But not so long after the op my wife had a mishap when the dog jumped up to her in excitement, which in turn caused my wife to fall and snap her tibia clean,it was awful for her so back in hospital and two more opps,some hip bone taken to help the tibia heal as it wasn't healing.

In all 12 months being led up stuck in bed at home using a comode/ wheelchair.

With all this we wasn't spending time as a couple not walking around asda/town anywhere hand in hand like we use to do

Think caring for her,we misplaced the time for her and me as a couple married for 20 years as a career rather than a husband.

I love her with all my heart and didn't see this happening ,I love her and wouldnt have done anything differently apart from been her husband as well

Very stresfull time for both of us, have any other couples let this happen without notice if it has how do you put it right as I love her with all my heart

[Lulububs]

Hey chris

I been with my husband 27 years we are 44 and i have recently been diagnosed hms + hypmobiloty and it is crappy thing to have.

I have had ( wait for it) broken wrist, toes, fingers, both side of jaw, i also suffer internally with ibs and periods . I crack my ribs by getting out of bed.

I know how hard it is and my husband like has to do most of the hard work in house coz i suffer daily with pain and it not worth the hassle of WHAT MAY HAPPEN!

We try to have date nights even if just a film and something to eat.

We both work full time to so we both so tired all time anyway.

We still laugh ALOT!!

Think u just got to laugh at situation sometimes or u would just cry.

Is there someone u can speak to? Mates , u must keep ur own life not only b a carer .. keep ur own friends.

Or u will just resent her and the thing is no matter how bad u feel believe me she feels worse.

I feel i am 80 sometimes in a 44 year olds body( although people say oh u only look 30) wished i felt it!!!

[gillianTS]

Lulububs is correct you have to think outside of what is currently happening and think about how you can both create time for each other in different settings, I read the following and thought it might be helpful looking at how others find ways of making relationship work, it's a little personal as is a suggested link, and there are many other positive stories you can read, just make sure you are both involved in how you can both as a couple help one another in happiness, love and friendship:

easterseals.com/explore-res...

google.com/amp/s/theconvers...

🤗

[Christaylor4076 in reply to gillianTS]

The Thing is divorce is immenent already been told to leave family home got pat the stage of everything just didnt see what was happening