I've just been diagnosed with hypermobile joint sydrome.
I've had significant health issues for about 11 years now but things got a lot worse over the past 6 months. I've had joint and muscle pains for more years than this but mostly self managed and saw an osteopath (which did help a bit) when things got bad as the GP wasn't much help.
I also have also had IBS type symptoms since I was a teenager but haven't ever really sought help for them. Just self managed again.
I also get very frequent migraines. I have sought help for this one but so far all the different preventative medication I've tried hasn't been effective.
I have recently also been given a probable diagnosis of chronic fatigue syndrome to explain my other symptoms (but this was by a neurologist who really didn't listen to me properly at all and actually wrote things that were inaccurate in my letter).
After reading a bit about it I think I actually have PoTS. I only found out about this after reading information I was given about hypermobile joint syndrome. I read about it and it really fits my symptoms and did an active stand test at home and I fit the criteria.
I'm going to discuss this all with my GP when I see them on Friday.
There is something I'm confused about though that I was hoping you could help with.
What is the difference between hypermobile joint syndrome and hypermobile Elhor-Danlos syndrome? Are they actually the same thing?