Hi everyone, I’m new to this forum. I’ve been having all sorts of widespread pain problems and getting nowhere with GP, they have me pegged as a hypochondriac.
Recently I’ve had several appointments with an osteopath due to terrible neck/jaw and shoulder pain. Within 10 minutes he said I think you need to be assessed for ehlers danlos! I’ve always suspected I’m hypermobile, I’ve very flexible and every single joint clicks and crunches. My son has spinal problems and has been diagnosed hypermobile by a physio so I guess it’s definitely possible. I went to GP last week and she snorted at me and told me to double my sertraline dose!!! I’ve only been taking sertraline for anxiety due to 8 months of pain, exhaustion and digestive problems with no answers despite CT scan, gastroscopy and endoscopy. This all started after terrible food poisoning last summer which I believe has triggered a flare of something. Still waiting autoimmune profile blood results. Already diagnosed hypothyroid, Hashimotos.
Can anyone advise me what to do next? I’m going to try GP again this week, what tests should I request re ED? Should I ask for rheumatology appt or Neuro? I will admit it’s really getting me down.
Sorry it’s so long and thanks so much if you got to the end of this!!! Becky